RE: Hi, Iam neww and looking for advice, Iam waiting to be admitted for testing

[Guest guest]

good point Farah. Thanks. CE Grim MDOn Jan 10, 2010, at 11:08 PM, Farah Rahbar wrote:Hi Mandy:You mentioned you drank a lot of tea. Just curious if you've ever checked the contents of the teas you drink. If they contain any licorice, it could be the cause of your problems. I notice a lot of herbal infuson teas contain one kind of licorice or another. Licorice can cause PA like symptoms and high blood pressure.Farah2010/1/10 Mandy Moseley <moseleymandhotmail (DOT) co.uk> Hi, Ive read the document you recommened I read, it was very interesting thank you. I believe Iam at stage 3, possibly stage 4. I have many of the symptoms but not all of them. I do get a punding heart, palaptations at times aswell.. I was a fitness Instructor when i ve tried to go even when i feel lousy (but mentally it helps me feel like mandy) i do struggle with cramps in my feet, leg spasm etc if I havent stuck to my diet and i try to go any excersise makes me swell up more even just walking.. This section below I think applies to me, it would make sense the fluctuations in my facial spasm, arm,neck, leg etc..and other symptoms. I follow a very low carb, sugar free and more recently very low salt diet..and i also have taken latley to drinking tea, as it makes me feel better.. So, if I already have low potassium due to a underlying problem the directic and my diet may be aggrevating those symptoms further... So, the best thing i could do I suppose is now stay away from the salt and stop drinking tea, Iam sure ive read its a directic and may cause you to loose potassium... (20μg/d). The renin would be lower, the aldosteronehigher, and the ARR higher than in stage 2. Aldosteroneproduction would no longer suppress into the "normal"range, and hypokalemia might be precipitated by alow potassium intake, diuretic use, or extrarenal loss ofpotassium in sweat, vomit, or stool mandy:)hyperaldosteronism From: lowerbp2macDate: Sun, 10 Jan 2010 12:15:45 -0800Subject: Re: Hi, Iam neww and looking for advice, Iam waiting to be admitted for testing Don't know if they have Lyme in Eng Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Jan 10, 2010, at 8:33 AM, Valarie <val@...> wrote: Mandy, I would not presume to tell you what's wrong with you, but I have all your syptoms and I have Lyme disease with the coinfection, bartonella. I've gotten worse and worse over the years. Many of my symptoms have improved a bit on antibiotics. My BP is down 15 points and heart rate down 8 points. I've gone from 150 mg spiro to 75 mg spiro + 25 mg Inspra. Eventually, I will be totally on Inspra, and maybe not even that in the long run. My recurring low K improved on spiro. Have you had tests for Celiac? Aldosterone and renin? Your thyroid hormones are low in the face of a normal TSH. That could indicate a pituitary problem. Also sounds like Candida. Where's Barts Hospital? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of MandyMIve been having problems for 4 years but believe i had something going on for a long time. I have had to do alot of fighting but Iam going into Barts hospital this month for a weeks testing to see whats going on.My symptoms:Puffy face, eyes, belly water retention in the legs.Ears ringning very loud at certain times (just realised with salt)Irritable, anxiousI go very pale at timesFatigueRight side fluctuating spasm in my face, neck, arm, legSweating all teh time or not at allTieredPain in my right side of back i think its kidneysSystemic fungal infectionHigh BP - when i am swollen ( when eaten salt, sugar etc)SeizureIf I ve eaten salt and start to drink water I just swell up and all symptoms get worse.Ive seemed to become a tea addict as it was making me feel a bit better and have now realised I think Ive been using it as a directic ..it does make me feel very jittery at times and if i eat chocolate my heart pounds very hard..I am under a endo at barts, I have a big problem with diet and thought it was celiac for some time but I dont its looking like its teh salt and sugar causing me problems.I find Iam better if i cut my salt out, do a very low carb diet and stay away from yeast etcOnbviously this is not healthy and after a while the diet does start to tax me as I cant eat high fats for energy as I have a problem with fats aswell.My estrogen is very low at meno rangeMy TSH 0.68 T4 13.2 (12-22) T3 3.5 (4-6.8)I can feel my jaw spasming up at times which gets very [painful and teh spasm in my neck gets very rigid along with the bad headache etc..My potassium is right at the bottom of the range and sodium alway! s highI also have a high Vizulisation hormone adndrostendione and wondered if this would tie in with conns? Or whether you could have conns and cushings at once..Thanks for listening getting very nervous but hopefully they will find out whats wrong..MandyxWe want to hear all your funny, exciting and crazy Hotmail stories. Tell us now

[Guest guest]

