Re: this may be a duplicate

[Guest guest]

Hi everyone,

Working on my story, work in progress, plus no conn's diagnosis yet..

Awaiting results

saw the endo on friday... had a really rough start to this week (extreme

symptoms) but yesterday and today I'm on a real high. I've been up really

early, can't sleep in and going, going... Anyhow, when he asked me how I was

doing on Fri. I told him I was having a good day but Monday, I was weak enough

that even speaking was tiring!

Get this, we are waiting for the ARR result (10 days now) but it may take 2-3

more weeks. He doesn't want to re-check TSH or do 24 urine cortisol (1 TSH

done, free T3 and T4, serum cortisol 8 and 4)..

I'm going to ask my family doctor to give me a standing order to have the above

done when I'm having an extreme low or an extreme high to attempt to catch it if

it is intermittent Cushing's ??? The endo. wants me to start spiro 25mg to block

my potassium loss and wait to do further testing until I see the nephrologist,

end of Nov.

My concerns: If my ARR comes back elevated, he wants a saline suppression,

starting Spiro will complicate matters, washout period

If I start spiro, will the nephro be able to evaluate my case effectively? and

I'm concerned that the endo is using the spiro as a band-aid approach-again, I

don't think he's ruled out the other things-Hashimoto's and Cushing's with

adequate testing. I'm so tempted to start on spiro (I'm on 5 kdur a day, 90mg

verapamil bid)

but what if it is not Conn's....

Anyhow, results soon... I've written my story but it needs some add/del so I'll

work on that in the next little bit.

MRI pituitary (family doctor wants it) because of my persistent vision changes.

Hopefully will get in for the 18th of Nov.

Anyhow, not much farther ahead.

I told my endo. that I need to wean my daughter first (toddler) and that will

buy me some time to get my ARR results first.

He simply wants me on spiro. so my potassium stays put in my system for a little

longer... but otherwise, he is not sure why I'm losing it. I believe in the

spiro but what I don't like it that they don't know the " why " part. He said it

may be a kidney thing and they are dumping my potassium. I asked him if it is

only the potassium then why am I having these lows(mostly) and highs (now and

then).. It is cyclical or intermittent, not constant.... and if my potassium is

sometimes considered " normal " why am I still jerky??

He said he doesn't know. Nephro next then further testing after that if no

answers.

Great, 1-2 months more of this and then what, 1-2 more months to wait and see,

more test!

Do the bloody stardard " recommended " tests for endo then send me to nephro. I

feel he didn't complete this and nephro won't have much to add.

What do you guys think?

Anyway, thanks everyone, overdid it last 24 hours (pushing it when I feel good)

and now I'm paying the price, my vision is acting up!!

TTFN

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > From: jwwright <jwwright@>

> > > > > > > >

> > > > > > > Subject: Re: Re:

> > > > > > > Hyperaldo Review for Dr. Grim - Urgent

> > > > > > > >

> > > > > > > hyperaldosteronism

> > > > > > > >

> > > > > > > Date: Saturday, October 17, 2009, 5:43 PM

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > > >

> > > > > > > Aldo 10, renin 0.2. Only measured once -

> > > > > > > my internist at the time was sure I didn't have PA. The only

> > > > > > > thing I have is occasionally my BP goes low and makes my

> > > > > > > back hurt. I tracked that to an arthritic joint maybe a

> > > > > > > pinched nerve.

> > > > > > > >

> > > > > > > Take a ketoprofen - goes away.

> > > > > > > >

> > > > > > > > I

> > > > > > > resisted doing a lot of exercise for a long time, like 9

> > > > > > > yrs.

> > > > > > > > I

> > > > > > > now think, eventually, if you live and can do it, you will

> > > > > > > be better off if you do some kind of weights, and some

> > > > > > > aerobic. I like the rbike because it's safe, it's

> > > > > > > strengthens the legs and I hear it does away with osteo, and

> > > > > > > I regard osteo as very important if you intend to live to

> > > > > > > 100.

