RE: Hi, Iam neww and looking for advice, Iam waiting to be admitted for testing

[Guest guest]

Mandy, I would not presume to tell you what's wrong with you,

but I have all your syptoms and I have Lyme disease with the coinfection,

bartonella. I've gotten worse and

worse over the years. Many of my

symptoms have improved a bit on antibiotics. My BP is down 15 points and heart rate

down 8 points. I've gone from 150

mg spiro to 75 mg spiro + 25 mg Inspra.

Eventually, I will be totally on Inspra, and maybe not even that in the

long run. My recurring low K

improved on spiro.

Have you had tests for Celiac? Aldosterone and renin? Your thyroid hormones are low in the

face of a normal TSH. That could

indicate a pituitary problem. Also

sounds like Candida.

Where's Barts Hospital?

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of MandyM

Ive been having problems for 4 years but believe i had something going on for a

long time. I have had to do alot of fighting but Iam going into Barts hospital

this month for a weeks testing to see whats going on.

My symptoms:

Puffy face, eyes, belly water retention in the legs.

Ears ringning very loud at certain times (just realised with salt)

Irritable, anxious

I go very pale at times

Fatigue

Right side fluctuating spasm in my face, neck, arm, leg

Sweating all teh time or not at all

Tiered

Pain in my right side of back i think its kidneys

Systemic fungal infection

High BP - when i am swollen ( when eaten salt, sugar etc)

Seizure

If I ve eaten salt and start to drink water I just swell up and all symptoms

get worse.

Ive seemed to become a tea addict as it was making me feel a bit better and

have now realised I think Ive been using it as a directic ..it does make me

feel very jittery at times and if i eat chocolate my heart pounds very hard..

I am under a endo at barts, I have a big problem with diet and thought it was

celiac for some time but I dont its looking like its teh salt and sugar causing

me problems.

I find Iam better if i cut my salt out, do a very low carb diet and stay away

from yeast etc

Onbviously this is not healthy and after a while the diet does start to tax me

as I cant eat high fats for energy as I have a problem with fats aswell.

My estrogen is very low at meno range

My TSH 0.68 T4 13.2 (12-22) T3 3.5 (4-6.8)

I can feel my jaw spasming up at times which gets very [painful and teh spasm

in my neck gets very rigid along with the bad headache etc..

My potassium is right at the bottom of the range and sodium always high

I also have a high Vizulisation hormone adndrostendione and wondered if this

would tie in with conns? Or whether you could have conns and cushings at once..

Thanks for listening getting very nervous but hopefully they will find out

whats wrong..

Mandyx

[Guest guest]

Hi valerie,

Iam sorry to hear you ve been having a bad time with this and hope you continue to improve:)

I know you cant diagnose me just latley ive taken out the salt and noticed such an improvement in some symptoms along with low potassium and high sodium it points to cons syndrome but also cushings..

Ive never had aldosterone & renin tested, pituitary scan, ACTH etc these are going to be done hopefully when i go into st barts in a couple of weeks. They want to observe me on and off this diet and also test due to such flutuations in results, which do seem to tie in to my diet.

Endo has aknowleged i have candidas but first time tried to blame it on an operation id had 4 years ago for a big cyst in my groin and lots of antibiotics..but i had symptoms prior to that and another doctor i saw after suggested taht its definatley a hormone problem.

She said i ahve all the symptoms of cushings but i dont look it ( i do sometimes but again I think iam holding off this progressing with the stupid diet i have to do ..a bit like diabetes or even conns it can be improved by diet and ive stumbled across this with a homeopath if i hadnt i think i would may be of had a stroke by now or something quite serious..ive had a seizure..and my right side is in a spasm or weak..

Barts is in london its the top hospital in the country, specialises in cushings i didnt see teh Proffessor grossman..

The endo i saw said i dont have a thyroid problem and i dont need a pituiatry scan??? Every one ive talked to and even a couple of specialists at other hospitals have said i do have a low thyroid...and one of them said i could have pituitary problem...unless he thinks i may be hypopituitaty and wont need a scan for that..god knows..

At least iam going in, i will be cuffing myself to my bed and wont be leaving until i have answers..

thanks val

mand

hyperaldosteronism From: val@...Date: Sun, 10 Jan 2010 09:33:15 -0700Subject: RE: Hi, Iam neww and looking for advice, Iam waiting to be admitted for testing

Mandy, I would not presume to tell you what's wrong with you, but I have all your syptoms and I have Lyme disease with the coinfection, bartonella. I've gotten worse and worse over the years. Many of my symptoms have improved a bit on antibiotics. My BP is down 15 points and heart rate down 8 points. I've gone from 150 mg spiro to 75 mg spiro + 25 mg Inspra. Eventually, I will be totally on Inspra, and maybe not even that in the long run. My recurring low K improved on spiro.

Have you had tests for Celiac? Aldosterone and renin? Your thyroid hormones are low in the face of a normal TSH. That could indicate a pituitary problem. Also sounds like Candida.

Where's Barts Hospital?

Val

From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of MandyMIve been having problems for 4 years but believe i had something going on for a long time. I have had to do alot of fighting but Iam going into Barts hospital this month for a weeks testing to see whats going on.My symptoms:Puffy face, eyes, belly water retention in the legs.Ears ringning very loud at certain times (just realised with salt)Irritable, anxiousI go very pale at timesFatigueRight side fluctuating spasm in my face, neck, arm, legSweating all teh time or not at allTieredPain in my right side of back i think its kidneysSystemic fungal infectionHigh BP - when i am swollen ( when eaten salt, sugar etc)SeizureIf I ve eaten salt and start to drink water I just swell up and all symptoms get worse.Ive seemed to become a tea addict as it was making me feel a bit better and have now realised I think Ive been using it as a directic ..it does make me feel very jittery at times and if i eat chocolate my heart pounds very hard..I am under a endo at barts, I have a big problem with diet and thought it was celiac for some time but I dont its looking like its teh salt and sugar causing me problems.I find Iam better if i cut my salt out, do a very low carb diet and stay away from yeast etcOnbviously this is not healthy and after a while the diet does start to tax me as I cant eat high fats for energy as I have a problem with fats aswell.My estrogen is very low at meno rangeMy TSH 0.68 T4 13.2 (12-22) T3 3.5 (4-6.8)I can feel my jaw spasming up at times which gets very [painful and teh spasm in my neck gets very rigid along with the bad headache etc..My potassium is right at the bottom of the range and sodium always highI also have a high Vizulisation hormone adndrostendione and wondered if this would tie in with conns? Or whether you could have conns and cushings at once..Thanks for listening getting very nervous but hopefully they will find out whats wrong..Mandyx

Do you have a story that started on Hotmail? Tell us now

[Guest guest]

You need a renin and Aldo test. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Jan 10, 2010, at 10:54 AM, Mandy Moseley <moseleymand@...> wrote:

Hi valerie,

Iam sorry to hear you ve been having a bad time with this and hope you continue to improve:)

I know you cant diagnose me just latley ive taken out the salt and noticed such an improvement in some symptoms along with low potassium and high sodium it points to cons syndrome but also cushings..

Ive never had aldosterone & renin tested, pituitary scan, ACTH etc these are going to be done hopefully when i go into st barts in a couple of weeks. They want to observe me on and off this diet and also test due to such flutuations in results, which do seem to tie in to my diet.

Endo has aknowleged i have candidas but first time tried to blame it on an operation id had 4 years ago for a big cyst in my groin and lots of antibiotics..but i had symptoms prior to that and another doctor i saw after suggested taht its definatley a hormone problem.

She said i ahve all the symptoms of cushings but i dont look it ( i do sometimes but again I think iam holding off this progressing with the stupid diet i have to do ..a bit like diabetes or even conns it can be improved by diet and ive stumbled across this with a homeopath if i hadnt i think i would may be of had a stroke by now or something quite serious..ive had a seizure..and my right side is in a spasm or weak..

Barts is in london its the top hospital in the country, specialises in cushings i didnt see teh Proffessor grossman..

The endo i saw said i dont have a thyroid problem and i dont need a pituiatry scan??? Every one ive talked to and even a couple of specialists at other hospitals have said i do have a low thyroid...and one of them said i could have pituitary problem...unless he thinks i may be hypopituitaty and wont need a scan for that..god knows..

At least iam going in, i will be cuffing myself to my bed and wont be leaving until i have answers..

thanks val

mand

hyperaldosteronism From: val@...Date: Sun, 10 Jan 2010 09:33:15 -0700Subject: RE: Hi, Iam neww and looking for advice, Iam waiting to be admitted for testing

Mandy, I would not presume to tell you what's wrong with you, but I have all your syptoms and I have Lyme disease with the coinfection, bartonella. I've gotten worse and worse over the years. Many of my symptoms have improved a bit on antibiotics. My BP is down 15 points and heart rate down 8 points. I've gone from 150 mg spiro to 75 mg spiro + 25 mg Inspra. Eventually, I will be totally on Inspra, and maybe not even that in the long run. My recurring low K improved on spiro.

Have you had tests for Celiac? Aldosterone and renin? Your thyroid hormones are low in the face of a normal TSH. That could indicate a pituitary problem. Also sounds like Candida.

Where's Barts Hospital?

