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Hi Dawn, its from the GM course!

We get Direct Payments for Joe, 6 hrs per week but our County's

hourly rate is high,(£10.42 ph), so we actually get more hours,

because we pay our playworker less than this.

Some advice I had from another son rise mum was to find out what

they are prepared to offer you, including overnight respite,

playschemes, respite carers etc, add up all the hours then insist

that it is given as direct payments.

You can apparently have a separate assessment for you and for your

child. We got 1 hr a week for me, 5 hrs a week for Joe, principally

because he couldnt cope with coming with me to take his little

brother to school.

Initially we were offered 3 hrs babysitting a fortnight, I objected

and met with the SS supervisor. She tried to say our home programme

was stopping us from spending quality time with Joes brother. I

explained it is Joes autism that stopped us doing normal family

activities. I took someone with me from a charity called Peoples

Voice, for moral support, and to take over the talking if I started

crying! She didnt have to do that but it helped to have someone else

there.

I know someone in Sutton Coldfield who gets direct payments, they

are on this list so hopefully can pass on some tips!

Good luck

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Sorry to sound daft, but what is direct payments and what is it paid for?

Gillian

On 14/11/06 21:21, " ash_bz " <smotors@...> wrote:

Hi Dawn, we're also in Birmingham and these guys are the worse for

paying DPs. We battled for 4-5 months and finally got a £1000 cheque

and they closed our case. I think it is time for another battle(if

they want one that is). Have reopened the case recently and will be

asking for if not demanding DPs.

DPs is your legal right if you choose not to use their services. If

they say no -they are breaking the law(will try to dig out some Law

Acts relating to this issue). Tell the head of SS they are breaking

the Law if they refuse DPs.

Just found some info --'The Carers and Disabled Children Act 2000'.

Within this Act, as from April 2003, it makes it a duty on every

council to make direct payments, this includes payments to parents of

disabled children. Stand your ground and you will triumph.

Good luck

Baz

>

> Hi,

>

> Has anyone on this list had problems with applying for direct

payment from

> social services, especially where you've asked for the funds to buy

in

> your own helper/support.

>

> Having real problems at the moment, can anyone offer any advise or

tips?

>

> Dawn

>

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We are in Lancs. We got 6 hours to enable us to spend some quality time with our nt 13 year old. These hours provide for my son with asd to be taken out to wall climbing and swimming etc., He is educated at home, so we emphasised the importance of time out for us and independence and joining in other activities for him. When SW came to assess us asd son was having a particularly bad day and had a massive tantrum - SW looked very sympathetic towards us and I am sure that helped !

Jane

Re: Direct Payments

Hi Dawn, its from the GM course!We get Direct Payments for Joe, 6 hrs per week but our County's hourly rate is high,(£10.42 ph), so we actually get more hours, because we pay our playworker less than this.Some advice I had from another son rise mum was to find out what they are prepared to offer you, including overnight respite, playschemes, respite carers etc, add up all the hours then insist that it is given as direct payments.You can apparently have a separate assessment for you and for your child. We got 1 hr a week for me, 5 hrs a week for Joe, principally because he couldnt cope with coming with me to take his little brother to school.Initially we were offered 3 hrs babysitting a fortnight, I objected and met with the SS supervisor. She tried to say our home programme was stopping us from spending quality time with Joes brother. I explained it is Joes autism that stopped us doing normal family activities. I took someone with me from a charity called Peoples Voice, for moral support, and to take over the talking if I started crying! She didnt have to do that but it helped to have someone else there.I know someone in Sutton Coldfield who gets direct payments, they are on this list so hopefully can pass on some tips!Good luck

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> Hi Dawn, its from the GM course!

> We get Direct Payments for Joe, 6 hrs per week but our County's

> hourly rate is high,(£10.42 ph), so we actually get more hours,

> because we pay our playworker less than this.

> Some advice I had from another son rise mum was to find out what

> they are prepared to offer you, including overnight respite,

> playschemes, respite carers etc, add up all the hours then insist

> that it is given as direct payments.

> You can apparently have a separate assessment for you and for your

> child. We got 1 hr a week for me, 5 hrs a week for Joe, principally

> because he couldnt cope with coming with me to take his little

> brother to school.