> > > > > > > >

> > > > > > > The ONE problem thing the CRers have is

> > > > > > > osteo, even at young like 42 age.

> > > > > > > >

> > > > > > > >

> > > > > > > I've had no report the running prevents it

> > > > > > > or cures it, and that by fitness " gurus " .

> > > > > > > >

> > > > > > > > I

> > > > > > > do a complete set of weights as I see it, and I add more as

> > > > > > > I find one little muscle that's not challenged, here and

> > > > > > > there.

> > > > > > > >

> > > > > > > >

> > > > > > > Shoulder muscles are complex, many little

> > > > > > > guys pulling every which way.

> > > > > > > >

> > > > > > > > I

> > > > > > > know others have their preferences like yoga, but I like

> > > > > > > being able to lift my 190 # son off the ground. I have the

> > > > > > > same build just shorter, so my BMI looks larger. It's not

> > > > > > > I'm just too short.

> > > > > > > >

> > > > > > > >

> > > > > > > When I started I could lift 260# in the

> > > > > > > rower. Now I can lift 300# at bench, not to chest, just off

> > > > > > > the bench.

> > > > > > > >

> > > > > > > >

> > > > > > > Back, abdominal, leg lift, leg press, arm

> > > > > > > press, leg curl, straddle in and out are 150# exercise

> > > > > > > levels. That's 9 1/2 months. I don't look like a bodybuilder

> > > > > > > yet, just well formed muscles. I'm working on the

> > > > > > > scwartznegger part (ha).

> > > > > > > >

> > > > > > > > I

> > > > > > > believe the muscle building raises growth hormone and IGF-1

> > > > > > > similar to that in a younger person.

> > > > > > > >

> > > > > > > >

> > > > > > > Get with it and you can start an exercise

> > > > > > > studio which, IMO, is a lot better than selling a " health

> > > > > > > spa " based on diet. Shouldn't take near as much money to

> > > > > > > start and you can hire PhD trainers for sports therapy.

> > > > > > > >

> > > > > > > >

> > > > > > > There are MANY that need physical therapy,

> > > > > > > including almost everyone riding a Wal-mart ecart.

> > > > > > > >

> > > > > > > I've seen recovering cri

> > >

> >

> >

>

[Guest guest]

If you want to you can get a kit to do Cortisol / DHEA Saliva Test.

http://altmedicine.about.com/od/labtestindexbyfocus/a/CortisolDHEA.htm

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > > From: jwwright <jwwright@>

> > > > > > > > >

> > > > > > > > Subject: Re: Re:

> > > > > > > > Hyperaldo Review for Dr. Grim - Urgent

> > > > > > > > >

> > > > > > > > hyperaldosteronism

> > > > > > > > >

> > > > > > > > Date: Saturday, October 17, 2009, 5:43 PM

> > > > > > > > >

> > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > > >

> > > > > > > > Aldo 10, renin 0.2. Only measured once -

> > > > > > > > my internist at the time was sure I didn't have PA. The only

> > > > > > > > thing I have is occasionally my BP goes low and makes my

> > > > > > > > back hurt. I tracked that to an arthritic joint maybe a

> > > > > > > > pinched nerve.

> > > > > > > > >

> > > > > > > > Take a ketoprofen - goes away.

> > > > > > > > >

> > > > > > > > > I

> > > > > > > > resisted doing a lot of exercise for a long time, like 9

> > > > > > > > yrs.

> > > > > > > > > I

> > > > > > > > now think, eventually, if you live and can do it, you will

> > > > > > > > be better off if you do some kind of weights, and some

> > > > > > > > aerobic. I like the rbike because it's safe, it's

> > > > > > > > strengthens the legs and I hear it does away with osteo, and

> > > > > > > > I regard osteo as very important if you intend to live to

> > > > > > > > 100.

> > > > > > > > >

> > > > > > > > The ONE problem thing the CRers have is

> > > > > > > > osteo, even at young like 42 age.