Only way to document DASH is to read every label of everything you eat. If you have an iPhone I recommend Loseit as it tracks Na for you.Then after you are sure you are on it for 1 month and BP has not changed have your dr do a 24 hr urine for Na and K. Only way to really docuement Na is not sneaking in somewhere.CE Grim MDOn Jan 11, 2010, at 3:14 AM, Mandy Moseley wrote:Thanks ever so much for your kindness and advice I started to wonder about PA as my diet is so blande, everything i eat is totally natural when i do the diet, i felt better doing the low carb, anti candida, gluten free diet but was noticing problems at times still after meals and realised I was salting every meal. I tried a low salt but was still getting these symptoms. When i stopped salt recently I even noticed symptoms eating a small peice of bacon and celery?! I seem tobe getting bad night sweats at time aswell, I dont know if when i go to bed if Iam a bit swollen my body is just trying to get rid of some of the swelling.. Okay, thanks ever so much, I will stick to the dash diet do you think I should re introduce some carbs again, i notice your diets mentions whole grain? The reason I thought this was helping was to rid some of this water retention but maybe i need to add some back and just cut the salt right out? hyperaldosteronism From: lowerbp2macDate: Sun, 10 Jan 2010 20:26:53 -0600Subject: Re: Hi, Iam neww and looking for advice, Iam waiting to be admitted for testing You most likely have PA. Tell the Bart's team Dr. Grim is recommending you be tested.CE Grim MDOn Jan 10, 2010, at 4:14 PM, Mandy Moseley wrote:Hi, Ive read the document you recommened I read, it was very interesting thank you. I believe Iam at stage 3, possibly stage 4. I have many of the symptoms but not all of them. I do get a punding heart, palaptations at times aswell.. I was a fitness Instructor when i ve tried to go even when i feel lousy (but mentally it helps me feel like mandy) i do struggle with cramps in my feet, leg spasm etc if I havent stuck to my diet and i try to go any excersise makes me swell up more even just walking.. This section below I think applies to me, it would make sense the fluctuations in my facial spasm, arm,neck, leg etc..and other symptoms. I follow a very low carb, sugar free and more recently very low salt diet..and i also have taken latley to drinking tea, as it makes me feel better.. So, if I already have low potassium due to a underlying problem the directic and my diet may be aggrevating those symptoms further... So, the best thing i could do I suppose is now stay away from the salt and stop drinking tea, Iam sure ive read its a directic and may cause you to loose potassium... (20 μg/d). The renin would be lower, the aldosteronehigher, and the ARR higher than in stage 2. Aldosteroneproduction would no longer suppress into the "normal"range, and hypokalemia might be precipitated by alow potassium intake, diuretic use, or extrarenal loss ofpotassium in sweat, vomit, or stool mandy:)hyperaldosteronism From: lowerbp2macDate: Sun, 10 Jan 2010 12:15:45 -0800Subject: Re: Hi, Iam neww and looking for advice, Iam waiting to be admitted for testing Don't know if they have Lyme in Eng Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Jan 10, 2010, at 8:33 AM, Valarie <val@...> wrote: Mandy, I would not presume to tell you what's wrong with you, but I have all your syptoms and I have Lyme disease with the coinfection, bartonella. I've gotten worse and worse over the years. Many of my symptoms have improved a bit on antibiotics. My BP is down 15 points and heart rate down 8 points. I've gone from 150 mg spiro to 75 mg spiro + 25 mg Inspra. Eventually, I will be totally on Inspra, and maybe not even that in the long run. My recurring low K improved on spiro. Have you had tests for Celiac? Aldosterone and renin? Your thyroid hormones are low in the face of a normal TSH. That could indicate a pituitary problem. Also sounds like Candida. Where's Barts Hospital? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of MandyMIve been having problems for 4 years but believe i had something going on for a long time. I have had to do alot of fighting but Iam going into Barts hospital this month for a weeks testing to see whats going on.My symptoms:Puffy face, eyes, belly water retention in the legs.Ears ringning very loud at certain times (just realised with salt)Irritable, anxiousI go very pale at timesFatigueRight side fluctuating spasm in my face, neck, arm, legSweating all teh time or not at allTieredPain in my right side of back i think its kidneysSystemic fungal infectionHigh BP - when i am swollen ( when eaten salt, sugar etc)SeizureIf I ve eaten salt and start to drink water I just swell up and all symptoms get worse.Ive seemed to become a tea addict as it was making me feel a bit better and have now realised I think Ive been using it as a directic ..it does make me feel very jittery at times and if i eat chocolate my heart pounds very hard..I am under a endo at barts, I have a big problem with diet and thought it was celiac for some time but I dont its looking like its teh salt and sugar causing me problems.I find Iam better if i cut my salt out, do a very low carb diet and stay away from yeast etcOnbviously this is not healthy and after a while the diet does start to tax me as I cant eat high fats for energy as I have a problem with fats aswell.My estrogen is very low at meno rangeMy TSH 0.68 T4 13.2 (12-22) T3 3.5 (4-6.8)I can feel my jaw spasming up at times which gets very [painful and teh spasm in my neck gets very rigid along with the bad headache etc..My potassium is right at the bottom of the range and sodium always highI also have a high Vizulisation hormone adndrostendione and wondered if this would tie in with conns? Or whether you could have conns and cushings at once..Thanks for listening getting very nervous but hopefully they will find out whats wrong..MandyxWe want to hear all your funny, exciting and crazy Hotmail stories. Tell us nowGot a cool Hotmail story? Tell us now

[Guest guest]

