dr's visit

[Guest guest]

Hi, Everyone.........I have to say we made out very well in Chicago today!!!

The specialist doesn't think Gareth has Celiac Disease.......he's growing too

well and his X-rays from Jan's Upper GI series show a very normal looking

small intestine. Even though the blood work was very positive for the one

antibody (IGG), she said it's the IGA that we need to be concerned about.

She took blood for a more specific test and expects it to be negative. She

is VERY concerned about the GERD, though. She feels that he did not have

this all his life and that it started last Fall when Gareth first told us.

She said that sometimes after a severe bout of flu bug, the esoph. gets so

inflamed from vomiting, etc, that it can't repair itself without medication.

Once the damage is done initially, it keeps reoccurring......the reflux.

Anyways, she has changed his GERD medication and wants to see him in a month.

If he's not better then, she will have to do the Esoph. bx.

ALSO........I was very surprised to hear her say that there is NO

correlation between the Autism and CD. Contrary to what is being said on a

lot of papers, she said there is still NO proof that the 2 are connected.

She has no patients with CeliacDisease who are Autistic. I found that very

interesting. Gotta go. Take care, Everyone.

Margaret

[Guest guest]

At 04:26 PM 4/2/01 EDT, you wrote:

> ALSO........I was very surprised to hear her say that there is NO

>correlation between the Autism and CD. Contrary to what is being said on a

>lot of papers, she said there is still NO proof that the 2 are connected.

Yes, this is what I believe. HOWEVER, there is no harm in following a

gluten-free diet, and if parents see a change, isn't that what matters?

The trick with science is that you can't go by just one study *and* you

have to be really good at determining whether the study is good (biased or

whatever). So as a general rule of thumb, it takes a number of years before

there's a body of research that will weigh more on one side of a hypothesis

than another.

Oat bran....remember that? Tons of good studies that said it was helpful.

ONE study, that wasn't so good, but got a LOT of good press came out saying

it was not and Voila! Oat bran is passe' with the public. It's really an

odd thing to watch.

I don't recommend gluten free diets to anyone who does not have at *least*

a positive Anti Endomysium blood test. But fi a parent is willing to put in

the effort and money for gluten free/cassein free or just gluten free, I'm

not going to stop them. And if they say they are seeing good results, *I*

am not going to challenge it! AFterall, the goal is a better quality life.

j

[Guest guest]

And HOOOORAY that Gareth didn't have to go through too much this time!

Sounds like your GI has a handle on what might be wrong. I hope the meds

work for him.

It's awful to be in pain all the time.

hugs to Gareth....and Mom!

j

[Guest guest]

In a message dated 4/2/01 4:30:05 PM Eastern Daylight Time, mfroof@...

writes:

<< Hi, Everyone.........I have to say we made out very well in Chicago

today!!!

The specialist doesn't think Gareth has Celiac Disease.......he's growing

too

well and his X-rays from Jan's Upper GI series show a very normal looking

small intestine. >>

That's great news Margaret! What do they do to repair the damage? Will just

the meds do it? Here's praying and hoping that Gareth is feeling better real

soon. How was he for the trip and at the docs?

Gail

[Guest guest]

In a message dated 4/2/01 4:30:02 PM Eastern Daylight Time, mfroof@...

writes:

<< Once the damage is done initially, it keeps reoccurring......the reflux.

Anyways, she has changed his GERD medication and wants to see him in a

month. >>

Margaret,

What meds did she change to? I too, was so relieved when we found a med

that worked for Maddie. I know that the surgery has worked for so many

people, but I just don't want to do that if I don't have to. I'm so glad;

it sounds like Gareth will be getting relief; and I know that means Mom will

too.

