Re: this may be a duplicate

[Guest guest]

Problem is every thing else isn't. Something US doesn't want to change.

> >

>

[Guest guest]

Problem is every thing else isn't. Something US doesn't want to change.

> >

>

[Guest guest]

Francis Bill I had a serum cortisol 8 AM and 4 PM done. The literature

indicates that this is not the gold standard that the 24-urine cortisol or the

late-night serum/salivary cortisol. The intermittent Cushie's will sometimes

suppress low dose DM and sometimes the salivary one doesn't pick it up-so I'm

asking for the 24-h cortisol when I 'm having one of my highs... I guess

Cushing's is hard to diagnose with lots of false neg.(these patients go on to

have surgically proven Cushing's) So I guess I think they need to look into

this a bit more before they push me into nephrology..

The process of elimination works when they are lost/symptoms are not specific

for one disease or another but it has to be done accurately!

I don't feel this is the case and my family doctor obviously doesn't feel the

endo is catching it either if she is ordering an MRI on her accord..

On the cushing's site I researched hypokalemia and ... I don't remember the

other symptom and I swear, her story was almost identical to mine. Here doctor

only did the serum cortisol, she asked for the urine, 3 doctors later, they

finally agreed to the 24 urine cortisol that came back abnormal....

Another lady, cushing's without moon face, 10 years to get diagnosed, had the

tumor removed....

So I guess if the endo. feels in the beginning that I am merely " salt-sensitive "

and only on my insisting, he looks further, I should have known better. Not

many endos around here to choose from.

I'll try to remain positive but I don't my endo. is looking to find it, he wants

to see what nephro has to say. I truly believe it to be endocrine related

because of my temperature high/low, my energy high/low, my mood high/low, my

wt.increasing, salt sensitivity, blood pressure, pigment changes, vision

changes... If it was kidney I don't think I would have the mood changes etc or

pigmentation issues.

Anyhow,

Had a nice (short) walk outside because today isn't my worse day, attempting to

get some Vit D (sunny and 8 degrees) and do a little bit of activity when my

muscles aren't too achy. If the muscles aren't too rubbery/weak, I'd like to

walk a bit now and then. I don't want to overdue it either but jeezz, my body

is getting out of shape.

Also, thinking of working (volunteer) for 1-2 hours now and then to see how it

goes/see what is happening in my workplace, been out so long with my mom's

illness, mat. leave and now, my health. My energy/weakness/dizziness comes on

so quickly I don't want to commit/get paid in case I need to leave but then

again, I'm afraid to go back and catch the flu. I haven't received the flu

shot, undecided and also even if I wanted it, not in a priority group. Maybe

I'll sit tight at home and stay put.

That's it for now, toddler up from her nap.

Chantal

> > > > > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > > > > > That's sorta the thing in the PSA

> > > test. When I

> > > > > > > > talked to

> > > > > > > > > > > > > > > the Dr,

> > > > > > > > > > > > > > > > > I said: I believe if you do enough

> > > biopsies you

> > > > > > > > will find a

> > > > > > > > > > > > > > > > > carcinoma cell.

> > > > > > > > > > > > > > > > > > > Then that requires a chain of things

> > > I don't

> > > > > > > > want to

> > > > > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> > >

> >

>

[Guest guest]

I don't have the urine sodium, I can ask the doctor, is it possible it wasn't

checked? My potassium was 3.5 (3.6-5.5) and my sodium was

138 (135-146)

Do you think I should ask for a repeat 24 h urine Na and K if I do the 24 hour

cortisol ? I wonder if the one collection would suffice for both cortisol and

Na/K?

Thanks again,

Chantal

> > > > >

> > > > > I also need to have the total volume of the urine to get how

> > much K you are eating.

> > > > >

> > > > > If you make 2 L of urine a day then you are eating abut 39 mM/

> > L x 2L = 78 mM K per day. The DASH diet should have about 2.5 x this

> > K. So you were not DASHing at that time.,

> > > > >

> > > >

> > >

> >

> >

>

[Guest guest]

I think your eye doctor can tell if you may have cushings or something else.

Right now this is your best bet.

> > > > > > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > > > > > > That's sorta the thing in the PSA

> > > > test. When I

> > > > > > > > > talked to

> > > > > > > > > > > > > > > > the Dr,

> > > > > > > > > > > > > > > > > > I said: I believe if you do enough

> > > > biopsies you

> > > > > > > > > will find a

> > > > > > > > > > > > > > > > > > carcinoma cell.

