Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 Thank you. I'm stuck for words. Holly > > Hi Everyone, > Just wanted to let you know that the video, Autism Every Day is now available for viewing on the autism speaks website. The link is below. Autism Every Day is a new film produced by Thierry and Jim Watkins of October Group and of Milestone Video. The film was screened at A New Decade for Autism, a fundraising event held May 9, 2006 in New York City, and subsequently broadcast by Don Imus on his show on MSNBC. > > > http://www.autismspeaks.org/sponsoredevents/autism_every_day.php > > My family had the privilege of being a part of this amazing project and we are extremely proud of everyone who was involved. It is an eye opening look at autism for many who don't know what it is like to live with autism every day. > > Thanks for watching! > -Michele > lumardi@... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 OMG! I didn't get to see this the other morning on Imus. This is heart wrenching! I cried my eyes out. I have forwarded this to everyone in my e-mailbox. WOW Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 Unbelievable. Someone has captured autism in 13 minutes. Someone has shown what autism is all about I am so grateful. I am so thankful. This is the best mothers day gift to me ever... Happy Mothers day to moms and dads, A Jeff's mom From: EOHarm [mailto:EOHarm ] On Behalf Of HollySent: Sunday, May 14, 2006 9:47 AMEOHarm Subject: Re: Autism Every Day Thank you. I'm stuck for words. Holly>> Hi Everyone,> Just wanted to let you know that the video, Autism Every Day is now available for viewing on the autism speaks website. The link is below. Autism Every Day is a new film produced by Thierry and Jim Watkins of October Group and of Milestone Video. The film was screened at A New Decade for Autism, a fundraising event held May 9, 2006 in New York City, and subsequently broadcast by Don Imus on his show on MSNBC.> > > http://www.autismspeaks.org/sponsoredevents/autism_every_day.php> > My family had the privilege of being a part of this amazing project and we are extremely proud of everyone who was involved. It is an eye opening look at autism for many who don't know what it is like to live with autism every day.> > Thanks for watching!> -Michele> lumardi@...> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2006 Report Share Posted May 14, 2006 Great film! Just send it out to everyone I know. Thank you to Autism Speaks. Pamela " Courage is doing what you're afraid to do. There can be no courage unless you're scared. " Eddie Rickenbacker, top US fighter ace, WWI From: EOHarm [mailto:EOHarm ] On Behalf Of michele iallonardi Sent: Sunday, May 14, 2006 11:27 AM michele Subject: Autism Every Day Hi Everyone, Just wanted to let you know that the video, Autism Every Day is now available for viewing on the autism speaks website. The link is below. Autism Every Day is a new film produced by Thierry and Jim Watkins of October Group and of Milestone Video. The film was screened at A New Decade for Autism, a fundraising event held May 9, 2006 in New York City, and subsequently broadcast by Don Imus on his show on MSNBC. http://www.autismspeaks.org/sponsoredevents/autism_every_day.php My family had the privilege of being a part of this amazing project and we are extremely proud of everyone who was involved. It is an eye opening look at autism for many who don't know what it is like to live with autism every day. Thanks for watching! -Michele lumardi@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 Please view this video: http://www.autismspeaks.org/sponsoredevents/autism_every_day.php and post your reaction. Jim's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 Michele, Thank you for letting people in. Maybe now more people will understand. Thank you for showing what life has become for all of us. I only have one child with Autism and can't even imagine how your life must be. You are right though, we must unite and show that this MUST be a priority. I think that is what Autism Speaks is trying to do. We don't all believe the same things, but we all are united, we all have had to sit in that office and hear those awful words! We need to come together with one voice so that we may be heard! Sharon > > Hi- > I've been thinking how and if I should reply to this email, as I am not interested in arguing nor do I really have much time to do so anyway. But I kept thinking about it, which was taking up even more time than responding- so... ........... > > I am the mother of three children who have autism. 1 has been vaccinated, 2 have been partly vaccinated. I am very interested and involved in biomedical interventions. They have been extremely helpful (we have been doing them for over 2 years) but my son, as you saw in the video, is far from recovered. My other 2 children, who are recovering, have been through no biomedical interventions other than changing their diets. > > My point is this- when it comes to autism, there is no one answer for anything. Recovery is not only about biomedical intervention- maybe for some children, but not for everyone. Autism does have a genetic component (how do you explain 3 brothers with autism?). I do believe that thimersol is a huge part of the problem (but not the only part)- my son with the most vaccinations is the most affected. But, no, I don't think that all children can recover biomedically. And yes, some children do recover without any biomedical interventions at all. > > My life is by no means " pitiful. " I wrote an article in TAP (the autism perspective) magazine last year entitled " I Have Three " - talking about just how wonderful my life is with my children. Funny, I actually got flack about that article from some people (who have 1 child with autism, and were struggling to deal with that) saying that I was too positive (or delusional or crazy). I have written several articles since then about all of the wonderful things parenting children with autism has brought into my life. That being said, the reality is that life for my boys is difficult. Most people that I know don't realize that. Happiness is a choice, yes, and we are happy. But being happy doesn't mean that it is easy for my son to sit through glutathione shots, eat special food, or live in a world where he can't effectively communicate. I'm happy, but I'm not happy about that. He is suffering- and I can never sit by and just be completely happy when all that is going on. I'll never settle and accept it either. To quote another mom from the film- " I'm never going to say I quit. It's just not in my vocabulary. " > > To insinuate that I view my life as pitiful is just a hurtful statement that has no point. What I view as pitiful is the time and energy spent (or wasted) in our community criticizing each other. My own life is an example of both genetic and biomedical causes to autism. My own life is an example of how happiness is a choice- because we have certainly had 4 years from hell, with many medical problems, with three children diagnosed with autism in less than one year, but we are happier than most people I know. We are broke, we hate watching our children suffer, and we go through things that most people- even some on this list- could never imagine. That is the reality- and that is what the film wanted the public to understand. > > Let's be honest- life would be easier if our kids didn't have autism, don't you think? > > I'm sorry that you did not like what you saw in the documentary, and that you felt that the " drivel " was a waste of your time. It was not a waste of mine. > Although it was hard to let the world into our home to see what some of our reality is like, I am proud and honored that we were part of the film. > > -Michele > > > > Message 8 > From: " Hooker " sploobnoober@... > Date: Tue May 16, 2006 8:42am(PDT) > Subject: Re: Documentary on Autism Stuns Internet Viewers > > OK - get ready to flame me! > > That video is the most pathetic waste of bandwidth I've ever seen. > Rather than depicting how " pitiful " out situations are (if one > indeed chooses to see them as pitiful), it would be much more > helpful for those moms featured to talk about thimerosal, MMR, DTaP > and Proquad, AND the interventions that are indeed working for many > children across the USA and abroad, to undo the neurological > consequences of this toxin and these vaccines... > > The drivel shown in the video may move folks to pity " our plight " > but it also takes the emphasis off of answers, which is in keeping > of the commitment of Autism Speaks to bury the vaccine-autism > issue. This is the type of message that their board members Andy > Shih (former NAAR) and Marshalyn Yeargin-Allsop (CDC) have done for > years. > > Outside of the vaccine issue, I have to state, " Happiness is a > choice, " folks. If one chooses to see their situation as miserable, > hopeless and pathetic, it will be... Conversely, if we choose to > embrace the mission that we have been given, there is a lot more joy > in the journey... > > If the s want us all to be objects of pity, I pity them > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 16, 2006 Report Share Posted May 16, 2006 AMEN, Michele. I'm in your group because I too have 3 autistic kids, with varying degrees of vaccination. Genetics? Uh yeah! We also do biomed interventions (as you know from MY group) and I hope and pray we can recover my kids -- WHATEVER that means for them. My life is wonderful -- and I adore my kids. Our challenges have made me stronger and a far better woman than I would have been had the whale spit me out on easy street with 3 " perfect " kids. I might have been a vapid, country clubber more concerned about my next tax cut. (And I'd have been DAMN good at it!) LOL! Pity? Makes me cringe. Implies that my kids are somehow less for Mark and me than a typical kid. NO WAY. I have a good life - a full life and purposeful life. My greatest fear though is what happens to my kids when I'm gone. That's the only real heartbreaker for me. Kim, Proud mother to Mia, and Bella Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 Michele, A brief note - I applaud for being part of the film and your eloquent attached comments and thoughts. In the early 80's, nobody cared about this thing called AIDS. The gay community made a lot of noise and we fast forward today where over 3 billion a year is spent on AIDS research. The last couple of years, the parents of autistic children are starting to make noise. It is not easy given the day to day challenges we face. I applaud Autism Speaks and this film this film for making noise! We need to reach the point where the government s/b spending over a billion or 2 a year to fight this dreaded disease. I will never give up fighting for my son and making noise. I will be sending this film to our Congressmen, Senators. Narrow minded people may think this is a pity film - its not - its about education - the day to day life many autistic children and families go through Pete Re: Documentary on Autism Stuns Internet ViewersOK - get ready to flame me!That video is the most pathetic waste of bandwidth I've ever seen. Rather than depicting how "pitiful" out situations are (if one indeed chooses to see them as pitiful), it would be much more helpful for those moms featured to talk about thimerosal, MMR, DTaP and Proquad, AND the interventions that are indeed working for many children across the USA and abroad, to undo the neurological consequences of this toxin and these vaccines...The drivel shown in the video may move folks to pity "our plight" but it also takes the emphasis off of answers, which is in keeping of the commitment of Autism Speaks to bury the vaccine-autism issue. This is the type of message that their board members Andy Shih (former NAAR) and Marshalyn Yeargin-Allsop (CDC) have done for years.Outside of the vaccine issue, I have to state, "Happiness is a choice," folks. If one chooses to see their situation as miserable, hopeless and pathetic, it will be... Conversely, if we choose to embrace the mission that we have been given, there is a lot more joy in the journey...If the s want us all to be objects of pity, I pity them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 The film is fine and the people who made did something good- the film is really not at issue. On your other point keep in mind that a priority of the AIDS community is an AIDS vaccine. Discussions of the AIDS vaccine include the idea that it will be mandatory for all children. Remember that our community can raise all the money in the world - how the money is spent is a separate matter. RJK On May 16, 2006, at 9:08 PM, Bradley wrote: > Michele, >  > A brief note - I applaud for being part of the film and your eloquent > attached comments and thoughts. >  > In the early 80's, nobody cared about this thing called AIDS. The gay > community made a lot of noise and we fast forward today where over 3 > billion a year is spent on AIDS research. >  > The last couple of years, the parents of autistic children > are starting to make noise. It is not easy given the day to day > challenges we face. I applaud Autism Speaks and this film this film > for making noise! >  > We need to reach the point where the government s/b spending over a > billion or 2 a year to fight this dreaded disease. >  > I will never give up fighting for my son and making noise. I will be > sending this film to our Congressmen, Senators. >  > Narrow minded people may think this is a pity film - its not - its > about education - the day to day life many autistic children and > families go through >  > Pete  >  >  >> Re: Documentary on Autism Stuns Internet Viewers >> >> OK - get ready to flame me! >> >> That video is the most pathetic waste of bandwidth I've ever seen. >> Rather than depicting how " pitiful " out situations are (if one >> indeed chooses to see them as pitiful), it would be much more >> helpful for those moms featured to talk about thimerosal, MMR, DTaP >> and Proquad, AND the interventions that are indeed working for many >> children across the USA and abroad, to undo the neurological >> consequences of this toxin and these vaccines... >> >> The drivel shown in the video may move folks to pity " our plight " >> but it also takes the emphasis off of answers, which is in keeping >> of the commitment of Autism Speaks to bury the vaccine-autism >> issue. This is the type of message that their board members Andy >> Shih (former NAAR) and Marshalyn Yeargin-Allsop (CDC) have done for >> years. >> >> Outside of the vaccine issue, I have to state, " Happiness is a >> choice, " folks. If one chooses to see their situation as miserable, >> hopeless and pathetic, it will be... Conversely, if we choose to >> embrace the mission that we have been given, there is a lot more joy >> in the journey... >> >> If the s want us all to be objects of pity, I pity them > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006  it was an analogy, not a mission statement pete Re: Documentary on Autism Stuns Internet ViewersOK - get ready to flame me!That video is the most pathetic waste of bandwidth I've ever seen. Rather than depicting how "pitiful" out situations are (if one indeed chooses to see them as pitiful), it would be much more helpful for those moms featured to talk about thimerosal, MMR, DTaP and Proquad, AND the interventions that are indeed working for many children across the USA and abroad, to undo the neurologicalconsequences of this toxin and these vaccines...The drivel shown in the video may move folks to pity "our plight" but it also takes the emphasis off of