Guest guest Posted August 6, 2005 Report Share Posted August 6, 2005 Hi EveryOne, This is from the Kombucha Threads found in the file section of the Original Kombucha Home Page kombucha tea/ Peace, Love and Harmony, Bev Fibromyalgia This Fibromyalgia thread was unraveled from: The Kombucha Digest V1#1 thru V2#550 There is a good commercial WebSite at: http://www.reversingfibromyalgia.com/index.html This is a commercial site and they are selling a product but there is good information there as well. ________________________________________________________________ DISCLAIMER This compilation of data is provided as is without any express or implied warranties. While every effort has been taken to ensure the accuracy of the information contained in this file, the editor/authors/contributors assume no responsibility for errors or omissions, or for damages resulting from the use of the information contained herein. This information may not be included in any compilations or commercial collections without express written permission from the editor. I make no claims as to the efficacy of Kombucha Tea for any medical condition. This is a compilation of anecdotal data. This data may be freely copied for personal use and educational purposes and may be given to others as long as there is no commercial use made of it. It may not be distributed with any product sold that is referenced here in. Copyright c April 1997 by Wm R. `Bob' All rights reserved. ________________________________________________________________ From: JACK BARCLAY <ASD003@...> Date: Fri, 09 Jun 95 09:55:17 MDT Subject: Fibromyalgia , On Mon, 29 May 1995 12:12:25 -0400 gary harper said: >>Now I have another question. My GF has Lupus, Fibromyalgia and Cardiac Arrythmia. She is on ambien10mg 1xday,Pamelor 25mg 1xday, Klonopin 1mg 1xday, Zoloft 100mg 1xday, Toradol 10mg 1 every 6hrs. and Voltaren 75mg 2xday. Everyone of these meds say not to drink any alcohol. My question is; can she drink this tea safely while taking these meds?<< The alcohol is about 0.5% and this is considered nonalcoholic. Your GF should have no problem drinking the tea and it would probably be helpful. Start slowly, an oz. a day and work up to 4 oz. twice a day. Blessings, Jack -sep--------------------------------------------------------- From: JYZA61A@... (MS MARGE E DEHAVEN) Date: Sun, 09 Jul 1995 19:14:55 EDT Subject: Re: RX'S and KTEA?? Hi Bill, I have a genetic muscle disability called Fibromyalgia. My muscles are not spastic and this creates a lot of pain in my muscles and joints. This disease is as my son says a hypochondriacs dream. There are so many other problems that it causes. I am new at this holistic med so please bare with me. The meds that I take can not be stop at this time. I take 150mg of amitriptyline at night to get the healing stage four sleep, Inderal (a beta blocker) for rapid heart and anxiety attacks, and a muscle relaxer (soma) to help relieve the pain so I may work. I also need either cortisone shot or an anti-inflammatory med for when a am in an acute phase. I am 43 and I have been on so much since I was 27 that I am open to anything to slowly get off this stuff, not to mention all the money that I have to put out. I may someday be disabled if I don't find an alternative soon. There are so many people that are far worse than me.... I just want to be as literate as I can be in this new (to me) subject. Thank you all for the info. Margie -sep--------------------------------------------------------- From: Goodhouse <richardg@...> Date: Sun, 07 Apr 1996 00:28:13 -0800 Subject: (FYI)-Fibromyalgia Info. Fibromyalgia -- a guide for patients A. Nye MD, 13 Aug 95 What is fibromyalgia? Fibromyalgia is a common and disabling disorder affecting 2-4% of the population, women more often than men. Despite the condition's frequency, the diagnosis is often missed. Patients with fibromyalgia usually ache all over, sleep poorly, are stiff on waking, and are tired all day. They are prone to headaches, memory and concentration problems, dizziness, numbness and tingling, itching, fluid retention, crampy abdominal or pelvic pain and diarrhea, and several other symptoms. There are no diagnostic lab or x-ray abnormalities, but a physician can confirm the diagnosis by finding multiple tender points in characteristic locations. Fibromyalgia often runs in families, suggesting an inherited predisposition. It may lie dormant until triggered by an injury, stress, or sleep disturbance. It is closely related to the chronic fatigue and irritable bowel syndromes. Some have suggested that these are all just different facets of the same underlying disorder. What causes it? Fibromyalgia has mistakenly been thought to be either an inflammatory or a psychiatric condition. However, no evidence of inflammation or arthritis has been found, and it is now believed that depression and anxiety when present are more often the result than the cause of fibromyalgia. There is better evidence