RE: Re getting better .....

[Guest guest]

Deborah great progress, wow.

Are you using DMPS?

When did he first get language of any kind?

TIA

Vicky

[Guest guest]

>Deborah

What a lovely inspirational story!! How wonderful to see such

developments! We have done about 6mths DMPS.

We had some lovely NT behaviours yesterday with the Scary Sounds

Machine - battery operated gadget that does Haunted House - creaking

door, howling woolf, scarey laugh. kept on wanting to press the

button but at same time couldn't run away fast enough - he was just

enjoying scaring himself! . He had some fantastic terrified

expressions which would have been really good for our ABA expressive

emotions in vivo programme! This really is progress for someone who

has always been sound sensitive and can hear an ambulance siren from

miles away.

Also came out with 'I'm going to eat sausages later' when in the

middle of his peas, rice and sausage dinner, meaning 'I'm saving this

piece of sausage to the very end' He proceeded to eat up every scrap

of rice and peas so he could then savour his last piece of sausage -

no way was he going to share it with Mummy!

Rhona

> Hi all

> ( especially Mandi & Sharon - hi girls!!!!!!!!)

> just a quick update on Charlie as I am so pleased..

> Charlie was sooooooo sick just after christmas and I had to stop

chelating.

> Could have done the drops but he couldn't keep any food or his vits

and mins

> down and it was just all too much for him. Then I got flu and the

gap extended

> so he missed chelation for about six weeks.

> During that time he just got calmer and more together. He started

trying

> really hard to construct sentences to really explain what he meant -

sometimes

> rolling his eyes back with sheer concentration at trying to get it

all just

> right. We started chelation again about two weeks ago ( slowly) and

he was very

> emotional and cranky but that is begining to reduce and i am seeing

such a

> lovely little leap in sociabilty! He came up to me while I was

preparing dinner

> and asked " what you doing " . i was cutting carrot and offered him

a knife to

> help. He cut a piece and put it in the pot. I asked him to lick

some and he

> laughed and said no but I said " go on Char- just try " and he said "

little

> lick " - AND DID !!! He then sat at dinner with us y and chose his

place,

> sitting down next to his brother with a cheery wave and " hello

Louis - what you

> doing? " He asked me to help him cut his chicken and then REMAINED

at the table

> with us until we had all finished and Madeleine asked him to go

play on the

> trampoline. He said OK and we watched the two of them play until

Moo wanted to

> come backto the house and Charlie got her shoes and tried to help

her put

> them on !!!!!!!!. He came in and then about half an hour lated

came to find me

> and said

> " mummy, Charlie clean it up, spilt drink, all messy, get a cloth,

wipe it

> clean , all clean, all better, good boy Charlie, did it, all tidy

now , no

> more mess "

> Blimey !!!!!!!!!!!!!!!!

> Sure enough he had done just that and i had a clean kitchen floor

with a

> whole kitchen towel in the bin LOL .

> I was at his IEP meeting on Friday and they are staggered at how

his is

> doing. Language is still a big problem ( although slowly

improving ) but his

> socialbility and just plain ordinary comprehension of what is going

on around him

> is moving along so nicely. They actually said they are not sure

that his

> school is going to be able to meet his needs if he continues to

improve so which

> was a bit of a shock but goodness - what a nice problem to have. He

is no

> where near mainstream but he may need an enviroment that can just

challenge him

> a bit more. The thing that the school are most thrown by is his

ability to

> understand what others are thinking and feeling. For example he

wrote christmas

> lists of what his family would like as presents and was 90% spot

on, without

> any one prompting him or giving clues and without suggesting

things that

> anyone had asked for or mentioned - his brother is 12 and likes

gamecube and

> usual 12 year old stuff. Charlie said he though Louis would like a

gamecube game

> and a dinosaur book. Louis LOVED those things but had not asked

anyone for

> either - they were totally Charlies ideas. Charlie chose the book

for Louis,

> helped me wrap it and put it under the tree and was then all proud

when Louis

> opened it and loved it .