Donna

[Guest guest]

Hello allI had a visit with my specialist last week. (I am a Conn's sufferer - with primary hyperaldosteronism from bilateral adrenal hyperplasia - diagnosed 2 years ago.) He was quite pleased, and I don't have to return for a year.On 100mg spiro each day - results:Bloods - all within the normal rangeSodium, potassium, etc - all normalBlood pressure 126/78Weight (a girl doesn't tell, but) down 14,6 kg since my last visit 3 months ago (that's just over 32 pounds in American ;-)Just want to say thanks to all - and Dr Grim for the information on DASHING and the encouragement to get

out there and exercise and get moving.I was the biggest doubter about the dash diet, and as I was

in excruciating pain, I could hardly go walking to help lose weight and boost energy if I couldn't stand up - could I? I really had everyone to blame, but refused to look at my own behaviour. This group helped me realise that I could do something to make things better - and it did it so subtly, that I can't thank one - but instead will thank all for their posts. I walk about 1-2 hours 3-5 times a week. I'm dashing without thinking about calories, because I love food! I occasionally even blow it by eating something gross like fish and chips - smothered in grease and salt (Sorry Dr Grim)Cheers Sue

Need mail bonding? Bring all your contacts to Xtra with TrueSwitch

[Guest guest]

Thanks for the follow up. We are collecting DASH stories in our files. Would love to have yours. Indeed tha abstract deadline for abstracts is dec 7 and I want to put in one stressing the use of DASH IN PA.IF anyone is interested in being a coauthor and can set up a questionaire all could coPlete we would have another pAper. a can tell how to do it. Indeed a can u see how many more have completed the data base u set up and put out a call for those who have not done it to do so and I will submit an absatact that updAtes our pLast one. If the numbers hAve say doubled. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Nov 14, 2009, at 10:59 AM, marysue hopper <marysuehopper@...> wrote:

Hello allI had a visit with my specialist last week. (I am a Conn's sufferer - with primary hyperaldosteronism from bilateral adrenal hyperplasia - diagnosed 2 years ago.) He was quite pleased, and I don't have to return for a year.On 100mg spiro each day - results:Bloods - all within the normal rangeSodium, potassium, etc - all normalBlood pressure 126/78Weight (a girl doesn't tell, but) down 14,6 kg since my last visit 3 months ago (that's just over 32 pounds in American ;-)Just want to say thanks to all - and Dr Grim for the information on DASHING and the encouragement to get

out there and exercise and get moving.I was the biggest doubter about the dash diet, and as I was

in excruciating pain, I could hardly go walking to help lose weight and boost energy if I couldn't stand up - could I? I really had everyone to blame, but refused to look at my own behaviour. This group helped me realise that I could do something to make things better - and it did it so subtly, that I can't thank one - but instead will thank all for their posts. I walk about 1-2 hours 3-5 times a week. I'm dashing without thinking about calories, because I love food! I occasionally even blow it by eating something gross like fish and chips - smothered in grease and salt (Sorry Dr Grim)Cheers Sue

Need mail bonding? Bring all your contacts to Xtra with TrueSwitch

[Guest guest]

Have u updated Sue's story?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Nov 14, 2009, at 10:59 AM, marysue hopper <marysuehopper@...> wrote:

Hello allI had a visit with my specialist last week. (I am a Conn's sufferer - with primary hyperaldosteronism from bilateral adrenal hyperplasia - diagnosed 2 years ago.) He was quite pleased, and I don't have to return for a year.On 100mg spiro each day - results:Bloods - all within the normal rangeSodium, potassium, etc - all normalBlood pressure 126/78Weight (a girl doesn't tell, but) down 14,6 kg since my last visit 3 months ago (that's just over 32 pounds in American ;-)Just want to say thanks to all - and Dr Grim for the information on DASHING and the encouragement to get

out there and exercise and get moving.I was the biggest doubter about the dash diet, and as I was

in excruciating pain, I could hardly go walking to help lose weight and boost energy if I couldn't stand up - could I? I really had everyone to blame, but refused to look at my own behaviour. This group helped me realise that I could do something to make things better - and it did it so subtly, that I can't thank one - but instead will thank all for their posts. I walk about 1-2 hours 3-5 times a week. I'm dashing without thinking about calories, because I love food! I occasionally even blow it by eating something gross like fish and chips - smothered in grease and salt (Sorry Dr Grim)Cheers Sue