Val

From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of MandyMIve been having problems for 4 years but believe i had something going on for a long time. I have had to do alot of fighting but Iam going into Barts hospital this month for a weeks testing to see whats going on.My symptoms:Puffy face, eyes, belly water retention in the legs.Ears ringning very loud at certain times (just realised with salt)Irritable, anxiousI go very pale at timesFatigueRight side fluctuating spasm in my face, neck, arm, legSweating all teh time or not at allTieredPain in my right side of back i think its kidneysSystemic fungal infectionHigh BP - when i am swollen ( when eaten salt, sugar etc)SeizureIf I ve eaten salt and start to drink water I just swell up

and all symptoms get worse.Ive seemed to become a tea addict as it was making me feel a bit better and have now realised I think Ive been using it as a directic ..it does make me feel very jittery at times and if i eat chocolate my heart pounds very hard..I am under a endo at barts, I have a big problem with diet and thought it was celiac for some time but I dont its looking like its teh salt and sugar causing me problems.I find Iam better if i cut my salt out, do a very low carb diet and stay away from yeast etcOnbviously this is not healthy and after a while the diet does start to tax me as I cant eat high fats for energy as I have a problem with fats aswell.My estrogen is very low at meno rangeMy TSH 0.68 T4 13.2 (12-22) T3 3.5 (4-6.8)I can feel my jaw spasming up at times which gets very [painful and teh spasm in my neck gets very rigid along with the bad headache etc..My potassium is right at the bottom of the range

and sodium always highI also have a high Vizulisation hormone adndrostendione and wondered if this would tie in with conns? Or whether you could have conns and cushings at once..Thanks for listening getting very nervous but hopefully they will find out whats wrong..Mandyx

Do you have a story that started on Hotmail? Tell us now

[Guest guest]

Read my evolution of PA AND tell us where u think u are. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Jan 10, 2010, at 10:54 AM, Mandy Moseley <moseleymand@...> wrote:

Hi valerie,

Iam sorry to hear you ve been having a bad time with this and hope you continue to improve:)

I know you cant diagnose me just latley ive taken out the salt and noticed such an improvement in some symptoms along with low potassium and high sodium it points to cons syndrome but also cushings..

Ive never had aldosterone & renin tested, pituitary scan, ACTH etc these are going to be done hopefully when i go into st barts in a couple of weeks. They want to observe me on and off this diet and also test due to such flutuations in results, which do seem to tie in to my diet.

Endo has aknowleged i have candidas but first time tried to blame it on an operation id had 4 years ago for a big cyst in my groin and lots of antibiotics..but i had symptoms prior to that and another doctor i saw after suggested taht its definatley a hormone problem.

She said i ahve all the symptoms of cushings but i dont look it ( i do sometimes but again I think iam holding off this progressing with the stupid diet i have to do ..a bit like diabetes or even conns it can be improved by diet and ive stumbled across this with a homeopath if i hadnt i think i would may be of had a stroke by now or something quite serious..ive had a seizure..and my right side is in a spasm or weak..

Barts is in london its the top hospital in the country, specialises in cushings i didnt see teh Proffessor grossman..

The endo i saw said i dont have a thyroid problem and i dont need a pituiatry scan??? Every one ive talked to and even a couple of specialists at other hospitals have said i do have a low thyroid...and one of them said i could have pituitary problem...unless he thinks i may be hypopituitaty and wont need a scan for that..god knows..

At least iam going in, i will be cuffing myself to my bed and wont be leaving until i have answers..

thanks val

mand

hyperaldosteronism From: val@...Date: Sun, 10 Jan 2010 09:33:15 -0700Subject: RE: Hi, Iam neww and looking for advice, Iam waiting to be admitted for testing

Mandy, I would not presume to tell you what's wrong with you, but I have all your syptoms and I have Lyme disease with the coinfection, bartonella. I've gotten worse and worse over the years. Many of my symptoms have improved a bit on antibiotics. My BP is down 15 points and heart rate down 8 points. I've gone from 150 mg spiro to 75 mg spiro + 25 mg Inspra. Eventually, I will be totally on Inspra, and maybe not even that in the long run. My recurring low K improved on spiro.

Have you had tests for Celiac? Aldosterone and renin? Your thyroid hormones are low in the face of a normal TSH. That could indicate a pituitary problem. Also sounds like Candida.

Where's Barts Hospital?

Val

From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of MandyMIve been having problems for 4 years but believe i had something going on for a long time. I have had to do alot of fighting but Iam going into Barts hospital this month for a weeks testing to see whats going on.My symptoms:Puffy face, eyes, belly water retention in the legs.Ears ringning very loud at certain times (just realised with salt)Irritable, anxiousI go very pale at timesFatigueRight side fluctuating spasm in my face, neck, arm, legSweating all teh time or not at allTieredPain in my right side of back i think its kidneysSystemic fungal infectionHigh BP - when i am swollen ( when eaten salt, sugar etc)SeizureIf I ve eaten salt and start to drink water I just swell up

and all symptoms get worse.Ive seemed to become a tea addict as it was making me feel a bit better and have now realised I think Ive been using it as a directic ..it does make me feel very jittery at times and if i eat chocolate my heart pounds very hard..I am under a endo at barts, I have a big problem with diet and thought it was celiac for some time but I dont its looking like its teh salt and sugar causing me problems.I find Iam better if i cut my salt out, do a very low carb diet and stay away from yeast etcOnbviously this is not healthy and after a while the diet does start to tax me as I cant eat high fats for energy as I have a problem with fats aswell.My estrogen is very low at meno rangeMy TSH 0.68 T4 13.2 (12-22) T3 3.5 (4-6.8)I can feel my jaw spasming up at times which gets very [painful and teh spasm in my neck gets very rigid along with the bad headache etc..My potassium is right at the bottom of the range

and sodium always highI also have a high Vizulisation hormone adndrostendione and wondered if this would tie in with conns? Or whether you could have conns and cushings at once..Thanks for listening getting very nervous but hopefully they will find out whats wrong..Mandyx

Do you have a story that started on Hotmail? Tell us now

[Guest guest]

Don't know if they have Lyme in Eng Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Jan 10, 2010, at 8:33 AM, Valarie <val@...> wrote:

Mandy, I would not presume to tell you what's wrong with you,

but I have all your syptoms and I have Lyme disease with the coinfection,

bartonella. I've gotten worse and

worse over the years. Many of my

symptoms have improved a bit on antibiotics. My BP is down 15 points and heart rate

down 8 points. I've gone from 150

mg spiro to 75 mg spiro + 25 mg Inspra.

Eventually, I will be totally on Inspra, and maybe not even that in the

long run. My recurring low K

improved on spiro.

Have you had tests for Celiac? Aldosterone and renin? Your thyroid hormones are low in the

face of a normal TSH. That could

indicate a pituitary problem. Also

sounds like Candida.

Where's Barts Hospital?

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of MandyM

Ive been having problems for 4 years but believe i had something going on for a

long time. I have had to do alot of fighting but Iam going into Barts hospital

this month for a weeks testing to see whats going on.

My symptoms:

Puffy face, eyes, belly water retention in the legs.

Ears ringning very loud at certain times (just realised with salt)

Irritable, anxious

I go very pale at times

Fatigue

Right side fluctuating spasm in my face, neck, arm, leg

Sweating all teh time or not at all

Tiered

Pain in my right side of back i think its kidneys

Systemic fungal infection

High BP - when i am swollen ( when eaten salt, sugar etc)

Seizure

If I ve eaten salt and start to drink water I just swell up and all symptoms

get worse.

Ive seemed to become a tea addict as it was making me feel a bit better and

have now realised I think Ive been using it as a directic ..it does make me

feel very jittery at times and if i eat chocolate my heart pounds very hard..

I am under a endo at barts, I have a big problem with diet and thought it was

celiac for some time but I dont its looking like its teh salt and sugar causing

me problems.

I find Iam better if i cut my salt out, do a very low carb diet and stay away

from yeast etc

Onbviously this is not healthy and after a while the diet does start to tax me

as I cant eat high fats for energy as I have a problem with fats aswell.

My estrogen is very low at meno range

My TSH 0.68 T4 13.2 (12-22) T3 3.5 (4-6.8)

I can feel my jaw spasming up at times which gets very [painful and teh spasm

in my neck gets very rigid along with the bad headache etc..

My potassium is right at the bottom of the range and sodium always high

I also have a high Vizulisation hormone adndrostendione and wondered if this

would tie in with conns? Or whether you could have conns and cushings at once..

Thanks for listening getting very nervous but hopefully they will find out

whats wrong..

Mandyx

[Guest guest]

Hi Clarence Grim..

Thank you I will read your evoloution of PA and get right back to you. I did

discuss Aldosterone with the endo at barts and he is going to test it along with

renin.

I have travelled to Cuba, Belize, Gautelmarla, Mexico could catch it whilst away

maybe? The thing that makes me doubt lyme is i think i ve had some symptoms

along time just not realised. My sister also has some of the problem's I do but

not as bad. Iam suspecting its in the family, maybe only part of it and i have

more than one problem..who knows I cant help but look for answers having been

like this so long..

Thanks any way, happy to have found this forum

>

> > Hi valerie,

> >

> > Iam sorry to hear you ve been having a bad time with this and hope

> > you continue to improve:)

> >

> > I know you cant diagnose me just latley ive taken out the salt and

> > noticed such an improvement in some symptoms along with low

> > potassium and high sodium it points to cons syndrome but also

> > cushings..

> >

> > Ive never had aldosterone & renin tested, pituitary scan, ACTH etc

> > these are going to be done hopefully when i go into st barts in a

> > couple of weeks. They want to observe me on and off this diet and

> > also test due to such flutuations in results, which do seem to tie

> > in to my diet.

> >

> > Endo has aknowleged i have candidas but first time tried to blame it

> > on an operation id had 4 years ago for a big cyst in my groin and

> > lots of antibiotics..but i had symptoms prior to that and another

> > doctor i saw after suggested taht its definatley a hormone problem.

> >

> > She said i ahve all the symptoms of cushings but i dont look it ( i

> > do sometimes but again I think iam holding off this progressing with

> > the stupid diet i have to do ..a bit like diabetes or even conns it

> > can be improved by diet and ive stumbled across this with a

> > homeopath if i hadnt i think i would may be of had a stroke by now

> > or something quite serious..ive had a seizure..and my right side is

> > in a spasm or weak..

> >

> > Barts is in london its the top hospital in the country, specialises

> > in cushings i didnt see teh Proffessor grossman..

> >

> > The endo i saw said i dont have a thyroid problem and i dont need a

> > pituiatry scan??? Every one ive talked to and even a couple of

> > specialists at other hospitals have said i do have a low

> > thyroid...and one of them said i could have pituitary

> > problem...unless he thinks i may be hypopituitaty and wont need a

> > scan for that..god knows..

> >

> > At least iam going in, i will be cuffing myself to my bed and wont

> > be leaving until i have answers..