Recommend better health advice sources than homeopaths or beauticians. On Jan 11, 2010, at 3:37 AM, Mandy Moseley wrote:Hi Farah,Thanks for replying, you are all ever so nice I only drink black tea and not that much maybe 3-5 cups a day, Iam not good with milk especially full fat or semi skimmed. I dont drink herbal as I have such bad allergies. I would love to have a chalomile tea to relax but my nose blocks up and my sinus as soon as i drink it..any thing to do with pollen / flowers is now a nightmare for me! Tea is a directic isnt it? Iam sure i ve read many times and the beautician i know said it is a dehydrating drink. But the thing is up until now I have felt better in my symptoms if Iam dehydrated..but then suffering symptoms of dehydration. So, Maybe i feel better as Iam getting rid of the edema, which is making my blood pressure high and all teh symptoms that go with it! Its like the low carb diet, the first weight you loose is water weight so I have been self medicating the diet along with drinking plenty of tea ..as i was still using salt on all my meals and eating natural foods which do contain salt. Also, whats even more dangerous now i ve thought about it is i would feel better on the diet but its sooooooo restrictive and very boring that every two weeks I couldnt do it any more and end up giving in and just eating normal but junk food..and then iam REALLY BAD...I get feeling like doom type feeling.. So, Maybe I dont actually have a thyroid problem maybe teh way ive been trying to controll teh symptoms i have is causing me to have a low thyroid, estrogen etc..does make sense.. My nan has been ill for many years, she has fluctuating BP, big bloated belly, thinks the supermakerts are poisoning her as foods make her ill, collapse's all the time, complains of the very loud ringning in her ears just like me, constantly drinking tea..and hardly eats....I think I have got this from my nan..theyve never found out whats wrong with my nan.. Sorry to go on there, and thank you I am looking forward to reading everyones story so I can understand what you have all been through. I was a fitness / nutitionist before this. Ive tried going to teh gym even when i ve felt symptoms, my leg spasms up cramps, i get very bad cramp in my feet, but i also notice at times I swell even more with excersise.. But if ive stuck no carb / very low..its not as bad and i feel better for seating out any fluid in my body but its totally pointless as iam not eating enough to be consistent with my training as i dont recover as not eating enough.. THANKYOU this is all starting to make sense now.hyperaldosteronism From: farahbargmailDate: Sun, 10 Jan 2010 21:08:45 -0800Subject: Re: Hi, Iam neww and looking for advice, Iam waiting to be admitted for testing Hi Mandy:You mentioned you drank a lot of tea. Just curious if you've ever checked the contents of the teas you drink. If they contain any licorice, it could be the cause of your problems. I notice a lot of herbal infuson teas contain one kind of licorice or another. Licorice can cause PA like symptoms and high blood pressure.Farah2010/1/10 Mandy Moseley <moseleymandhotmail (DOT) co.uk> Hi, Ive read the document you recommened I read, it was very interesting thank you. I believe Iam at stage 3, possibly stage 4. I have many of the symptoms but not all of them. I do get a punding heart, palaptations at times aswell.. I was a fitness Instructor when i ve tried to go even when i feel lousy (but mentally it helps me feel like mandy) i do struggle with cramps in my feet, leg spasm etc if I havent stuck to my diet and i try to go any excersise makes me swell up more even just walking.. This section below I think applies to me, it would make sense the fluctuations in my facial spasm, arm,neck, leg etc..and other symptoms. I follow a very low carb, sugar free and more recently very low salt diet..and i also have taken latley to drinking tea, as it makes me feel better.. So, if I already have low potassium due to a underlying problem the directic and my diet may be aggrevating those symptoms further... So, the best thing i could do I suppose is now stay away from the salt and stop drinking tea, Iam sure ive read its a directic and may cause you to loose potassium... (20μg/d). The renin would be lower, the aldosterone higher, and the ARR higher than in stage 2. Aldosteroneproduction would no longer suppress into the "normal"range, and hypokalemia might be precipitated by alow potassium intake, diuretic use, or extrarenal loss ofpotassium in sweat, vomit, or stool mandy:)hyperaldosteronism From: lowerbp2macDate: Sun, 10 Jan 2010 12:15:45 -0800Subject: Re: Hi, Iam neww and looking for advice, Iam waiting to be admitted for testing Don't know if they have Lyme in Eng Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Jan 10, 2010, at 8:33 AM, Valarie <val@...> wrote: Mandy, I would not presume to tell you what's wrong with you, but I have all your syptoms and I have Lyme disease with the coinfection, bartonella. I've gotten worse and worse over the years. Many of my symptoms have improved a bit on antibiotics. My BP is down 15 points and heart rate down 8 points. I've gone from 150 mg spiro to 75 mg spiro + 25 mg Inspra. Eventually, I will be totally on Inspra, and maybe not even that in the long run. My recurring low K improved on spiro. Have you had tests for Celiac? Aldosterone and renin? Your thyroid hormones are low in the face of a normal TSH. That could indicate a pituitary problem. Also sounds like Candida. Where's Barts Hospital? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of MandyMIve been having problems for 4 years but believe i had something going on for a long time. I have had to do alot of fighting but Iam going into Barts hospital this month for a weeks testing to see whats going on.My symptoms:Puffy face, eyes, belly water retention in the legs.Ears ringning very loud at certain times (just realised with salt)Irritable, anxiousI go very pale at timesFatigueRight side fluctuating spasm in my face, neck, arm, legSweating all teh time or not at allTieredPain in my right side of back i think its kidneysSystemic fungal infectionHigh BP - when i am swollen ( when eaten salt, sugar etc)SeizureIf I ve eaten salt and start to drink water I just swell up and all symptoms get worse.Ive seemed to become a tea addict as it was making me feel a bit better and have now realised I think Ive been using it as a directic ..it does make me feel very jittery at times and if i eat chocolate my heart pounds very hard..I am under a endo at barts, I have a big problem with diet and thought it was celiac for some time but I dont its looking like its teh salt and sugar causing me problems.I find Iam better if i cut my salt out, do a very low carb diet and stay away from yeast etcOnbviously this is not healthy and after a while the diet does start to tax me as I cant eat high fats for energy as I have a problem with fats aswell.My estrogen is very low at meno rangeMy TSH 0.68 T4 13.2 (12-22) T3 3.5 (4-6.8)I can feel my jaw spasming up at times which gets very [painful and teh spasm in my neck gets very rigid along with the bad headache etc..My potassium is right at the bottom of the range and sodium alway! s highI also have a high Vizulisation hormone adndrostendione and wondered if this would tie in with conns? Or whether you could have conns and cushings at once..Thanks for listening getting very nervous but hopefully they will find out whats wrong..MandyxWe want to hear all your funny, exciting and crazy Hotmail stories. Tell us nowNot got a Hotmail account? Sign-up now - Free