> > > > > > > > >

> > > > > > > > >

> > > > > > > > I've had no report the running prevents it

> > > > > > > > or cures it, and that by fitness " gurus " .

> > > > > > > > >

> > > > > > > > > I

> > > > > > > > do a complete set of weights as I see it, and I add more as

> > > > > > > > I find one little muscle that's not challenged, here and

> > > > > > > > there.

> > > > > > > > >

> > > > > > > > >

> > > > > > > > Shoulder muscles are complex, many little

> > > > > > > > guys pulling every which way.

> > > > > > > > >

> > > > > > > > > I

> > > > > > > > know others have their preferences like yoga, but I like

> > > > > > > > being able to lift my 190 # son off the ground. I have the

> > > > > > > > same build just shorter, so my BMI looks larger. It's not

> > > > > > > > I'm just too short.

> > > > > > > > >

> > > > > > > > >

> > > > > > > > When I started I could lift 260# in the

> > > > > > > > rower. Now I can lift 300# at bench, not to chest, just off

> > > > > > > > the bench.

> > > > > > > > >

> > > > > > > > >

> > > > > > > > Back, abdominal, leg lift, leg press, arm

> > > > > > > > press, leg curl, straddle in and out are 150# exercise

> > > > > > > > levels. That's 9 1/2 months. I don't look like a bodybuilder

> > > > > > > > yet, just well formed muscles. I'm working on the

> > > > > > > > scwartznegger part (ha).

> > > > > > > > >

> > > > > > > > > I

> > > > > > > > believe the muscle building raises growth hormone and IGF-1

> > > > > > > > similar to that in a younger person.

> > > > > > > > >

> > > > > > > > >

> > > > > > > > Get with it and you can start an exercise

> > > > > > > > studio which, IMO, is a lot better than selling a " health

> > > > > > > > spa " based on diet. Shouldn't take near as much money to

> > > > > > > > start and you can hire PhD trainers for sports therapy.

> > > > > > > > >

> > > > > > > > >

> > > > > > > > There are MANY that need physical therapy,

> > > > > > > > including almost everyone riding a Wal-mart ecart.

> > > > > > > > >

> > > > > > > > I've seen recovering cri

> > > >

> > >

> > >

> >

>

[Guest guest]

I didn't mention the breastfeeding because it was intended to be stopped by

now... I truly believe in the breastfeeding experience and to be honest, on my

roughest days, to have that 5-10 minute break (nursing) with a busy toddler and

the nap, is the only thing that saves me. I breastfed my other two to around

this point as well. I just don't want to stop too quickly and add more stress

to this whole picture. My husband is really on board and helps out with the

toddler as much as possible.

So, I guess I'm forced to stop in the next week or so for various reasons.

Yes, I believe in the DASHing. Some of my symptoms still are present though

when I'm dashing, vision etc. (blood pressure not high at that point,

aldosterone related?) so I'm really looking forward to those results!

I'll keep everyone posted....

Chantal

ps The endo specified a less than 2000mg/day sodium intake.

> > > > > > > > > >

> > > > > > > > > > What are the advantages in tumor removal (surgery

> > > > > > > > > right?) versus risk? And side effects, etc?

> > > > > > > > > > How likely is Medicare going to pay for the MRI to

> > > > > > > > > begin with, when a person has no symptoms other than

> > > > > > > > > treatable HTN?

> > > > > > > > > >

> > > > > > > > > > Talking about a series of expensive tests/surgery. I

> > > > > > > > > am reminded of the high PSA thing which leads to a

> > biopsy,

> > > > > > > > > when the cause is only BPH and that treatable with meds.

> > > > > > > > > >

> > > > > > > > > > To me, the real thing is how likely is the tumor

> > > > > > > > > cancerous?

> > > > > > > > > > I recall it was aid not likely?

> > > > > > > > >

>

[Guest guest]

I would not waste the money either as I think one would know if they has sx of

cushing.