> > > > > > > > > > > > > > > > > > > > Then that requires a chain of things

> > > > I don't

> > > > > > > > > want to

> > > > > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

>

[Guest guest]

You have seen some of what my doctors have told why I am sick. None have really

thought I might PA. You have made a educauted guess that I probably have it. You

did this by matching what I put on here with signs and sysptoms something any of

the many doctors I have at both Dartmouth and the VA should have done. Since

they failed to see what you saw I have ended up here. I came to this groupe

because I searched for my own answers as I think many others here have done.

If all doctors did as you say then this group most likey wouldn't be.

> > > > > > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > > > > > > That's sorta the thing in the PSA

> > > > test. When I

> > > > > > > > > talked to

> > > > > > > > > > > > > > > > the Dr,

> > > > > > > > > > > > > > > > > > I said: I believe if you do enough

> > > > biopsies you

> > > > > > > > > will find a

> > > > > > > > > > > > > > > > > > carcinoma cell.

> > > > > > > > > > > > > > > > > > > > Then that requires a chain of

> > things

> > > > I don't

> > > > > > > > > want to

> > > > > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

> >

>

[Guest guest]

If eye doctor is good they know many things. There are some eye problems that

are realted to other diseases. Cushings being one of them. A brain tumor being

another. It is not that eye doctor will DX Cushings but may tell if she possibly

has it. If doctor see nothing related to Cushings then she can rule her eye

problem out as being related to it. Once this is known then she or her other

doctors can rethink what she has.

> > > > > > > > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > > > > > > > > That's sorta the thing in

> > the PSA

> > > > > > test. When I

> > > > > > > > > > > talked to

> > > > > > > > > > > > > > > > > > the Dr,

> > > > > > > > > > > > > > > > > > > > I said: I believe if you do enough

> > > > > > biopsies you

> > > > > > > > > > > will find a

> > > > > > > > > > > > > > > > > > > > carcinoma cell.

> > > > > > > > > > > > > > > > > > > > > > Then that requires a chain

> > of things

> > > > > > I don't

> > > > > > > > > > > want to

> > > > > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

> >

>

[Guest guest]

I'm anxious to see the local eye specialist. He is originally from a larger

center, is in high demand and has " resolved " some mysteries..

Chantal

> > > > > > > > > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > > > > > > > > > That's sorta the thing in

> > > the PSA

> > > > > > > test. When I

> > > > > > > > > > > > talked to

> > > > > > > > > > > > > > > > > > > the Dr,

> > > > > > > > > > > > > > > > > > > > > I said: I believe if you do enough

> > > > > > > biopsies you

> > > > > > > > > > > > will find a

> > > > > > > > > > > > > > > > > > > > > carcinoma cell.

> > > > > > > > > > > > > > > > > > > > > > > Then that requires a chain

> > > of things

> > > > > > > I don't

> > > > > > > > > > > > want to

> > > > > > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> > >

> >

>

[Guest guest]

You would not think that an eye doctor would order chest xrays but that is the

first thing my brother's eye doctor did after looking at his eyes.

> > > > > > > > > > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > > > > > > > > > > That's sorta the thing in

> > > > the PSA

> > > > > > > > test. When I

> > > > > > > > > > > > > talked to

> > > > > > > > > > > > > > > > > > > > the Dr,

> > > > > > > > > > > > > > > > > > > > > > I said: I believe if you do enough

> > > > > > > > biopsies you

> > > > > > > > > > > > > will find a

> > > > > > > > > > > > > > > > > > > > > > carcinoma cell.

> > > > > > > > > > > > > > > > > > > > > > > > Then that requires a chain

> > > > of things

> > > > > > > > I don't

> > > > > > > > > > > > > want to

> > > > > > > > > > > > > > > >

> > > > > > > > > > > >

> > > > > > > > > > >

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

>

[Guest guest]

Hmm, interesting, I'll have to look up the incidence of lyme in our region. I

am in contact with animals and am a nature lover. In our province we haven't

had a ton of Lyme so we're not into protecting against ticks overly

aggressively. We play in the leaves, fields, woods etc. Years ago when my son

was a toddler he had a " bulls'eye " rash that looked a lot like a tick bite but I

haven't had any other human tick experiences. I've treated my animals off and

on with revolution (mites, fleas, ticks) and one of my cats had a tick.

Did you have a history of a tick bite. I know often times Lyme disease

sufferers don't but just curious?

Thanks for all input!

Will look into further..