that fibromyalgia is due to an abnormality of deep sleep. Abnormal brain waveforms have been found in deep sleep in many patients with fibromyalgia. Fibromyalgia-like symptoms can be produced in normal volunteers by depriving them of deep sleep for a few days. Low levels of growth hormone, important in maintaining good muscle and other soft tissue health, have been found in patients with fibromyalgia. This hormone is produced almost exclusively in deep sleep, and its production is increased by exercise. I should point out though that while this is my personal favorite among the theories of the cause of fibromyalgia, there are several other viable ones, and at this time there is probably not a majority of fibromyalgia researchers that supports any one theory. How is it treated? Taking medication by itself has relatively little effect on fibromyalgia symptoms. Successful treatment requires active involvement of the patient in his or her care, including: 1) Medication to improve deep sleep. 2) Regular sleep hours and an adequate amount of sleep. 3) Daily gentle aerobic exercise. 4) Avoidance of undue physical and emotional stress. 5) Treatment of any coexisting sleep disorders. 6) Patient education. If any of these steps are omitted, the chance of significant improvement is greatly reduced. Medications A number of medications have been used to improve sleep in fibromyalgia. The oldest of these is amitriptyline (Elavil), a medication first used to treat depression. Amitriptyline and related medications probably work by improving the quality and depth of deep sleep rather than by any effect on mood. As amitriptyline has a number of bothersome side effects, such as weight gain, dry mouth, and fuzzy-headedness, I rarely try it first. Other often-prescribed medications with less bothersome side effects include trazodone (Desyrel), diphenhydramine (Benadryl), cyclobenzaprine (Flexeril), alprazolam (Xanax), carisoprodol (Soma), and 5-hydroxytryptophan. Medication is started at a low dose and gradually increased until you sleep well at night and feel good during the day, encounter unacceptable side effects, or reach the prescribed maximum dose. Starting low and slow helps minimize initial side effects such as dizziness and morning grogginess. By two to four weeks, most patients find that the side effects are settling down and the fibromyalgia symptoms are starting to improve. It often takes a lot of fiddling with the dose to get it exactly right, and it frequently will be necessary to try several medications in succession or sometimes in combination. Some patients find that certain of these medications cause stimulation rather than sedation, as if one has had too many cups of coffee. When this " paradoxical effect " occurs it will be necessary to switch to another medication. The medication may become less effective after a period of time and the dose may then need to be increased slightly. Most patients will need to continue on medication indefinitely. There are several herbal and other " alternative " remedies that some patients feel are helpful. While I can't recommend them simply because they haven't been adequately studied for efficacy or long term harm, I don't discourage patients from using them if they find them helpful. Regular sleep Patients with fibromyalgia must get to bed by the same time every night and get enough sleep. Staying up just one hour late may cause an exacerbation that lasts for several days. Many patients with fibromyalgia have exacerbations triggered by the change over to or from Daylight Savings time. Try to make the switch in fifteen minute increments every few days instead of by one hour overnight. I have had no success getting patients truly feeling well who work off shifts that prevent them from having a consistent bedtime or require that they sleep during the day. Exercise Daily gentle aerobic exercise is very important. While patients who try to do too much exercise too soon or of the wrong type will make themselves temporarily worse, most patients who don't begin a daily aerobic exercise regimen will never notice much improvement. Aerobic exercise is defined as exercise that gets your heart rate up to a target heart rate for the duration of the exercise period. Heart rates are measured in beats per minute. It is accurate enough for our purposes just to take your pulse for 6 seconds and multiply by 10. The aerobic target heart rate is calculated from the following formula: (220 - age - rhr) x .6 + rhr where age is your age in years and rhr your resting heart rate, determined by taking your pulse when you wake up but before getting out of bed. A good place to feel your pulse is at the wrist turned palm up, next to the large bone on the thumb side at the end of your forearm. If you are exercising hard enough you should be able to feel your heart beating and can just count that. For most people, the aerobic target heart rate is at about the point where they can no longer sing