Post Surgery Questions

February 12, 2010

Sorry I do not have an intro posted before as I did not find this site until

just before my surgery mid January of this year.

I had a left laproscopic adrenalectomy 3 1/2 weeks ago and my blood pressure has

been great and I am off all meds.

However, my heart rate has increased to anywhere from 95-119 and couple times to

130. (Before surgery was it was 87-109 on meds.) I did a search of this site and

I thought I saw where Dr. Grimm said that is a good sign?

Is that right?

My other question is my calves, shoulders and neck and have become very stiff

and sore 3 weeks after the surgery. Even my carpal tunnel has flared up again.

Could these symptoms be a result of the adrenalectomy? Any idea on when things

will settle or even out?

Thank you.

February 12, 2010

Your BP control systems are readjusting to no more excess aldo-hopefully.

Keep us posted.

What has K been doing. Was renin and aldo checked after surgery yet. How long was the surgery?

Give us your story (in an email) and they in files after we review and comment when you are back on your feet.

Get a copy of the adrenal path report for you and yoru families file.

Clarence E. Grim, BS, MS, MD

Specializing in Primary Aldosteronism, Difficult High Blood Pressure and recent evolutionary forces on high blood pressure in populations today.

On Friday, February 12, 2010, at 11:30AM, "bugstr" <bugstr@...> wrote:

>

Sorry I do not have an intro posted before as I did not find this site until just before my surgery mid January of this year.

I had a left laproscopic adrenalectomy 3 1/2 weeks ago and my blood pressure has been great and I am off all meds.

However, my heart rate has increased to anywhere from 95-119 and couple times to 130. (Before surgery was it was 87-109 on meds.) I did a search of this site and I thought I saw where Dr. Grimm said that is a good sign?

Is that right?

My other question is my calves, shoulders and neck and have become very stiff and sore 3 weeks after the surgery. Even my carpal tunnel has flared up again.

Could these symptoms be a result of the adrenalectomy? Any idea on when things will settle or even out?

Thank you.

February 13, 2010

Thank you Dr. Grimm for your quick response.

" Your BP control systems are readjusting to no more excess aldo- "

Just a clarification please, do you mean both the heart rate and muscle ache and

joint pain or just the heart rate?

" Get a copy of the adrenal path report for you and yoru families file. " Bear

with me please explain why? Other than to keep records in case of future needs.

I thought only rare cases was hereditary.

In answer to your questions,

no after surgery blood work other than what was taken while in the hospital.

Follow up appt with surgeon Mon. hopefully he will have those results. Blood

drawn in 3 weeks before endo appt.

My surgery was about 2 1/2 hours.

My K has always been within normal rages.

Thanks again

Happy Valentines All

PS

anyone else have input on how you felt month out of surgery?

- In hyperaldosteronism , lowerbp2 <lowerbp2@...> wrote:

>

> Your BP control systems are readjusting to no more excess aldo-hopefully.

>

> Keep us posted.

>

> What has K been doing.

>

> Was renin and aldo checked after surgery yet.

>

> How long was the surgery?

>

> Give us your story (in an email) and they in files after we review and comment

when you are back on your feet.

>

> Get a copy of the adrenal path report for you and yoru families file.

>

> Clarence E. Grim, BS, MS, MD

> Specializing in Primary Aldosteronism, Difficult High Blood Pressure and

recent evolutionary forces on high blood pressure in populations today.

>

> On Friday, February 12, 2010, at 11:30AM, " bugstr " <bugstr@...> wrote:

> >

>

February 13, 2010

Thank you Dr. Grimm for your quick response.

" Your BP control systems are readjusting to no more excess aldo- "

Just a clarification please, do you mean both the heart rate and muscle ache and

joint pain or just the heart rate?

" Get a copy of the adrenal path report for you and yoru families file. " Bear

with me please explain why? Other than to keep records in case of future needs.

I thought only rare cases was hereditary.

In answer to your questions,

no after surgery blood work other than what was taken while in the hospital.

Follow up appt with surgeon Mon. hopefully he will have those results. Blood

drawn in 3 weeks before endo appt.

My surgery was about 2 1/2 hours.

My K has always been within normal rages.

Thanks again

Happy Valentines All

PS

anyone else have input on how you felt month out of surgery?

- In hyperaldosteronism , lowerbp2 <lowerbp2@...> wrote:

>

> Your BP control systems are readjusting to no more excess aldo-hopefully.

>

> Keep us posted.

>

> What has K been doing.

>

> Was renin and aldo checked after surgery yet.

>

> How long was the surgery?

>

> Give us your story (in an email) and they in files after we review and comment

when you are back on your feet.