Chantal

>

> I have variable vision and the blob floaters that look like dirty sun

> glasses. Some days I can see and others, I have to wear reading glasses. I

> had PRK a few years ago and when I went back in a year, my doc was

> absolutely shocked at the change in my vision. I think I saw him on one of

> my non-seeing days. Variable vision and floaters are symptoms of Lyme.

>

> I added 50 mg spiro last summer for a total of 150 mg. The extra 50 only

> decreased systolic BP by about 3 - 4. I am learning that my BP is 115-120

> when I'm brittle and 135-140 when I am more brittle. I define " brittle " as

> a near constant state of fright.

>

> Val

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of Chantal

>

>

> I see extra floaters.... The other symptoms is difficult to explain...

> My vision change in my rt eye : I actually thought my sunglasses were

> defective/dirty so I bought a new pair. Take your glasses and put

> fingerprints on them. Now, look through them. This is what my second vision

> symptom is like, not really blurry, not really hazy but..I can't find the

> appropriate term- Like you are looking through glasses that need a cleaning?

> What is the appropriate term-I have yet to find one that describes this

> vision change accurately.

> My third vision symptom is a subtle pressure on the eye- this doesn't occur

> concurrently with vision symptom 1 and 2. My eye feels like it is bulging a

> bit- I thought maybe this symptom was related to my eyelids being so puffy.

>

> These symptoms are there most of the time but I get the odd break where my

> vision is unaffected. In addition to this, I check my pressure to see if it

> is pressure related and it isn't...

>

> My endo. said the vision would be " double " if it was Cushing's and he

> indicated that my eye symptoms are something else and discuss with family

> dr. She wants an MRI because of the vision. My optometrist says my vision

> has worsened slightly in that eye but my retina picture looked healthy. (2

> months ago) I'm seeing the opthamologist on the 18th of nov.

>

> That's it on the vision thing

> Thanks Again

> much appreciated

> Chantal

>

[Guest guest]

Chantal, hope you're still hanging in there, I am in the same boat. had an appt

with my endo and my 24 hour cortisol came back 54 and range is under 45, he said

he doesn't think I have cushings, but is redoing the 24 hour urine and ordered a

midnight cortisol, only because I requested it. He is not being a very good doc

at all, didn't look at my symptoms and just said all my blood work is coming

back normal. Other then the cortisol, the aldosterone level was very low and he

didn't have anything to say about it. I am currently going to see another endo

next week hopefully. I am thinking adrenal fatigue maybe. I did find an

interesting bit of info though, some people with copper IUD's have problems with

the copper causing hypothyroid like symptoms.

Take care and keep your chin up, we will find out what's wrong with us!!!!

Bridget

> > > > > > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > > > > > > That's sorta the thing in the PSA

> > > > test. When I

> > > > > > > > > talked to

> > > > > > > > > > > > > > > > the Dr,

> > > > > > > > > > > > > > > > > > I said: I believe if you do enough

> > > > biopsies you

> > > > > > > > > will find a

> > > > > > > > > > > > > > > > > > carcinoma cell.

> > > > > > > > > > > > > > > > > > > > Then that requires a chain of things

> > > > I don't

> > > > > > > > > want to

> > > > > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > > >

> > >

> >

>

[Guest guest]

Here is one way lyme shows up. This is about one of nephews. as told by his

mother.

I spent the better part of today going between the doctor's office and hospital

with for tests due to unexplained swelling in his knee. He has mentioned

dull pain in this knee for about a month, but there has been no sign of injury,

bite, or trauma of any sort, nor have there been any real mobility concerns.

Over the course of this week, he has mentioned it nearly every day, and last

night when he returned home from football practice, it was swollen nearly twice

its usual size. They drained two huge syringes full of fluid from the knee, and

while much improved, it is still very swollen. They showed concern because the

fluid was not bloody at all, which would have pointed to trauma having caused

this...and given some direction as to where to go with it.

They did X-rays today, and ordered a fair amount of blood work...STAT, and the

doctor called the house this evening to follow up and talk with us about how the

visit to the orthopedist went. He has an appointment for an MRI tomorrow

afternoon, and a follow up visit to the orthopedist on Wednesday. He has been

ordered to stay off it until they know what it is we are dealing with. ...a

pretty stressful day...and another one to come tomorrow.

