Guest guest Posted October 25, 1999 Report Share Posted October 25, 1999 Sharon, Why not send it to both addresses? I've also sent a letter to _Gallin@... He's the one who sent the email to beth worrying about a " problem " . And he CC the letter to michaelg@... , so maybe send him a copy as well. The more people that know we are upset the better! Robynn [Lyme-aid] NIH > From: " melillo " <mellillo1@...> > > I have 2 email addresses for NIH. Which one do I use to register disgust > over Steere being honored? > CCC@... or hm49x@... or is there another. I took these off of an > old post and they may be wrong. > Would love to join you all there, but we have a long awaited app't with the > learning disability specialist for Mike. > Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 Joyce, The NIH is the National Institute of Health (USA) http://www.nih.gov ~ Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2009 Report Share Posted July 15, 2009 One step at a time. The first step is to look at the Endocrine trial and call them to request a study letter, which is taken to your endo. Don't worry about the later steps until your endo weighs in - and take Dr. Grim's advice about being wary of the Lyme route - your symptoms may be best treated by an endo, even if they have nothing to do with PA. Bindner Web Directory (links to my sites and blogs): http://www.geocities.com/mikeybdc/index.html http://mikeybdc.blogspot.com From: Valarie <val@...>Subject: NIHhyperaldosteronism Date: Wednesday, July 15, 2009, 1:02 PM , thank you for all the information. Right now, I am going to put in on the back burner until I rule out Lyme. I honestly don't know how I'd travel to D.C. because I'm so weak. A short trip to Tulsa two weeks ago still has me under. Val Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2009 Report Share Posted July 15, 2009 I've had a full work-up at University of Colorado Endocrinology, a full heart work-up at National Jewish. I've been to Mayo Clinic and I have an endo I haven't seen in over a year. I've gotten blank stares from all of them. The exception was National Jewish which was exceptionally thorough but had no answers. Since I've been back from my mini vacation, my BP is up 25 pts, even though I raised spiro 25 mg. I went through a similar experience in April and concluded my spiro might be bad. I don't think it was. I'm hoping it settles down soon. Urinary sodium at Mayo last summer was too low to measure. I'm not eating any differently. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Bindner One step at a time. The first step is to look at the Endocrine trial and call them to request a study letter, which is taken to your endo. Don't worry about the later steps until your endo weighs in - and take Dr. Grim's advice about being wary of the Lyme route - your symptoms may be best treated by an endo, even if they have nothing to do with PA. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2009 Report Share Posted July 16, 2009 How heavily do you exercise? It's been hot and humid here, but I'm not sure what Cinci is like right now. Exercise raises Aldo and usaully Renin, although I am not sure that Renin goes up with exercise in people with PA (with or without Spiro). I would be interested in finding out about definitive research on this topic, as it affects whether I am going walking over the next few hot and humid days. I know that for me, exercise in hot weather really messes me up - I can actually feel the pressure in my head. Bindner Since I've been back from my mini vacation, my BP is up 25 pts, even though I raised spiro 25 mg. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2009 Report Share Posted July 16, 2009 I cannot even dream of going outside more than five minutes when its 90 degrees. I immediately gets sweats, shakes and weakness. I walk on the treadmill and lift light weights when I feel a bit better. Many days, just walking from one end of my house to the other causes some shakes and weakness. The sweats are on and off every day, especially beginning about 4 a.m. Ten minutes of treadmill heats me up and causes sweats for several hours after. I'm in Colorado. We don't have humidity and the heat has not been bad this year. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Bindner How heavily do you exercise? It's been hot and humid here, but I'm not sure what Cinci is like right now. Exercise raises Aldo and usaully Renin, although I am not sure that Renin goes up with exercise in people with PA (with or without Spiro). I would be interested in finding out about definitive research on this topic, as it affects whether I am going walking over the next few hot and humid days. I know that for me, exercise in hot weather really messes me up - I can actually feel the pressure in my head. Bindner --- On Thu, 7/16/09, Valarie <val@...> wrote: From: Valarie <val@...