Guest guest Posted March 1, 2005 Report Share Posted March 1, 2005 Hi,sounds like your daughter in-law needs some major information on meds and autism.liz , C.P.M. pwatson@u... Senior Buyer UTD University of TX @ Dallas It was most likely my Fact sheet for new parents, see below. From all the parents and studies I and the other old timers in the Autism community have found that most if not all kids with Autism have biological imbalances that can be greatly improved by the DAN doctor kind of interventions. Treat the leaky Gut, Gluten free diets, Amino Acids, Fish oil, Acidophilus, Sensory Integration, Auditory Training, Remove the Heavy metals, increase the natural vitamins. Then you do the ABA, Structured Learning, and other teaching methods. After all of these are tried first, then and only then, should the parent start using the Prescription Drugs like SSRI's and Psychotic Drugs like Resperdal. All prescription drugs are dangerous, that's why they are not over the counter. Parents and Doctors are so trained by the Western Medicine to jump to the magic pill first. Americans want a quick fix for everything, our minds are trained by TV to find the criminal and solve the problem in a one hour episode. We are all working 2 jobs and dealing with the stress of layoffs, down sizing, soccer games, and the modern crazy lifestyle and then we get hit with a child with Autism. We are tired and bewildered and just want to fix the problem of Autism. There is no right or wrong answer, you have to find what you're able to work and live with and stay alive, married and employed. For some kids the prescription drugs are a responsible answer. However, be warned, any mainstream doctor of any profession will immediately pull out the PDR Physicians Drug Reference and start writing prescriptions and before long your kids on 5 drugs. This is all they are trained to do, prescriptions and surgery. Western medicine gave up all our common sense remedies of using natural plants and herbs that had been discovered and passed down for thousands of years in the early 1900's with the advent of big hospitals and drug companies. Understand, the most probable reason your kid has Autism is from a trigger reaction from one or more of the 30 vaccines of foreign un-natural, modified versions of all of the worst plagues in the world. We hit your kid with the all the worst know plagues before they mature and have a chance to have a proper immune system. It is this kind of modern medicine thinking that you want to avoid. Given the fact that the Modern Medicine is what caused your kids Autism, how can you expect that same flawed logic to then solve your kids Autism? ______________________________________________________________________ __ _______________________________ 06-24-03 So, your kid has Autism? This is a fact sheet for parents or friends who just found out they have a child or know of a child or adult with Autism or Autism-like issues. I have a 16 year old daughter with Autism. These are a few items I have learned from my journey, other parents, professionals and the Internet: 1. For discussions on Autism get on the Saint s Autism news list. Send an email with text of " Subscribe autism " to listserv@m... For daily updates on the latest autism news and research sent to you by email, subscribe to the Schafer Autism Report, no cost: http://home.sprynet.com/~schafer/ Or mailto:subs@d... 2. Sign up for free evaluation and services, age 0-21, from your local school district and state special education department and early childhood intervention: http://www.tea.state.tx.us/special.ed http://www.health.state.ny.us/nysdoh/child/index.htm 3. Consider getting extra evaluation and services from Easter Seals, Speech and OT http://www.easter-seals.org/site/PageServer they charge on a sliding scale based on income. The state has to provide appropriate but not " all " or the " best " services. 4. Learn the law and your child's rights http://www.edlaw.net www.reedmartin.com http://www.advocacyinc.org/handoutEducation.htm http://www.wrightslaw.com 5. Read everything you can and find out what works and does not work from others who have done it: http://www.autism-society.org http://www.feat.org http://autism.com/ari/ http://osiris.sunderland.ac.uk/autism http://www.futurehorizons-autism.com http://www.autism.org/links.html http://www.aspergersdigest.com http://www.tonyattwood.com http://www.coping.org/copingbook/normaliz.htm " Tools for Parents of Children with Special Needs " 6. Do only one new treatment, supplement or drug, at a time and keep records on what is causing changes. Then, be sure to give each approach plenty of time, several weeks, to work before passing judgment. It's OK to try things when you are sure they do no harm to your child and family physically, financially or emotionally. It's also OK to change your mind about programs, treatments or theories. It looks like most things only help a percentage of the individuals with Autism. http://www.gnd.org/autism/overview.htm http://osiris.sunderland.ac.uk/autism/durham2.htm 7. Join a local Autism group in your area, talk to and meet local parents and professionals. http://www.autism.org/links.html , Find or start a local Autism email discussion list http:// autism-awareness-action , Autism Treatment/ 8. Watch out for magic cure-alls and snake oil salesmen, http://autism.com/ari/ 9. Take the best from all the various Autism groups and form the best program for your kid. There is a lot of passionate debate and criticism between camps of treatments and organizations. 