> >

> > thanks val

> > mand

> >

> > hyperaldosteronism

> > From: val@...

> > Date: Sun, 10 Jan 2010 09:33:15 -0700

> > Subject: RE: Hi, Iam neww and looking for

> > advice, Iam waiting to be admitted for testing

> >

> >

> > Mandy, I would not presume to tell you what's wrong with you, but I

> > have all your syptoms and I have Lyme disease with the coinfection,

> > bartonella. I've gotten worse and worse over the years. Many of my

> > symptoms have improved a bit on antibiotics. My BP is down 15

> > points and heart rate down 8 points. I've gone from 150 mg spiro to

> > 75 mg spiro + 25 mg Inspra. Eventually, I will be totally on

> > Inspra, and maybe not even that in the long run. My recurring low K

> > improved on spiro.

> >

> >

> > Have you had tests for Celiac? Aldosterone and renin? Your thyroid

> > hormones are low in the face of a normal TSH. That could indicate a

> > pituitary problem. Also sounds like Candida.

> >

> >

> >

> > Where's Barts Hospital?

> >

> >

> >

> > Val

> >

> >

> >

> > From: hyperaldosteronism

> > [mailto:hyperaldosteronism ] On Behalf Of MandyM

> >

> > Ive been having problems for 4 years but believe i had something

> > going on for a long time. I have had to do alot of fighting but Iam

> > going into Barts hospital this month for a weeks testing to see

> > whats going on.

> >

> > My symptoms:

> >

> > Puffy face, eyes, belly water retention in the legs.

> > Ears ringning very loud at certain times (just realised with salt)

> > Irritable, anxious

> > I go very pale at times

> > Fatigue

> > Right side fluctuating spasm in my face, neck, arm, leg

> > Sweating all teh time or not at all

> > Tiered

> > Pain in my right side of back i think its kidneys

> > Systemic fungal infection

> > High BP - when i am swollen ( when eaten salt, sugar etc)

> > Seizure

> >

> > If I ve eaten salt and start to drink water I just swell up and all

> > symptoms get worse.

> >

> > Ive seemed to become a tea addict as it was making me feel a bit

> > better and have now realised I think Ive been using it as a

> > directic ..it does make me feel very jittery at times and if i eat

> > chocolate my heart pounds very hard..

> >

> > I am under a endo at barts, I have a big problem with diet and

> > thought it was celiac for some time but I dont its looking like its

> > teh salt and sugar causing me problems.

> >

> > I find Iam better if i cut my salt out, do a very low carb diet and

> > stay away from yeast etc

> >

> > Onbviously this is not healthy and after a while the diet does start

> > to tax me as I cant eat high fats for energy as I have a problem

> > with fats aswell.

> >

> > My estrogen is very low at meno range

> > My TSH 0.68 T4 13.2 (12-22) T3 3.5 (4-6.8)

> >

> > I can feel my jaw spasming up at times which gets very [painful and

> > teh spasm in my neck gets very rigid along with the bad headache etc..

> >

> > My potassium is right at the bottom of the range and sodium always

> > high

> >

> > I also have a high Vizulisation hormone adndrostendione and wondered

> > if this would tie in with conns? Or whether you could have conns and

> > cushings at once..

> >

> > Thanks for listening getting very nervous but hopefully they will

> > find out whats wrong..

> >

> > Mandyx

> >

> >

> >

> >

> > Do you have a story that started on Hotmail? Tell us now

> >

>

[Guest guest]

Hi Clarence Grim..

Thank you I will read your evoloution of PA and get right back to you. I did

discuss Aldosterone with the endo at barts and he is going to test it along with

renin.

I have travelled to Cuba, Belize, Gautelmarla, Mexico could catch it whilst away

maybe? The thing that makes me doubt lyme is i think i ve had some symptoms

along time just not realised. My sister also has some of the problem's I do but

not as bad. Iam suspecting its in the family, maybe only part of it and i have

more than one problem..who knows I cant help but look for answers having been

like this so long..

Thanks any way, happy to have found this forum

>

> > Hi valerie,

> >

> > Iam sorry to hear you ve been having a bad time with this and hope

> > you continue to improve:)

> >

> > I know you cant diagnose me just latley ive taken out the salt and

> > noticed such an improvement in some symptoms along with low

> > potassium and high sodium it points to cons syndrome but also

> > cushings..

> >

> > Ive never had aldosterone & renin tested, pituitary scan, ACTH etc

> > these are going to be done hopefully when i go into st barts in a

> > couple of weeks. They want to observe me on and off this diet and

> > also test due to such flutuations in results, which do seem to tie

> > in to my diet.

> >

> > Endo has aknowleged i have candidas but first time tried to blame it

> > on an operation id had 4 years ago for a big cyst in my groin and

> > lots of antibiotics..but i had symptoms prior to that and another

> > doctor i saw after suggested taht its definatley a hormone problem.

> >

> > She said i ahve all the symptoms of cushings but i dont look it ( i

> > do sometimes but again I think iam holding off this progressing with

> > the stupid diet i have to do ..a bit like diabetes or even conns it

> > can be improved by diet and ive stumbled across this with a

> > homeopath if i hadnt i think i would may be of had a stroke by now

> > or something quite serious..ive had a seizure..and my right side is

> > in a spasm or weak..

> >

> > Barts is in london its the top hospital in the country, specialises

> > in cushings i didnt see teh Proffessor grossman..

> >

> > The endo i saw said i dont have a thyroid problem and i dont need a

> > pituiatry scan??? Every one ive talked to and even a couple of

> > specialists at other hospitals have said i do have a low

> > thyroid...and one of them said i could have pituitary

> > problem...unless he thinks i may be hypopituitaty and wont need a

> > scan for that..god knows..

> >

> > At least iam going in, i will be cuffing myself to my bed and wont

> > be leaving until i have answers..

> >

> > thanks val

> > mand

> >

> > hyperaldosteronism

> > From: val@...

> > Date: Sun, 10 Jan 2010 09:33:15 -0700

> > Subject: RE: Hi, Iam neww and looking for

> > advice, Iam waiting to be admitted for testing

> >

> >

> > Mandy, I would not presume to tell you what's wrong with you, but I

> > have all your syptoms and I have Lyme disease with the coinfection,

> > bartonella. I've gotten worse and worse over the years. Many of my

> > symptoms have improved a bit on antibiotics. My BP is down 15

> > points and heart rate down 8 points. I've gone from 150 mg spiro to

> > 75 mg spiro + 25 mg Inspra. Eventually, I will be totally on

> > Inspra, and maybe not even that in the long run. My recurring low K

> > improved on spiro.

> >

> >

> > Have you had tests for Celiac? Aldosterone and renin? Your thyroid

> > hormones are low in the face of a normal TSH. That could indicate a

> > pituitary problem. Also sounds like Candida.

> >

> >

> >

> > Where's Barts Hospital?

> >

> >

> >

> > Val

> >

> >

> >

> > From: hyperaldosteronism

> > [mailto:hyperaldosteronism ] On Behalf Of MandyM

> >

> > Ive been having problems for 4 years but believe i had something

> > going on for a long time. I have had to do alot of fighting but Iam

> > going into Barts hospital this month for a weeks testing to see

> > whats going on.

> >

> > My symptoms:

> >

> > Puffy face, eyes, belly water retention in the legs.

> > Ears ringning very loud at certain times (just realised with salt)

> > Irritable, anxious

> > I go very pale at times

> > Fatigue

> > Right side fluctuating spasm in my face, neck, arm, leg

> > Sweating all teh time or not at all

> > Tiered

> > Pain in my right side of back i think its kidneys

> > Systemic fungal infection

> > High BP - when i am swollen ( when eaten salt, sugar etc)

> > Seizure

> >

> > If I ve eaten salt and start to drink water I just swell up and all

> > symptoms get worse.

> >

> > Ive seemed to become a tea addict as it was making me feel a bit

> > better and have now realised I think Ive been using it as a

> > directic ..it does make me feel very jittery at times and if i eat

> > chocolate my heart pounds very hard..

> >

> > I am under a endo at barts, I have a big problem with diet and

> > thought it was celiac for some time but I dont its looking like its

> > teh salt and sugar causing me problems.

> >

> > I find Iam better if i cut my salt out, do a very low carb diet and

> > stay away from yeast etc

> >

> > Onbviously this is not healthy and after a while the diet does start

> > to tax me as I cant eat high fats for energy as I have a problem

> > with fats aswell.

> >

> > My estrogen is very low at meno range

> > My TSH 0.68 T4 13.2 (12-22) T3 3.5 (4-6.8)

> >

> > I can feel my jaw spasming up at times which gets very [painful and

> > teh spasm in my neck gets very rigid along with the bad headache etc..

> >

> > My potassium is right at the bottom of the range and sodium always

> > high

> >

> > I also have a high Vizulisation hormone adndrostendione and wondered

> > if this would tie in with conns? Or whether you could have conns and

> > cushings at once..

> >

> > Thanks for listening getting very nervous but hopefully they will

> > find out whats wrong..

> >

> > Mandyx

> >

> >

> >

> >

> > Do you have a story that started on Hotmail? Tell us now

> >

>

[Guest guest]

Hi,

Ive read the document you recommened I read, it was very interesting thank you.

I believe Iam at stage 3, possibly stage 4. I have many of the symptoms but not all of them. I do get a punding heart, palaptations at times aswell..

I was a fitness Instructor when i ve tried to go even when i feel lousy (but mentally it helps me feel like mandy) i do struggle with cramps in my feet, leg spasm etc if I havent stuck to my diet and i try to go any excersise makes me swell up more even just walking..

This section below I think applies to me, it would make sense the fluctuations in my facial spasm, arm,neck, leg etc..and other symptoms. I follow a very low carb, sugar free and more recently very low salt diet..and i also have taken latley to drinking tea, as it makes me feel better..

So, if I already have low potassium due to a underlying problem the directic and my diet may be aggrevating those symptoms further...

So, the best thing i could do I suppose is now stay away from the salt and stop drinking tea, Iam sure ive read its a directic and may cause you to loose potassium...