>

> I guess i am posting because I know you guys will all understand

how

> wonderful these improvements feel when your child is as old as 9 -

and i want to

> encourage anyone out there with an older child. Charlie has been on

chelation

> with td dmps for just over a year now and , after slow steady

progress this

> obvious improvement is just happening now at month 13 .

> Keep sticking with it - our big kids just take a bit longer .

> He is incredibly happy and each improvement makes life a bit

easier. My

> eldest son was very emotional last night after a Sunday full of

tickling and

> trampoline and playing building games with Charlie. The two of them

kept having

> massive hugs and kisses and Louis just said that he felt like he

was getting

> his brother back at last.

> I don't think Charlie will ever loose all his issues he still has

major

> major problems but he is so happy - what a journey this is !

> regards

> Deborah

>

[Guest guest]

Dear Deborah,

My mascara is running!! What wonderful

news. My son is 8 and only started biomed (done the diets for years and ABA). We are seeing big

improvements on biomed but your story is such an inspiration that it

certainly will keep us going.

Thanks and good luck

Elaine

From: Autism Treatment [mailto:Autism Treatment ] On Behalf Of MONXYMOO@...

Sent: 20 March 2006 13:44

To:

Subject:

Re getting better .....

Hi all

( especially Mandi & Sharon - hi

girls!!!!!!!!)

just a quick update on Charlie as I am so

pleased..

Charlie was sooooooo sick just after

christmas and I had to stop chelating. Could have done the drops but he

couldn't keep any food or his vits and mins down and it was just all too much

for him. Then I got flu and the gap extended so he missed chelation for about

six weeks.

During that time he just got calmer and

more together. He started trying really hard to construct sentences to really

explain what he meant - sometimes rolling his eyes back with sheer

concentration at trying to get it all just right. We started chelation again

about two weeks ago ( slowly) and he was very emotional and cranky but that is

begining to reduce and i am seeing such a lovely little leap in sociabilty! He

came up to me while I was preparing dinner and asked " what you doing "

.. i was cutting carrot and offered him a knife to help. He cut a piece and put

it in the pot. I asked him to lick some and he laughed and said no but I said

" go on Char- just try " and he said " little lick " - AND DID

!!! He then sat at dinner with us y and chose his place, sitting down next

to his brother with a cheery wave and " hello Louis - what you doing? "

He asked me to help him cut his chicken and then REMAINED at the table with us

until we had all finished and Madeleine asked him to go play on the trampoline.

He said OK and we watched the two of them play until Moo wanted to come

backto the house and Charlie got her shoes and tried to help her put them on

!!!!!!!!. He came in and then about half an hour lated came to find me and said

" mummy, Charlie clean it up, spilt

drink, all messy, get a cloth, wipe it clean , all clean, all better, good

boy Charlie, did it, all tidy now , no more mess "

Blimey !!!!!!!!!!!!!!!!

Sure enough he had done just that

and i had a clean kitchen floor with a whole kitchen towel in the bin LOL .

I was at his IEP meeting on Friday and

they are staggered at how his is doing. Language is still a big problem (

although slowly improving ) but his socialbility and just plain ordinary

comprehension of what is going on around him is moving along so nicely. They

actually said they are not sure that his school is going to be able to meet his

needs if he continues to improve so which was a bit of a shock but goodness -

what a nice problem to have. He is no where near mainstream but he may need an

enviroment that can just challenge him a bit more. The thing that the school

are most thrown by is his ability to understand what others are thinking and

feeling. For example he wrote christmas lists of what his family would

like as presents and was 90% spot on, without any one prompting him or giving

clues and without suggesting things that anyone had asked for or mentioned -

his brother is 12 and likes gamecube and usual 12 year old stuff. Charlie said

he though Louis would like a gamecube game and a dinosaur book. Louis LOVED

those things but had not asked anyone for either - they were totally Charlies

ideas. Charlie chose the book for Louis, helped me wrap it and put it under the

tree and was then all proud when Louis opened it and loved it .

I guess i am posting because I know you

guys will all understand how wonderful these improvements feel when your child

is as old as 9 - and i want to encourage anyone out there with an older child.

Charlie has been on chelation with td dmps for just over a year now and , after

slow steady progress this obvious improvement is just happening now at month 13

..