> Actually, there is and I hadn't thought about it. At the picnic, in 104 degree weather, I ate one slice of bread with a little barbequed pork on it, and a tad of side dishes. I ate just a tiny bit of several things. What else does one eat at a picnic in Tulsa, OK? That's when I got so faint in the heat and have had a hard time recovering. How long should it take to recover from a hit of salt like that? Other times when we go out, I just eat a tiny bit of things and it has not bothered me. 'course, I'm not in the heat then. I've been taking K pills the last two days and they seem to be helping. I'm back to peeing all night and not sleeping. Val From: hyperaldosteronism [mailto:hyperaldost eronism@gro ups.com] On Behalf Of Clarence Grim Any salt loads on the vacation? _,_._,___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2009 Report Share Posted July 16, 2009 Does exercise, per se, increase aldosterone in the blood directly or does it rise in response to loss of water / salt. Does it spontaneously return to normal after exercise or only when any losses are made good? I've always felt that exercise lowers my BP, post exercise although I've not tried to take readings at the side of the road during excercise. Is there any official advice regarding choice or duration of exercise or conversely activities to avoid with HA? > > > Since I've been back from my mini vacation, my BP is up 25 pts, even though I raised spiro 25 mg. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2009 Report Share Posted July 16, 2009 Don't know if it was a "salt hit" but worth considering. Should be over in a few days I would think. Clarence E. Grim, BS, MS, MD Specializing in Difficult High Blood Pressure and recent evolutionary forces on high blood pressure in population's today. On Thursday, July 16, 2009, at 08:58AM, "Valarie " <val@...> wrote: > Actually, there is and I hadn't thought about it. At the picnic, in 104 degree weather, I ate one slice of bread with a little barbequed pork on it, and a tad of side dishes. I ate just a tiny bit of several things. What else does one eat at a picnic in Tulsa, OK? That's when I got so faint in the heat and have had a hard time recovering. How long should it take to recover from a hit of salt like that? Other times when we go out, I just eat a tiny bit of things and it has not bothered me. 'course, I'm not in the heat then. I've been taking K pills the last two days and they seem to be helping. I'm back to peeing all night and not sleeping. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim Any salt loads on the vacation? They can sneak in and in some will increase BP the next day. CE Grim MD On Jul 15, 2009, at 1:02 PM, Valarie wrote: Since I've been back from my mini vacation, my BP is up 25 pts, even though I raised spiro 25 mg. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2009 Report Share Posted July 16, 2009 Don't know if it was a "salt hit" but worth considering. Should be over in a few days I would think. Clarence E. Grim, BS, MS, MD Specializing in Difficult High Blood Pressure and recent evolutionary forces on high blood pressure in population's today. On Thursday, July 16, 2009, at 08:58AM, "Valarie " <val@...> wrote: > Actually, there is and I hadn't thought about it. At the picnic, in 104 degree weather, I ate one slice of bread with a little barbequed pork on it, and a tad of side dishes. I ate just a tiny bit of several things. What else does one eat at a picnic in Tulsa, OK? That's when I got so faint in the heat and have had a hard time recovering. How long should it take to recover from a hit of salt like that? Other times when we go out, I just eat a tiny bit of things and it has not bothered me. 'course, I'm not in the heat then. I've been taking K pills the last two days and they seem to be helping. I'm back to peeing all night and not sleeping. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim Any salt loads on the vacation? They can sneak in and in some will increase BP the next day. CE Grim MD On Jul 15, 2009, at 1:02 PM, Valarie wrote: Since I've been back from my mini vacation, my BP is up 25 pts, even though I raised spiro 25 mg. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2009 Report Share Posted July 16, 2009 Not well studied but renin goes up and then aldo. Transient and back to normal. Some is related to sodium loss in sweat but just exexercise will to it. Prob not clinically imporatant IMHO. Unless working hard in the heat for at least a day or longer without air. Clarence E. Grim, BS, MS, MD Specializing in Difficult High Blood Pressure and recent evolutionary forces on high blood pressure in population's today. On Thursday, July 16, 2009, at 12:06PM, " alexanderspencer@... " <amsc05@...