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Hi ,

I'm in the US and was diagnosed about 3 years ago. I was Stage 4 when diagnosed and in retrospect I believe I went undiagnosed for probably at least 20 years. I've had a couple of high creatinine levels but they were both done on a 14 hour fasting specimen. My non-fasting levels are ok so I'm hoping the abnormal levels are due to poor hydration. Do you remember if your tests that showed deteriorating kidney function were fasting?

I'm with you though, I wonder/worry about the long-term effects of spiro. On the other hand, we know what too much aldosterone does to the body and it isn't pretty, so we're between a rock and a hard place.

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From: Walcott- <hwn_2001hotmail (DOT) com>Subject: RE: [hyperaldosteronism ] Why do we want salt?hyperaldosteronismDate: Thursday, January 14, 2010, 8:45 AM

hello Dr Grimjust got back from Barts hosiptal, today they have confirmed Avs test show that both my Adrenals are producing adolestrone. they have told me that surgery to remove the adrenals is not an option, therefore they will increased my spirolactone and they have introduced Amolodipineis their anything else that can be done to cured me of this dreaded condition, the worst thing is the night sweats and the the constant peeing and all the side effects from the medication including low labido l think it is now impacting on my marriage.pls can you advise on the way forward. Regards Walcott-

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