answers, which is in keepingof the commitment of Autism Speaks to bury the vaccine-autism issue. This is the type of message that their board members Andy Shih (former NAAR) and Marshalyn Yeargin-Allsop (CDC) have done for years.Outside of the vaccine issue, I have to state, "Happiness is a choice," folks. If one chooses to see their situation as miserable,hopeless and pathetic, it will be... Conversely, if we choose to embrace the mission that we have been given, there is a lot more joy in the journey...If the s want us all to be objects of pity, I pity them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006  As long as the people giving the money aren't naive enough to think that they are really helping us families and that this is not presumed to be real compensation for vaccine injuries to our children they can give all they want. It's not going to do any good except feed the NPO sharks for a while. Probably the worse thing that can happen to a charity is somebody comes up with a reason and a cure. This is America. Look at what happened to the Tucker. The centers the combating autistics bill is going to build are all going to be fronts for drug company experimentation. Just another case of the government refusing to regulate the drug industry by giving them a subsidy without a price break for consumers. Pharma always wins until we get a politician in the White House willing to crack down on monster corporation profiteering. We all wonder about the need to pay a Big Oil man $600,000,000 a year in salary. Autism Speaks has issues with me in that they are vulnerable to drug company influences. If the drug companies don't like the direction research is going they just stop advertising on NBC. We all saw that influence on ABC News when the report on Bobby Kennedy turned into a hatchet job by their resident drug shill Tim . I can see where network television can easily be playing the role of extortionist concerning thimerosal. So who do we parents turn to? We're basically screwed on all angles. That's why the rally cry is "save some for the victims". It took forty years for the Japanese government to officially disclose what happened at Minamata and another eight for them to provide $70,000 yen to the *relatives* of the victims of mercury poisoning. The oxen are slow, but the earth is patient. We're showing good faith, are they? Re: Documentary on Autism Stuns Internet ViewersOK - get ready to flame me!That video is the most pathetic waste of bandwidth I've ever seen. Rather than depicting how "pitiful" out situations are (if one indeed chooses to see them as pitiful), it would be much more helpful for those moms featured to talk about thimerosal, MMR, DTaP and Proquad, AND the interventions that are indeed working for many children across the USA and abroad, to undo the neurologicalconsequences of this toxin and these vaccines...The drivel shown in the video may move folks to pity "our plight" but it also takes the emphasis off of answers, which is in keepingof the commitment of Autism Speaks to bury the vaccine-autism issue. This is the type of message that their board members Andy Shih (former NAAR) and Marshalyn Yeargin-Allsop (CDC) have done for years.Outside of the vaccine issue, I have to state, "Happiness is a choice," folks. If one chooses to see their situation as miserable,hopeless and pathetic, it will be... Conversely, if we choose to embrace the mission that we have been given, there is a lot more joy in the journey...If the s want us all to be objects of pity, I pity them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 Ain't nobody gettin' any wiser if they ain't watching it. You do like Imus said. Get lots of copies and take them to Congress, but they ain't gonna to watch. We live in a day when women rip out their reproductive organs to prevent "accidents" from happening and 50 year old men create traffic jams by slowing down to stare at a group of twelve year old school girls walking down the street. Read it again, but closer this time: "We are in the midst of an international epidemic. Those responsible for investigating and dealing with this epidemic have failed. Among the reasons for this failure is the fact that they are faced with the prospect that they themselves may be responsible for the epidemic. Therefore, in their efforts to exonerate themselves they are an impediment to progress. I believe that public health officials know there is a problem; they are, however, willing to deny the problem and accept the loss of an unknown number of children on the basis that the success of public health policy - mandatory vaccination - by necessity involves sacrifice. Neither I, nor my colleagues subscribe to the belief that any child is expendable. History has encountered and dealt with such beliefs. You, the parent's and children, are the source of the inspiration and strength for our endeavours; our quest for truth through science - a science that is compassionate, uncompromising and uncompromised. I do not mean to stir you to mutiny, but be assured that armed with this science it is in your power to force this issue, in your pediatricians office, in Congress, in the Law Courts. Keep faith with your instincts - they have served you well."---Andy Wakefield (April 22, 2002 "POWER of ONE - IDEA" Rally, Washington DC) Sacrifice, just like the Incas and the Mayans, who clubbed their babies over the head then slit their throats leaving them to bleed to death on the alters to their false gods, all because they believed it would appease the rain gods. They believed just like CDC, IOM, AAP and all the rest that survival must involve sacrifice. Our children are U.S. CDC certified vaccination god sacrifices. Re: autism every day I just previewed the Autism Speaks Video and I was very moved. I understand the controversial views I have read, but we have lived this life for many years, we are seasoned and quite educated, the public is not. We need to bring the public in to our "lives" and help them understand what we have to live through on a daily basis, and help them understand what life with "autism" is like. After the public has grasped our situation, I believe they will be more compelled and inclined to help on a local or national level. I think this film reveals to the viewer, the core of the difficulties and frustrations our children and families face everyday. I have a daughter, Lanier who recently turned 8 and still cannot talk, she struggles each and everyday. I related to every mother in the film, they were telling my story.... We all may have our different opinions and ideas but we are forever bonded by our children. I have stood beside many of you over the past 7 years fighting for our children and fighting for the truth to be revealed. This film is one more avenue to begin to educate this country of the horrific epidemic our children face. I would also like to applaud the many wonderful fathers as well, you bring in a great dynamic in raising these children and we could not make it without you... I loved the film and I am so thankful many talented people were involved, and to Michele, and the other courageous mothers who came forward!Soldier On... Weed Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 Well spoken! H. H.Fudenberg, M.D.,DDG.IOM Inman, SC 29349 (864) 592 8076 Website nitrf.org From: "Kerbob" <robertbloch@...