Lyme

[Guest guest]

I'm going to talk to the PA about it.  Doxycycline is well-proven in the treatment

of Lyme.  I'm not convinced that

time-release is necessary, but perhaps it is preferable to maintain a constant

level.  I'm still learning.  I spent so much time learning about thyroid,

then parathyroid, then PA, and now I have to learn about Lyme.  It won't be so expensive next round because I

got the deductible paid with one prescription.

I think response is monitored by patient reaction since there

really are no satisfactory tests.  ILADS

is a group that believes in treating long-term Lyme. http://www.ilads.org/files/ILADS_Guidelines.pdf

My niece was treated for about 1.5 years and is nearly well -

contrasted to being nearly an invalid before. 

She had various drugs at various times but I don't understand the timing

or reason for the various treatments.  Levaquin

gave me a few weeks of feeling well but doxycycline has made me pretty sick.

Here is a presentation my doc did:  http://www.lymeinducedautism.com/images/Lymewhat_is_it_part_3,_LIA.pdf  Docs like him are pioneers.  I'm putting my life in his hands because I

have no life otherwise.  I've been to U

of Colorado, Mayo, National Jewish, two endos, three GPs and on and on. 

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

For

that price I would expect very good trials to demonstrate they make people

better. I would ask for the proof. If the effect is so dramatic it would

take a small proper trial.

On Jan 15, 2010, at 9:46 PM, Valarie <val@...>

wrote:

I have a telephone meeting on

1/20. I don't know enough yet. I assume I will take these drugs for

a period of time, observe how I react, and then retest. I had a very bad

day which I've read is to be expected. The problem with the bad day is

its related to the $600 RX.

Val

From:

hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

BTW Doxy and epeler and spiro are all metabolized by same mechanism. So

it is possible that adding them increased effect of spiro or eleple or Lyme is

causing some of the problem. How do they monitor the response to Rx?

CE

Grim