(20 ìg/d). The renin would be lower, the aldosterone

higher, and the ARR higher than in stage 2. Aldosterone

production would no longer suppress into the "normal"

range, and hypokalemia might be precipitated by a

low potassium intake, diuretic use, or extrarenal loss of

potassium in sweat, vomit, or stool

mandy:)

hyperaldosteronism From: lowerbp2@...Date: Sun, 10 Jan 2010 12:15:45 -0800Subject: Re: Hi, Iam neww and looking for advice, Iam waiting to be admitted for testing

Don't know if they have Lyme in Eng Tiped sad Send form mi iPhone ;-)

May your pressure be low!

CE Grim MD

Specializing in Difficult

Hypertension

On Jan 10, 2010, at 8:33 AM, Valarie <val@...> wrote:

Mandy, I would not presume to tell you what's wrong with you, but I have all your syptoms and I have Lyme disease with the coinfection, bartonella. I've gotten worse and worse over the years. Many of my symptoms have improved a bit on antibiotics. My BP is down 15 points and heart rate down 8 points. I've gone from 150 mg spiro to 75 mg spiro + 25 mg Inspra. Eventually, I will be totally on Inspra, and maybe not even that in the long run. My recurring low K improved on spiro.

Have you had tests for Celiac? Aldosterone and renin? Your thyroid hormones are low in the face of a normal TSH. That could indicate a pituitary problem. Also sounds like Candida.

Where's Barts Hospital?

Val

From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of MandyMIve been having problems for 4 years but believe i had something going on for a long time. I have had to do alot of fighting but Iam going into Barts hospital this month for a weeks testing to see whats going on.My symptoms:Puffy face, eyes, belly water retention in the legs.Ears ringning very loud at certain times (just realised with salt)Irritable, anxiousI go very pale at timesFatigueRight side fluctuating spasm in my face, neck, arm, legSweating all teh time or not at allTieredPain in my right side of back i think its kidneysSystemic fungal infectionHigh BP - when i am swollen ( when eaten salt, sugar etc)SeizureIf I ve eaten salt and start to drink water I just swell up and all symptoms get worse.Ive seemed to become a tea addict as it was making me feel a bit better and have now realised I think Ive been using it as a directic ..it does make me feel very jittery at times and if i eat chocolate my heart pounds very hard..I am under a endo at barts, I have a big problem with diet and thought it was celiac for some time but I dont its looking like its teh salt and sugar causing me problems.I find Iam better if i cut my salt out, do a very low carb diet and stay away from yeast etcOnbviously this is not healthy and after a while the diet does start to tax me as I cant eat high fats for energy as I have a problem with fats aswell.My estrogen is very low at meno rangeMy TSH 0.68 T4 13.2 (12-22) T3 3.5 (4-6.8)I can feel my jaw spasming up at times which gets very [painful and teh spasm in my neck gets very rigid along with the bad headache etc..My potassium is right at the bottom of the range and sodium always highI also have a high Vizulisation hormone adndrostendione and wondered if this would tie in with conns? Or whether you could have conns and cushings at once..Thanks for listening getting very nervous but hopefully they will find out whats wrong..Mandyx

We want to hear all your funny, exciting and crazy Hotmail stories. Tell us now

[Guest guest]

Hi,

Ive read the document you recommened I read, it was very interesting thank you.

I believe Iam at stage 3, possibly stage 4. I have many of the symptoms but not all of them. I do get a punding heart, palaptations at times aswell..

I was a fitness Instructor when i ve tried to go even when i feel lousy (but mentally it helps me feel like mandy) i do struggle with cramps in my feet, leg spasm etc if I havent stuck to my diet and i try to go any excersise makes me swell up more even just walking..

This section below I think applies to me, it would make sense the fluctuations in my facial spasm, arm,neck, leg etc..and other symptoms. I follow a very low carb, sugar free and more recently very low salt diet..and i also have taken latley to drinking tea, as it makes me feel better..

So, if I already have low potassium due to a underlying problem the directic and my diet may be aggrevating those symptoms further...

So, the best thing i could do I suppose is now stay away from the salt and stop drinking tea, Iam sure ive read its a directic and may cause you to loose potassium...

(20 ìg/d). The renin would be lower, the aldosterone

higher, and the ARR higher than in stage 2. Aldosterone

production would no longer suppress into the "normal"

range, and hypokalemia might be precipitated by a

low potassium intake, diuretic use, or extrarenal loss of

potassium in sweat, vomit, or stool

mandy:)

hyperaldosteronism From: lowerbp2@...Date: Sun, 10 Jan 2010 12:15:45 -0800Subject: Re: Hi, Iam neww and looking for advice, Iam waiting to be admitted for testing

Don't know if they have Lyme in Eng Tiped sad Send form mi iPhone ;-)

May your pressure be low!

CE Grim MD

Specializing in Difficult

Hypertension

On Jan 10, 2010, at 8:33 AM, Valarie <val@...> wrote:

Mandy, I would not presume to tell you what's wrong with you, but I have all your syptoms and I have Lyme disease with the coinfection, bartonella. I've gotten worse and worse over the years. Many of my symptoms have improved a bit on antibiotics. My BP is down 15 points and heart rate down 8 points. I've gone from 150 mg spiro to 75 mg spiro + 25 mg Inspra. Eventually, I will be totally on Inspra, and maybe not even that in the long run. My recurring low K improved on spiro.

Have you had tests for Celiac? Aldosterone and renin? Your thyroid hormones are low in the face of a normal TSH. That could indicate a pituitary problem. Also sounds like Candida.

Where's Barts Hospital?

Val

From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of MandyMIve been having problems for 4 years but believe i had something going on for a long time. I have had to do alot of fighting but Iam going into Barts hospital this month for a weeks testing to see whats going on.My symptoms:Puffy face, eyes, belly water retention in the legs.Ears ringning very loud at certain times (just realised with salt)Irritable, anxiousI go very pale at timesFatigueRight side fluctuating spasm in my face, neck, arm, legSweating all teh time or not at allTieredPain in my right side of back i think its kidneysSystemic fungal infectionHigh BP - when i am swollen ( when eaten salt, sugar etc)SeizureIf I ve eaten salt and start to drink water I just swell up and all symptoms get worse.Ive seemed to become a tea addict as it was making me feel a bit better and have now realised I think Ive been using it as a directic ..it does make me feel very jittery at times and if i eat chocolate my heart pounds very hard..I am under a endo at barts, I have a big problem with diet and thought it was celiac for some time but I dont its looking like its teh salt and sugar causing me problems.I find Iam better if i cut my salt out, do a very low carb diet and stay away from yeast etcOnbviously this is not healthy and after a while the diet does start to tax me as I cant eat high fats for energy as I have a problem with fats aswell.My estrogen is very low at meno rangeMy TSH 0.68 T4 13.2 (12-22) T3 3.5 (4-6.8)I can feel my jaw spasming up at times which gets very [painful and teh spasm in my neck gets very rigid along with the bad headache etc..My potassium is right at the bottom of the range and sodium always highI also have a high Vizulisation hormone adndrostendione and wondered if this would tie in with conns? Or whether you could have conns and cushings at once..Thanks for listening getting very nervous but hopefully they will find out whats wrong..Mandyx

We want to hear all your funny, exciting and crazy Hotmail stories. Tell us now

[Guest guest]

water retention means you are eating too much salt. Recommend DASHIng starting now.CE Grim MD Welcome1. Read my article in our files on the evolution of PA (Evolution_of_PA-Grim.pdf ) and take to all members of health care team. Tell us what stage you believe you are in.2. Read our Conn's stories files and then give us your own in as much detail as you can. To see others' stories, on the Hyperaldosteronism home page, go to Files/Conns Stories. You'll find instructions in "A - How to put your story here.doc " 3. Get the DASH diet book by T. et al, read it and use it. $8 in paperback at your local bookstore.or go to http://www.nhlbi.nih.gov/health/public/heart/hbp/dash/new_dash.pdfdownload this 64 page booklet free and do the Week on the DASH Diet for 2 weeks. If you are on BP meds be prepared for a large fall in BP and let your Dr. know you are doing this.4. Measure your BP daily so you can see if it is getting better. If you are taking meds be sure to tell your health care team you are doing this as your BP may plummet to normal quickly.5. Go to familyhistory.hhs.gov and do your detailed family medical history so we can review with you to help Dx familial causes of high blood pressure and heart disease. If BP runs in your family you may save others in your family by checking their BP yourself.6. Go to our file/Conn's Articles of Note/Medications/Bravo spir 1973.pdf and read this article and take to your health care team.7. If you have been Dxed with PA already and are on Rx or have had surgery please go to http://www.kwiksurveys.com/online-survey.php?surveyID=HIJIO_f2685379 and complete our survey with as much information as you know. If there is some information you don'k know ask us and we will help. If you need to update this as you journey thru the diagnostic/treatment process you can add another entry but label it as Nameyymmdd. For example today 6/12/09 for me would be Grim090612. This ever increasing number will allow us and you to sort your multiple entries into a dated order. 8. If you are new to medical lingo then download the acroyms from bloodpressureline/message/291869. Go to NIH and see if you are interested and qualify for their free testing in Bethdesda , MD.Clarence E. Grim BS, MS, MD, FACP, FACCBoard Certified in Internal Medicine, Geriatrics, and High Blood PressureClinincal Professor of Internal Medicine and Cardiology, Medical College of WisconsinSpecializing in Difficult to Control HIgh Blood Pressure. On Jan 10, 2010, at 5:37 AM, MandyM wrote:Hello,Ive been having problems for 4 years but believe i had something going on for a long time. I have had to do alot of fighting but Iam going into Barts hospital this month for a weeks testing to see whats going on.My symptoms:Puffy face, eyes, belly water retention in the legs.Ears ringning very loud at certain times (just realised with salt)Irritable, anxiousI go very pale at timesFatigueRight side fluctuating spasm in my face, neck, arm, legSweating all teh time or not at allTieredPain in my right side of back i think its kidneysSystemic fungal infectionHigh BP - when i am swollen ( when eaten salt, sugar etc)SeizureIf I ve eaten salt and start to drink water I just swell up and all symptoms get worse.Ive seemed to become a tea addict as it was making me feel a bit better and have now realised I think Ive been using it as a directic ..it does make me feel very jittery at times and if i eat chocolate my heart pounds very hard..I am under a endo at barts, I have a big problem with diet and thought it was celiac for some time but I dont its looking like its teh salt and sugar causing me problems.I find Iam better if i cut my salt out, do a very low carb diet and stay away from yeast etcOnbviously this is not healthy and after a while the diet does start to tax me as I cant eat high fats for energy as I have a problem with fats aswell.My estrogen is very low at meno rangeMy TSH 0.68 T4 13.2 (12-22) T3 3.5 (4-6.8)I can feel my jaw spasming up at times which gets very [painful and teh spasm in my neck gets very rigid along with the bad headache etc..My potassium is right at the bottom of the range and sodium always highI also have a high Vizulisation hormone adndrostendione and wondered if this would tie in with conns? Or whether you could have conns and cushings at once..Thanks for listening getting very nervous but hopefully they will find out whats wrong..Mandyx