but can still talk comfortably. Exercise seems not to work through conditioning of muscles but rather through a direct, possibly hormonal effect on pain and sleep, which explains why you don't need to exercise painful muscles for the pain in them to decrease. Daily exercise is essential. Patients who have been exercising regularly and then miss a day usually find that their fibromyalgia symptoms are significantly worse for the next day or two. The kind of exercise is unimportant. Just make sure to pick something that doesn't make you hurt worse. It may take trying several different kinds before finding one or more types that agree with you. Popular kinds include walking, a water exercise program, regular or exercise bicycles, other exercise equipment, and *gentle* aerobic dance. Jogging, vigorous aerobic dance, and weight lifting tend not to very good choices. If your pain is mainly in your legs or back, exercise just your arms or try exercising in the water. While many patients insist that they get plenty of exercise at work, doing housework, or in their yard, it is rarely the right kind. Effective exercise must result in a sustained elevation of the heart rate, and these incidental kinds of exercise are usually stop and go and may instead increase your pain. You need to set aside a time specifically for daily exercise. Particularly if you are out of shape, start out with just 3-5 minutes of exercise and gradually increase as tolerated, shooting for twenty to thirty minutes. Take a few minutes to stretch your muscles, then start out slowly, increasing to full speed after a minute or two. Slow down again for the last minute or two and repeat the stretches. There are five recommended stretches, each done for 20 seconds a side. They should be gentle and painless. Hold onto a tree or post for support for #s 3-5: 1) Shrug your shoulders in a circular motion. 2) Reach your arm over your head and bend to the opposite side. 3) Bend forward with your legs straight. 4) Pull your foot towards your buttock while standing on the other leg. 5) With your feet flat on the ground and one foot ahead of the other, lean forward, bending just the front knee. Exercise is most effective if done in the late afternoon or early evening. If you absolutely can't do it then, exercising earlier in the day is better than not exercising at all, but you will probably need to exercise longer for the same effect. Don't exercise just before bed as this may interfere with sleep. Some patients find that exercise provides an immediate benefit, making them feel more alert and comfortable for several hours. If you experience this effect, you may want to try exercising on awakening and at noon as well. Some patients for whom this works may not need medication. Avoid physical and emotional stress Too much physical activity of the wrong kind will make you feel worse. Rather than doing housecleaning, yard work, or other physical activity all on one day, break up the task so that you do a half hour or an hour every day until it is done. While it is difficult to learn to do this, it is essential that you be able to sense when you have reached your limit and stop. By pacing yourself, you will be more productive overall. You need to be able to say no to family and friends when you are not up to some outing or other activity. Don't take on extra responsibilities if you can avoid it. Stress also worsens fibromyalgia symptoms. If you have ongoing problems with depression or anxiety, consider seeking help for them from your family doctor or a psychiatrist. Anxiety and depression may arise as symptoms of fibromyalgia and in turn cause insomnia, leading to worsening of the underlying problem. Relaxation techniques or a chronic pain program can also help lower your stress level and are of proven benefit in treating fibromyalgia. Treat other sleep disorders Several other sleep disorders besides insomnia may aggravate fibromyalgia. Almost half of men with fibromyalgia and some women have obstructive sleep apnea. In this condition the patient snores loudly and has periodic pauses in breathing after which he starts breathing again with a snort. Periodic limb movements of sleep is a condition in which patients jerk or kick every 30 to 90 seconds for long periods during the night. Patients may be completely unaware of either of these conditions until the spouse complains. Not only will it be difficult to get fibromyalgia symptoms to improve without treating other sleep disorders, but if sleep apnea is left untreated it may lead to accidental death or injury as well as early strokes or heart attacks. Be sure to tell your physician about these problems if you notice them. Other common sources of repeated sleep disturbance are a spouse's snoring and young children. If the spouse drinks alcohol in the evenings or is overweight, then avoidance of alcohol after supper or weight loss may eliminate snoring. Avoiding sleeping on the back will often help. At the