[Guest guest]

vinegar must not have much K. Better to DASH.On Jan 11, 2010, at 3:46 AM, Mandy Moseley wrote:Hi Val :0) Well, I will also mention this to Barts when I go in. I did see a neurologist at Barts last year as no one localy was listening to me and my right sided spasm /weakness was fluctuating, sometimes doctors couldnt see it in my face as I was sticking to the diet to be able to explain with out being so agressive, emotional (which is not me).. I didnt get a brain scan for 6 months and Id seen 4 neuros at southend hospital 3 said it was bells pulsy but it affects my neck, arm and leg they wernt even listening..i was soo scared I really thought id had a stroke. The neuro at barts said its obvisouly an endocrine problem but he als asked my wrote to my GP about lyme disease, i was never tested.. I also get these pulsing, throbbing twicthing feelings in the spasm in my neck, my neck looks twisted..but at times its much worse than others.. I didn buy some apple cider vinegar as it contains potassium..but iam too scared to start adding things..just got to sit tight DASH and wait.. Thank you so much:) This started well kicked off when i was 29..iam 34 now sold my car to go private, gave up my flat was too scared on my own..now living in supported housing..it starte to get me down was so depressed no one was listening..I contacted my MP in the end..but fingers crossed its going to be okay very soon.. Have a lovely day and take carex hyperaldosteronism From: val@...Date: Sun, 10 Jan 2010 20:38:55 -0700Subject: RE: Hi, Iam neww and looking for advice, Iam waiting to be admitted for testing I think it is found all over the world. I read an article the other day about birds spreading ticks. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim Don't know if they have Lyme in Eng Not got a Hotmail account? Sign-up now - Free

[Guest guest]

hi val,

I saw the consultant on the 4th last monday. I asked if it was going to be about a month and he said no it will be before a month! They will ring me or write. Ive cut salt out a few days but did have a few problems due to teh heav snowfall icouldntgt out for foo, so i did eat nomalish then.

So, I shuld not cut ut the salt yet? Ive noticed when i cut the salt and stick to my diet i constantly wee clear urine?

Thank you. I dont want to do mask any problems i think ive been doing that for too long without realising. They have aknowledged its a big tie into my diet and want to observe me off my diet and on my diet and do these tests..

hyperaldosteronism From: val@...Date: Mon, 11 Jan 2010 10:00:16 -0700Subject: RE: Hi, Iam neww and looking for advice, Iam waiting to be admitted for testing

Mandy, refresh me, when are you going into the hospital? If you cut salt now, your tests will not be valid. Low salt increases renin.

Val

From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Mandy Moseley I started to wonder about PA as my diet is so blande, everything i eat is totally natural when i do the diet, i felt better doing the low carb, anti candida, gluten free diet but was noticing problems at times still after meals and realised I was salting every meal. I tried a low salt but was still getting these symptoms. When i stopped salt recently I even noticed symptoms eating a small peice of bacon and celery?! I seem tobe getting bad night sweats at time aswell, I dont know if when i go to bed if Iam a bit swollen my body is just trying to get rid of some of the swelling.. Okay, thanks ever so much, I will stick to the dash diet do you think I should re introduce some carbs again, i notice your diets mentions whole grain? The reason I thought this was helping was to rid some of this water retention but maybe i need to add some back and just cut the salt right out?

Do you have a story that started on Hotmail? Tell us now

[Guest guest]

thank you,im sorry but I dont understand the medical abreviations is k - potassium? NA - salt?

hyperaldosteronism From: lowerbp2@...Date: Mon, 11 Jan 2010 12:04:53 -0600Subject: Re: Hi, Iam neww and looking for advice, Iam waiting to be admitted for testing

Only way to document DASH is to read every label of everything you eat. If you have an iPhone I recommend Loseit as it tracks Na for you.

Then after you are sure you are on it for 1 month and BP has not changed have your dr do a 24 hr urine for Na and K. Only way to really docuement Na is not sneaking in somewhere.

CE Grim MD

On Jan 11, 2010, at 3:14 AM, Mandy Moseley wrote:

Thanks ever so much for your kindness and advice I started to wonder about PA as my diet is so blande, everything i eat is totally natural when i do the diet, i felt better doing the low carb, anti candida, gluten free diet but was noticing problems at times still after meals and realised I was salting every meal. I tried a low salt but was still getting these symptoms. When i stopped salt recently I even noticed symptoms eating a small peice of bacon and celery?! I seem tobe getting bad night sweats at time aswell, I dont know if when i go to bed if Iam a bit swollen my body is just trying to get rid of some of the swelling.. Okay, thanks ever so much, I will stick to the dash diet do you think I should re introduce some carbs again, i notice your diets mentions whole grain? The reason I thought this was helping was to rid some of this water retention but maybe i need to add some back and just cut the salt right out?

hyperaldosteronism From: lowerbp2macDate: Sun, 10 Jan 2010 20:26:53 -0600Subject: Re: Hi, Iam neww and looking for advice, Iam waiting to be admitted for testing

You most likely have PA. Tell the Bart's team Dr. Grim is recommending you be tested.

CE Grim MD

On Jan 10, 2010, at 4:14 PM, Mandy Moseley wrote:

Hi, Ive read the document you recommened I read, it was very interesting thank you. I believe Iam at stage 3, possibly stage 4. I have many of the symptoms but not all of them. I do get a punding heart, palaptations at times aswell.. I was a fitness Instructor when i ve tried to go even when i feel lousy (but mentally it helps me feel like mandy) i do struggle with cramps in my feet, leg spasm etc if I havent stuck to my diet and i try to go any excersise makes me swell up more even just walking.. This section below I think applies to me, it would make sense the fluctuations in my facial spasm, arm,neck, leg etc..and other symptoms. I follow a very low carb, sugar free and more recently very low salt diet..and i also have taken latley to drinking tea, as it makes me feel better.. So, if I already have low potassium due to a underlying problem the directic and my diet may be aggrevating those symptoms further... So, the best thing i could do I suppose is now stay away from the salt and stop drinking tea, Iam sure ive read its a directic and may cause you to loose potassium...

(20 ìg/d). The renin would be lower, the aldosterone

higher, and the ARR higher than in stage 2. Aldosterone

production would no longer suppress into the "normal"

range, and hypokalemia might be precipitated by a

low potassium intake, diuretic use, or extrarenal loss ofpotassium in sweat, vomit, or stool mandy:)

hyperaldosteronism From: lowerbp2macDate: Sun, 10 Jan 2010 12:15:45 -0800Subject: Re: Hi, Iam neww and looking for advice, Iam waiting to be admitted for testing

Don't know if they have Lyme in Eng Tiped sad Send form mi

iPhone ;-)

May your pressure be low!