> > > > > > > > >

> > > > > > > > > > From: Francis Bill <georgewbill@>

> > > > > > > > > > Subject: Re: Hyperaldo Review

> > for Dr.

> > > > > > > Grim - Urgent

> > > > > > > > > > hyperaldosteronism

> > > > > > > > > > Date: Sunday, October 18, 2009, 10:58 AM

> > > > > > > > > > If you feel OK then for you there

> > > > > > > > > > probably no need to do any more tests. What they can

> > learn

> > > > > > > > > > from CT and MRI is if the tumor is big enough to see

> > they

> > > > > > > > > > can make a good guess as to if it is cancerous or

> > not. Can't

> > > > > > > > > > be ruled out 100% If a tumor is seen and is below 4

> > CM and

> > > > > > > > > > doesn't look like cancer they will want to do A CT

> > or MRI 6

> > > > > > > > > > months later to see how fast in is growing. If it

> > size is

> > > > > > > > > > still about the same they will want to do A CT or

> > MIR a year

> > > > > > > > > > later. IF still the same size They may want to do a

> > CT or

> > > > > > > > > > MRI after a few years.

> > > > > > > > > >

> > > > > > > > > > If tumer is over 4 CM thay may what to do a biopsy

> > and if

> > > > > > > > > > it 6 cm they should do one. If CT or MRI show growth

> > They

> > > > > > > > > > will also want to do a biopsy.

> > > > > > > > > >

> > > > > > > > > > Since others are saying your sceerning test shows PA

> > then

> > > > > > > > > > your next test should be a aldosterone suppression

> > test. If

> > > > > > > >

>

[Guest guest]

I would think that some of your low K is because of breastfeeding

> > > > > > > > > > >

> > > > > > > > > > > What are the advantages in tumor removal (surgery

> > > > > > > > > > right?) versus risk? And side effects, etc?

> > > > > > > > > > > How likely is Medicare going to pay for the MRI to

> > > > > > > > > > begin with, when a person has no symptoms other than

> > > > > > > > > > treatable HTN?

> > > > > > > > > > >

> > > > > > > > > > > Talking about a series of expensive tests/surgery. I

> > > > > > > > > > am reminded of the high PSA thing which leads to a

> > > biopsy,

> > > > > > > > > > when the cause is only BPH and that treatable with meds.

> > > > > > > > > > >

> > > > > > > > > > > To me, the real thing is how likely is the tumor

> > > > > > > > > > cancerous?

> > > > > > > > > > > I recall it was aid not likely?

> > > > > > > > > >

> >

>

[Guest guest]

Actually, my potassium went low when I was in the process of weaning my

daughter. I've breastfed all 3 kids and never had potassium issues. I

researched the potassium thing and breastfeeding, minimal loss in breast milk.

Lots of women are breastfeeding and one does not have to worry about potassium.

Actually, magnesium loss is greater in BF moms.. My magnesium levels are normal

(I may ask for free magnesium levels) and now when I supplement (in the last two

months) with magnesium, I actually feel worse. I've tried on at least 3 diff.

occasions.

Obviously something else in the works..On 100-120 mEq per day supplement wise

and eating lots of dietary potassium... Only nursing 3 times per day which is

not a lot (infant 8-10 x/day).. Lots being flushed in my urine (24 hour

potassium urine) so obviously I am taking the potassium in but my body is not

holding on to it. It just keeps getting flushed out. Awaiting aldosterone

levels.

Thanks for all the input everyone, I appreciate it!

I'm holding off on the spiro until I get my results. By then I should be weaned

as well

TTFN

Chantal

s.com, " Francis Bill " <georgewbill@...> wrote:

>

> I would think that some of your low K is because of breastfeeding

>

>

> > > > > > > > > > > >

> > > > > > > > > > > > What are the advantages in tumor removal (surgery

> > > > > > > > > > > right?) versus risk? And side effects, etc?