[Guest guest]

water retention means you are eating too much salt. Recommend DASHIng starting now.CE Grim MD Welcome1. Read my article in our files on the evolution of PA (Evolution_of_PA-Grim.pdf ) and take to all members of health care team. Tell us what stage you believe you are in.2. Read our Conn's stories files and then give us your own in as much detail as you can. To see others' stories, on the Hyperaldosteronism home page, go to Files/Conns Stories. You'll find instructions in "A - How to put your story here.doc " 3. Get the DASH diet book by T. et al, read it and use it. $8 in paperback at your local bookstore.or go to http://www.nhlbi.nih.gov/health/public/heart/hbp/dash/new_dash.pdfdownload this 64 page booklet free and do the Week on the DASH Diet for 2 weeks. If you are on BP meds be prepared for a large fall in BP and let your Dr. know you are doing this.4. Measure your BP daily so you can see if it is getting better. If you are taking meds be sure to tell your health care team you are doing this as your BP may plummet to normal quickly.5. Go to familyhistory.hhs.gov and do your detailed family medical history so we can review with you to help Dx familial causes of high blood pressure and heart disease. If BP runs in your family you may save others in your family by checking their BP yourself.6. Go to our file/Conn's Articles of Note/Medications/Bravo spir 1973.pdf and read this article and take to your health care team.7. If you have been Dxed with PA already and are on Rx or have had surgery please go to http://www.kwiksurveys.com/online-survey.php?surveyID=HIJIO_f2685379 and complete our survey with as much information as you know. If there is some information you don'k know ask us and we will help. If you need to update this as you journey thru the diagnostic/treatment process you can add another entry but label it as Nameyymmdd. For example today 6/12/09 for me would be Grim090612. This ever increasing number will allow us and you to sort your multiple entries into a dated order. 8. If you are new to medical lingo then download the acroyms from bloodpressureline/message/291869. Go to NIH and see if you are interested and qualify for their free testing in Bethdesda , MD.Clarence E. Grim BS, MS, MD, FACP, FACCBoard Certified in Internal Medicine, Geriatrics, and High Blood PressureClinincal Professor of Internal Medicine and Cardiology, Medical College of WisconsinSpecializing in Difficult to Control HIgh Blood Pressure. On Jan 10, 2010, at 5:37 AM, MandyM wrote:Hello,Ive been having problems for 4 years but believe i had something going on for a long time. I have had to do alot of fighting but Iam going into Barts hospital this month for a weeks testing to see whats going on.My symptoms:Puffy face, eyes, belly water retention in the legs.Ears ringning very loud at certain times (just realised with salt)Irritable, anxiousI go very pale at timesFatigueRight side fluctuating spasm in my face, neck, arm, legSweating all teh time or not at allTieredPain in my right side of back i think its kidneysSystemic fungal infectionHigh BP - when i am swollen ( when eaten salt, sugar etc)SeizureIf I ve eaten salt and start to drink water I just swell up and all symptoms get worse.Ive seemed to become a tea addict as it was making me feel a bit better and have now realised I think Ive been using it as a directic ..it does make me feel very jittery at times and if i eat chocolate my heart pounds very hard..I am under a endo at barts, I have a big problem with diet and thought it was celiac for some time but I dont its looking like its teh salt and sugar causing me problems.I find Iam better if i cut my salt out, do a very low carb diet and stay away from yeast etcOnbviously this is not healthy and after a while the diet does start to tax me as I cant eat high fats for energy as I have a problem with fats aswell.My estrogen is very low at meno rangeMy TSH 0.68 T4 13.2 (12-22) T3 3.5 (4-6.8)I can feel my jaw spasming up at times which gets very [painful and teh spasm in my neck gets very rigid along with the bad headache etc..My potassium is right at the bottom of the range and sodium always highI also have a high Vizulisation hormone adndrostendione and wondered if this would tie in with conns? Or whether you could have conns and cushings at once..Thanks for listening getting very nervous but hopefully they will find out whats wrong..Mandyx

[Guest guest]

You most likely have PA. Tell the Bart's team Dr. Grim is recommending you be tested.CE Grim MDOn Jan 10, 2010, at 4:14 PM, Mandy Moseley wrote:Hi, Ive read the document you recommened I read, it was very interesting thank you. I believe Iam at stage 3, possibly stage 4. I have many of the symptoms but not all of them. I do get a punding heart, palaptations at times aswell.. I was a fitness Instructor when i ve tried to go even when i feel lousy (but mentally it helps me feel like mandy) i do struggle with cramps in my feet, leg spasm etc if I havent stuck to my diet and i try to go any excersise makes me swell up more even just walking.. This section below I think applies to me, it would make sense the fluctuations in my facial spasm, arm,neck, leg etc..and other symptoms. I follow a very low carb, sugar free and more recently very low salt diet..and i also have taken latley to drinking tea, as it makes me feel better.. So, if I already have low potassium due to a underlying problem the directic and my diet may be aggrevating those symptoms further... So, the best thing i could do I suppose is now stay away from the salt and stop drinking tea, Iam sure ive read its a directic and may cause you to loose potassium... (20 μg/d). The renin would be lower, the aldosteronehigher, and the ARR higher than in stage 2. Aldosteroneproduction would no longer suppress into the "normal"range, and hypokalemia might be precipitated by alow potassium intake, diuretic use, or extrarenal loss ofpotassium in sweat, vomit, or stool mandy:)hyperaldosteronism From: lowerbp2macDate: Sun, 10 Jan 2010 12:15:45 -0800Subject: Re: Hi, Iam neww and looking for advice, Iam waiting to be admitted for testing Don't know if they have Lyme in Eng Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Jan 10, 2010, at 8:33 AM, Valarie <val@...> wrote: Mandy, I would not presume to tell you what's wrong with you, but I have all your syptoms and I have Lyme disease with the coinfection, bartonella. I've gotten worse and worse over the years. Many of my symptoms have improved a bit on antibiotics. My BP is down 15 points and heart rate down 8 points. I've gone from 150 mg spiro to 75 mg spiro + 25 mg Inspra. Eventually, I will be totally on Inspra, and maybe not even that in the long run. My recurring low K improved on spiro. Have you had tests for Celiac? Aldosterone and renin? Your thyroid hormones are low in the face of a normal TSH. That could indicate a pituitary problem. Also sounds like Candida. Where's Barts Hospital? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of MandyMIve been having problems for 4 years but believe i had something going on for a long time. I have had to do alot of fighting but Iam going into Barts hospital this month for a weeks testing to see whats going on.My symptoms:Puffy face, eyes, belly water retention in the legs.Ears ringning very loud at certain times (just realised with salt)Irritable, anxiousI go very pale at timesFatigueRight side fluctuating spasm in my face, neck, arm, legSweating all teh time or not at allTieredPain in my right side of back i think its kidneysSystemic fungal infectionHigh BP - when i am swollen ( when eaten salt, sugar etc)SeizureIf I ve eaten salt and start to drink water I just swell up and all symptoms get worse.Ive seemed to become a tea addict as it was making me feel a bit better and have now realised I think Ive been using it as a directic ..it does make me feel very jittery at times and if i eat chocolate my heart pounds very hard..I am under a endo at barts, I have a big problem with diet and thought it was celiac for some time but I dont its looking like its teh salt and sugar causing me problems.I find Iam better if i cut my salt out, do a very low carb diet and stay away from yeast etcOnbviously this is not healthy and after a while the diet does start to tax me as I cant eat high fats for energy as I have a problem with fats aswell.My estrogen is very low at meno rangeMy TSH 0.68 T4 13.2 (12-22) T3 3.5 (4-6.8)I can feel my jaw spasming up at times which gets very [painful and teh spasm in my neck gets very rigid along with the bad headache etc..My potassium is right at the bottom of the range and sodium always highI also have a high Vizulisation hormone adndrostendione and wondered if this would tie in with conns? Or whether you could have conns and cushings at once..Thanks for listening getting very nervous but hopefully they will find out whats wrong..MandyxWe want to hear all your funny, exciting and crazy Hotmail stories. Tell us now

[Guest guest]