very least, the patient can wear earplugs. Children are harder to put off but fortunately most soon outgrow their need for care at night. Miscellaneous factors It is important to avoid prescription tranquilizers and sleeping medications of the benzodiazepine group. While these may help you get to sleep, they suppress deep sleep and therefore often make fibromyalgia symptoms worse the next day. Alcohol and narcotic pain medications taken in the evenings have the same effect on deep sleep and should be avoided. Some patients have noticed that certain foods may trigger fibromyalgia symptoms much as they may migraines. Some have found that a diet low in fats and simple sugars helps. If you suspect that some food make you worse, try avoiding it and see if that makes a difference. Patients with fibromyalgia should probably give up caffeine completely as even one cup in the morning can sometimes disrupt sleep at night and may also directly increase muscle pain and headaches. If you are drinking more than a cup a day you should taper yourself off caffeine-containing beverages over two weeks or so to minimize withdrawal symptoms such as headaches. Support and education Patients who make the effort to learn as much as possible about this disorder usually do better than those who don't. I recommend that you keep this handy and re-read it periodically. Fibromyalgia sufferers often elicit less sympathy and support than they deserve from family, friends, and employers because of the lack of outward evidence of disease. Many have been told by physicians that there is nothing wrong with them or that it is " all in your head " which can be very demoralizing. For these reasons, and just because it is good to know that you are not alone, attending a support group can be valuable. There are local chapters in most areas now of the Fibromyalgia Network. This organization also produces a newsletter worth subscribing to. Contact them at: Fibromyalgia Network PO Box 31750 Tucson, Az. 85751-1750 info line: (520) 290-5508 fax: (520) 290-5550 For those of you with internet access, alt.med.fibromyalgia, a Usenet newsgroup devoted to fibromyalgia, is a great place for information and support. Staying in remission While fibromyalgia is not curable, most patients with a little work can make it to the point where they feel substantially better most of the time. Even with good results from treatment however brief relapses are common, perhaps caused by staying up as little as one hour late one evening, skipping exercise, a disruption in your routine, increased stress, a storm front moving in, or often for no apparent reason. You will do best if you " give in to it " when this happens and try to get extra rest. Ibuprofen or naproxen and hot baths may help at these times. If at all possible, try not to stop exercising when this happens, even if you have to back off on the amount a little. Once you have had a period of feeling relatively well, it should be possible to get you back to that point again by identifying what derailed you and correcting the problem. The fibromyalgia tender points To qualify for a diagnosis of fibromyalgia, patients must ache all over and have tenderness in at least 11 of these 18 spots when 4 kgs. of pressure are applied. __ __ / \ / \ Location of FMS tender points: | | | OO | | | | __ | \__/ \ / 1) Attachment of neck muscles 11 -- at the base of the skull _2_||_2_ _2_88_2_ / \ / \ 2) Midway between neck and | 3 3 | | 99 | shoulder | | | | 3) Muscle over upper inner | | | | | | | | shoulder blade | | | | | | | | | | | | | | /\ | | 4) 2 cms below side bone at | | | | |_| / \ |_| elbow |@| |@| | | | | 5) upper outer buttock 4 |\ /| 4 | |\ /| | | |/ \| | | |/ \| | 6) Hip bone | ||5 5|| | | || || | | |6 6| | | |6 6| | 7) Just above knee on inside | || )( || | | || /\ || | ( )| || |( ) ( )| || |( ) 8) Lower neck in front | || | | || | | || | | || | 9) Edge of upper breast bone |-77-| |@77@| | || | | || | | || | | || | | || | | || | | || | | || | _| || |_ _| || |_ (___/\___) (___/\___) How to find a fibromyalgia specialist If you are not one of the lucky few whose primary doctor is knowledgeable about fibromyalgia or at least willing to work with you and learn about it, you will need to see a fibromyalgia specialist. Unfortunately, finding one is often difficult. They can be found in many different specialties. Most are rheumatologists or physiatrists (physical medicine rehabilitation specialists), but you can't assume that any given rheumatologist or physiatrist will be able to help. Some are internists, anesthesiologists, or neurologists. The best way to find a fibromyalgia specialist is to get a referral from the Fibromyalgia Network (see above) which keeps a list of recommended doctors and also go to a local fibromyalgia support group meeting and ask for recommendations. It is best to do both because the FMNet list is incomplete. Those of you out there who already have good fibromyalgia specialists please let the FMNet know. A fibromyalgia specialist will be able to perform a tender point exam (without which it is impossible to make the diagnosis), will tell you that it is not possible to cure fibromyalgia but that most patients can be helped substantially, and will appear to enjoy treating it. Nye MD (nyeda@...), Midelfort Clinic, Eau , WI -sep--------------------------------------------------------- From: Diane Andres <whistlin@...