Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Lois, it is all trial and error. For example, on one of your emails the mother used Klonopin to help get her son off of Abilify, and it worked great for her son; the ped psy. prescribed it for Karac and it made him wild! For a brief period of time Karac was given Depakote; it made him depressed and caused him to walk with his foot turned in. But I am sure it has been helpful to others. The only meds that we have found helpful are Clonidine and Xanax. I guess the Clonidine didn't help JJ; I'm so sorry, but I'm sure there is something that will help JJ; it just takes time to find it. Keep me informed; I really care. Pat K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 My son is on Depakote. I'm not sure I'm really noticing a difference in him, but then again, out of the about 15 medications we've tried, most haven't done much. Each child's body chemistry is different though, so what works for one might not work for another. Make sure they do a full lover panel on him before they start the meds and then again about 3 months later as Depakote can cause liver damage. How old is your son? Karin Depakote? Hi all, Its me again..............J has been hollering all day! the Dr. called back tonight and said he wanted to try Depakote on J for his moods and agression. Any information for me? Good/Bad? Thanks you guys. Lois Lois Noland 240-420-3692Always in search for the "cure" Lois Noland240-420-3692I don't give inI don't give upAnd I don't take no for an answerAlways looking for the "Cure" I don't give inI don't give upAnd I don't take NO for an answer. If God Brings you to it,He will Bring you though it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 You have to keep a watch on the liver while on this! From: autism [mailto:autism ] On Behalf Of lois noland Sent: Wednesday, July 13, 2005 6:47 PM AutismMeds ; autism ; MoMAMissionPossible Subject: Depakote? Hi all, Its me again..............J has been hollering all day! the Dr. called back tonight and said he wanted to try Depakote on J for his moods and agression. Any information for me? Good/Bad? Thanks you guys. Lois Lois Noland 240-420-3692 Always in search for the " cure " Lois Noland 240-420-3692 I don't give in I don't give up And I don't take no for an answer Always looking for the " Cure " I don't give in I don't give up And I don't take NO for an answer. If God Brings you to it, He will Bring you though it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Nicky's been on depakene since march 2002. Doctor put him on it because of paroxysmal activity (and we suspect he may have been having absence siezures). He was very tired the first week on it but then adjusted. The only other affect that's possibly from the depakene is a weight gain. Make sure the bloodwork you get done includes a liver/hepatic panel and valproic acid (that's the depakene/depakote) level In a message dated 7/14/2005 12:37:39 PM Eastern Daylight Time, jlois@... writes: Karin, J is 17 now. I just went to the Dr. and he gave me the script but wants me to get his blood work today before I give it to him tonight. Lois Depakote? Hi all, Its me again..............J has been hollering all day! the Dr. called back tonight and said he wanted to try Depakote on J for his moods and agression. Any information for me? Good/Bad? Thanks you guys. Lois Lois Noland 240-420-3692Always in search for the "cure" Lois Noland240-420-3692I don't give inI don't give upAnd I don't take no for an answerAlways looking for the "Cure" I don't give inI don't give upAnd I don't take NO for an answer. If God Brings you to it,He will Bring you though it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 It can cause aggression.We used it as a seizure med for and had to take her off it because of that. It may work for you though. Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 Karin, J is 17 now. I just went to the Dr. and he gave me the script but wants me to get his blood work today before I give it to him tonight. Lois Depakote? Hi all, Its me again..............J has been hollering all day! the Dr. called back tonight and said he wanted to try Depakote on J for his moods and agression. Any information for me? Good/Bad? Thanks you guys. Lois Lois Noland 240-420-3692Always in search for the "cure" Lois Noland240-420-3692I don't give inI don't give upAnd I don't take no for an answerAlways looking for the "Cure" I don't give inI don't give upAnd I don't take NO for an answer. If God Brings you to it,He will Bring you though it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 LOL sorry, I just realized I typed lover panel instead of liver panel. I'm glad you figured out what I meant. I hope it works for your son. Let us know how it's going. Karin Depakote? Hi all, Its me again..............J has been hollering all day! the Dr. called back tonight and said he wanted to try Depakote on J for his moods and agression. Any information for me? Good/Bad? Thanks you guys. Lois Lois Noland 240-420-3692Always in search for the "cure" Lois Noland240-420-3692I don't give inI don't give upAnd I don't take no for an answerAlways looking for the "Cure" I don't give inI don't give upAnd I don't take NO for an answer. If God Brings you to it,He will Bring you though it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2005 Report Share Posted July 14, 2005 , How has it helped him? Thanks! Lois Depakote? Hi all, Its me again..............J