Re: Vicky/was: Thyroid Question again

[Guest guest]

Yes I agree , you know here they are forever telling us our health service is free, I wonder to whom? National Insurance contributions are for health, so where is the "free", they behave as though they are volunteering out of the goodness of their hearts!

At my recent PCT funding meeting one of them had the nerve to say to me there is only so much money to go round, another thing we find here or at least I do, is that we are all living off the benefit system and have never contributed a penny in our lives, have to be answerable to the tax payer, and there was me thinking all the hours my husband puts in and next weeks accountants appointment was to see how much the chancellor wanted to swipe off us this year.

Mandi I rang the Doctor back and he has said he will pass it on to paed, I'm really starting to think this whole autism thing is a real hot potato, they are all scared to address the stuff we are presenting them with and wherever possible they will try and pass the buck on to someone else.

Vicky

xx

[Guest guest]

Deplorable, but predictable. What a mind set, because they have autism their health problems should not be addressed? Why don't they just say that because our children have autism they are not worth it?

We went through two peds before we found one who would agree to do the testing and then he argued with my dd that if her free T3 was low it would affect her brain development, even though this is clearly documented in most pediatric medical books, geesh, don't they read them?

The reason lots of autistic kids have alopecia is because they have thyroid problems.

And you know what really gets me? Your health care system is paid for by the people in your country so I can somewhat understand them being careful with the testing (although in this case necessary).

But in the US, our insurance is paid for through employment, but the first ped acted like we were using HER insurance. Even my dd telling her she didn't care if the insurance paid for the free T3 or not, she wanted it done was met with resistance, but final agreement.

By that time dd changed peds to one who would agree, or at least knew what a free T3 was. The medical establishment has really failed, but failed our kids most of all.

We had a discussion about this on A-M, and the comment was made not to support drs who would not provide proper care and to keep changing until you found one who did. That is what we did although I know it may not be an option under public health care. There is a push for national health care insurance here, I hope we never get it.

Sorry, Vicky, I know how frustrating this is, but I would persevere as correcting this problem has made a big difference here. I have found another reason for fatty acid imbalance, it is hypothyroidism. With the correction of the thyroid the bumps on the back of her arms have disappeared, her skin is wonderfully moist, her hair is shiny. The thyroid controls most everything in the body.

Re: Thyroid Question again

What a waste of time! again we are refused a thyroid test, today's excuse "autism" lots of kids with these issues have alopecia, "Oh really, I see an entire school full of them every day with good heads of hair and normal height"!!

What are we supposed to do here, see Dr D for everything under the sun that presents with, pay for tests freely available to normal kids? travel to London everytime is not well, I say this because in hhis 8yrs of life according to NHS doctors my son has never had a days pain or anything at all other than autism, and I really need to accept this.

He thought I was paying the NHS gastro privately to see , seeing as he had already refused the test I felt it only fair to tell him I wouldn't see her if she paid me so impressed am I with her!!!!!!

Vicky

[Guest guest]

In a message dated 18/04/2006 14:47:48 GMT Daylight Time, MaddiganV@... writes:

Mandi I rang the Doctor back and he has said he will pass it on to paed, I'm really starting to think this whole autism thing is a real hot potato, they are all scared to address the stuff we are presenting them with and wherever possible they will try and pass the buck on to

>>>What a whimp (for want of a better word not suitalbel for list)

TOTAL AND UTTER WASTE OF RESOURCES - to use a consultant Paeds time to order a standard and CHEAP test.

I would have made a comment about how long ago it was that he did his training that he has forgetten the indictaions of basic testing..................

Mandi x

[Guest guest]

Vicky, you are right, you do pay, but when the payment is indirect as a result of some collective effort such as a taxpayer, you lose control.

Same thing with public education. We taxpayers do pay for it, but the way the majority of teachers behave, you would never know it. Private schools (we sent my dd to both public and private) where you pay directly are much more accountable to the child's need. Is the reason I think all school and health monies should be attached directly to the child/person.

I hope you get this sorted out.

Re: Vicky/was: Thyroid Question again

Yes I agree , you know here they are forever telling us our health service is free, I wonder to whom? National Insurance contributions are for health, so where is the "free", they behave as though they are volunteering out of the goodness of their hearts!

At my recent PCT funding meeting one of them had the nerve to say to me there is only so much money to go round, another thing we find here or at least I do, is that we are all living off the benefit system and have never contributed a penny in our lives, have to be answerable to the tax payer, and there was me thinking all the hours my husband puts in and next weeks accountants appointment was to see how much the chancellor wanted to swipe off us this year.

Mandi I rang the Doctor back and he has said he will pass it on to paed, I'm really starting to think this whole autism thing is a real hot potato, they are all scared to address the stuff we are presenting them with and wherever possible they will try and pass the buck on to someone else.

Vicky

xx

[Guest guest]

Cochran skrev:

> The reason lots of autistic kids have alopecia is because they have

> thyroid problems.

>

This was new to me, where do you get that from ?

Is it Alopecia generalisata, or Alopecia areata you are " talking about " ?

To me tha last is a manifestation of allergy, as thyroid problems can be..

Geir Flatabø

[Guest guest]

Hi Geir,

I didn't say the only reason lots of autistic kids have alopecia is because they have thyroid problems. Can be from a lot of things, but first thing I think when I see a slow growing child with thin hair.....is, check out the thyroid.