I just received a phone call from his doctor saying that the confirmatory tests

for Lyme have also come out positive, so that is definitely what we are dealing

with. He also said that his prognosis should be good with the 28 day course of

antibiotics...saying of all the things this could have been--Lyme disease is the

best. His orthopedist also said that could have been bit by a tick that

never imbedded and got brushed or combed off so he never had it on him, had the

rash, which only appears on 3/10 people under the hairline, and had minor cold

symptoms which no one would have suspected to be due to anything but a cold--and

the doctor would never have seen him for this. So, in a way, it was good that

the knee swelled like it did, because it made people ask the right questions and

do so agressively.

> Here are pictures of Lyme rashes: http://www.lyme.org/gallery/rashes.html

> Mine looked like this: http://www.lyme.org/gallery/em_sk6.html

> This is what comes up in a search for Target lesions images:

> http://images.google.com/images?q=Target%20lesions

> <http://images.google.com/images?q=Target%20lesions & rls=com.microsoft:en-us:

> IE-SearchBox & oe=UTF-8 & sourceid=ie7 & rlz=1I7GGIT_en & um=1 & ie=UTF-8 & sa=N & hl=en & t

> ab=wi>

> & rls=com.microsoft:en-us:IE-SearchBox & oe=UTF-8 & sourceid=ie7 & rlz=1I7GGIT_en & u

> m=1 & ie=UTF-8 & sa=N & hl=en & tab=wi

>

>

> Val

>

> < span>From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

>

> Many things can cause Bull's Eye skin lesions aka Target lesions

> Google images for some good pictures.

>

[Guest guest]

Interesting, again my son did have a bull's eye rash as a toddler. I'll have to

keep that in mind. Ugh, never a dull moment!

He has had coincidentally knee problems on one side...

NO swelling though. OMG, what next?

Better yet, today my daughter's school is getting vaccinated against

H1N1, Canada is so freaked out by this. We have confirmed cases getting closer

by the day.

The 1976 experience in the states is scary. My husband and I have decided to

sit tight and hold off vaccinating the kids for the time being.

I just want my kids home, enough of this nonsense and let's see what happens!

Our region is not well equipped for sick kids at all.

I don't want to expose them to this vaccine or the disease. I know it is

eventually, most likely, going to happen.

Gotta go, toddler looking to do crafts, sink full of dishes and a couch full of

unfolded clothes.

Deep breathes

Could be a lot worse!

> > Here are pictures of Lyme rashes: http://www.lyme.org/gallery/rashes.html

> > Mine looked like this: http://www.lyme.org/gallery/em_sk6.html

> > This is what comes up in a search for Target lesions images:

> > http://images.google.com/images?q=Target%20lesions

> > <http://images.google.com/images?q=Target%20lesions & rls=com.microsoft:en-us:

> > IE-SearchBox & oe=UTF-8 & sourceid=ie7 & rlz=1I7GGIT_en & um=1 & ie=UTF-8 & sa=N & hl=en & t

> > ab=wi>

> > & rls=com.microsoft:en-us:IE-SearchBox & oe=UTF-8 & sourceid=ie7 & rlz=1I7GGIT_en & u

> > m=1 & ie=UTF-8 & sa=N & hl=en & tab=wi

> >

> >

> > Val

> >

> > < span>From: hyperaldosteronism

> > [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

> >

> > Many things can cause Bull's Eye skin lesions aka Target lesions

> > Google images for some good pictures.

> >

>

[Guest guest]

If there is any chance that your son has lyme's get him tested. Much simpler to

get treatment now then later.

> > > Here are pictures of Lyme rashes:

http://www.lyme.org/gallery/rashes.html

> > > Mine looked like this: http://www.lyme.org/gallery/em_sk6.html

> > > This is what comes up in a search for Target lesions images:

> > > http://images.google.com/images?q=Target%20lesions

> > >

<http://images.google.com/images?q=Target%20lesions & rls=com.microsoft:en-us:

> > >

IE-SearchBox & oe=UTF-8 & sourceid=ie7 & rlz=1I7GGIT_en & um=1 & ie=UTF-8 & sa=N & hl=en & t

> > > ab=wi>

> > >

& rls=com.microsoft:en-us:IE-SearchBox & oe=UTF-8 & sourceid=ie7 & rlz=1I7GGIT_en & u

> > > m=1 & ie=UTF-8 & sa=N & hl=en & tab=wi

> > >

> > >

> > > Val

> > >

> > > < span>From: hyperaldosteronism

> > > [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

> > >

> > > Many things can cause Bull's Eye skin lesions aka Target lesions

> > > Google images for some good pictures.

> > >

> >

>

[Guest guest]

Well, actually, even if my son wanted it, it isn't avail for him as of yet.