has been hollering all day! the Dr. called back tonight and said he wanted to try Depakote on J for his moods and agression. Any information for me? Good/Bad? Thanks you guys. Lois Lois Noland 240-420-3692Always in search for the "cure" Lois Noland240-420-3692I don't give inI don't give upAnd I don't take no for an answerAlways looking for the "Cure" I don't give inI don't give upAnd I don't take NO for an answer. If God Brings you to it,He will Bring you though it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2005 Report Share Posted July 16, 2005 My son tried depekote a few years ago, and again just a couple of months ago. He gets the same problem, which is that it works good for a short time then it appears to stop working. We have raised the dose, but still it does nothing. Also, it caused my son to eat like there was no tomorrow! Best of luck, , mom to Damin, 12, PDD-NOS, FG Syndrome, bipolar disorder Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2005 Report Share Posted July 17, 2005 , Is he still taking it? J seems a " little " better today......Still a lot of screaming but not " as agressive " . He has had some but not quite as much. Lois Re: Depakote? > My son tried depekote a few years ago, and again just a couple of > months ago. He gets the same problem, which is that it works good for > a short time then it appears to stop working. We have raised the > dose, but still it does nothing. Also, it caused my son to eat like > there was no tomorrow! > > Best of luck, > , mom to Damin, 12, PDD-NOS, FG Syndrome, bipolar disorder > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2005 Report Share Posted July 18, 2005 My son is currently taking 500mg of the extended release depekote. He was at 750mg but he was having awful stomach aches that could not be controlled. He seems the best he has been in a while on a cocktail of Seroquel, Lamictal, Depekote, and Trileptal and Xanax. , mom to Damin, 12, PDD-NOS, FG Syndrome, bipolar disorder > , > Is he still taking it? J seems a " little " better today......Still a lot of > screaming but not " as agressive " . He has had some but not quite as much. > Lois > Re: Depakote? > > > > My son tried depekote a few years ago, and again just a couple of > > months ago. He gets the same problem, which is that it works good for > > a short time then it appears to stop working. We have raised the > > dose, but still it does nothing. Also, it caused my son to eat like > > there was no tomorrow! > > > > Best of luck, > > , mom to Damin, 12, PDD-NOS, FG Syndrome, bipolar disorder > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2005 Report Share Posted July 18, 2005 My son is currently taking 500mg of the extended release depekote. He was at 750mg but he was having awful stomach aches that could not be controlled. He seems the best he has been in a while on a cocktail of Seroquel, Lamictal, Depekote, and Trileptal and Xanax. , mom to Damin, 12, PDD-NOS, FG Syndrome, bipolar disorder > , > Is he still taking it? J seems a " little " better today......Still a lot of > screaming but not " as agressive " . He has had some but not quite as much. > Lois > Re: Depakote? > > > > My son tried depekote a few years ago, and again just a couple of > > months ago. He gets the same problem, which is that it works good for > > a short time then it appears to stop working. We have raised the > > dose, but still it does nothing. Also, it caused my son to eat like > > there was no tomorrow! > > > > Best of luck, > > , mom to Damin, 12, PDD-NOS, FG Syndrome, bipolar disorder > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2005 Report Share Posted July 18, 2005 , I have had to put J back on the resperdal.....and the Depakote. I would reather he was on none on the meds but he has regressed badly since I took him off the alibilify. The Dr. said that by taking J off the alibilify it affected the nurons that the alibilify was helping and now we have mania real bad. We has a bad night last night......he was up until 4:30 this morning hollering out and had hit the wall in his room and cracked the wall. I gave him the resperdal this morning and for a little bit he acted more like the old J BUT right now he is going thru a phase of hollering out. He does it so long and with such intensaty that he breaks out in a sweat real bad. Then he gets some agression. I pray that he will come back to us. Lois Re: Depakote? > > > > > > > My son tried depekote a few years ago, and again just a couple of > > > months ago. He gets the same problem, which is that it works > good for > > > a short time then it appears to stop working. We have raised the > > > dose, but still it does nothing. Also, it caused my son to eat > like > > > there was no tomorrow! > > > > > > Best of luck, > > > , mom to Damin, 12, PDD-NOS, FG Syndrome, bipolar disorder > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2005 Report Share Posted July 19, 2005 , Karac is 12 and we use .25 Xanax nightly and it totally stabalizes Karac. How long have you been using it and why don't you use it daily? Pat K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2005 Report Share Posted July 19, 2005 , Karac is 12 and we use .25 Xanax nightly and it totally stabalizes Karac. How long have you been using it and why don't you use it daily? Pat K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2005 Report Share Posted July 19, 2005 My son also has his manic episodes. I don't understand it because he