>Reply-EOHarm To: <EOHarm >Subject: Re: autism every dayDate: Wed, 17 May 2006 00:16:51 -0400 As long as the people giving the money aren't naive enough to think that they are really helping us families and that this is not presumed to be real compensation for vaccine injuries to our children they can give all they want. It's not going to do any good except feed the NPO sharks for a while. Probably the worse thing that can happen to a charity is somebody comes up with a reason and a cure. This is America. Look at what happened to the Tucker. The centers the combating autistics bill is going to build are all going to be fronts for drug company experimentation. Just another case of the government refusing to regulate the drug industry by giving them a subsidy without a price break for consumers. Pharma always wins until we get a politician in the White House willing to crack down on monster corporation profiteering. We all wonder about the need to pay a Big Oil man $600,000,000 a year in salary. Autism Speaks has issues with me in that they are vulnerable to drug company influences. If the drug companies don't like the direction research is going they just stop advertising on NBC. We all saw that influence on ABC News when the report on Bobby Kennedy turned into a hatchet job by their resident drug shill Tim . I can see where network television can easily be playing the role of extortionist concerning thimerosal. So who do we parents turn to? We're basically screwed on all angles. That's why the rally cry is "save some for the victims". It took forty years for the Japanese government to officially disclose what happened at Minamata and another eight for them to provide $70,000 yen to the *relatives* of the victims of mercury poisoning. The oxen are slow, but the earth is patient. We're showing good faith, are they? Re: Documentary on Autism Stuns Internet ViewersOK - get ready to flame me!That video is the most pathetic waste of bandwidth I've ever seen. Rather than depicting how "pitiful" out situations are (if one indeed chooses to see them as pitiful), it would be much more helpful for those moms featured to talk about thimerosal, MMR, DTaP and Proquad, AND the interventions that are indeed working for many children across the USA and abroad, to undo the neurologicalconsequences of this toxin and these vaccines...The drivel shown in the video may move folks to pity "our plight" but it also takes the emphasis off of answers, which is in keepingof the commitment of Autism Speaks to bury the vaccine-autism issue. This is the type of message that their board members Andy Shih (former NAAR) and Marshalyn Yeargin-Allsop (CDC) have done for years.Outside of the vaccine issue, I have to state, "Happiness is a choice," folks. If one chooses to see their situation as miserable,hopeless and pathetic, it will be... Conversely, if we choose to embrace the mission that we have been given, there is a lot more joy in the journey...If the s want us all to be objects of pity, I pity them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 Membership forms for the Satanic Society can be downloaded at the website: www.forcedvaccinationofallofthechildrenallofthetime Re: autism every day I just previewed the Autism Speaks Video and I was very moved. I understand the controversial views I have read, but we have lived this life for many years, we are seasoned and quite educated, the public is not. We need to bring the public in to our "lives" and help them understand what we have to live through on a daily basis, and help them understand what life with "autism" is like. After the public has grasped our situation, I believe they will be more compelled and inclined to help on a local or national level. I think this film reveals to the viewer, the core of the difficulties and frustrations our children and families face everyday. I have a daughter, Lanier who recently turned 8 and still cannot talk, she struggles each and everyday. I related to every mother in the film, they were telling my story.... We all may have our different opinions and ideas but we are forever bonded by our children. I have stood beside many of you over the past 7 years fighting for our children and fighting for the truth to be revealed. This film is one more avenue to begin to educate this country of the horrific epidemic our children face. I would also like to applaud the many wonderful fathers as well, you bring in a great dynamic in raising these children and we could not make it without you... I loved the film and I am so thankful many talented people were involved, and to Michele, and the other courageous mothers who came forward!Soldier On... Weed Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006  A big oil man- I thought he was a walrus! Re: Documentary on Autism Stuns Internet ViewersOK - get ready to flame me!That video is the most pathetic waste of bandwidth I've ever seen. Rather than depicting how "pitiful" out situations are (if one indeed chooses to see them as pitiful), it would be much more helpful for those moms featured to talk about thimerosal, MMR, DTaP and Proquad, AND the interventions that are indeed working for many children across the USA and abroad, to undo the neurologicalconsequences of this toxin and these vaccines...The drivel shown in the video may move folks to pity "our plight" but it also takes the emphasis off of answers, which is in keepingof the commitment of Autism Speaks to bury the vaccine-autism issue. This is the type of message that their board members Andy Shih (former NAAR) and Marshalyn Yeargin-Allsop (CDC) have done for years.Outside of the vaccine issue, I have to state, "Happiness is a choice," folks. If one chooses to see their situation as miserable,hopeless and pathetic, it will be... Conversely, if we choose to embrace the mission that we have been given, there is a lot more joy in the journey...If the s want us all to be objects of pity, I pity them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 , That was just one opinion, remember that. You are never going to be able to please everyone. I for one, am extremely grateful for this video. Even explaining to family members and good friends is difficult and I pointed all of them in the direction of this film to show them the realities of my life. In no way do I want any of them to feel sorry for me. I need them to understand that I cannot always do what everyone else tries to include me to do. My life does not have the same flexibilities of “normal” family life. More and more people think Autism is just a mild issue that just takes extra behavioral teaching and better parenting. We all know that is not the case. Thank you for taking the time to participate in this film and giving all of us a place to refer people to when they do not understand the gravity of what Autism presents. The biomedical treatments need to be materialized in the main stream but it is going to take many steps to get there. This was a BIG step! Thank you, From: EOHarm [mailto:EOHarm ] On Behalf Of michele iallonardi Sent: Tuesday, May 16, 2006 2:45 PM EOHarm Subject: autism every day Hi- I've been thinking how and if I should reply to this email, as I am not interested in arguing nor do I really have much time to do so anyway. But I kept thinking about it, which was taking up even more time than responding- so... ........... I am the mother of three children who have autism. 