You most likely have PA. Tell the Bart's team Dr. Grim is recommending you be tested.CE Grim MDOn Jan 10, 2010, at 4:14 PM, Mandy Moseley wrote:Hi, Ive read the document you recommened I read, it was very interesting thank you. I believe Iam at stage 3, possibly stage 4. I have many of the symptoms but not all of them. I do get a punding heart, palaptations at times aswell.. I was a fitness Instructor when i ve tried to go even when i feel lousy (but mentally it helps me feel like mandy) i do struggle with cramps in my feet, leg spasm etc if I havent stuck to my diet and i try to go any excersise makes me swell up more even just walking.. This section below I think applies to me, it would make sense the fluctuations in my facial spasm, arm,neck, leg etc..and other symptoms. I follow a very low carb, sugar free and more recently very low salt diet..and i also have taken latley to drinking tea, as it makes me feel better.. So, if I already have low potassium due to a underlying problem the directic and my diet may be aggrevating those symptoms further... So, the best thing i could do I suppose is now stay away from the salt and stop drinking tea, Iam sure ive read its a directic and may cause you to loose potassium... (20 μg/d). The renin would be lower, the aldosteronehigher, and the ARR higher than in stage 2. Aldosteroneproduction would no longer suppress into the "normal"range, and hypokalemia might be precipitated by alow potassium intake, diuretic use, or extrarenal loss ofpotassium in sweat, vomit, or stool mandy:)hyperaldosteronism From: lowerbp2macDate: Sun, 10 Jan 2010 12:15:45 -0800Subject: Re: Hi, Iam neww and looking for advice, Iam waiting to be admitted for testing Don't know if they have Lyme in Eng Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Jan 10, 2010, at 8:33 AM, Valarie <val@...> wrote: Mandy, I would not presume to tell you what's wrong with you, but I have all your syptoms and I have Lyme disease with the coinfection, bartonella. I've gotten worse and worse over the years. Many of my symptoms have improved a bit on antibiotics. My BP is down 15 points and heart rate down 8 points. I've gone from 150 mg spiro to 75 mg spiro + 25 mg Inspra. Eventually, I will be totally on Inspra, and maybe not even that in the long run. My recurring low K improved on spiro. Have you had tests for Celiac? Aldosterone and renin? Your thyroid hormones are low in the face of a normal TSH. That could indicate a pituitary problem. Also sounds like Candida. Where's Barts Hospital? Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of MandyMIve been having problems for 4 years but believe i had something going on for a long time. I have had to do alot of fighting but Iam going into Barts hospital this month for a weeks testing to see whats going on.My symptoms:Puffy face, eyes, belly water retention in the legs.Ears ringning very loud at certain times (just realised with salt)Irritable, anxiousI go very pale at timesFatigueRight side fluctuating spasm in my face, neck, arm, legSweating all teh time or not at allTieredPain in my right side of back i think its kidneysSystemic fungal infectionHigh BP - when i am swollen ( when eaten salt, sugar etc)SeizureIf I ve eaten salt and start to drink water I just swell up and all symptoms get worse.Ive seemed to become a tea addict as it was making me feel a bit better and have now realised I think Ive been using it as a directic ..it does make me feel very jittery at times and if i eat chocolate my heart pounds very hard..I am under a endo at barts, I have a big problem with diet and thought it was celiac for some time but I dont its looking like its teh salt and sugar causing me problems.I find Iam better if i cut my salt out, do a very low carb diet and stay away from yeast etcOnbviously this is not healthy and after a while the diet does start to tax me as I cant eat high fats for energy as I have a problem with fats aswell.My estrogen is very low at meno rangeMy TSH 0.68 T4 13.2 (12-22) T3 3.5 (4-6.8)I can feel my jaw spasming up at times which gets very [painful and teh spasm in my neck gets very rigid along with the bad headache etc..My potassium is right at the bottom of the range and sodium always highI also have a high Vizulisation hormone adndrostendione and wondered if this would tie in with conns? Or whether you could have conns and cushings at once..Thanks for listening getting very nervous but hopefully they will find out whats wrong..MandyxWe want to hear all your funny, exciting and crazy Hotmail stories. Tell us now

[Guest guest]

I think it is found all over the world.  I read an article the other day about birds

spreading ticks.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

 

Don't

know if they have Lyme in Eng

[Guest guest]

I think it is found all over the world.  I read an article the other day about birds

spreading ticks.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

 

Don't

know if they have Lyme in Eng

[Guest guest]

Mandy, I cut my sodium to 800 mg/d. I was very careful to record every bite

and keep good records with FitDay. At

Mayo Clinic, urinary sodium was too low to measure so I was doing a good job at

cutting sodium. Even with that, my

BP was still too high and I wasn't feeling any better. I do have excess aldo and low renin, but

that isn't the whole story for me. While others on this list get on spiro or

Inspra and move on with their lives, I was getting sicker. That's when I started looking elsewhere

Your right side in spasm or weak is a concern. Where is your blood pressure? Do you check it at home? When I first started, I checked mine

4x/d, averaged that and then kept a 7-day moving average. I found my pressure highest at 5 p.m. so

check it only at that time, now. I

still use a moving average so a single day's blip isn't a concern.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Mandy Moseley

Hi valerie,

Iam sorry to hear you ve been having a bad time with this and hope you continue

to improve:)

I know you cant diagnose me just latley ive taken out the salt and noticed

such an improvement in some symptoms along with low potassium and high sodium

it points to cons syndrome but also cushings..

Ive never had aldosterone & renin tested, pituitary scan, ACTH etc these

are going to be done hopefully when i go into st barts in a couple of

weeks. They want to observe me on and off this diet and also test due to

such flutuations in results, which do seem to tie in to my diet.

Endo has aknowleged i have candidas but first time tried to blame it on an

operation id had 4 years ago for a big cyst in my groin and lots of antibiotics..but

i had symptoms prior to that and another doctor i saw after suggested taht its

definatley a hormone problem.

She said i ahve all the symptoms of cushings but i dont look it ( i do sometimes

but again I think iam holding off this progressing with the stupid diet i have

to do ..a bit like diabetes or even conns it can be improved by diet and

ive stumbled across this with a homeopath if i hadnt i think i would may be of

had a stroke by now or something quite serious..ive had a seizure..and my right

side is in a spasm or weak..

Barts is in london its the top hospital in the country, specialises in cushings

i didnt see teh Proffessor grossman..

The endo i saw said i dont have a thyroid problem and i dont need a pituiatry

scan??? Every one ive talked to and even a couple of specialists at other

hospitals have said i do have a low thyroid...and one of them said i could have

pituitary problem...unless he thinks i may be hypopituitaty and wont need a

scan for that..god knows..

At least iam going in, i will be cuffing myself to my bed and wont be leaving

until i have answers..

thanks val

mand

[Guest guest]

Mandy, I cut my sodium to 800 mg/d. I was very careful to record every bite

and keep good records with FitDay. At

Mayo Clinic, urinary sodium was too low to measure so I was doing a good job at

cutting sodium. Even with that, my

BP was still too high and I wasn't feeling any better. I do have excess aldo and low renin, but

that isn't the whole story for me. While others on this list get on spiro or

Inspra and move on with their lives, I was getting sicker. That's when I started looking elsewhere

Your right side in spasm or weak is a concern. Where is your blood pressure? Do you check it at home? When I first started, I checked mine

4x/d, averaged that and then kept a 7-day moving average. I found my pressure highest at 5 p.m. so

check it only at that time, now. I

still use a moving average so a single day's blip isn't a concern.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Mandy Moseley

Hi valerie,

Iam sorry to hear you ve been having a bad time with this and hope you continue

to improve:)

I know you cant diagnose me just latley ive taken out the salt and noticed

such an improvement in some symptoms along with low potassium and high sodium

it points to cons syndrome but also cushings..

Ive never had aldosterone & renin tested, pituitary scan, ACTH etc these

are going to be done hopefully when i go into st barts in a couple of

weeks. They want to observe me on and off this diet and also test due to

such flutuations in results, which do seem to tie in to my diet.

Endo has aknowleged i have candidas but first time tried to blame it on an

operation id had 4 years ago for a big cyst in my groin and lots of antibiotics..but

i had symptoms prior to that and another doctor i saw after suggested taht its

definatley a hormone problem.

She said i ahve all the symptoms of cushings but i dont look it ( i do sometimes

but again I think iam holding off this progressing with the stupid diet i have

to do ..a bit like diabetes or even conns it can be improved by diet and

ive stumbled across this with a homeopath if i hadnt i think i would may be of

had a stroke by now or something quite serious..ive had a seizure..and my right

side is in a spasm or weak..

Barts is in london its the top hospital in the country, specialises in cushings

i didnt see teh Proffessor grossman..

The endo i saw said i dont have a thyroid problem and i dont need a pituiatry

scan??? Every one ive talked to and even a couple of specialists at other

hospitals have said i do have a low thyroid...and one of them said i could have

pituitary problem...unless he thinks i may be hypopituitaty and wont need a

scan for that..god knows..

At least iam going in, i will be cuffing myself to my bed and wont be leaving

until i have answers..

thanks val

mand

[Guest guest]

But do the ticks transmit Barto. Not all do is my understanding. CE On Jan 10, 2010, at 9:38 PM, Valarie wrote:I think it is found all over the world. I read an article the other day about birds spreading ticks. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim Don't know if they have Lyme in Eng

[Guest guest]

Hi Mandy:You mentioned you drank a lot of tea. Just curious if you've ever checked the contents of the teas you drink. If they contain any licorice, it could be the cause of your problems. I notice a lot of herbal infuson teas contain one kind of licorice or another. Licorice can cause PA like symptoms and high blood pressure.

Farah2010/1/10 Mandy Moseley <moseleymand@...>

Hi,

Ive read the document you recommened I read, it was very interesting thank you.

I believe Iam at stage 3, possibly stage 4. I have many of the symptoms but not all of them. I do get a punding heart, palaptations at times aswell..

I was a fitness Instructor when i ve tried to go even when i feel lousy (but mentally it helps me feel like mandy) i do struggle with cramps in my feet, leg spasm etc if I havent stuck to my diet and i try to go any excersise makes me swell up more even just walking..

This section below I think applies to me, it would make sense the fluctuations in my facial spasm, arm,neck, leg etc..and other symptoms. I follow a very low carb, sugar free and more recently very low salt diet..and i also have taken latley to drinking tea, as it makes me feel better..

So, if I already have low potassium due to a underlying problem the directic and my diet may be aggrevating those symptoms further...

So, the best thing i could do I suppose is now stay away from the salt and stop drinking tea, Iam sure ive read its a directic and may cause you to loose potassium...

(20 ìg/d). The renin would be lower, the aldosterone

higher, and the ARR higher than in stage 2. Aldosterone

production would no longer suppress into the " normal "

range, and hypokalemia might be precipitated by a

low potassium intake, diuretic use, or extrarenal loss of

potassium in sweat, vomit, or stool

mandy:)

hyperaldosteronism From: lowerbp2@...Date: Sun, 10 Jan 2010 12:15:45 -0800

Subject: Re: Hi, Iam neww and looking for advice, Iam waiting to be admitted for testing

Don't know if they have Lyme in Eng Tiped sad Send form mi iPhone ;-)

May your pressure be low!