has tried all the newer mood stabilizers, but they just don't control him. I am beginning to think he may be treatment resistant. His thing is to slam his bedroom door. We just moved into our house a month and a half ago, and he already has cracks in the wall around his door frame! I try to look at it more understandingly (if that is a word) because he at least is not hurting himself (he was having lots of self abuse in the past.) We use a prn of xanax for when my son gets into a bad state of mind. He uses 1mg when he starts. It doesn't fix it but calms him. , mom to Damin, 12, PDD-NOS, FG Syndrome, bipolar disorder > > > , > > > Is he still taking it? J seems a " little " better today......Still > > a lot of > > > screaming but not " as agressive " . He has had some but not quite as > > much. > > > Lois > > > Re: Depakote? > > > > > > > > > > My son tried depekote a few years ago, and again just a couple of > > > > months ago. He gets the same problem, which is that it works > > good for > > > > a short time then it appears to stop working. We have raised the > > > > dose, but still it does nothing. Also, it caused my son to eat > > like > > > > there was no tomorrow! > > > > > > > > Best of luck, > > > > , mom to Damin, 12, PDD-NOS, FG Syndrome, bipolar disorder > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2005 Report Share Posted July 19, 2005 Has he always had these behaviors? Or just since you moved into a new house? Could he be reacting to chemicals or things in a new house? Just a thought. From: autism [mailto:autism ] On Behalf Of butterfli472 Sent: Tuesday, July 19, 2005 10:56 AM autism Subject: Re: Depakote? My son also has his manic episodes. I don't understand it because he has tried all the newer mood stabilizers, but they just don't control him. I am beginning to think he may be treatment resistant. His thing is to slam his bedroom door. We just moved into our house a month and a half ago, and he already has cracks in the wall around his door frame! I try to look at it more understandingly (if that is a word) because he at least is not hurting himself (he was having lots of self abuse in the past.) We use a prn of xanax for when my son gets into a bad state of mind. He uses 1mg when he starts. It doesn't fix it but calms him. , mom to Damin, 12, PDD-NOS, FG Syndrome, bipolar disorder > > > , > > > Is he still taking it? J seems a " little " better today......Still > > a lot of > > > screaming but not " as agressive " . He has had some but not quite as > > much. > > > Lois > > > Re: Depakote? > > > > > > > > > > My son tried depekote a few years ago, and again just a couple of > > > > months ago. He gets the same problem, which is that it works > > good for > > > > a short time then it appears to stop working. We have raised the > > > > dose, but still it does nothing. Also, it caused my son to eat > > like > > > > there was no tomorrow! > > > > > > > > Best of luck, > > > > , mom to Damin, 12, PDD-NOS, FG Syndrome, bipolar disorder > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2005 Report Share Posted July 19, 2005 Has he always had these behaviors? Or just since you moved into a new house? Could he be reacting to chemicals or things in a new house? Just a thought. From: autism [mailto:autism ] On Behalf Of butterfli472 Sent: Tuesday, July 19, 2005 10:56 AM autism Subject: Re: Depakote? My son also has his manic episodes. I don't understand it because he has tried all the newer mood stabilizers, but they just don't control him. I am beginning to think he may be treatment resistant. His thing is to slam his bedroom door. We just moved into our house a month and a half ago, and he already has cracks in the wall around his door frame! I try to look at it more understandingly (if that is a word) because he at least is not hurting himself (he was having lots of self abuse in the past.) We use a prn of xanax for when my son gets into a bad state of mind. He uses 1mg when he starts. It doesn't fix it but calms him. , mom to Damin, 12, PDD-NOS, FG Syndrome, bipolar disorder > > > , > > > Is he still taking it? J seems a " little " better today......Still > > a lot of > > > screaming but not " as agressive " . He has had some but not quite as > > much. > > > Lois > > > Re: Depakote? > > > > > > > > > > My son tried depekote a few years ago, and again just a couple of > > > > months ago. He gets the same problem, which is that it works > > good for > > > > a short time then it appears to stop working. We have raised the > > > > dose, but still it does nothing. Also, it caused my son to eat > > like > > > > there was no tomorrow! > > > > > > > > Best of luck, > > > > , mom to Damin, 12, PDD-NOS, FG Syndrome, bipolar disorder > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2005 Report Share Posted July 20, 2005 , that is so interesting. I wonder if the Xanax will stop working for Karac after about a year too. The doctor tried Konopin first; it didn't work for karac either. Did you have any side effects from the Xanax? So is the Xanax PRN all that your son is on? Pat K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2005 Report Share Posted July 20, 2005 We started using xanax in Nov. of 2001. (He started using it for severe anxiety and panic symptoms.) He was on .25mg twice a day until Dec. 2002, then it just didn't work anymore. We raised the dose to .5mg twice a day, but it just didn't help as much as it did before. We weaned him off it and tried