CE Grim MD

Specializing in Difficult

Hypertension

On Jan 10, 2010, at 8:33 AM, Valarie <val@...> wrote:

Mandy, I would not presume to tell you what's wrong with you, but I have all your syptoms and I have Lyme disease with the coinfection, bartonella. I've gotten worse and worse over the years. Many of my symptoms have improved a bit on antibiotics. My BP is down 15 points and heart rate down 8 points. I've gone from 150 mg spiro to 75 mg spiro + 25 mg Inspra. Eventually, I will be totally on Inspra, and maybe not even that in the long run. My recurring low K improved on spiro.

Have you had tests for Celiac? Aldosterone and renin? Your thyroid hormones are low in the face of a normal TSH. That could indicate a pituitary problem. Also sounds like Candida.

Where's Barts Hospital?

Val

From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of MandyMIve been having problems for 4 years but believe i had something going on for a long time. I have had to do alot of fighting but Iam going into Barts hospital this month for a weeks testing to see whats going on.My symptoms:Puffy face, eyes, belly water retention in the legs.Ears ringning very loud at certain times (just realised with salt)Irritable, anxiousI go very pale at timesFatigueRight side fluctuating spasm in my face, neck, arm, legSweating all teh time or not at allTieredPain in my right side of back i think its kidneysSystemic fungal infectionHigh BP - when i am swollen ( when eaten salt, sugar etc)SeizureIf I ve eaten salt and start to drink water I just swell up and all symptoms get worse.Ive seemed to become a tea addict as it was making me feel a bit better and have now realised I think Ive been using it as a directic ..it does make me feel very jittery at times and if i eat chocolate my heart pounds very hard..I am under a endo at barts, I have a big problem with diet and thought it was celiac for some time but I dont its looking like its teh salt and sugar causing me problems.I find Iam better if i cut my salt out, do a very low carb diet and stay away from yeast etcOnbviously this is not healthy and after a while the diet does start to tax me as I cant eat high fats for energy as I have a problem with fats aswell.My estrogen is very low at meno rangeMy TSH 0.68 T4 13.2 (12-22) T3 3.5 (4-6.8)I can feel my jaw spasming up at times which gets very [painful and teh spasm in my neck gets very rigid along with the bad headache etc..My potassium is right at the bottom of the range and sodium always highI also have a high Vizulisation hormone adndrostendione and wondered if this would tie in with conns? Or whether you could have conns and cushings at once..Thanks for listening getting very nervous but hopefully they will find out whats wrong..Mandyx

We want to hear all your funny, exciting and crazy Hotmail stories. Tell us now

Got a cool Hotmail story? Tell us now

Got a cool Hotmail story? Tell us now

[Guest guest]

I read recently that all Bell's Palsey should be considered Lyme

unless that is ruled out. I'm sorry

but can't remember where I read it.

Be aware, Mandy, that there are no good tests for Lyme. You have to find someone who takes the

time to do the detective work.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Mandy Moseley

Hi Val :0)

Well, I will also mention this to Barts when I go in. I did see a

neurologist at Barts last year as no one localy was listening to me and my

right sided spasm /weakness was fluctuating, sometimes doctors couldnt see it

in my face as I was sticking to the diet to be able to explain with out being

so agressive, emotional (which is not me)..

I didnt get a brain scan for 6 months and Id seen 4 neuros at

southend hospital 3 said it was bells pulsy but it affects my neck, arm

and leg they wernt even listening..i was soo scared I really thought id had a

stroke.

The neuro at barts said its obvisouly an endocrine problem but he als asked

my wrote to my GP about lyme disease, i was never tested..

I also get these pulsing, throbbing twicthing feelings in the spasm in my neck,

my neck looks twisted..but at times its much worse than others..

I didn buy some apple cider vinegar as it contains potassium..but iam too

scared to start adding things..just got to sit tight DASH and wait..

Thank you so much:)

This started well kicked off when i was 29..iam 34 now sold my car to go

private, gave up my flat was too scared on my own..now living in supported

housing..it starte to get me down was so depressed no one was listening..I

contacted my MP in the end..but fingers crossed its going to be okay very

soon..

Have a lovely day and take care

x

[Guest guest]

With so many testing + for Lyme and Bell's being very common I am not surprized that the two occur together by chance.There should be plenty of Lymie doctors where she is.CE Grim MDOn Jan 11, 2010, at 3:32 PM, Valarie wrote:I read recently that all Bell's Palsey should be considered Lyme unless that is ruled out. I'm sorry but can't remember where I read it. Be aware, Mandy, that there are no good tests for Lyme. You have to find someone who takes the time to do the detective work. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Mandy MoseleyHi Val :0) Well, I will also mention this to Barts when I go in. I did see a neurologist at Barts last year as no one localy was listening to me and my right sided spasm /weakness was fluctuating, sometimes doctors couldnt see it in my face as I was sticking to the diet to be able to explain with out being so agressive, emotional (which is not me).. I didnt get a brain scan for 6 months and Id seen 4 neuros at southend hospital 3 said it was bells pulsy but it affects my neck, arm and leg they wernt even listening..i was soo scared I really thought id had a stroke. The neuro at barts said its obvisouly an endocrine problem but he als asked my wrote to my GP about lyme disease, i was never tested.. I also get these pulsing, throbbing twicthing feelings in the spasm in my neck, my neck looks twisted..but at times its much worse than others.. I didn buy some apple cider vinegar as it contains potassium..but iam too scared to start adding things..just got to sit tight DASH and wait.. Thank you so much:) This started well kicked off when i was 29..iam 34 now sold my car to go private, gave up my flat was too scared on my own..now living in supported housing..it starte to get me down was so depressed no one was listening..I contacted my MP in the end..but fingers crossed its going to be okay very soon.. Have a lovely day and take carex

[Guest guest]

The thing is I defintley havent gt Bels palsy! I went to see the onl bells re construction specialist in the uk and he said its not bells Palsy. My face, neck, arm and leg fluctuate with my symptoms..iam a complicated case!

hyperaldosteronism From: lowerbp2@...Date: Mon, 11 Jan 2010 19:41:25 -0600Subject: Re: Hi, Iam neww and looking for advice, Iam waiting to be admitted for testing

With so many testing + for Lyme and Bell's being very common I am not surprized that the two occur together by chance.