>

> Get a copy of the adrenal path report for you and yoru families file.

>

> Clarence E. Grim, BS, MS, MD

> Specializing in Primary Aldosteronism, Difficult High Blood Pressure and

recent evolutionary forces on high blood pressure in populations today.

>

> On Friday, February 12, 2010, at 11:30AM, " bugstr " <bugstr@...> wrote:

> >

>

February 13, 2010

Hello, I do not have a diagnosis yet. Have had many symptoms beginning in 2008.

Would be interested in your story, let us know if you post it in Files.

Suzanne

> > >

> >

>

February 13, 2010

Hello, I do not have a diagnosis yet. Have had many symptoms beginning in 2008.

Would be interested in your story, let us know if you post it in Files.

Suzanne

> > >

> >

>

February 14, 2010

You want to know if any of the rest of the adrenal has smaller bumps outside the big one. If so much more likely it is on both sides but time will tell. Even tho inherited forms are rare if u have it then 50% of your first degree relatives will (on the average) have it as well. You will save them lots of trouble in the future and likely save lives. The first clue is that your familyTree shows strokesIn men before age 50 or Htn in 2 generations with an age of onsetAs early as 5. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Feb 13, 2010, at 7:07 AM, bugstr <bugstr@...> wrote:

Thank you Dr. Grimm for your quick response.

"Your BP control systems are readjusting to no more excess aldo-"

Just a clarification please, do you mean both the heart rate and muscle ache and joint pain or just the heart rate?

"Get a copy of the adrenal path report for you and yoru families file." Bear with me please explain why? Other than to keep records in case of future needs. I thought only rare cases was hereditary.

In answer to your questions,

no after surgery blood work other than what was taken while in the hospital. Follow up appt with surgeon Mon. hopefully he will have those results. Blood drawn in 3 weeks before endo appt.

My surgery was about 2 1/2 hours.

My K has always been within normal rages.

Thanks again

Happy Valentines All

PS

anyone else have input on how you felt month out of surgery?

- In hyperaldosteronism , lowerbp2 <lowerbp2@...> wrote:

>

> Your BP control systems are readjusting to no more excess aldo-hopefully.

>

> Keep us posted.

>

> What has K been doing.

>

> Was renin and aldo checked after surgery yet.

>

> How long was the surgery?

>

> Give us your story (in an email) and they in files after we review and comment when you are back on your feet.

>

> Get a copy of the adrenal path report for you and yoru families file.

>

> Clarence E. Grim, BS, MS, MD

> Specializing in Primary Aldosteronism, Difficult High Blood Pressure and recent evolutionary forces on high blood pressure in populations today.

>

> On Friday, February 12, 2010, at 11:30AM, "bugstr" <bugstr@...> wrote:

> >

>

February 14, 2010

Muscle and joint pain may be due to stayingmin one position duringSurgery. Should be getting better. Can u give more detaiols on pains?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Feb 13, 2010, at 7:07 AM, bugstr <bugstr@...> wrote:

Thank you Dr. Grimm for your quick response.

"Your BP control systems are readjusting to no more excess aldo-"

Just a clarification please, do you mean both the heart rate and muscle ache and joint pain or just the heart rate?

"Get a copy of the adrenal path report for you and yoru families file." Bear with me please explain why? Other than to keep records in case of future needs. I thought only rare cases was hereditary.

In answer to your questions,

no after surgery blood work other than what was taken while in the hospital. Follow up appt with surgeon Mon. hopefully he will have those results. Blood drawn in 3 weeks before endo appt.

My surgery was about 2 1/2 hours.

My K has always been within normal rages.

Thanks again

Happy Valentines All

PS

anyone else have input on how you felt month out of surgery?

- In hyperaldosteronism , lowerbp2 <lowerbp2@...> wrote:

>

> Your BP control systems are readjusting to no more excess aldo-hopefully.

>

> Keep us posted.

>

> What has K been doing.

>

> Was renin and aldo checked after surgery yet.

>

> How long was the surgery?

>

> Give us your story (in an email) and they in files after we review and comment when you are back on your feet.

>

> Get a copy of the adrenal path report for you and yoru families file.

>

> Clarence E. Grim, BS, MS, MD

> Specializing in Primary Aldosteronism, Difficult High Blood Pressure and recent evolutionary forces on high blood pressure in populations today.

>

> On Friday, February 12, 2010, at 11:30AM, "bugstr" <bugstr@...> wrote:

> >

>

February 14, 2010

DOH! slapping forehead, Path is short for pathology, I should have known that.

Sorry, I've been spelling your name wrong.

Okay, thanks good to know about the posibility of other family members getting

it. Two of my brothers have high BP now but both are over 50 and one is obese.