1 has been vaccinated, 2 have been partly vaccinated. I am very interested and involved in biomedical interventions. They have been extremely helpful (we have been doing them for over 2 years) but my son, as you saw in the video, is far from recovered. My other 2 children, who are recovering, have been through no biomedical interventions other than changing their diets. My point is this- when it comes to autism, there is no one answer for anything. Recovery is not only about biomedical intervention- maybe for some children, but not for everyone. Autism does have a genetic component (how do you explain 3 brothers with autism?). I do believe that thimersol is a huge part of the problem (but not the only part)- my son with the most vaccinations is the most affected. But, no, I don't think that all children can recover biomedically. And yes, some children do recover without any biomedical interventions at all. My life is by no means " pitiful. " I wrote an article in TAP (the autism perspective) magazine last year entitled " I Have Three " - talking about just how wonderful my life is with my children. Funny, I actually got flack about that article from some people (who have 1 child with autism, and were struggling to deal with that) saying that I was too positive (or delusional or crazy). I have written several articles since then about all of the wonderful things parenting children with autism has brought into my life. That being said, the reality is that life for my boys is difficult. Most people that I know don't realize that. Happiness is a choice, yes, and we are happy. But being happy doesn't mean that it is easy for my son to sit through glutathione shots, eat special food, or live in a world where he can't effectively communicate. I'm happy, but I'm not happy about that. He is suffering- and I can never sit by and just be completely happy when all that is going on. I'll never settle and accept it either. To quote another mom from the film- " I'm never going to say I quit. It's just not in my vocabulary. " To insinuate that I view my life as pitiful is just a hurtful statement that has no point. What I view as pitiful is the time and energy spent (or wasted) in our community criticizing each other. My own life is an example of both genetic and biomedical causes to autism. My own life is an example of how happiness is a choice- because we have certainly had 4 years from hell, with many medical problems, with three children diagnosed with autism in less than one year, but we are happier than most people I know. We are broke, we hate watching our children suffer, and we go through things that most people- even some on this list- could never imagine. That is the reality- and that is what the film wanted the public to understand. Let's be honest- life would be easier if our kids didn't have autism, don't you think? I'm sorry that you did not like what you saw in the documentary, and that you felt that the " drivel " was a waste of your time. It was not a waste of mine. Although it was hard to let the world into our home to see what some of our reality is like, I am proud and honored that we were part of the film. -Michele Message 8 From: " Hooker " sploobnoober@... Date: Tue May 16, 2006 8:42am(PDT) Subject: Re: Documentary on Autism Stuns Internet Viewers OK - get ready to flame me! That video is the most pathetic waste of bandwidth I've ever seen. Rather than depicting how " pitiful " out situations are (if one indeed chooses to see them as pitiful), it would be much more helpful for those moms featured to talk about thimerosal, MMR, DTaP and Proquad, AND the interventions that are indeed working for many children across the USA and abroad, to undo the neurological consequences of this toxin and these vaccines... The drivel shown in the video may move folks to pity " our plight " but it also takes the emphasis off of answers, which is in keeping of the commitment of Autism Speaks to bury the vaccine-autism issue. This is the type of message that their board members Andy Shih (former NAAR) and Marshalyn Yeargin-Allsop (CDC) have done for years. Outside of the vaccine issue, I have to state, " Happiness is a choice, " folks. If one chooses to see their situation as miserable, hopeless and pathetic, it will be... Conversely, if we choose to embrace the mission that we have been given, there is a lot more joy in the journey... If the s want us all to be objects of pity, I pity them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 Just want to say to Michele that the video is terrific and she deserves our gratitude for being such an effective spokesperson about our kids and their families. 's criticism, in my opinion, is not of the video but the context in which it was made and there is validity to what he says. I do think the video will help convey the difficulties families are having and the importance of biomedical intervention. 's point is something different, I think - a discussion that goes outside the four corners of the video. RJK On May 17, 2006, at 9:34 AM, Chap 'n Ali wrote: > > , >     That was just one opinion, remember that. You are never going to > be able to please everyone. I for one, am extremely grateful for this > video. Even explaining to family members and good friends is > difficult and I pointed all of them in the direction of this film to > show them the realities of my life. In no way do I want any of them > to feel sorry for me. I need them to understand that I cannot always > do what everyone else tries to include me to do. My life does not > have the same flexibilities of “normal†family life. More and more > people think Autism is just a mild issue that just takes extra > behavioral teaching and better parenting. We all know that is not the > case. Thank you for taking the time to participate in this film and > giving all of us a place to refer people to when they do not > understand the gravity of what Autism presents. The biomedical > treatments need to be materialized in the main stream but it is going > to take many steps to get there. This was a BIG step! Thank you, >  >  > > From: EOHarm [mailto:EOHarm ] On Behalf > Of michele iallonardi > Sent: Tuesday, May 16, 2006 2:45 PM > EOHarm > Subject: autism every day >  > Hi- > I've been thinking how and if I should reply to this email, as I am > not interested in arguing nor do I really have much time to do so > anyway. But I kept thinking about it, which was taking up even more > time than responding- so... ........... >  > I am the mother of three children who have autism. 1 has been > vaccinated, 2 have been partly vaccinated. I am very interested and > involved in biomedical interventions. They have been extremely >  helpful (we have been doing them for over 2 years) but my son, as you > saw in the video, is far from recovered. My other 2 children, who are > recovering, have been through no biomedical interventions other than > changing their diets. >  > My point is this- when it comes to autism, there is no one answer for > anything. Recovery is not only about biomedical intervention- maybe > for some children, but not for everyone. Autism does have a genetic > component (how do you explain 3 brothers with autism?).  I do believe > that thimersol is a huge part of the problem (but not the only part)- > my son with the most vaccinations is the most affected.  But, no, I > don't think that all children can recover biomedically. And yes, some > children do recover without any biomedical interventions at all. >  > My life is by no means " pitiful. "  I wrote an article in TAP (the > autism perspective)  magazine last year entitled " I Have Three " - > talking about just how wonderful my life is with my children. Funny, > I actually got flack about that article from some people (who have 1 > child with autism, and were struggling to deal with that) saying that > I was too positive (or delusional or crazy). I have written several > articles since then about all of the wonderful things parenting > children with autism has brought into my life. That being said, the > reality is that life for my boys is difficult. Most people that I > know don't realize that. Happiness is a choice, yes, and we are > happy. But being happy doesn't mean that it is easy for my son to sit > through glutathione shots, eat special food, or live in a world where > he can't effectively communicate. I'm happy, but I'm not happy about > that. He is suffering- and I can never sit by and just be completely > happy when all that is going on. I'll never settle and accept it > either. To quote another mom from the film- " I'm never going to say > I quit. It's just not in my vocabulary. " >  > To insinuate that I view my life as pitiful is just a hurtful > statement that has no point. What I view as pitiful is the time and > energy spent (or wasted) in our community criticizing each other. My > own life is an example of both genetic and biomedical causes to > autism. My own life is an example of how happiness is a choice- > because we have certainly had 4 years from hell, with many medical > problems, with three children diagnosed with autism in less than one > year, but we are happier than most people I know. We are broke, we > hate watching our children suffer, and we go through things that most > people- even some on this list- could never imagine. That is the > reality- and that is what the film wanted the public to understand. >  > Let's be honest- life would be easier if our kids didn't have autism, > don't you think? >  > I'm sorry that you did not like what you saw in the documentary, and > that you felt that the " drivel " was a waste of your time.  