There should be plenty of Lymie doctors where she is.

CE Grim MD

On Jan 11, 2010, at 3:32 PM, Valarie wrote:

I read recently that all Bell's Palsey should be considered Lyme unless that is ruled out. I'm sorry but can't remember where I read it. Be aware, Mandy, that there are no good tests for Lyme. You have to find someone who takes the time to do the detective work.

Val

From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Mandy Moseley

Hi Val :0) Well, I will also mention this to Barts when I go in. I did see a neurologist at Barts last year as no one localy was listening to me and my right sided spasm /weakness was fluctuating, sometimes doctors couldnt see it in my face as I was sticking to the diet to be able to explain with out being so agressive, emotional (which is not me).. I didnt get a brain scan for 6 months and Id seen 4 neuros at southend hospital 3 said it was bells pulsy but it affects my neck, arm and leg they wernt even listening..i was soo scared I really thought id had a stroke. The neuro at barts said its obvisouly an endocrine problem but he als asked my wrote to my GP about lyme disease, i was never tested.. I also get these pulsing, throbbing twicthing feelings in the spasm in my neck, my neck looks twisted..but at times its much worse than others.. I didn buy some apple cider vinegar as it contains potassium..but iam too scared to start adding things..just got to sit tight DASH and wait.. Thank you so much:) This started well kicked off when i was 29..iam 34 now sold my car to go private, gave up my flat was too scared on my own..now living in supported housing..it starte to get me down was so depressed no one was listening..I contacted my MP in the end..but fingers crossed its going to be okay very soon.. Have a lovely day and take carex

Do you have a story that started on Hotmail? Tell us now

[Guest guest]

Hello Mandy

Bell's Palsy is, by definition, a temporary or permanent failure in function of

the facial (VII cranial) nerve. I don't believe this cranial nerve to have any

influence beyond the head and so any arm or leg symptoms could not be caused by

it.

>

>

>

>

>

>

>

> I read recently that all Bell's Palsey should be considered Lyme unless that

is ruled out. I'm sorry but can't remember where I read it. Be aware, Mandy,

that there are no good tests for Lyme. You have to find someone who takes the

time to do the detective work.

>

>

>

> Val

>

>

>

>

> From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Mandy Moseley

>

>

> Hi Val :0)

>

> Well, I will also mention this to Barts when I go in. I did see a neurologist

at Barts last year as no one localy was listening to me and my right sided spasm

/weakness was fluctuating, sometimes doctors couldnt see it in my face as I was

sticking to the diet to be able to explain with out being so agressive,

emotional (which is not me)..

>

> I didnt get a brain scan for 6 months and Id seen 4 neuros at southend

hospital 3 said it was bells pulsy but it affects my neck, arm and leg they

wernt even listening..i was soo scared I really thought id had a stroke.

>

> The neuro at barts said its obvisouly an endocrine problem but he als asked my

wrote to my GP about lyme disease, i was never tested..

>

> I also get these pulsing, throbbing twicthing feelings in the spasm in my

neck, my neck looks twisted..but at times its much worse than others..

>

> I didn buy some apple cider vinegar as it contains potassium..but iam too

scared to start adding things..just got to sit tight DASH and wait..

>

> Thank you so much:)

>

> This started well kicked off when i was 29..iam 34 now sold my car to go

private, gave up my flat was too scared on my own..now living in supported

housing..it starte to get me down was so depressed no one was listening..I

contacted my MP in the end..but fingers crossed its going to be okay very soon..

>

> Have a lovely day and take care

> x

>

>

>

>

>

>

>

>

> _________________________________________________________________

> Send us your Hotmail stories and be featured in our newsletter

> http://clk.atdmt.com/UKM/go/195013117/direct/01/

>

[Guest guest]

" There should be plenty of Lymie doctors where she is "

HaHa LOL, as my children might text.

>

> >

> > I read recently that all Bell's Palsey should be considered Lyme

> > unless that is ruled out. I'm sorry but can't remember where I read

> > it. Be aware, Mandy, that there are no good tests for Lyme. You

> > have to find someone who takes the time to do the detective work.

> >

> >

> >

> > Val

> >

> >

> >

> > From: hyperaldosteronism

[mailto:hyperaldosteronism

> > ] On Behalf Of Mandy Moseley

> >

> >

> > Hi Val :0)

> >

> > Well, I will also mention this to Barts when I go in. I did see a

> > neurologist at Barts last year as no one localy was listening to me

> > and my right sided spasm /weakness was fluctuating, sometimes

> > doctors couldnt see it in my face as I was sticking to the diet to

> > be able to explain with out being so agressive, emotional (which is

> > not me)..

> >

> > I didnt get a brain scan for 6 months and Id seen 4 neuros at

> > southend hospital 3 said it was bells pulsy but it affects my neck,

> > arm and leg they wernt even listening..i was soo scared I really

> > thought id had a stroke.

> >

> > The neuro at barts said its obvisouly an endocrine problem but he

> > als asked my wrote to my GP about lyme disease, i was never tested..

> >

> > I also get these pulsing, throbbing twicthing feelings in the spasm

> > in my neck, my neck looks twisted..but at times its much worse than

> > others..