> > > >

> > >

> >

>

February 14, 2010

" Muscle and joint pain may be due to stayingmin one position during Surgery "

but 4 weeks after?

It is mainly stiffness in calves, neck and shoulders. Also the arthritis in big

toes and thumbs have flared up.

And what about my weight gain?? Everyone else said they lost. I have put on at

least 3 lbs and am bloated everywhere.

thanks again

My story is typed up but I have to figure out how to post it.

> > > >

> > >

> >

>

February 14, 2010

Write your story

in any manner you choose. If

it is easier for you, just copy your messages you have already sent

to the list, add Dr. Grim’s comments (if

any) and paste them all to a Word file and save. Remember where you saved your story

on your computer.

On the Hyperaldosteronism main page, click on

“Files” on the left

Find the folder

called “Conns Stories.”

Click on

“Add File” at the bottom right.

Click

“Browse” to find it on your computer.

Type in a short

description like “Joe’s story.”

Click on the box

to send a message to the group to notify them of the addition.

8.

Click

on “Upload File.”

If

you want to update your information, do the additions/corrections in the file

on your computer. Then delete the

file you previously uploaded to and re-upload per the instructions above. Only the original author can delete your

story. If you try to upload your

story with the same file name, won't allow a duplicate.

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of bugstr

My

story is typed up but I have to figure out how to post it.

February 14, 2010

Thanks Val, you posted same time I was figuring it out. I sent it but clicked

send before checking box.

>

> 1. Write your story in any manner you choose. If it is easier for you,

> just copy your messages you have already sent to the list, add Dr.

> Grim's comments (if any) and paste them all to a Word file and save.

> Remember where you saved your story on your computer.

> 2. On the Hyperaldosteronism main page, click on " Files " on the left

> 3. Find the folder called " Conns Stories. "

> 4. Click on " Add File " at the bottom right.

> 5. Click " Browse " to find it on your computer.

> 6. Type in a short description like " Joe's story. "

> 7. Click on the box to send a message to the group to notify them of

> the addition.

> 8. Click on " Upload File. "

>

> If you want to update your information, do the additions/corrections in the

> file on your computer. Then delete the file you previously uploaded to

> and re-upload per the instructions above. Only the original author

> can delete your story. If you try to upload your story with the same file

> name, won't allow a duplicate.

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of bugstr

>

> My story is typed up but I have to figure out how to post it.

>

February 14, 2010

In your story, you list a bunch of symptoms you had. What has resolved and what continues?

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of bugstr

Thanks Val, you posted same time I was figuring it out. I

sent it but clicked send before checking box.

February 14, 2010

Gout?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Feb 14, 2010, at 8:04 PM, bugstr <bugstr@...> wrote:

"Muscle and joint pain may be due to stayingmin one position during Surgery"

but 4 weeks after?

It is mainly stiffness in calves, neck and shoulders. Also the arthritis in big toes and thumbs have flared up.

And what about my weight gain?? Everyone else said they lost. I have put on at least 3 lbs and am bloated everywhere.

thanks again

My story is typed up but I have to figure out how to post it.

> > > >

> > >

> >

>

February 14, 2010

When did bros HTN START?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Feb 14, 2010, at 7:52 PM, bugstr <bugstr@...> wrote:

DOH! slapping forehead, Path is short for pathology, I should have known that. Sorry, I've been spelling your name wrong.

Okay, thanks good to know about the posibility of other family members getting it. Two of my brothers have high BP now but both are over 50 and one is obese.

> > > >

> > >

> >

>

February 15, 2010

Sorry, all symptoms but rapic heart rate and weight are gone. Actually have

gained couple of lbs.

In hyperaldosteronism , " Valarie " <val@...> wrote:

>

> In your story, you list a bunch of symptoms you had. What has resolved and

> what continues?

>

> Val

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of bugstr

>

> Thanks Val, you posted same time I was figuring it out. I sent it but

> clicked send before checking box.

>

February 15, 2010

Forgot to add, I am still a little foggy in morning upon waking but it resolves

guickly. I was waiting to post those things a little farther out of the surgery

to see if things settle.

Dr. Grim, pretty sure it's not gout, I have bone spurs on toe joints. My carpal

tutunnel has flared up again too.

Maybe my stopping omega fish oil before surgery has caused the joint flare up.

I just resumed the fish oil this week.

>

> In your story, you list a bunch of symptoms you had. What has resolved and

> what continues?

>

> Val

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of bugstr

>

> Thanks Val, you posted same time I was figuring it out. I sent it but

> clicked send before checking box.

>

February 15, 2010

Whoa, I just googled gout...maybe. I thought gout was big toes. I see it can

show up after surgery. I'll check that out.