It was not > a waste of mine. > Although it was hard to let the world into our home to see what some > of our reality is like,  I am proud and honored that we were part of > the film. >  > -Michele >  >  > Message 8 >    From: " Hooker " sploobnoober@... >    Date: Tue May 16, 2006 8:42am(PDT) > Subject: Re: Documentary on Autism Stuns Internet Viewers > > OK - get ready to flame me! > > That video is the most pathetic waste of bandwidth I've ever seen. > Rather than depicting how " pitiful " out situations are (if one > indeed chooses to see them as pitiful), it would be much more > helpful for those moms featured to talk about thimerosal, MMR, DTaP > and Proquad, AND the interventions that are indeed working for many > children across the USA and abroad, to undo the neurological > consequences of this toxin and these vaccines... > > The drivel shown in the video may move folks to pity " our plight " > but it also takes the emphasis off of answers, which is in keeping > of the commitment of Autism Speaks to bury the vaccine-autism > issue. This is the type of message that their board members Andy > Shih (former NAAR) and Marshalyn Yeargin-Allsop (CDC) have done for > years. > > Outside of the vaccine issue, I have to state, " Happiness is a > choice, " folks. If one chooses to see their situation as miserable, > hopeless and pathetic, it will be... Conversely, if we choose to > embrace the mission that we have been given, there is a lot more joy > in the journey... > > If the s want us all to be objects of pity, I pity them >  > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006 Thanks, Bob You've captured the essence of what I was bringing forward. Life with a child who has an autism or toxic encephalopathy diagnosis is tough, there is no doubt! Michele - you personally did a great job in bringing forth a positive message, despite your circumstances. However, to see folks at Autism Speaks continually downplay the role of vaccines in these neurodevelopmental disorders and THEN produce a video that does not even mention vaccines nor biomedical interventions is rather discouraging. I believe that as long as Andy Shih (who funded and approved the fatally flawed and fraudulent Danish epidemiology studies) sits at the helm as Chief Scientific Officer, there will be no change. Andy has been a lapdog to the pharmaceutical industry for years. The evidence for causation between vaccines and autism has stared him in the face, yet he lies, lies, lies at the expense of our children. Until he and Yeargin-Allsop are gone, I renew my call to discourage anyone from donating to Autism Speaks... > > > > > , > >     That was just one opinion, remember that. You are never going to > > be able to please everyone. I for one, am extremely grateful for this > > video. Even explaining to family members and good friends is > > difficult and I pointed all of them in the direction of this film to > > show them the realities of my life. In no way do I want any of them > > to feel sorry for me. I need them to understand that I cannot always > > do what everyone else tries to include me to do. My life does not > > have the same flexibilities of “normal†family life. More and more > > people think Autism is just a mild issue that just takes extra > > behavioral teaching and better parenting. We all know that is not the > > case. Thank you for taking the time to participate in this film and > > giving all of us a place to refer people to when they do not > > understand the gravity of what Autism presents. The biomedical > > treatments need to be materialized in the main stream but it is going > > to take many steps to get there. This was a BIG step! Thank you, > >  > >  > > > > From: EOHarm [mailto:EOHarm ] On Behalf > > Of michele iallonardi > > Sent: Tuesday, May 16, 2006 2:45 PM > > EOHarm > > Subject: autism every day > >  > > Hi- > > I've been thinking how and if I should reply to this email, as I am > > not interested in arguing nor do I really have much time to do so > > anyway. But I kept thinking about it, which was taking up even more > > time than responding- so... ........... > >  > > I am the mother of three children who have autism. 1 has been > > vaccinated, 2 have been partly vaccinated. I am very interested and > > involved in biomedical interventions. They have been extremely > >  helpful (we have been doing them for over 2 years) but my son, as you > > saw in the video, is far from recovered. My other 2 children, who are > > recovering, have been through no biomedical interventions other than > > changing their diets. > >  > > My point is this- when it comes to autism, there is no one answer for > > anything. Recovery is not only about biomedical intervention- maybe > > for some children, but not for everyone. Autism does have a genetic > > component (how do you explain 3 brothers with autism?).  I do believe > > that thimersol is a huge part of the problem (but not the only part)- > > my son with the most vaccinations is the most affected.  But, no, I > > don't think that all children can recover biomedically. And yes, some > > children do recover without any biomedical interventions at all. > >  > > My life is by no means " pitiful. "  I wrote an article in TAP (the > > autism perspective)  magazine last year entitled " I Have Three " - > > talking about just how wonderful my life is with my children. Funny, > > I actually got flack about that article from some people (who have 1 > > child with autism, and were struggling to deal with that) saying that > > I was too positive (or delusional or crazy). I have written several > > articles since then about all of the wonderful things parenting > > children with autism has brought into my life. That being said, the > > reality is that life for my boys is difficult. Most people that I > > know don't realize that. Happiness is a choice, yes, and we are > > happy. But being happy doesn't mean that it is easy for my son to sit > > through glutathione shots, eat special food, or live in a world where > > he can't effectively communicate. I'm happy, but I'm not happy about > > that. He is suffering- and I can never sit by and just be completely > > happy when all that is going on. I'll never settle and accept it > > either. To quote another mom from the film- " I'm never going to say > > I quit. It's just not in my vocabulary. " > >  > > To insinuate that I view my life as pitiful is just a hurtful > > statement that has no point. What I view as pitiful is the time and > > energy spent (or wasted) in our community criticizing each other. My > > own life is an example of both genetic and biomedical causes to > > autism. My own life is an example of how happiness is a choice-  > > because we have certainly had 4 years from hell, with many medical > > problems, with three children diagnosed with autism in less than one > > year, but we are happier than most people I know. We are broke, we > > hate watching our children suffer, and we go through things that most > > people- even some on this list- could never imagine. That is the > > reality- and that is what the film wanted the public to understand. > >  > > Let's be honest- life would be easier if our kids didn't have autism, > > don't you think? > >  > > I'm sorry that you did not like what you saw in the documentary, and > > that you felt that the " drivel " was a waste of your time.  