> >

> > I didn buy some apple cider vinegar as it contains potassium..but

> > iam too scared to start adding things..just got to sit tight DASH

> > and wait..

> >

> > Thank you so much:)

> >

> > This started well kicked off when i was 29..iam 34 now sold my car

> > to go private, gave up my flat was too scared on my own..now living

> > in supported housing..it starte to get me down was so depressed no

> > one was listening..I contacted my MP in the end..but fingers crossed

> > its going to be okay very soon..

> >

> > Have a lovely day and take care

> > x

> >

> >

> >

> >

>

[Guest guest]

Maybe I am not understanding PA and urinary sodium. I thought it you have PA

then this made urinary sodium low.

>

> Mandy, I cut my sodium to 800 mg/d. I was very careful to record every bite

> and keep good records with FitDay. At Mayo Clinic, urinary sodium was too

> low to measure so I was doing a good job at cutting sodium. Even with that,

> my BP was still too high and I wasn't feeling any better. I do have excess

> aldo and low renin, but that isn't the whole story for me. While others on

> this list get on spiro or Inspra and move on with their lives, I was getting

> sicker. That's when I started looking elsewhere

>

> Your right side in spasm or weak is a concern. Where is your blood

> pressure? Do you check it at home? When I first started, I checked mine

> 4x/d, averaged that and then kept a 7-day moving average. I found my

> pressure highest at 5 p.m. so check it only at that time, now. I still use

> a moving average so a single day's blip isn't a concern.

>

> Val

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of Mandy Moseley

> Hi valerie,

>

> Iam sorry to hear you ve been having a bad time with this and hope you

> continue to improve:)

>

> I know you cant diagnose me just latley ive taken out the salt and noticed

> such an improvement in some symptoms along with low potassium and high

> sodium it points to cons syndrome but also cushings..

>

> Ive never had aldosterone & renin tested, pituitary scan, ACTH etc these are

> going to be done hopefully when i go into st barts in a couple of weeks.

> They want to observe me on and off this diet and also test due to such

> flutuations in results, which do seem to tie in to my diet.

>

> Endo has aknowleged i have candidas but first time tried to blame it on an

> operation id had 4 years ago for a big cyst in my groin and lots of

> antibiotics..but i had symptoms prior to that and another doctor i saw after

> suggested taht its definatley a hormone problem.

>

> She said i ahve all the symptoms of cushings but i dont look it ( i do

> sometimes but again I think iam holding off this progressing with the stupid

> diet i have to do ..a bit like diabetes or even conns it can be improved by

> diet and ive stumbled across this with a homeopath if i hadnt i think i

> would may be of had a stroke by now or something quite serious..ive had a

> seizure..and my right side is in a spasm or weak..

>

> Barts is in london its the top hospital in the country, specialises in

> cushings i didnt see teh Proffessor grossman..

>

> The endo i saw said i dont have a thyroid problem and i dont need a

> pituiatry scan??? Every one ive talked to and even a couple of specialists

> at other hospitals have said i do have a low thyroid...and one of them said

> i could have pituitary problem...unless he thinks i may be hypopituitaty and

> wont need a scan for that..god knows..

>

> At least iam going in, i will be cuffing myself to my bed and wont be

> leaving until i have answers..

>

> thanks val

> mand

>

[Guest guest]

It is the deer tick that transmits Lymes. This tick is much smaller then other

ticks.

>

> >

> > I think it is found all over the world. I read an article the other

> > day about birds spreading ticks.

> >

> >

> >

> > Val

> >

> >

> >

> > From: hyperaldosteronism

[mailto:hyperaldosteronism

> > ] On Behalf Of Clarence Grim

> >

> >

> > Don't know if they have Lyme in Eng

> >

> >

> >

> >

>

[Guest guest]

I think any thing with caffeine should be limited.

> >

> > Hello,

> >

> > Ive been having problems for 4 years but believe i had something going on

for a long time. I have had to do alot of fighting but Iam going into Barts

hospital this month for a weeks testing to see whats going on.

> >

> > My symptoms:

> >

> > Puffy face, eyes, belly water retention in the legs.

> > Ears ringning very loud at certain times (just realised with salt)

> > Irritable, anxious

> > I go very pale at times

> > Fatigue

> > Right side fluctuating spasm in my face, neck, arm, leg

> > Sweating all teh time or not at all

> > Tiered

> > Pain in my right side of back i think its kidneys

> > Systemic fungal infection

> > High BP - when i am swollen ( when eaten salt, sugar etc)

> > Seizure

> >

> > If I ve eaten salt and start to drink water I just swell up and all symptoms

get worse.

> >

> > Ive seemed to become a tea addict as it was making me feel a bit better and

have now realised I think Ive been using it as a directic ..it does make me feel

very jittery at times and if i eat chocolate my heart pounds very hard..

> >

> > I am under a endo at barts, I have a big problem with diet and thought it

was celiac for some time but I dont its looking like its teh salt and sugar

causing me problems.

> >

> > I find Iam better if i cut my salt out, do a very low carb diet and stay

away from yeast etc

> >

> > Onbviously this is not healthy and after a while the diet does start to tax

me as I cant eat high fats for energy as I have a problem with fats aswell.

> >

> > My estrogen is very low at meno range

> > My TSH 0.68 T4 13.2 (12-22) T3 3.5 (4-6.8)

> >

> > I can feel my jaw spasming up at times which gets very [painful and teh

spasm in my neck gets very rigid along with the bad headache etc..

> >

> > My potassium is right at the bottom of the range and sodium always high

> >

> > I also have a high Vizulisation hormone adndrostendione and wondered if this

would tie in with conns? Or whether you could have conns and cushings at once..

> >

> > Thanks for listening getting very nervous but hopefully they will find out

whats wrong..

> >

> > Mandyx

> >

>

[Guest guest]

There are not plenty of Lymie

doctors who understand what tests must be done and understand what treatment is

needed for those not diagnosed and treated early in the disease. I had the ELISA test but have now

learned that its accuracy is about 50%.