> wrote: > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2009 Report Share Posted July 16, 2009 Not well studied but renin goes up and then aldo. Transient and back to normal. Some is related to sodium loss in sweat but just exercise will to it. Prob not clinically important IMHO. Unless working hard in the heat for at least a day or longer without air. Clarence E. Grim, BS, MS, MD Specializing in Difficult High Blood Pressure and recent evolutionary forces on high blood pressure in population's today. On Thursday, July 16, 2009, at 12:06PM, "alexanderspencer@..." <amsc05@...> wrote: > Does exercise, per se, increase aldosterone in the blood directly or does it rise in response to loss of water / salt. Does it spontaneously return to normal after exercise or only when any losses are made good? I've always felt that exercise lowers my BP, post exercise although I've not tried to take readings at the side of the road during excercise. Is there any official advice regarding choice or duration of exercise or conversely activities to avoid with HA? > > > Since I've been back from my mini vacation, my BP is up 25 pts, even though I raised spiro 25 mg. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2009 Report Share Posted July 16, 2009 I know as a general case Renin goes up for normals, but considering that it is suppressed in PA patients, it is a valid question as to whether it does go up with exercise in extreme heat or in humidity for this population. If it does not, that could make exertion a problem, even for brief periods. Bindner > Does exercise, per se, increase aldosterone in the blood directly or does it rise in response to loss of water / salt. Does it spontaneously return to normal after exercise or only when any losses are made good?I've always felt that exercise lowers my BP, post exercise although I've not tried to take readings at the side of the road during excercise. Is there any official advice regarding choice or duration of exercise or conversely activities to avoid with HA?> > > Since I've been back from my mini vacation, my BP is up 25 pts, even though I raised spiro 25 mg. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2009 Report Share Posted July 17, 2009 Your mesage in my browser is buried beneath the Recent activiy column. Whas UP?On Jul 16, 2009, at 12:29 PM, Bindner wrote: I know as a general case Renin goes up for normals, but considering that it is suppressed in PA patients, it is a valid question as to whether it does go up with exercise in extreme heat or in humidity for this population. If it does not, that could make exertion a problem, even for brief periods. Bindner > Does exercise, per se, increase aldosterone in the blood directly or does it rise in response to loss of water / salt. Does it spontaneously return to normal after exercise or only when any losses are made good?I've always felt that exercise lowers my BP, post exercise although I've not tried to take readings at the side of the road during excercise. Is there any official advice regarding choice or duration of exercise or conversely activities to avoid with HA?> > > Since I've been back from my mini vacation, my BP is up 25 pts, even though I raised spiro 25 mg. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2009 Report Share Posted July 17, 2009 can you see it now? Bindner Web Directory (links to my sites and blogs): http://www.geocities.com/mikeybdc/index.html http://mikeybdc.blogspot.com > Does exercise, per se, increase aldosterone in the blood directly or does it rise in response to loss of water / salt. Does it spontaneously return to normal after exercise or only when any losses are made good?I've always felt that exercise lowers my BP, post exercise although I've not tried to take readings at the side of the road during excercise. Is there any official advice regarding choice or duration of exercise or conversely activities to avoid with HA?> > > Since I've been back from my mini vacation, my BP is up 25 pts, even though I raised spiro 25 mg. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2009 Report Share Posted July 17, 2009 Yes but the current line can you see it now does not go acorss to the RECENT ACTIVITY columnCE Grim MDOn Jul 17, 2009, at 9:56 PM, Bindner wrote: can you see it now? Bindner Web Directory (links to my sites and blogs): http://www.geocities.com/mikeybdc/index.html http://mikeybdc.blogspot.com > Does exercise, per se, increase aldosterone in the blood directly or does it rise in response to loss of water / salt. Does it spontaneously return to normal after exercise or only when any losses are made good?I've always felt that exercise lowers my BP, post exercise although I've not tried to take readings at the side of the road during excercise. Is there any official advice regarding choice or duration of exercise or conversely activities to avoid with HA?> > > Since I've been back from my mini vacation, my BP is up 25 pts, even though I raised spiro 25 mg. > Quote Link to comment Share on other sites More sharing options...
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