It was not > > a waste of mine. > > Although it was hard to let the world into our home to see what some > > of our reality is like,  I am proud and honored that we were part of > > the film. > >  > > -Michele > >  > >  > > Message 8 > >    From: " Hooker " sploobnoober@... > >    Date: Tue May 16, 2006 8:42am(PDT) > > Subject: Re: Documentary on Autism Stuns Internet Viewers > > > > OK - get ready to flame me! > > > > That video is the most pathetic waste of bandwidth I've ever seen. > > Rather than depicting how " pitiful " out situations are (if one > > indeed chooses to see them as pitiful), it would be much more > > helpful for those moms featured to talk about thimerosal, MMR, DTaP > > and Proquad, AND the interventions that are indeed working for many > > children across the USA and abroad, to undo the neurological > > consequences of this toxin and these vaccines... > > > > The drivel shown in the video may move folks to pity " our plight " > > but it also takes the emphasis off of answers, which is in keeping > > of the commitment of Autism Speaks to bury the vaccine-autism > > issue. This is the type of message that their board members Andy > > Shih (former NAAR) and Marshalyn Yeargin-Allsop (CDC) have done for > > years. > > > > Outside of the vaccine issue, I have to state, " Happiness is a > > choice, " folks. If one chooses to see their situation as miserable, > > hopeless and pathetic, it will be... Conversely, if we choose to > > embrace the mission that we have been given, there is a lot more joy > > in the journey... > > > > If the s want us all to be objects of pity, I pity them > >  > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 17, 2006 Report Share Posted May 17, 2006  You avoided the obvious personification? Re: Documentary on Autism Stuns Internet ViewersOK - get ready to flame me!That video is the most pathetic waste of bandwidth I've ever seen. Rather than depicting how "pitiful" out situations are (if one indeed chooses to see them as pitiful), it would be much more helpful for those moms featured to talk about thimerosal, MMR, DTaP and Proquad, AND the interventions that are indeed working for many children across the USA and abroad, to undo the neurologicalconsequences of this toxin and these vaccines...The drivel shown in the video may move folks to pity "our plight" but it also takes the emphasis off of answers, which is in keepingof the commitment of Autism Speaks to bury the vaccine-autism issue. This is the type of message that their board members Andy Shih (former NAAR) and Marshalyn Yeargin-Allsop (CDC) have done for years.Outside of the vaccine issue, I have to state, "Happiness is a choice," folks. If one chooses to see their situation as miserable,hopeless and pathetic, it will be... Conversely, if we choose to embrace the mission that we have been given, there is a lot more joy in the journey...If the s want us all to be objects of pity, I pity them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 FOR ROB Krakow H. H.Fudenberg, M.D.,DDG.IOM Inman, SC 29349 (864) 592 8076 Website nitrf.org From: "Herman Fudenberg" <nitrf@...>Reply-EOHarm To: EOHarm , robertbloch@...Subject: Re: autism every dayDate: Wed, 17 May 2006 01:51:16 -0400 Well spoken! H. H.Fudenberg, M.D.,DDG.IOM Inman, SC 29349 (864) 592 8076 Website nitrf.org for vaccine injuries to our children they can give all they want. It's not going to do any good except feed the NPO sharks for a while. Probably the worse thing that can happen to a charity is somebody comes up with a reason and a cure. This is America. Look at what happened to the Tucker. The centers the combating autistics bill is going to build are all going to be fronts for drug company experimentation. Just another case of the government refusing to regulate the drug industry by giving them a subsidy without a price break for consumers. Pharma always wins until we get a politician in the White House willing to crack down on monster corporation profiteering. We all wonder about the need to pay a Big Oil man $600,000,000 a year in salary. Autism Speaks has issues with me in that they are vulnerable to drug company influences. If the drug companies don't like the direction research is going they just stop advertising on NBC. We all saw that influence on ABC News when the report on Bobby Kennedy turned into a hatchet job by their resident drug shill Tim . I can see where network television can easily be playing the role of extortionist concerning thimerosal. So who do we parents turn to? We're basically screwed on all angles. That's why the rally cry is "save some for the victims". It took forty years for the Japanese government to officially disclose what happened at Minamata and another eight for them to provide $70,000 yen to the *relatives* of the victims of mercury poisoning. The oxen are slow, but the earth is patient. We're showing good faith, are they? Re: Documentary on Autism Stuns Internet ViewersOK - get ready to flame me!That video is the most pathetic waste of bandwidth I've ever seen. Rather than depicting how "pitiful" out situations are (if one indeed chooses to see them as pitiful), it would be much more helpful for those moms featured to talk about thimerosal, MMR, DTaP and Proquad, AND the interventions that are indeed working for many children across the USA and abroad, to undo the neurologicalconsequences of this toxin and these vaccines...The drivel shown in the video may move folks to pity "our plight" but it also takes the emphasis off of answers, which is in keepingof the commitment of Autism Speaks to bury the vaccine-autism issue. This is the type of message that their board members Andy Shih (former NAAR) and Marshalyn Yeargin-Allsop (CDC) have done for years.Outside of the vaccine issue, I have to state, "Happiness is a choice," folks. If one chooses to see their situation as miserable,hopeless and pathetic, it will be... Conversely, if we choose to embrace the mission that we have been given, there is a lot more joy in the journey...If the s want us all to be objects of pity, I pity them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 I agree with Kat--depressing though it may seem, I felt validated by a lot of what it showed. I managed to maintain a lot of non-autism-friendships, but I think I did it by not mentioning autism much, and went through hell trying to maintain " normalcy. " And there's a price to pay--I can get very bitter and when people whine and impose for favors and really think their little problems deserve and require the help they're demanding--one friend in particular is annoyed at me over a perceived slight--this same woman briefly tried to work with my son providing ABA six years ago, but even when she knew there were only four weeks more i had to cover she refused to stay on--she literally could not be paid to spend two hours with my son. It took a lot to overlook how she turned her back on our stress and need. And yes, I do want people to see my son for his humor and other good qualities--BUT when you show people the good side of autism, that's the only par they want to see. School districts say, " Oh, these kids can do OK, they don't need all this intensive therapy after all. " Other parents are all to eager to see the positive and deny the other stuff because it's hard to complain