Re: Vicky/was: Thyroid Question again

Cochran skrev: > The reason lots of autistic kids have alopecia is because they have > thyroid problems.> This was new to me, where do you get that from ?Is it Alopecia generalisata, or Alopecia areata you are "talking about "?To me tha last is a manifestation of allergy, as thyroid problems can be..Geir Flatabø

[Guest guest]

Dear ,

Bloody Hell.... So we have had chronic constipation problems forever and no-one has ever suggested this, makes me so mad!! Well, do you mind if I forward this post (Mmm maybe just some of it to Dr U cos I am so determined to get all these bloods done on Monday if it kills me....Properly too!!

Its like a blooming hotline from here to Dr U's office right now, she'll be seeing, Soo whats Mrs T's emails saying today!!

Still gotta be done, Thanks so much I will so be asking about this now.

Will keep y'all posted.

Thanks

PS We are only getting this Thyroid checked cos we are hoping to see DR Krigsman about the bowel stuff, pretty glad its come up now after reading all this stuff.

[Guest guest]

Hi Caroline,

Dull hair as well as chronic constipation can be a sign of hypothyroidism. I would certainly have it checked, is easy (well, easy if you can get anyone to understand to do the test) and may be one of the pieces to 's puzzle. We had dry skin and low body temps, plus a hair test that warned us the thyroid was working too hard.

Just make sure and commit to memory "Free T3", not a free t3 uptake or anything else, took us two attempts to actually get them to do it. Check with each and every person at the lab that you are getting a free T3. Other things you want in addition, are a "free T4" and the TSH. Dr U will know what tests to order.

Also make sure and check out the correct ref ranges for 's age, Dr U does not have them, as I have another mother who uses Dr. U, the test was run, the free T3 was low, and never corrected. Getting the free T3 higher was responsible for solving her boy's constipation. Our Mandi has the correct ref ranges.

One thing we did find was that her multi contained green tea, which I have found out is loaded with fluoride, eeek! We took her off the multi and have been able to reduce the amount of Armour we were giving. So in the process of trying to find the correct dosage.

I think she has had this problem from the beginning, although the green tea didn't help it. Fluoride sits in the same place in the body as iodine and if you have limited iodine, the thyroid will suffer.

Things are better here, despite her constant physical problems, the worse they got, the better her cognitive got. Even her hair test got much worse as she is doing marvelous with the content of her speech. Go figure??

Correcting the thyroid also allowed us to get rid of that last little bit of ADD she had, so well worth the effort to get the test. I wish you and , well, Caroline.

Re: Vicky/was: Thyroid Question again

In a message dated 18/04/2006 13:40:59 GMT Standard Time, Ladyshrink111@... writes:

Sorry, Vicky, I know how frustrating this is, but I would persevere as correcting this problem has made a big difference here. I have found another reason for fatty acid imbalance, it is hypothyroidism. With the correction of the thyroid the bumps on the back of her arms have disappeared, her skin is wonderfully moist, her hair is shiny. The thyroid controls most everything in the body.

Dear

You've probably forgotten you wrote this I am so behind with my posts. The thing about the shiny hair really struck me because when has impaction her teacher and myself have noticed how dull her hair is. Is this a sign of hypo?thyroidism then?? I dont really know anything about this at all but we are going to have this checked out when she sees Dr U on Monday.

Just interested about that. Hope things are better with you Vicks been a nightmare recently, I know.

Love Caroline

xxx

[Guest guest]

Sure, forward most of it, lol. Add this to the statistic that I read that said 80% of our kids have thyroid problems. Dr U does check them, to be fair, but there is a subclinical level of hypothyroidism that very few drs know how to treat.

And it is tricky to treat! Takes forever to explain it to someone, but when you look at the symptoms of hypo, well worth the effort.

Add to all that, that thyroid problems can change. We started out HYPER thyroid, that is probably the reason the multi with the green tea was beneficial, then overkill, she went hypo, just barely, but still effects lots of things.

Dr. U does do the correct testing of the thyroid, just does not use the correct ref range. We got our ped to do the test, got him to agree the ref ranges the lab used was not correct for children, convinced him to apply the correct reference range and admit it was a bit low, but he argued up and down that if her free T3 was low it could cause inadequate brain development or cause her chronic dry skin.

There is a good book that explains all this called Hypothyroidism II by Dr. Mark Starr.

As I said, Dr U will do the right tests, but if the values are low, finding someone to actually treat them is tough, but not impossible if you are resourceful.

Re: Vicky/was: Thyroid Question again

Dear ,

Bloody Hell.... So we have had chronic constipation problems forever and no-one has ever suggested this, makes me so mad!! Well, do you mind if I forward this post (Mmm maybe just some of it to Dr U cos I am so determined to get all these bloods done on Monday if it kills me....Properly too!!

Its like a blooming hotline from here to Dr U's office right now, she'll be seeing, Soo whats Mrs T's emails saying today!!

Still gotta be done, Thanks so much I will so be asking about this now.

Will keep y'all posted.

Thanks

PS We are only getting this Thyroid checked cos we are hoping to see DR Krigsman about the bowel stuff, pretty glad its come up now after reading all this stuff.