ativan. It didn't work well. Tried klonopin, but that didn't work either. Seroquel finally took away the panic attacks. In March of 2004, we started using xanax again occasionally. It appears that as long as we use it occasionally and not on a daily basis, it helps. His body must just burn it up and becomes used to it. I am glad it is working well for Karac. It is wonderful that he found something that helps! -mom to Damin, 12, PDD-NOS, FG Syndrome, bipolar disorder > , Karac is 12 and we use .25 Xanax nightly and it totally stabalizes > Karac. How long have you been using it and why don't you use it daily? Pat K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 20, 2005 Report Share Posted July 20, 2005 We started using xanax in Nov. of 2001. (He started using it for severe anxiety and panic symptoms.) He was on .25mg twice a day until Dec. 2002, then it just didn't work anymore. We raised the dose to .5mg twice a day, but it just didn't help as much as it did before. We weaned him off it and tried ativan. It didn't work well. Tried klonopin, but that didn't work either. Seroquel finally took away the panic attacks. In March of 2004, we started using xanax again occasionally. It appears that as long as we use it occasionally and not on a daily basis, it helps. His body must just burn it up and becomes used to it. I am glad it is working well for Karac. It is wonderful that he found something that helps! -mom to Damin, 12, PDD-NOS, FG Syndrome, bipolar disorder > , Karac is 12 and we use .25 Xanax nightly and it totally stabalizes > Karac. How long have you been using it and why don't you use it daily? Pat K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2005 Report Share Posted July 21, 2005 Thanks, , that is so encouraging that you have had no side effects from the Xanas, because we haven't had any either and I was just waiting for the other shoe to drop. Do you get any financial assistance? I am so excited; I have just found out that I may get some financial assistance for working with my grandchild every day. I have been working with him every day for the past ten years. I wish it would be retroactive. smile. Pat K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2005 Report Share Posted July 21, 2005 No side effects at all from the xanax. I think it is the only med that he hasn't had any side effects from. Xanax is the only prn that he has, but he is on a scheduled dose of many other meds: Lamictal 150mg in am and pm, seroquel 25mg in am 300 mg in pm, depekote 500mg in pm, and trileptal 150mg in pm. So far, this mix of meds seems to help. We also tried the enzyme pills, homeopathic remedies, a holistic doctor, the gfcf diet, and probably other things that I am forgetting at the moment. I am not thrilled about all the medications, but we need something that can get him able to function. I hope the xanax keeps working for Karac, it is so frustrating when something works then just stops. -mom to Damin, PDD-NOS, FG Syndrome, bipolar disorder > , that is so interesting. I wonder if the Xanax will stop working for > Karac after about a year too. The doctor tried Konopin first; it didn't work > for karac either. Did you have any side effects from the Xanax? So is the Xanax > PRN all that your son is on? Pat K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2005 Report Share Posted July 25, 2005 Unfortunately, he has always had these behaviors. They have just gotten worse in the past 8 months or so. I think he is starting to go thru puberty, which could be why he is getting worse. , mom to Damin, 12, PDD-NOS, FG Syndrome, bipolar disorder > > > > , > > > > Is he still taking it? J seems a " little " better > today......Still > > > a lot of > > > > screaming but not " as agressive " . He has had some but not > quite as > > > much. > > > > Lois > > > > Re: Depakote? > > > > > > > > > > > > > My son tried depekote a few years ago, and again just a > couple of > > > > > months ago. He gets the same problem, which is that it works > > > good for > > > > > a short time then it appears to stop working. We have > raised the > > > > > dose, but still it does nothing. Also, it caused my son to > eat > > > like > > > > > there was no tomorrow! > > > > > > > > > > Best of luck, > > > > > , mom to Damin, 12, PDD-NOS, FG Syndrome, bipolar > disorder > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2005 Report Share Posted July 25, 2005 Unfortunately, he has always had these behaviors. They have just gotten worse in the past 8 months or so. I think he is starting to go thru puberty, which could be why he is getting worse. , mom to Damin, 12, PDD-NOS, FG Syndrome, bipolar disorder > > > > , > > > > Is he still taking it? J seems a " little " better > today......Still > > > a lot of > > > > screaming but not " as agressive " . He has had some but not > quite as > > > much. > > > > Lois > > > > Re: Depakote? > > > > > > > > > > > > > My son tried depekote a few years ago, and again just a > couple of > > > > > months ago. He gets the same problem, which is that it works > > > good for > > > > > a short time then it appears to stop working. We have > raised the > > > > > dose, but still it does nothing. Also, it caused my son to > eat > > > like > > > > > there was no tomorrow! > > > > > > > > > > Best of luck, > > > > > , mom to Damin, 12, PDD-NOS, FG Syndrome, bipolar > disorder > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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