> Date: Thu, 06 Jun 1996 14:19:52 -0400 Subject: Re: Fibromyalgia Dawn, Does your mother have amalgam fillings? You should have toxic metal testing done on her. Mine was caused by mercury and tin. Got my amalgams out, had DMPS treatments (6) and poof! No more fibromyalgia. Also check for allergies, esp. food and chemicals. Diane -sep--------------------------------------------------------- From: Diane Andres <whistlin@...> Date: Thu, 06 Jun 1996 17:05:49 -0400 Subject: Re: Fibromyalgia Dawn, DMPS is a chemical imported from Russia that pulls heavy metals out of the body. I took Kombucha tea for three months before the first treatment, and the tea had pulled the mercury from the deep tissues and made it extremely easy for the DMPS to reach it and dump it. Therefore, even with toxic levels of mercury, it only took six treatments instead of 13 that they thought it would take. DMPS is administered IV. Very simple. Some say that the K-tea will remove heavy metals by itself. It was still in my system, however easier to reach. Diane -sep--------------------------------------------------------- From: Fritz Owens <fo01@...> Date: Fri, 7 Jun 1996 09:27:26 -0500 (CDT) Subject: Re: Fibromyalgia Has your mother done any investigation of Vitamin E? The main function of Vitamin E is to enable the blood to carry more oxygen. I would think this would be right down her alley. One caution: in people having problems with high blood pressure, you cannot start with large doses of Vitamin E as initially a high dose tends to elevate the blood pressure. Most people take Vitamin E for lowering of blood pressure but you have to start with very small dosages - 50 I.U.'s (International Units) a day for a week then double the dose. Continue doing that until you reach the minimum effective dose recommended by the Shute Foundation in London, Ontario, Canada. They have been treating people with severe circulatory problems with natural vitamin E for over 40 years with huge amounts of success. Be careful when you buy the vitamin. The natural vitamin E that works the most efficiently and gets the best results is the factor " d-alpha tocopherol " . If you get the vitamin E that says " dl-alpha- tocopherol " it is synthetic and does not work as well as the natural one. Also, the mixed tocopherols with gamma and beta in them do not work as well. I have not seen any evidence yet, particularly from Mike Roussin who is doing all of the research on Kombucha Tea, that the tea contains any vitamin E but I would not be surprised considering the help it has given people with high blood pressure. Hope this helps. Fritz -sep--------------------------------------------------------- From: therevvv@... (The Rev'd L. Garner, Jr.) Date: Wed, 19 Jun 1996 11:18:27 -0400 (EDT) Subject: fibromyalgia & kombucha A parishioner (and a missionary we know) have both be diagnosed with fibromyalgia (and chronic fatigue immune dysfunction syndrome). My parishioner is not a web-person had asked me to search on the web for info on both the diseases and kombucha (Manchurian) mushroom tea. Until tonight, I had only been able to find her some " stuff " on the illnesses (there's only so much time in a day!). While tonight I was able to find your site (and others) there is no mention of the tea being used with fibromyalgia and/or CFIDS. My parishioner is claiming a complete loss of symptoms and more energy than she has had in a long time. Nevertheless, she wanted to find if others were having similar experiences, before e-mailing the info to the missionary in the Philippines. Peace, Jim Garner -sep--------------------------------------------------------- From: Henry & Dawn Krans <hdkrans@...> Date: Wed, 19 Jun 1996 13:53:13 -0400 Subject: Re: fibromyalgia & kombucha This is the best news I have ever heard. I posted a letter back a couple weeks ago, regarding my Mom.. she has been battling Fibromyalgia for about 10 years. I was wondering if anyone had any experience with K-tea and Fibro...Please please pass along your info to me...I am sending a batch of K-tea to her in two weeks...maybe one.. we live far away from each other. But, if it will help her, I am willing to brew it and send it to her.. At 11:18 AM 19/06/96 -0400, you wrote: >A parishioner (and a missionary we know) have both be diagnosed <snip> >Jim Garner -sep--------------------------------------------------------- From: jf <jf2@...