Need mail bonding? Bring all your contacts to Xtra with TrueSwitch

[Guest guest]

Sorry - I haven't updated, but will today. I'm a locum and travel extensively making it hard to keep up with the forum. SueFrom: Clarence Grim <lowerbp2@...>"hyperaldosteronism " <hyperaldosteronism >Sent: Sun, 15 November, 2009 8:12:34 AMSubject: Re:

dr's visit

Have u updated Sue's story?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Nov 14, 2009, at 10:59 AM, marysue hopper <marysuehopper@ .co. nz> wrote:

Hello allI had a visit with my specialist last week. (I am a Conn's sufferer - with primary hyperaldosteronism from bilateral adrenal hyperplasia - diagnosed 2 years ago.) He was quite pleased, and I don't have to return for a year.On 100mg spiro each day - results:Bloods - all within the normal rangeSodium, potassium, etc - all normalBlood pressure 126/78Weight (a girl doesn't tell, but) down 14,6 kg since my last visit 3 months ago (that's just over 32 pounds in American ;-)Just want to say thanks to all - and Dr Grim for the information on DASHING and the encouragement to get

out there and exercise and get moving.I was the biggest doubter about the dash diet, and as I was

in excruciating pain, I could hardly go walking to help lose weight and boost energy if I couldn't stand up - could I? I really had everyone to blame, but refused to look at my own behaviour. This group helped me realise that I could do something to make things better - and it did it so subtly, that I can't thank one - but instead will thank all for their posts. I walk about 1-2 hours 3-5 times a week. I'm dashing without thinking about calories, because I love food! I occasionally even blow it by eating something gross like fish and chips - smothered in grease and salt (Sorry Dr Grim)Cheers Sue

Need mail bonding? Bring all your contacts to Xtra with TrueSwitch

Reading this email at work? Make a change with Xtra Jobs

[Guest guest]

Most hotels have free internet unless you are in the expensive ones.No hurry. Time to get a Mac Computer to make it simple?Or an iPhone which also does email?On Nov 18, 2009, at 12:02 PM, marysue hopper wrote:Sorry - I haven't updated, but will today. I'm a locum and travel extensively making it hard to keep up with the forum. SueFrom: Clarence Grim <lowerbp2mac>"hyperaldosteronism " <hyperaldosteronism >Sent: Sun, 15 November, 2009 8:12:34 AMSubject: Re: dr's visit Have u updated Sue's story?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Nov 14, 2009, at 10:59 AM, marysue hopper <marysuehopper@ .co. nz> wrote: Hello allI had a visit with my specialist last week. (I am a Conn's sufferer - with primary hyperaldosteronism from bilateral adrenal hyperplasia - diagnosed 2 years ago.) He was quite pleased, and I don't have to return for a year.On 100mg spiro each day - results:Bloods - all within the normal rangeSodium, potassium, etc - all normalBlood pressure 126/78Weight (a girl doesn't tell, but) down 14,6 kg since my last visit 3 months ago (that's just over 32 pounds in American ;-)Just want to say thanks to all - and Dr Grim for the information on DASHING and the encouragement to get out there and exercise and get moving.I was the biggest doubter about the dash diet, and as I was in excruciating pain, I could hardly go walking to help lose weight and boost energy if I couldn't stand up - could I? I really had everyone to blame, but refused to look at my own behaviour. This group helped me realise that I could do something to make things better - and it did it so subtly, that I can't thank one - but instead will thank all for their posts. I walk about 1-2 hours 3-5 times a week. I'm dashing without thinking about calories, because I love food! I occasionally even blow it by eating something gross like fish and chips - smothered in grease and salt (Sorry Dr Grim)Cheers SueNeed mail bonding? Bring all your contacts to Xtra with TrueSwitchReading this email at work? Make a change with Xtra Jobs