> Initially we were offered 3 hrs babysitting a fortnight, I objected

> and met with the SS supervisor. She tried to say our home programme

> was stopping us from spending quality time with Joes brother. I

> explained it is Joes autism that stopped us doing normal family

> activities. I took someone with me from a charity called Peoples

> Voice, for moral support, and to take over the talking if I started

> crying! She didnt have to do that but it helped to have someone else

> there.

> I know someone in Sutton Coldfield who gets direct payments, they

> are on this list so hopefully can pass on some tips!

> Good luck

>

>

>

>

>

Hi ,

Hope all is going well with DTT.

SS have sent a letter saying they will be contacting me to arrange another

meeting as I complained to them. So I'm just gearing myself up ready for

battle.

See you at the conference in Bournemouth(2007) if you are going.

Dawn

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We were turned down for Direct Payments in Stockport, Great Manchester, even though my son is severely autistic, mild cerebral palsy, non verbal

still in nappies. Plan to challenge this but haven't had the energy so far, probably as I am too busy looking after my son and his two brothers!

Sally

From: Autism Treatment [mailto:Autism Treatment ] On Behalf Of dm012n1176@...Sent: Tuesday, November 14, 2006 11:01 PMAutism Treatment Subject: Re: Direct Payments

> We are okay in Lancs - Which area are you in Dawn ?>> Seems to be a different story accross the country.>>> Direct Payments>>> Hi,>> Has anyone on this list had problems with applying for direct payment> from> social services, especially where you've asked for the funds to buy in> your own helper/support.>> Having real problems at the moment, can anyone offer any advise or tips?>> Dawn>>>>We are in Birmingham, West Midlands. Our SS seems to be the tightest inthe country!!!!Dawn

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Hi Sally,

Do you know why they turned you down ?

Jane

Direct Payments>>> Hi,>> Has anyone on this list had problems with applying for direct payment> from> social services, especially where you've asked for the funds to buy in> your own helper/support.>> Having real problems at the moment, can anyone offer any advise or tips?>> Dawn>>>>We are in Birmingham, West Midlands. Our SS seems to be the tightest inthe country!!!!Dawn

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Hi Jane

They said that we were only a category 3 and that they were only giving direct payments to those who were in

category 4. \They have however given me 4 hours each school holiday week from Crossroads.

Sally

From: Autism Treatment [mailto:Autism Treatment ] On Behalf Of Jane HoganSent: Thursday, November 16, 2006 10:19 AMAutism Treatment Subject: Re: Direct Payments

Hi Sally,

Do you know why they turned you down ?

Jane

Direct Payments>>> Hi,>> Has anyone on this list had problems with applying for direct payment> from> social services, especially where you've asked for the funds to buy in> your own helper/support.>> Having real problems at the moment, can anyone offer any advise or tips?>> Dawn>>>>We are in Birmingham, West Midlands. Our SS seems to be the tightest inthe country!!!!Dawn

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can anyone fill me in on what direct payments are how to apply and what sort of things do they cover ilive in south staffs my son is five non verbal in nappiescheersJane Hogan <jane_hogan@...> wrote: Hi Sally, Do you know why they turned you down ? Jane Direct Payments>>> Hi,>> Has anyone on this list had problems with applying for direct

payment> from> social services, especially where you've asked for the funds to buy in> your own helper/support.>> Having real problems at the moment, can anyone offer any advise or tips?>> Dawn>>>>We are in Birmingham, West Midlands. Our SS seems to be the tightest inthe country!!!!Dawn

The all-new goes wherever you go - free your email address from your Internet provider.

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> can anyone fill me in on what direct payments are how to apply and what

> sort of things do they cover ilive in south staffs my son is five

> non verbal in nappies

> cheers

> Jane Hogan <jane_hogan@...> wrote: Hi Sally,

>

> Do you know why they turned you down ?

>

> Jane

>

>

> Direct Payments

>>

>>

>> Hi,

>>

>> Has anyone on this list had problems with applying for direct payment

>> from

>> social services, especially where you've asked for the funds to buy in

>> your own helper/support.

>>

>> Having real problems at the moment, can anyone offer any advise or tips?

>>

>> Dawn

>>

>>

>>

>>

> We are in Birmingham, West Midlands. Our SS seems to be the tightest in

> the country!!!!

>

> Dawn

>

>

>

>

>

>

>

>

>

>

> ---------------------------------

> The all-new goes wherever you go - free your email address

> from your Internet provider.

A parent guide to Direct payments is by the National Autistic Society, the

link is below:

http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=300 & a=11338

Dawn

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