-- In hyperaldosteronism , Clarence Grim <lowerbp2@...> wrote:

>

> Gout?

>

> Tiped sad Send form mi

> iPhone ;-)

>

> May your pressure be low!

>

> CE Grim MD

> Specializing in Difficult

> Hypertension

>

> On Feb 14, 2010, at 8:04 PM, bugstr <bugstr@...> wrote:

>

> > " Muscle and joint pain may be due to stayingmin one position during

> > Surgery "

> > but 4 weeks after?

> > It is mainly stiffness in calves, neck and shoulders. Also the

> > arthritis in big toes and thumbs have flared up.

> >

> > And what about my weight gain?? Everyone else said they lost. I have

> > put on at least 3 lbs and am bloated everywhere.

> >

> > thanks again

> >

> > My story is typed up but I have to figure out how to post it.

> >

> > > > > >

> > > > >

> > > >

> > >

> >

>

February 15, 2010

Classically big toe. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Feb 15, 2010, at 8:36 AM, bugstr <bugstr@...> wrote:

Whoa, I just googled gout...maybe. I thought gout was big toes. I see it can show up after surgery. I'll check that out.

-- In hyperaldosteronism , Clarence Grim <lowerbp2@...> wrote:

>

> Gout?

>

> Tiped sad Send form mi

> iPhone ;-)

>

> May your pressure be low!

>

> CE Grim MD

> Specializing in Difficult

> Hypertension

>

> On Feb 14, 2010, at 8:04 PM, bugstr <bugstr@...> wrote:

>

> > "Muscle and joint pain may be due to stayingmin one position during

> > Surgery"

> > but 4 weeks after?

> > It is mainly stiffness in calves, neck and shoulders. Also the

> > arthritis in big toes and thumbs have flared up.

> >

> > And what about my weight gain?? Everyone else said they lost. I have

> > put on at least 3 lbs and am bloated everywhere.

> >

> > thanks again

> >

> > My story is typed up but I have to figure out how to post it.

> >

> > > > > >

> > > > >

> > > >

> > >

> >

>

February 15, 2010

Well u have got to give us and ur dr all the details I u want the best answers nTiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Feb 15, 2010, at 8:24 AM, bugstr <bugstr@...> wrote:

Forgot to add, I am still a little foggy in morning upon waking but it resolves guickly. I was waiting to post those things a little farther out of the surgery to see if things settle.

Dr. Grim, pretty sure it's not gout, I have bone spurs on toe joints. My carpal tutunnel has flared up again too.

Maybe my stopping omega fish oil before surgery has caused the joint flare up.

I just resumed the fish oil this week.

>

> In your story, you list a bunch of symptoms you had. What has resolved and

> what continues?

>

> Val

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of bugstr

>

> Thanks Val, you posted same time I was figuring it out. I sent it but

> clicked send before checking box.

>

February 15, 2010

Hello, I read your story and the symptoms definitely have many similarities to

mine and many others from what I read on this group. Also, I too was on Yaz for

about a year before my symptoms started; wonder about a connection, presumably

the progestin ingredient is chemically similar to spironolactone... I have

complete exhaustion, avoid some social contact because I know I can't stay awake

late and am more tired next day, feel tired as soon as I wake in morning, etc.

I went to new endo today. My aldo/renin ratio is 28.5; he said that is

" suggestive " of PA but he does not believe I have it since K is not low; said he

likes to see ratio higher than 30 for definitive diagnosis. However he did ask

me to go off meds (captopril is only current med - ugh, just when my BP is

finally normal now I have to let it go high again) for one month then redraw

aldo/renin/chemistries. That is fair. He said he diagnoses 2-3 cases of PA per

year; figures it is cause of about 7-8% of people with HTN. Was not impressed

that my renin was low and aldo normal in 2008 when this started, so next time

I'll take him Dr Grim's article on evolution of PA.

He asked how I was referred to him, I told him that I searched on this

group; told him of Dr Grim. He said I had done a lot of homework and was well

informed. Think that may be only reason he is going to repeat the aldo/renin in

a month, not sure.. He said since my NA and K changed so fast on HCTZ and

captopril, could be suggestive of renal artery stenosis; he may pursue that by

ultrasound if aldo/renin not over 30 next time....

> >

> > In your story, you list a bunch of symptoms you had. What has resolved and

> > what continues?

> >

> > Val

> >

> > From: hyperaldosteronism

> > [mailto:hyperaldosteronism ] On Behalf Of bugstr

> >

> > Thanks Val, you posted same time I was figuring it out. I sent it but

> > clicked send before checking box.

> >

>

February 15, 2010