about your normal problems when you know someone else has huge ones--neighbors used to get terse when I talked about therapies and battles with the school district and say things like, " It will all work out, don't worry " because I think they just wanted the usual backyard banter--it was too uncomfortable to acknowledge the enormity of the issues we faced. Trust me, I have seen people take the " Autistic people are people too, just different " and run with it, all too happy to think that once you embrace the " differences " all is well and happy and the stress is simply of the parents' own making. They deny the misery of our kids, the danger involved when they run off, the exhaustion involved, the need to get them progressing just a little bit. Newsweek once ran an article on autism and in the whole thing, towards the end was a sentence that said something like, " Some higher-functioning children with autism can be taught by tapping into their interests " (probably referring to a Temple-Grandin like concept in which an obsession can be used to teach language, etc) and a school district near here actually brought THAT into an IEP meeting to claim that the child did not need one-to-one, he just needed to pursue his interests. Schools especially want to paint us as greedy, selfish people out to get a private-school education on the public's dollar and don't want people to see how much is at stake. You know what? The people who meet and work with my child learn his good qualities. But the uninformed out there should have a clue--this is not an innocuous difference, autism is an affliction, one with its blessing just like everything else, but though people know autism is on the rise, they don't get how hard it is on the kids themselves and the parents and they have no idea what they're really seeing when my child is loud in public. They should. The kids won't get funds otherwise. People give money to alleviate suffering, so the suffering needs to be shown. And when they see how far my son has come from the screaming and flapping in this video, I want them to know it took heroic efforts on his part to get there. Sue F. On May 17, 2006, at 5:34 PM, <all4cam@...> wrote: > Kat, > No, I don't take your posting as a rebutal to mine.I view it as > another persons point of view .I guess where I have a problem with > that video ..and especially if it were shown at a fund raiser is that > it doesn't educate anyone about autism is ..it does show how it can > effect families and how their dreams have had to change for their > children.How it can take it's toll on families emotionally and > financially ..yes that's true. > > However,there's a responsibility for organizations like this one,that > say they speak for autism,that there is a full picture being shown to > the otherwise " uneducated " general public that has no clue to what > autism is.Yes,it can spin your life in a different direction but I'm > sure that all of these families also have their stories of triumph > over the challenges. > > I want people to see that yeah..our kids may flap and squeal,they may > have certain behaviors that seem odd.All of that is truth..yes..it has > been mine for 9yrs.But if I were speaking about my son,which I have > done at an autism conference,I would also want people to know ..my son > is smart,capable,and dispells a lot of myths about what people think > autism is.I'm not discounting the trying times or the " poo poo " > stories that I could tell but I'm saying that quite the contrary > they'd be surprised that yes..our kids do have emotions ..they do > understand whats going on around them and more importantly..they are > listening to EVERYTHING we say and do around them. > > I was disappointed that yet again it sends the message of a dispairity > and nothing positive.What have these parents gained and learned from > their experiences? How can the families be better supported? Pooling > all this $$ into research is one thing but when you have families that > are struggling to pay for services their child needs and pay their > mortgage at the same time..something is not right about that.When you > have schools that don't have a clue about how our children need an > enriched learning environment not one made up of strict regimen and > programing..there is a failure somewhere. > > I just wish there was an organization that gave a balance and not make > it seem as though our kids are " afflicted " with autism and have a grim > future.Theres more to our kids then just the challenges of autism and > other related issues that come along with it. > > Stacey > > > > From: Kat <beedo4me@...> > Date: Wed May 17 09:18:59 CDT 2006 > autism > Subject: Re: Autism Every Day > > I actually watched it twice and then when my husband got home, I > watched it again with him. > > Stacie, your perception of this video was interesting because that > wasn't my take, though I can certainly understand and appreciate > yours. > > I viewed this video clip with the understanding that it was presented > at (and probably produced for) a fund raiser. Though I agree that it > was depressing and sad and not very encouraging or positive, I think > that it was probably suited well for it's intended purpose. > > In truth, our son was only official diagnosed with autism 2 months > ago (though we've basically known that he was autistic for at least 2 > years before the " official " diagnosis) and as a " new " parent of an > autistic child I actually found comfort in this video. I know that > may sound strange but it really isn't. > > I felt connected in a way I hadn't before. Our Timmy screams and hand > flaps and runs and doesn't sleep and we get the looks and unsolicited > insenstive advice from family and friends. He doesn't sleep and > neither do I. I'm paranoid about something happening to me because > then what would happen to him. Many of the fears, concerns, and real > nuts and bolts about what we deal with was portrayed in this video. > It made me feel less alone, less crazy about the way I think and > behave. It made me feel normal in a very un-normal reality. > > I didn't intend to make this post into a rebuttal about your > perception of the video, Stacie, so please don't take it that way. > What you said actually let me put my finger on, and feel the pulse > of, how I felt about this video. > > I've emailed the link to family and friends so that they'll know I'm > not a bad mom and that doesn't just have extremely bad > manners. Autism awareness. > > Thanks ever-so-much for the link, Jim's Mom! > > Kat > > > > > > >> >> I watched this today and I had to watch it twice.If I were a parent > just getting the diagnosis I would be reaching for the bottle and a > glass. >> >> I thought it was so depressing and sad.Much of what they shared was > very true for most..including myself.However,with all that was " bad " > or negative there was not one word of anything positive or > encouraging.It was basically like, " my life is over... " I can relate > to the despair,I've had it at times,I can relate to the fears > of " what happens when I'm gone? " .But I don't think that clip helps > as far as Autism Awareness,education or any positives ..in fact it > played into every assumption and misconception of autism that most > people have and leaves you with a feeling of helplessness and pity.I > don't want to give away the details of this clip because I want > others to view it. >> >> Stacey >> >> >> >> >> From: jimsmom1980 <carolc@...> >> Date: Tue May 16 13:44:00 CDT 2006 >> autism >> Subject: Autism Every Day >> >> Please view this video: >> >> http://www.autismspeaks.org/sponsoredevents/autism_every_day.php >> >> and post your reaction. >> >> Jim's Mom >> >> >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
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