> Date: Wed, 19 Jun 1996 19:30:41 -0400 Subject: Jim Garner / fibromyalgia Hi Jim, and All, My sister is suffering from fibromyalgia. She does not take Kombucha. She did have breast implants though. She had them removed, and her symptoms began to clear. She is feeling infinitely better. The implants were NOT leaking or damaged, but the sacks that contain the saline are made of silicone. I have heard people with all kinds of implants, from teeth implants to chin, cheekbone to joints, even metal teeth fillings, suffer with fm symptoms. Thanks, -sep--------------------------------------------------------- From: " A.son " <angusd@...> Date: Fri, 21 Jun 1996 15:52:21 +1000 Subject: Re: fibromyalgia & kombucha Dear Jim, I have had CFS for several years and since starting Kombucha about 2.5 months ago have had similar results to the ones you have described. In particular a much greater amount of energy and more settled digestion. It is wonderful to hear such great news as yours, and I wouldn't hesitate to relay the information to your other friend, perhaps with the caveat that it does work differently for different people. Best wishes, Angus -sep--------------------------------------------------------- From: jim.bailey@... (Jim ) Date: Fri, 19 Jul 1996 04:20:00 GMT Subject: Fibromyalgia There have been posts about the above; I ran across this: --------------------- Article -------------------- WARNING! NutraSweet is A Neurotoxin The THALIDOMIDE of the 90's is ASPARTAME otherwise known as EQUAL, NUTRASWEET or SPOONFUL. In May, 1992 Flying Safety Magazine explained the dangers: In pregnancy the effects of aspartame can be passed directly on to the fetus, even in very small doses. Some people have suffered aspartame related disorders with doses as small as that carried in a single stick of chewing gum. This could mean a pilot who drinks diet sodas is more susceptible to flicker vertigo, or to flicker-induced epileptic activity. It also means that all pilots are potential victims of sudden memory loss, dizziness during instrument flight and gradual loss of vision. Some pilots have experienced grand mal seizures in the cockpits of commercial airline flights and have lost medical certification to fly, with it their careers. FDA consistently approves killer drugs as the February '94 OMNI MAGAZINE reported: If you are using aspartame and have headaches, depression, slurred speech, loss of memory, fibromyalgia type symptoms, loss of sensation in lower legs or shooting pains, loss of equilibrium, vertigo, anxiety attacks, chronic fatigue, vision loss, floaters, retinal detachment, seizures, heart palpitations, etc. you have ASPARTAME DISEASE! Many physicians are diagnosing multiple sclerosis when in reality it is methanol toxicity which mimics MS. Get off this dangerous drug right away. MS is not a death sentence, but methanol toxicity is! <Snip> Aspartame is a molecule composed of three components: aspartic acid, phenylalanine and methanol. Once ingested the methanol, wood alcohol that has killed or blinded thousands of skid row drunks, converts into formaldehyde and formic (Ant Sting Poison). Formaldehyde, a deadly neurotoxin, is common embalming fluid, a Class A Carcinogen. Phenylalanine is also neurotoxic when unaccompanied by the other amino acids in proteins. Aspartic acid causes brain lesions in neuroendocrine disorders in experimental animals. There are 92 documented symptoms including: Headaches, Numbness, Fatigue, Blurred vision, Heart palpitations, Memory loss, Dizziness, Muscle spasms, Weight gain, Irritability, Anxiety attacks, Vertigo Seizures, Rashes, Blindness, Tachycardia, Tinnitus, Joint pain, Nausea, Depression, Hearing loss, Slurred speech, Loss of taste, Insomnia... <Snip> SOME DISEASES TRIGGERED BY ASPARTAME: Brain tumors and other cancers, Multiple sclerosis, Epilepsy, FIBROMYALGIA, Graves Disease, Chronic fatigue syndrome, Epstein Barr, Parkinson's, Alzheimer's, Diabetes, Mental retardation, Lymphoma, Birth defects, Systemic Lupus, Death! <Snip> A 1987 abstract submitted by Dr. H. J. (world expert on Aspartame and diabetic specialist) summarized 58 diabetic aspartame reactors. He says " I now advise ALL patients with diabetes and hypoglycemia to avoid Aspartame products. " The above was *severely* cut. If anyone wants the whole thing, my email is: jim.bailey@... Regards, Jim -sep--------------------------------------------------------- From Ariana's Survey of KT drinkers: Why are these people drinking Kombucha?? * 27% 'General Maintenance'. They are not ill and do not want to be. * 10% Chronic Fatigue Syndrome or Fibromyalgia * 15% M.S., Hepatitis C, HIV, Cancer * 13% Arthritis, and related conditions * 10% Digestive problems * 6% Asthma, Allergies * 8% Hypertension & High Cholesterol * 10% Skin problems, psoriasis, acne, weight loss, various non life- threatening conditions. -sep--------------------------------------------------------- Date: Fri, 6 Jun 1997 15:11:05 -0700 Bob <bobwms@...