CE Grim MD

Specializing in Difficult

Hypertension

On Jan 10, 2010, at 8:33 AM, Valarie <val@...> wrote:

Mandy, I would not presume to tell you what's wrong with you, but I have all your syptoms and I have Lyme disease with the coinfection, bartonella. I've gotten worse and worse over the years. Many of my symptoms have improved a bit on antibiotics. My BP is down 15 points and heart rate down 8 points. I've gone from 150 mg spiro to 75 mg spiro + 25 mg Inspra. Eventually, I will be totally on Inspra, and maybe not even that in the long run. My recurring low K improved on spiro.

Have you had tests for Celiac? Aldosterone and renin? Your thyroid hormones are low in the face of a normal TSH. That could indicate a pituitary problem. Also sounds like Candida.

Where's Barts Hospital?

Val

From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of MandyM

Ive been having problems for 4 years but believe i had something going on for a long time. I have had to do alot of fighting but Iam going into Barts hospital this month for a weeks testing to see whats going on.

My symptoms:Puffy face, eyes, belly water retention in the legs.Ears ringning very loud at certain times (just realised with salt)Irritable, anxiousI go very pale at timesFatigueRight side fluctuating spasm in my face, neck, arm, leg

Sweating all teh time or not at allTieredPain in my right side of back i think its kidneysSystemic fungal infectionHigh BP - when i am swollen ( when eaten salt, sugar etc)SeizureIf I ve eaten salt and start to drink water I just swell up and all symptoms get worse.

Ive seemed to become a tea addict as it was making me feel a bit better and have now realised I think Ive been using it as a directic ..it does make me feel very jittery at times and if i eat chocolate my heart pounds very hard..

I am under a endo at barts, I have a big problem with diet and thought it was celiac for some time but I dont its looking like its teh salt and sugar causing me problems.I find Iam better if i cut my salt out, do a very low carb diet and stay away from yeast etc

Onbviously this is not healthy and after a while the diet does start to tax me as I cant eat high fats for energy as I have a problem with fats aswell.My estrogen is very low at meno rangeMy TSH 0.68 T4 13.2 (12-22) T3 3.5 (4-6.8)

I can feel my jaw spasming up at times which gets very [painful and teh spasm in my neck gets very rigid along with the bad headache etc..My potassium is right at the bottom of the range and sodium alway!

s highI also have a high Vizulisation hormone adndrostendione and wondered if this would tie in with conns? Or whether you could have conns and cushings at once..Thanks for listening getting very nervous but hopefully they will find out whats wrong..

Mandyx

We want to hear all your funny, exciting and crazy Hotmail stories. Tell us now

[Guest guest]

Not all ticks transmit Lyme and coinfections. Some areas of the country are much worse

but Lyme is found all over the world.

Here is a little run down on the Lyme controversy. http://underourskin.com/blog/?p=611

If you ever watch " Under Our Skin, " you will be

forever changed. If you want, I'll

send it to you but you'll have to return it.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

But do the ticks transmit

Barto. Not all do is my understanding.

CE

On

Jan 10, 2010, at 9:38 PM, Valarie wrote:

I think it is

found all over the world. I

read an article the other day about birds spreading ticks.

Val

From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

Don't know if they have Lyme in

Eng

[Guest guest]

Mandy,

Your symptom list sounds quite a bit like mine. Though I am a male, the same

body systems were affected and I experienced many of the same edemic related

symptoms. The DASH diet should help with many of the symptoms though it will

take proper diagnosis and treatment for you to feel 'normal' again. Lay off of

the tea and anything else that you think may be contributing to the worsening of

the problem. Be sure to have Adrenal Vein Sampling as soon as possible. It

should really help guide your treatment. We are a good support group.

Remember, you are not alone. We have a plethora of knowledge and experience to

share!

>

> Hello,

>

> Ive been having problems for 4 years but believe i had something going on for

a long time. I have had to do alot of fighting but Iam going into Barts

hospital this month for a weeks testing to see whats going on.

>

> My symptoms:

>

> Puffy face, eyes, belly water retention in the legs.

> Ears ringning very loud at certain times (just realised with salt)

> Irritable, anxious

> I go very pale at times

> Fatigue

> Right side fluctuating spasm in my face, neck, arm, leg

> Sweating all teh time or not at all

> Tiered

> Pain in my right side of back i think its kidneys

> Systemic fungal infection

> High BP - when i am swollen ( when eaten salt, sugar etc)

> Seizure

>

> If I ve eaten salt and start to drink water I just swell up and all symptoms

get worse.

>

> Ive seemed to become a tea addict as it was making me feel a bit better and

have now realised I think Ive been using it as a directic ..it does make me feel

very jittery at times and if i eat chocolate my heart pounds very hard..

>

> I am under a endo at barts, I have a big problem with diet and thought it was

celiac for some time but I dont its looking like its teh salt and sugar causing

me problems.

>

> I find Iam better if i cut my salt out, do a very low carb diet and stay away

from yeast etc

>

> Onbviously this is not healthy and after a while the diet does start to tax me

as I cant eat high fats for energy as I have a problem with fats aswell.

>

> My estrogen is very low at meno range

> My TSH 0.68 T4 13.2 (12-22) T3 3.5 (4-6.8)

>

> I can feel my jaw spasming up at times which gets very [painful and teh spasm

in my neck gets very rigid along with the bad headache etc..

>

> My potassium is right at the bottom of the range and sodium always high

>

> I also have a high Vizulisation hormone adndrostendione and wondered if this

would tie in with conns? Or whether you could have conns and cushings at once..

>

> Thanks for listening getting very nervous but hopefully they will find out

whats wrong..

>

> Mandyx

>

[Guest guest]

Thanks ever so much for your kindness and advice

I started to wonder about PA as my diet is so blande, everything i eat is totally natural when i do the diet, i felt better doing the low carb, anti candida, gluten free diet but was noticing problems at times still after meals and realised I was salting every meal.

I tried a low salt but was still getting these symptoms. When i stopped salt recently I even noticed symptoms eating a small peice of bacon and celery?!

I seem tobe getting bad night sweats at time aswell, I dont know if when i go to bed if Iam a bit swollen my body is just trying to get rid of some of the swelling..

Okay, thanks ever so much, I will stick to the dash diet do you think I should re introduce some carbs again, i notice your diets mentions whole grain?

The reason I thought this was helping was to rid some of this water retention but maybe i need to add some back and just cut the salt right out?

hyperaldosteronism From: lowerbp2@...Date: Sun, 10 Jan 2010 20:26:53 -0600Subject: Re: Hi, Iam neww and looking for advice, Iam waiting to be admitted for testing

You most likely have PA. Tell the Bart's team Dr. Grim is recommending you be tested.

CE Grim MD

On Jan 10, 2010, at 4:14 PM, Mandy Moseley wrote:

Hi, Ive read the document you recommened I read, it was very interesting thank you. I believe Iam at stage 3, possibly stage 4. I have many of the symptoms but not all of them. I do get a punding heart, palaptations at times aswell.. I was a fitness Instructor when i ve tried to go even when i feel lousy (but mentally it helps me feel like mandy) i do struggle with cramps in my feet, leg spasm etc if I havent stuck to my diet and i try to go any excersise makes me swell up more even just walking.. This section below I think applies to me, it would make sense the fluctuations in my facial spasm, arm,neck, leg etc..and other symptoms. I follow a very low carb, sugar free and more recently very low salt diet..and i also have taken latley to drinking tea, as it makes me feel better.. So, if I already have low potassium due to a underlying problem the directic and my diet may be aggrevating those symptoms further... So, the best thing i could do I suppose is now stay away from the salt and stop drinking tea, Iam sure ive read its a directic and may cause you to loose potassium...

(20 ìg/d). The renin would be lower, the aldosterone

higher, and the ARR higher than in stage 2. Aldosterone

production would no longer suppress into the "normal"

range, and hypokalemia might be precipitated by a

low potassium intake, diuretic use, or extrarenal loss ofpotassium in sweat, vomit, or stool mandy:)

hyperaldosteronism From: lowerbp2macDate: Sun, 10 Jan 2010 12:15:45 -0800Subject: Re: Hi, Iam neww and looking for advice, Iam waiting to be admitted for testing

Don't know if they have Lyme in Eng Tiped sad Send form mi iPhone ;-)

May your pressure be low!

CE Grim MD

Specializing in Difficult

Hypertension

On Jan 10, 2010, at 8:33 AM, Valarie <val@...> wrote:

Mandy, I would not presume to tell you what's wrong with you, but I have all your syptoms and I have Lyme disease with the coinfection, bartonella. I've gotten worse and worse over the years. Many of my symptoms have improved a bit on antibiotics. My BP is down 15 points and heart rate down 8 points. I've gone from 150 mg spiro to 75 mg spiro + 25 mg Inspra. Eventually, I will be totally on Inspra, and maybe not even that in the long run. My recurring low K improved on spiro.

Have you had tests for Celiac? Aldosterone and renin? Your thyroid hormones are low in the face of a normal TSH. That could indicate a pituitary problem. Also sounds like Candida.

Where's Barts Hospital?