My Lyme doc says those most likely to have Lyme are those who have had

the diagnosis considered and neglected.

Val

To:

hyperaldosteronism

There

should be plenty of Lymie doctors where she is.

[Guest guest]

K = potassium

Na = sodium

PA = primary aldosteronism

ARR = aldosterone/renin ratio

AVS = adrenal vein sampling

Val

From:

hyperaldosteronism [mailto:hyperaldosteronism ] On

Behalf Of Mandy Moseley

thank you,im sorry but I dont understand the

medical abreviations is k - potassium? NA - salt?

[Guest guest]

Good morning, thanks Val.

Hope your okay

hyperaldosteronism From: val@...Date: Tue, 12 Jan 2010 22:06:03 -0700Subject: RE: Hi, Iam neww and looking for advice, Iam waiting to be admitted for testing

K = potassium

Na = sodium

PA = primary aldosteronism

ARR = aldosterone/renin ratio

AVS = adrenal vein sampling

Val

From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Mandy Moseley

thank you,im sorry but I dont understand the medical abreviations is k - potassium? NA - salt?

We want to hear all your funny, exciting and crazy Hotmail stories. Tell us now

[Guest guest]

When someone has Bell's it is much like having a stroke. One side of the face is

paralyzed.

> >

> >

> >

> >

> >

> >

> >

> > I read recently that all Bell's Palsey should be considered Lyme unless that

is ruled out. I'm sorry but can't remember where I read it. Be aware, Mandy,

that there are no good tests for Lyme. You have to find someone who takes the

time to do the detective work.

> >

> >

> >

> > Val

> >

> >

> >

> >

> > From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Mandy Moseley

> >

> >

> > Hi Val :0)

> >

> > Well, I will also mention this to Barts when I go in. I did see a

neurologist at Barts last year as no one localy was listening to me and my right

sided spasm /weakness was fluctuating, sometimes doctors couldnt see it in my

face as I was sticking to the diet to be able to explain with out being so

agressive, emotional (which is not me)..

> >

> > I didnt get a brain scan for 6 months and Id seen 4 neuros at southend

hospital 3 said it was bells pulsy but it affects my neck, arm and leg they

wernt even listening..i was soo scared I really thought id had a stroke.

> >

> > The neuro at barts said its obvisouly an endocrine problem but he als asked

my wrote to my GP about lyme disease, i was never tested..

> >

> > I also get these pulsing, throbbing twicthing feelings in the spasm in my

neck, my neck looks twisted..but at times its much worse than others..

> >

> > I didn buy some apple cider vinegar as it contains potassium..but iam too

scared to start adding things..just got to sit tight DASH and wait..

> >

> > Thank you so much:)

> >

> > This started well kicked off when i was 29..iam 34 now sold my car to go

private, gave up my flat was too scared on my own..now living in supported

housing..it starte to get me down was so depressed no one was listening..I

contacted my MP in the end..but fingers crossed its going to be okay very soon..

> >

> > Have a lovely day and take care

> > x

> >

> >

> >

> >

> >

> >

> >

> >

> > __________________________________________________________

> > Send us your Hotmail stories and be featured in our newsletter

> > http://clk.atdmt.com/UKM/go/195013117/direct/01/

> >

>

>

>

>

>

> _________________________________________________________________

> Send us your Hotmail stories and be featured in our newsletter

> http://clk.atdmt.com/UKM/go/195013117/direct/01/

>

[Guest guest]

See if any of your SX fit with Polymyalgia rheumatica.

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > I read recently that all Bell's Palsey should be considered Lyme unless

that is ruled out. I'm sorry but can't remember where I read it. Be aware,

Mandy, that there are no good tests for Lyme. You have to find someone who takes

the time to do the detective work.

> > >

> > >

> > >

> > > Val

> > >

> > >

> > >

> > >

> > > From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Mandy Moseley

> > >

> > >

> > > Hi Val :0)

> > >

> > > Well, I will also mention this to Barts when I go in. I did see a

neurologist at Barts last year as no one localy was listening to me and my right

sided spasm /weakness was fluctuating, sometimes doctors couldnt see it in my

face as I was sticking to the diet to be able to explain with out being so

agressive, emotional (which is not me)..

> > >

> > > I didnt get a brain scan for 6 months and Id seen 4 neuros at southend

hospital 3 said it was bells pulsy but it affects my neck, arm and leg they

wernt even listening..i was soo scared I really thought id had a stroke.

> > >

> > > The neuro at barts said its obvisouly an endocrine problem but he als

asked my wrote to my GP about lyme disease, i was never tested..

> > >

> > > I also get these pulsing, throbbing twicthing feelings in the spasm in my

neck, my neck looks twisted..but at times its much worse than others..

> > >

> > > I didn buy some apple cider vinegar as it contains potassium..but iam too

scared to start adding things..just got to sit tight DASH and wait..

> > >

> > > Thank you so much:)

> > >

> > > This started well kicked off when i was 29..iam 34 now sold my car to go

private, gave up my flat was too scared on my own..now living in supported

housing..it starte to get me down was so depressed no one was listening..I

contacted my MP in the end..but fingers crossed its going to be okay very soon..

> > >

> > > Have a lovely day and take care

> > > x

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > __________________________________________________________

> > > Send us your Hotmail stories and be featured in our newsletter

> > > http://clk.atdmt.com/UKM/go/195013117/direct/01/

> > >

> >

> >

> >

> >

> >

> > __________________________________________________________

> > Send us your Hotmail stories and be featured in our newsletter

> > http://clk.atdmt.com/UKM/go/195013117/direct/01/

> >

>

>

>

>

>

>

>

> _________________________________________________________________

> We want to hear all your funny, exciting and crazy Hotmail stories. Tell us

now

> http://clk.atdmt.com/UKM/go/195013117/direct/01/

>