Keep sticking with it - our big kids just

take a bit longer .

He is incredibly happy and each

improvement makes life a bit easier. My eldest son was very emotional last

night after a Sunday full of tickling and trampoline and playing building games

with Charlie. The two of them kept having massive hugs and kisses and Louis

just said that he felt like he was getting his brother back at last.

I don't think Charlie will ever loose all

his issues he still has major major problems but he is so happy - what a

journey this is !

regards

Deborah

[Guest guest]

thank you for posting this. It's a great, great tonic to read and

I'm really thrilled for you all. Onward and upward Charlie!

>

> Hi all

> ( especially Mandi & Sharon - hi girls!!!!!!!!)

> just a quick update on Charlie as I am so pleased..

> Charlie was sooooooo sick just after christmas and I had to stop

chelating.

> Could have done the drops but he couldn't keep any food or his

vits and mins

> down and it was just all too much for him. Then I got flu and the

gap extended

> so he missed chelation for about six weeks.

> During that time he just got calmer and more together. He started

trying

> really hard to construct sentences to really explain what he

meant - sometimes

> rolling his eyes back with sheer concentration at trying to get it

all just

> right. We started chelation again about two weeks ago ( slowly)

and he was very

> emotional and cranky but that is begining to reduce and i am

seeing such a

> lovely little leap in sociabilty! He came up to me while I was

preparing dinner

> and asked " what you doing " . i was cutting carrot and offered him

a knife to

> help. He cut a piece and put it in the pot. I asked him to lick

some and he

> laughed and said no but I said " go on Char- just try " and he

said " little

> lick " - AND DID !!! He then sat at dinner with us y and chose his

place,

> sitting down next to his brother with a cheery wave and " hello

Louis - what you

> doing? " He asked me to help him cut his chicken and then REMAINED

at the table

> with us until we had all finished and Madeleine asked him to go

play on the

> trampoline. He said OK and we watched the two of them play until

Moo wanted to

> come backto the house and Charlie got her shoes and tried to help

her put

> them on !!!!!!!!. He came in and then about half an hour lated

came to find me

> and said

> " mummy, Charlie clean it up, spilt drink, all messy, get a cloth,

wipe it

> clean , all clean, all better, good boy Charlie, did it, all tidy

now , no

> more mess "

> Blimey !!!!!!!!!!!!!!!!

> Sure enough he had done just that and i had a clean kitchen

floor with a

> whole kitchen towel in the bin LOL .

> I was at his IEP meeting on Friday and they are staggered at how

his is

> doing. Language is still a big problem ( although slowly

improving ) but his

> socialbility and just plain ordinary comprehension of what is

going on around him

> is moving along so nicely. They actually said they are not sure

that his

> school is going to be able to meet his needs if he continues to

improve so which

> was a bit of a shock but goodness - what a nice problem to have.

He is no

> where near mainstream but he may need an enviroment that can just

challenge him

> a bit more. The thing that the school are most thrown by is his

ability to

> understand what others are thinking and feeling. For example he

wrote christmas

> lists of what his family would like as presents and was 90% spot

on, without

> any one prompting him or giving clues and without suggesting

things that

> anyone had asked for or mentioned - his brother is 12 and likes

gamecube and

> usual 12 year old stuff. Charlie said he though Louis would like

a gamecube game

> and a dinosaur book. Louis LOVED those things but had not asked

anyone for

> either - they were totally Charlies ideas. Charlie chose the book

for Louis,

> helped me wrap it and put it under the tree and was then all

proud when Louis

> opened it and loved it .

>

> I guess i am posting because I know you guys will all understand

how

> wonderful these improvements feel when your child is as old as 9 -

and i want to

> encourage anyone out there with an older child. Charlie has been

on chelation

> with td dmps for just over a year now and , after slow steady

progress this

> obvious improvement is just happening now at month 13 .

> Keep sticking with it - our big kids just take a bit longer .

> He is incredibly happy and each improvement makes life a bit

easier. My

> eldest son was very emotional last night after a Sunday full of

tickling and

> trampoline and playing building games with Charlie. The two of

them kept having

> massive hugs and kisses and Louis just said that he felt like he

was getting

> his brother back at last.