> From: asonnen@... (Aleta Sonnenberg) Subject: Fibromyalgia Dear Bob, Thank you for your timely reply. There is much good information contained in the attachment. I have a theory that addresses the root of the problem of Fibromyalgia and why KT may help it. From the reading that I have done in nutrition books, it seems that FM and CFS and MS and maybe others stem from severe stress related disfunction of the adrenal cortex. With this as the root problem, it stands to reason that KT might be helping to restore the function of it through increasing oxygen circulation, irradication of the Candida and resulting toxins, providing protien, (in which the diet has to be rich in an adrenal cortex slump) providing B vitamins and vitamin C and helping in other ways of which I am completely ignorant. I am not a scientist, but it seems that so much done in FM is just treating the symptoms rather than healing the ailment. If the ailment is indeed, reduced adrenal gland function, then could the KT thereby be healing it? Look at so many of the symptoms that KT seems to alleviate: Allergies - treatable by that annual cortizone shot. What is cortizone? A corticosteroid, C-21 H-28 O-5 , used as a replacement in adrenal insufficiency and in the treatment of various inflammatory, allergic and neoplastic diseases! Bee sting allergies - How are they treated? An epinephrine shot! Where is epinephrine produced? in the adrenal glands! Grey hair - treatable by sufficient pantothenic acid which is crucial to a fully functional adrenal gland. Does KT heal the gland and/or does it provide pantothenic acid in the B vitamins it is reputed to supply? You cannot get a non producing gland to produce more by mere stimulation, such as by the intake of coffee. Many fibromyalgia sufferers are unaffected by coffee and get no increased energy or wakefulness from it. My theory is that their adrenal glands cannot produce that effect because of adrenal exhaustion. Hans Irion, who was then the Director of the State-recognized Academy for Chemists in Braunschweig says in his " Course for Druggist Specialty Schools " (1944, Vol. 2, pg. 405): " By the intake of the drink described as Teakwass, there happens a remarkable invigoration of the body's entire glandular system. . . " If the KT heals the adrenal glands then they can produce the necessary hormones for good health and well being thereby obtaining a true increase of energy. Has any one studied if KT is an adrenocorticotrophic substance (stimulating the adrenal cortex) or does it heal it allowing fuller functioning as time progresses? Colleen says, " This Is explainable on the basis that Kombucha does not target a specific body organ but, rather, it influences the entire organism positively by effecting a stabilization of the metabolic situation and through its detoxifying effect of its glucuronic acid. This leads in many people to a heightened endogenic defense capacity against those toxic influences and environmental stresses which inundate us from many sides, resulting in the Invigoration of a damaged cellular metabolism, and the restoration and firming tip of one's well-being. " Has anyone tested Fibromyalgia patients for the level of adrenocorticotrophic hormone (ACTH)? Would we find these folks to be marginal or low in production of this? Roche said, " One of the main reasons why Kombucha seems to be efficacious against such a wide spectrum of diseases is that it does not have any specific action on particular illnesses, but rather its systemic detoxification of the whole body through glucuronic acid has an overall beneficial effect that invigorates the entire person. When all the toxins have been successfully eliminated, the body is much more able to heal itself. " Just some thoughts from an FM suffering Graphic Designer. Sincerely Aleta Sonnenberg ________________________________________________________________ Bob - bobwms@... End ----- End ----- End Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2009 Report Share Posted July 25, 2009 In a message dated 7/25/2009 12:02:05 PM Mountain Daylight Time, blu_redneck@... writes: Hi All! New here. My daughter has fibromyalgia and I was wondering if any of you here with this disease have had any results with KT to help releive the aches and pains? Thanks. I too have FMS and feel that drinking Kombucha every day makes me feel better. But this devil of a disease is different with everyone. So she should start slowly with a couple of ounces at first and increase as is tolerated. I did not, but had no problems whatsoever. I routinely drink 16 - 20 ounces per day. Even more in the hot weather. It is particularly important for those with FMS to drink lots of water also. Be sure that she continues to do so. Pam in ID **************A Good Credit Score is 700 or Above. See yours in just 2 easy steps! (http://pr.atwola.com/promoclk/100126575x1222585106x1201462830/aol?redir=http://\ www.freecreditreport.com/pm/default.aspx?sc=668072 & hmpgID=115 & bcd =JulystepsfooterNO115) Quote Link to comment Share on other sites More sharing options...
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