10. Watch out for the " Warrior Parent " syndrome where you go against the school district and professionals as a parent to war. Work on win-win collaborative, team building with all people who interface with your kid, they will be the best allies. http://www.icsi.net/~stlevine/fault.html Volunteer with the PTA, help out at school, church, volunteer with MHMR as a parent educator, where ever you can. Once they get to know you the return in favors and help for you child will be more than you put in. 11. Do not spend all your time and effort on the kid with Autism at the expense of your marriage, family and friends. The best treatment for your kid is a happy, healthy, and loving family to support them. Your Husband, Wife, other Kids and YOU need love and support as well. 12. There is not a doctor you can go to who will manage " all " your kid's issues. You, will have to become your kids expert and case manager. Many of the treatments are non-standard and based on trial and error not double blind published peer reviewed scientific studies. Some doctors scoff at some of the diets and treatments that work because it's often contrary to conventional medical wisdom. Sometimes you, the non-doctor parent, will have to educate the experienced degreed professional. Strongly consider taking the time to locate and work with physicians who are experienced with your child's specific neurological disorder and who also network with other doctors in this field. http://www.autism.com/ari/ see the: DAN! Physician Referral List a base of physicians who wish to employ rational, scientifically sound approaches to the diagnosis and treatment of autism. 13. There is active research on a suggested link between vaccines (MMR and others) and Autism: http://www.house.gov/burton/autism.htm http://osiris.sunderland.ac.uk/autism/vaccine.htm , http://www.909shot.com/Default.htm http://vaccineinfo.net http://www.freewebz.com/schafer/URL/g.htm If you suspect your child's regressive autism is related to an adverse reaction to a vaccine, beware of the 3 yr statute of limitations under the National Vaccine Compensation Program (NVICP). To learn about your rights, contact the Law Offices of Z. Sell, P.C. http://www.JZSLAW.com Jeff Sell is the father of 9 year-old autistic twins, the 1st V-P of ASA and ASA's Government Relations Committee Chairman. 14. There are 4 main categories of treatments for Autism: BIOLOGICAL: with digestive enzymes, vitamins, diet, nutritional and herbal supplements, http://www.kirkmanlabs.com http://www.houstonni.com/ http://www.aal.xohost.com/urinary.htm Vitamin A http://www.autism.com/ari/, Look at gluten and casein free diets http://www.gfcfdiet.com acidophilus, super vitamins, herbal immune boosters, DMG, Epsom salt baths, melatonin, Monolaurin, probiotics like Culturelle and Primal Defense, Essential Fatty Acids, http://www.puritanspride.com http://www.vitaminshoppe.com THERAPIES: such as auditory training http://www.up-to-date.com/saitwebsite/table.html sensory integration http://home.earthlink.net/~sensoryint http://www.sensoryintegration.com , speech therapy http://www.asha.org/ , occupational therapy http://www.aota.org/, regular daily physical exercise http://www.palaestra.com/autism.html , music therapy http://www.musictherapy.orgAVB-Applied Verbal Behavior- http://www.behavioranalysts.com FloorTime http://www.mindspring.com/~dgn/playther.htm Neurofeedback http://www.adhd-biofeedback.com/ EDUCATIONAL PROGRAMS: ABA http://www.feat.org , TEACCH http://www.teacch.com/teacch.htm , social stories http://www.udel.edu/bkirby/asperger/socialcarolgray.html , sign language, picture systems, augmentative communication devices. Treatment programs http://www.nacd.org http://www.son-rise.org DRUGS: Prozac, Zoloft, Tenex, Buspirone, Depakote, Resperdal, Secretin, Cloradine, anti-virals (Valtrex, Famvir) anti-fungals (Nizoral, Diflucan), Chelation, TTFD, Methylcobalamin, B12 shots, steroids, anti-inflammatory drugs, IVIG. http://curry.edschool.virginia.edu/go/cise/ose/information/secretin.ht ml http://www.netrover.com/~southgve/druguse1.htm http://www.rxlist.com http://www.medscape.com http://www.ncbi.nlm.nih.gov/pubmed <http://www.ncbi.nlm.nih.gov/pubmed> Our kids respond to far less amounts of these drugs than are used on the " normal population " . Autism is a neurological disorder affecting the senses and is not a mental illness. We have met 40 year old adults who spent years on mental ward treatments and heavy drugs only to find out they were not crazy just a little weird because of Autism. Most people do well with non drug approaches to reduce the over stimulation they receive from their senses being on full blast all the time. And finally, understand, your kid will improve and grow over time. You will go through the grieving process for the loss of the child you had dreamed of raising. Raising a child with Autism can be a very different path than you had planned. It is OK to feel grief, guilt, depression, joy, anger, frustration and job burn out. You cannot avoid it, understand and work through it. We are all here to help, laugh, cry and rejoice with you. Its not an easy job, some think God picked us because we had the special talents these kids need. For me, Lora, my daughter, is the best thing that ever happened. She has made me more caring, considerate and passionate about life. I still remember the day I came home from work when Lora was about 6 and she looked up and said " hello daddy " , her first sentence. Regards, -------------------------------------------------------------------- C.P.M., pwatson@u... Senior Buyer UTD Past President of ASCC Autism Society of Collin County Texas ASCC http://www.autism-ascc.org Home page http://www.geocities.com/pwatsonascc -------------------------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
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