> I don't think Charlie will ever loose all his issues he still has

major

> major problems but he is so happy - what a journey this is !

> regards

> Deborah

>

[Guest guest]

Hi Deborah,

This is really inspiring! I too have a 9 year old and am chelating - this gives me great motivation to push on!

Thank-you

On 21/03/06, Sirr <mark.grabiec@...> wrote:

thank you for posting this. It's a great, great tonic to read and I'm really thrilled for you all. Onward and upward Charlie!

>> Hi all

> ( especially Mandi & Sharon - hi girls!!!!!!!!)> just a quick update on Charlie as I am so pleased..> Charlie was sooooooo sick just after christmas and I had to stop chelating. > Could have done the drops but he couldn't keep any food or his vits and mins > down and it was just all too much for him. Then I got flu and the gap extended > so he missed chelation for about six weeks.> During that time he just got calmer and more together. He started trying > really hard to construct sentences to really explain what he meant - sometimes > rolling his eyes back with sheer concentration at trying to get it all just > right. We started chelation again about two weeks ago ( slowly) and he was very > emotional and cranky but that is begining to reduce and i am seeing such a > lovely little leap in sociabilty! He came up to me while I was preparing dinner > and asked " what you doing " . i was cutting carrot and offered him a knife to > help. He cut a piece and put it in the pot. I asked him to lick some and he > laughed and said no but I said " go on Char- just try " and he said " little > lick " - AND DID !!! He then sat at dinner with us y and chose his place, > sitting down next to his brother with a cheery wave and " hello Louis - what you > doing? " He asked me to help him cut his chicken and then REMAINED at the table > with us until we had all finished and Madeleine asked him to go play on the > trampoline. He said OK and we watched the two of them play until Moo wanted to > come backto the house and Charlie got her shoes and tried to help her put > them on !!!!!!!!. He came in and then about half an hour lated came to find me > and said> " mummy, Charlie clean it up, spilt drink, all messy, get a cloth, wipe it > clean , all clean, all better, good boy Charlie, did it, all tidy now , no > more mess " > Blimey !!!!!!!!!!!!!!!!> Sure enough he had done just that and i had a clean kitchen floor with a > whole kitchen towel in the bin LOL .> I was at his IEP meeting on Friday and they are staggered at how his is > doing. Language is still a big problem ( although slowly improving ) but his > socialbility and just plain ordinary comprehension of what is going on around him > is moving along so nicely. They actually said they are not sure that his > school is going to be able to meet his needs if he continues to improve so which > was a bit of a shock but goodness - what a nice problem to have. He is no > where near mainstream but he may need an enviroment that can just challenge him > a bit more. The thing that the school are most thrown by is his ability to > understand what others are thinking and feeling. For example he wrote christmas > lists of what his family would like as presents and was 90% spot on, without > any one prompting him or giving clues and without suggesting things that > anyone had asked for or mentioned - his brother is 12 and likes gamecube and > usual 12 year old stuff. Charlie said he though Louis would like a gamecube game > and a dinosaur book. Louis LOVED those things but had not asked anyone for > either - they were totally Charlies ideas. Charlie chose the book for Louis, > helped me wrap it and put it under the tree and was then all proud when Louis > opened it and loved it .> > I guess i am posting because I know you guys will all understand how > wonderful these improvements feel when your child is as old as 9 - and i want to > encourage anyone out there with an older child. Charlie has been on chelation > with td dmps for just over a year now and , after slow steady progress this > obvious improvement is just happening now at month 13 .

> Keep sticking with it - our big kids just take a bit longer . > He is incredibly happy and each improvement makes life a bit easier. My > eldest son was very emotional last night after a Sunday full of tickling and > trampoline and playing building games with Charlie. The two of them kept having > massive hugs and kisses and Louis just said that he felt like he was getting > his brother back at last.

> I don't think Charlie will ever loose all his issues he still has major > major problems but he is so happy - what a journey this is !> regards> Deborah>

DISCLAIMERNo information contained in this post is to be construed as medical advice. If you need medical advice, please seek it from a suitably qualified practitioner.