> > > > > > > > > > > > How likely is Medicare going to pay for the MRI to

> > > > > > > > > > > begin with, when a person has no symptoms other than

> > > > > > > > > > > treatable HTN?

> > > > > > > > > > > >

> > > > > > > > > > > > Talking about a series of expensive tests/surgery. I

> > > > > > > > > > > am reminded of the high PSA thing which leads to a

> > > > biopsy,

> > > > > > > > > > > when the cause is only BPH and that treatable with meds.

> > > > > > > > > > > >

> > > > > > > > > > > > To me, the real thing is how likely is the tumor

> > > > > > > > > > > cancerous?

> > > > > > > > > > > > I recall it was aid not likely?

> > > > > > > > > > >

> > >

> >

>

[Guest guest]

If I go through the list, I actually appear to have all of them except:

straie abdomen

moon face...

I have hair loss (scalp), facial redness/increased vascularity, hypokalemia,

vision changes, cold/heat intolerance-it changes, palpitations (now and again),

pigmentation around mouth/eyes and a least 200-300 moles,puffy eyelids

(chronic-my eyes match their pictures!), abdominal weight gain and ribs are

bothersome lately (lower left/right, it appears fat can push on ribs???), hypo

and hyper hidrosis, carpal tunnel feet, hands esp. in AM, cycles

shorter/heavier, significant lower leg hair loss (below knee), cold/numbness in

feet ,

light sleeper, difficulty to maintain sleep..., muscle wasting, twitchy muscles,

cramping muscles, fatigue, brain fog, memory impairment, speech affected

sometimes, mood affected (high and low)

I have something that is always there but in diff. intensities.

I have a pulsatory or intermittent release of something that is really affecting

my system.

I will continue DASHing and await ARR...

Thanks

Chantal

> > > > > > > > > >

> > > > > > > > > > > From: Francis Bill <georgewbill@>

> > > > > > > > > > > Subject: Re: Hyperaldo Review

> > > for Dr.

> > > > > > > > Grim - Urgent

> > > > > > > > > > > hyperaldosteronism

> > > > > > > > > > > Date: Sunday, October 18, 2009, 10:58 AM

> > > > > > > > > > > If you feel OK then for you there

> > > > > > > > > > > probably no need to do any more tests. What they can

> > > learn

> > > > > > > > > > > from CT and MRI is if the tumor is big enough to see

> > > they

> > > > > > > > > > > can make a good guess as to if it is cancerous or

> > > not. Can't

> > > > > > > > > > > be ruled out 100% If a tumor is seen and is below 4

> > > CM and

> > > > > > > > > > > doesn't look like cancer they will want to do A CT

> > > or MRI 6

> > > > > > > > > > > months later to see how fast in is growing. If it

> > > size is

> > > > > > > > > > > still about the same they will want to do A CT or

> > > MIR a year

> > > > > > > > > > > later. IF still the same size They may want to do a

> > > CT or

> > > > > > > > > > > MRI after a few years.

> > > > > > > > > > >

> > > > > > > > > > > If tumer is over 4 CM thay may what to do a biopsy

> > > and if

> > > > > > > > > > > it 6 cm they should do one. If CT or MRI show growth

> > > They

> > > > > > > > > > > will also want to do a biopsy.

> > > > > > > > > > >

> > > > > > > > > > > Since others are saying your sceerning test shows PA

> > > then

> > > > > > > > > > > your next test should be a aldosterone suppression

> > > test. If

> > > > > > > > >

> >

>

[Guest guest]

You probably don't have to worry about potassium if you are normal. Have you

looked at this site.

http://www.merck.com/mmpe/sec12/ch156/ch156f.html#sec12-ch156-ch156f-777

> > > > > > > > > > > > >

> > > > > > > > > > > > > What are the advantages in tumor removal (surgery

> > > > > > > > > > > > right?) versus risk? And side effects, etc?

> > > > > > > > > > > > > How likely is Medicare going to pay for the MRI to

> > > > > > > > > > > > begin with, when a person has no symptoms other than

> > > > > > > > > > > > treatable HTN?