That shark oil is what concerns me and my sister who is a nurse (has vaccinated

for four clinics to date for H1N1 ) and it appears a lot of people , half (

similiar stats to the US) are concerned about the side effects of this vaccine..

It is actively in the region but the vaccine is only avail to the high priority

groups right now in New Brunswick, so, the vaccine isn't going to be very

effective if they are exposed to the H1N1 prior to getting it.. Anyway, this is

a difficult question and every province, country, citizen has mixed concerns,

opinions...

All I know is that I already feel terrible as it is and I'm not keen on the

vaccine or the illness

Should be interesting.....

TTFN

Chantal

> > > > Here are pictures of Lyme rashes: http://www.lyme.org/gallery/

> > rashes.html

> > > > Mine looked like this: http://www.lyme.org/gallery/em_sk6.html

> > > > This is what comes up in a search for Target lesions images:

> > > > http://images.google.com/images?q=Target%20lesions

> > > > <http://images.google.com/images?q=Target%

> > 20lesions & rls=com.microsoft:en-us:

> > > > IE-

> > SearchBox & oe=UTF-8 & sourceid=ie7 & rlz=1I7GGIT_en & um=1 & ie=UTF-8 & sa=N & hl=e

> > n & t

> > > > ab=wi>

> > > > & rls=com.microsoft:en-us:IE-

> > SearchBox & oe=UTF-8 & sourceid=ie7 & rlz=1I7GGIT_en & u

> > > > m=1 & ie=UTF-8 & sa=N & hl=en & tab=wi

> > > >

> > > >

> > > > Val

> > > >

> > > > < span>From: hyperaldosteronism

> > > > [mailto:hyperaldosteronism ] On Behalf Of

> > Clarence Grim

> > > >

> > > > Many things can cause Bull's Eye skin lesions aka Target lesions

> > > > Google images for some good pictures.

> > > >

> > >

> >

> >

>

[Guest guest]

I'm pretty housebound for the moment so that should help a bit....

But then again, kids coming and going....

No vaccine avail yet so no decision to be made...

I'll have a little time to see if reactions pop up Get it before me and let

me know- canary vs. guinea pig

No posting, I'll leave you guessing if it is swine flu or non-PA diagnosis

tomorrow.

TTFN

> > >

> > > Yeah your kids could get H1N1 and spread it to others who have also

> > > not been vaccintaed. A perfect scenario for an epidemic.

> > >

> > > CE Grim MD

> >

> >

>

[Guest guest]

It has been 2 years now and he seems OK.

>

> Interesting. I hope 28 days is enough antibiotic. Knees are the most

> common joints that show Lyme involvement.

>

> Val

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of Francis Bill

>

>

> Here is one way lyme shows up. This is about one of nephews. as told by his

> mother.

>

> I spent the better part of today going between the doctor's office and

> hospital with for tests due to unexplained swelling in his knee. He

> has mentioned dull pain in this knee for about a month, but there has been

> no sign of injury, bite, or trauma of any sort, nor have there been any real

> mobility concerns. Over the course of this week, he has mentioned it nearly

> every day, and last night when he returned home from football practice, it

> was swollen nearly twice its usual size. They drained two huge syringes full

> of fluid from the knee, and while much improved, it is still very swollen.

> They showed concern because the fluid was not bloody at all, which would

> have pointed to trauma having caused this...and given some direction as to

> where to go with it.

>

> They did X-rays today, and ordered a fair amount of blood work...STAT, and

> the doctor called the house this evening to follow up and talk with us about

> how the visit to the orthopedist went. He has an appointment for an MRI

> tomorrow afternoon, and a follow up visit to the orthopedist on Wednesday.

> He has been ordered to stay off it until they know what it is we are dealing

> with. ...a pretty stressful day...and another one to come tomorrow.

>

> I just received a phone call from his doctor saying that the confirmatory

> tests for Lyme have also come out positive, so that is definitely what we

> are dealing with. He also said that his prognosis should be good with the 28

> day course of antibiotics...saying of all the things this could have

> been--Lyme disease is the best. His orthopedist also said that could

> have been bit by a tick that never imbedded and got brushed or combed off so

> he never had it on him, had the rash, which only appears on 3/10 people

> under the hairline, and had minor cold symptoms which no one would have

> suspected to be due to anything but a cold--and the doctor would never have

> seen him for this. So, in a way, it was good that the knee swelled like it

> did, because it made people ask the right questions and do so agressively.

>

> ---

>