Val

From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of MandyMIve been having problems for 4 years but believe i had something going on for a long time. I have had to do alot of fighting but Iam going into Barts hospital this month for a weeks testing to see whats going on.My symptoms:Puffy face, eyes, belly water retention in the legs.Ears ringning very loud at certain times (just realised with salt)Irritable, anxiousI go very pale at timesFatigueRight side fluctuating spasm in my face, neck, arm, legSweating all teh time or not at allTieredPain in my right side of back i think its kidneysSystemic fungal infectionHigh BP - when i am swollen ( when eaten salt, sugar etc)SeizureIf I ve eaten salt and start to drink water I just swell up and all symptoms get worse.Ive seemed to become a tea addict as it was making me feel a bit better and have now realised I think Ive been using it as a directic ..it does make me feel very jittery at times and if i eat chocolate my heart pounds very hard..I am under a endo at barts, I have a big problem with diet and thought it was celiac for some time but I dont its looking like its teh salt and sugar causing me problems.I find Iam better if i cut my salt out, do a very low carb diet and stay away from yeast etcOnbviously this is not healthy and after a while the diet does start to tax me as I cant eat high fats for energy as I have a problem with fats aswell.My estrogen is very low at meno rangeMy TSH 0.68 T4 13.2 (12-22) T3 3.5 (4-6.8)I can feel my jaw spasming up at times which gets very [painful and teh spasm in my neck gets very rigid along with the bad headache etc..My potassium is right at the bottom of the range and sodium always highI also have a high Vizulisation hormone adndrostendione and wondered if this would tie in with conns? Or whether you could have conns and cushings at once..Thanks for listening getting very nervous but hopefully they will find out whats wrong..Mandyx

We want to hear all your funny, exciting and crazy Hotmail stories. Tell us now

Got a cool Hotmail story? Tell us now

[Guest guest]

Hi Farah,

Thanks for replying, you are all ever so nice

I only drink black tea and not that much maybe 3-5 cups a day, Iam not good with milk especially full fat or semi skimmed. I dont drink herbal as I have such bad allergies. I would love to have a chalomile tea to relax but my nose blocks up and my sinus as soon as i drink it..any thing to do with pollen / flowers is now a nightmare for me!

Tea is a directic isnt it? Iam sure i ve read many times and the beautician i know said it is a dehydrating drink. But the thing is up until now I have felt better in my symptoms if Iam dehydrated..but then suffering symptoms of dehydration.

So, Maybe i feel better as Iam getting rid of the edema, which is making my blood pressure high and all teh symptoms that go with it!

Its like the low carb diet, the first weight you loose is water weight so I have been self medicating the diet along with drinking plenty of tea ..as i was still using salt on all my meals and eating natural foods which do contain salt.

Also, whats even more dangerous now i ve thought about it is i would feel better on the diet but its sooooooo restrictive and very boring that every two weeks I couldnt do it any more and end up giving in and just eating normal but junk food..and then iam REALLY BAD...I get feeling like doom type feeling..

So, Maybe I dont actually have a thyroid problem maybe teh way ive been trying to controll teh symptoms i have is causing me to have a low thyroid, estrogen etc..does make sense..

My nan has been ill for many years, she has fluctuating BP, big bloated belly, thinks the supermakerts are poisoning her as foods make her ill, collapse's all the time, complains of the very loud ringning in her ears just like me, constantly drinking tea..and hardly eats....I think I have got this from my nan..theyve never found out whats wrong with my nan..

Sorry to go on there, and thank you I am looking forward to reading everyones story so I can understand what you have all been through.

I was a fitness / nutitionist before this. Ive tried going to teh gym even when i ve felt symptoms, my leg spasms up cramps, i get very bad cramp in my feet, but i also notice at times I swell even more with excersise..

But if ive stuck no carb / very low..its not as bad and i feel better for seating out any fluid in my body but its totally pointless as iam not eating enough to be consistent with my training as i dont recover as not eating enough..

THANKYOU this is all starting to make sense now.

hyperaldosteronism From: farahbar@...Date: Sun, 10 Jan 2010 21:08:45 -0800Subject: Re: Hi, Iam neww and looking for advice, Iam waiting to be admitted for testing

Hi Mandy:You mentioned you drank a lot of tea. Just curious if you've ever checked the contents of the teas you drink. If they contain any licorice, it could be the cause of your problems. I notice a lot of herbal infuson teas contain one kind of licorice or another. Licorice can cause PA like symptoms and high blood pressure.

Farah

2010/1/10 Mandy Moseley <moseleymandhotmail (DOT) co.uk>

Hi, Ive read the document you recommened I read, it was very interesting thank you. I believe Iam at stage 3, possibly stage 4. I have many of the symptoms but not all of them. I do get a punding heart, palaptations at times aswell.. I was a fitness Instructor when i ve tried to go even when i feel lousy (but mentally it helps me feel like mandy) i do struggle with cramps in my feet, leg spasm etc if I havent stuck to my diet and i try to go any excersise makes me swell up more even just walking.. This section below I think applies to me, it would make sense the fluctuations in my facial spasm, arm,neck, leg etc..and other symptoms. I follow a very low carb, sugar free and more recently very low salt diet..and i also have taken latley to drinking tea, as it makes me feel better.. So, if I already have low potassium due to a underlying problem the directic and my diet may be aggrevating those symptoms further... So, the best thing i could do I suppose is now stay away from the salt and stop drinking tea, Iam sure ive read its a directic and may cause you to loose potassium...

(20 ìg/d). The renin would be lower, the aldosterone

higher, and the ARR higher than in stage 2. Aldosterone

production would no longer suppress into the "normal"

range, and hypokalemia might be precipitated by a

low potassium intake, diuretic use, or extrarenal loss ofpotassium in sweat, vomit, or stool mandy:)

hyperaldosteronism From: lowerbp2macDate: Sun, 10 Jan 2010 12:15:45 -0800Subject: Re: Hi, Iam neww and looking for advice, Iam waiting to be admitted for testing

Don't know if they have Lyme in Eng Tiped sad Send form mi iPhone ;-)

May your pressure be low!

CE Grim MD

Specializing in Difficult

Hypertension

On Jan 10, 2010, at 8:33 AM, Valarie <val@...> wrote:

Mandy, I would not presume to tell you what's wrong with you, but I have all your syptoms and I have Lyme disease with the coinfection, bartonella. I've gotten worse and worse over the years. Many of my symptoms have improved a bit on antibiotics. My BP is down 15 points and heart rate down 8 points. I've gone from 150 mg spiro to 75 mg spiro + 25 mg Inspra. Eventually, I will be totally on Inspra, and maybe not even that in the long run. My recurring low K improved on spiro.

Have you had tests for Celiac? Aldosterone and renin? Your thyroid hormones are low in the face of a normal TSH. That could indicate a pituitary problem. Also sounds like Candida.

Where's Barts Hospital?

Val

From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of MandyMIve been having problems for 4 years but believe i had something going on for a long time. I have had to do alot of fighting but Iam going into Barts hospital this month for a weeks testing to see whats going on.My symptoms:Puffy face, eyes, belly water retention in the legs.Ears ringning very loud at certain times (just realised with salt)Irritable, anxiousI go very pale at timesFatigueRight side fluctuating spasm in my face, neck, arm, legSweating all teh time or not at allTieredPain in my right side of back i think its kidneysSystemic fungal infectionHigh BP - when i am swollen ( when eaten salt, sugar etc)SeizureIf I ve eaten salt and start to drink water I just swell up and all symptoms get worse.Ive seemed to become a tea addict as it was making me feel a bit better and have now realised I think Ive been using it as a directic ..it does make me feel very jittery at times and if i eat chocolate my heart pounds very hard..I am under a endo at barts, I have a big problem with diet and thought it was celiac for some time but I dont its looking like its teh salt and sugar causing me problems.I find Iam better if i cut my salt out, do a very low carb diet and stay away from yeast etcOnbviously this is not healthy and after a while the diet does start to tax me as I cant eat high fats for energy as I have a problem with fats aswell.My estrogen is very low at meno rangeMy TSH 0.68 T4 13.2 (12-22) T3 3.5 (4-6.8)I can feel my jaw spasming up at times which gets very [painful and teh spasm in my neck gets very rigid along with the bad headache etc..My potassium is right at the bottom of the range and sodium alway! s high I also have a high Vizulisation hormone adndrostendione and wondered if this would tie in with conns? Or whether you could have conns and cushings at once..Thanks for listening getting very nervous but hopefully they will find out whats wrong..Mandyx

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[Guest guest]

Hi Val :0)

Well, I will also mention this to Barts when I go in. I did see a neurologist at Barts last year as no one localy was listening to me and my right sided spasm /weakness was fluctuating, sometimes doctors couldnt see it in my face as I was sticking to the diet to be able to explain with out being so agressive, emotional (which is not me)..

I didnt get a brain scan for 6 months and Id seen 4 neuros at southend hospital 3 said it was bells pulsy but it affects my neck, arm and leg they wernt even listening..i was soo scared I really thought id had a stroke.

The neuro at barts said its obvisouly an endocrine problem but he als asked my wrote to my GP about lyme disease, i was never tested..

I also get these pulsing, throbbing twicthing feelings in the spasm in my neck, my neck looks twisted..but at times its much worse than others..

I didn buy some apple cider vinegar as it contains potassium..but iam too scared to start adding things..just got to sit tight DASH and wait..

Thank you so much:)

This started well kicked off when i was 29..iam 34 now sold my car to go private, gave up my flat was too scared on my own..now living in supported housing..it starte to get me down was so depressed no one was listening..I contacted my MP in the end..but fingers crossed its going to be okay very soon..

Have a lovely day and take care

x

hyperaldosteronism From: val@...Date: Sun, 10 Jan 2010 20:38:55 -0700Subject: RE: Hi, Iam neww and looking for advice, Iam waiting to be admitted for testing

I think it is found all over the world. I read an article the other day about birds spreading ticks.

Val

From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

Don't know if they have Lyme in Eng

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[Guest guest]

Mandy, refresh me, when are you going into the hospital? If you cut salt now, your tests will not

be valid. Low salt increases renin.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Mandy Moseley

I started to wonder about PA as my diet is so blande, everything i eat is

totally natural when i do the diet, i felt better doing the low carb, anti

candida, gluten free diet but was noticing problems at times still after meals

and realised I was salting every meal.

I tried a low salt but was still getting these symptoms. When i stopped

salt recently I even noticed symptoms eating a small peice of bacon and

celery?!

I seem tobe getting bad night sweats at time aswell, I dont know if when i go

to bed if Iam a bit swollen my body is just trying to get rid of some of the

swelling..

Okay, thanks ever so much, I will stick to the dash diet do you think

I should re introduce some carbs again, i notice your diets mentions whole

grain?

The reason I thought this was helping was to rid some of this water retention

but maybe i need to add some back and just cut the salt right out?