> > > > > > > > > > > > >

> > > > > > > > > > > > > Talking about a series of expensive tests/surgery. I

> > > > > > > > > > > > am reminded of the high PSA thing which leads to a

> > > > > biopsy,

> > > > > > > > > > > > when the cause is only BPH and that treatable with meds.

> > > > > > > > > > > > >

> > > > > > > > > > > > > To me, the real thing is how likely is the tumor

> > > > > > > > > > > > cancerous?

> > > > > > > > > > > > > I recall it was aid not likely?

> > > > > > > > > > > >

> > > >

> > >

> >

>

[Guest guest]

While cushings could be what you have I would take a closer look at SX.

I think after looking a bit more into cushings you will see more about SX. I

would take each SX and and do a search like this cushings and vision. Make sure

to put and between search terms.

> > > > > > > > > > >

> > > > > > > > > > > > From: Francis Bill <georgewbill@>

> > > > > > > > > > > > Subject: Re: Hyperaldo Review

> > > > for Dr.

> > > > > > > > > Grim - Urgent

> > > > > > > > > > > > hyperaldosteronism

> > > > > > > > > > > > Date: Sunday, October 18, 2009, 10:58 AM

> > > > > > > > > > > > If you feel OK then for you there

> > > > > > > > > > > > probably no need to do any more tests. What they can

> > > > learn

> > > > > > > > > > > > from CT and MRI is if the tumor is big enough to see

> > > > they

> > > > > > > > > > > > can make a good guess as to if it is cancerous or

> > > > not. Can't

> > > > > > > > > > > > be ruled out 100% If a tumor is seen and is below 4

> > > > CM and

> > > > > > > > > > > > doesn't look like cancer they will want to do A CT

> > > > or MRI 6

> > > > > > > > > > > > months later to see how fast in is growing. If it

> > > > size is

> > > > > > > > > > > > still about the same they will want to do A CT or

> > > > MIR a year

> > > > > > > > > > > > later. IF still the same size They may want to do a

> > > > CT or

> > > > > > > > > > > > MRI after a few years.

> > > > > > > > > > > >

> > > > > > > > > > > > If tumer is over 4 CM thay may what to do a biopsy

> > > > and if

> > > > > > > > > > > > it 6 cm they should do one. If CT or MRI show growth

> > > > They

> > > > > > > > > > > > will also want to do a biopsy.

> > > > > > > > > > > >

> > > > > > > > > > > > Since others are saying your sceerning test shows PA

> > > > then

> > > > > > > > > > > > your next test should be a aldosterone suppression

> > > > test. If

> > > > > > > > > >

> > >

> >

>

[Guest guest]

This is why I want her to look at her SX this way.

> > > > > > > > > > > > >

> > > > > > > > > > > > > That's sorta the thing in the PSA test. When I

> > talked to

> > > > > > > > > the Dr,

> > > > > > > > > > > I said: I believe if you do enough biopsies you

> > will find a

> > > > > > > > > > > carcinoma cell.

> > > > > > > > > > > > > Then that requires a chain of things I don't

> > want to

> > > > >

>

[Guest guest]

My urine potassium was 128 (25-130 mmol/d) done the one time when I was on 4 or

5 kdur and Dashing..

I had a serum cortisol done once -8 and 4 pm. and endo said it looked

ok...Again, no access to labs for me.

He also tested LH, FSH, estrogen and prolactin.

My estrogen was high but he stated it was due to where I was in my cycle most

likely....Also, I asked for further testing in the beginning for the pituitary

but he said that because the cortisol was normal and the fact that I could still

lactate, the pit. is OK.

Again, on verapamil sr 90mg bid and 5 kdur daily. I'm nursing 3 times daily

(I've reduced her feeds-weaning) and she is eating a regular diet.

Thanks for all the input

chantal

> > > > > > > > > > > >

> > > > > > > > > > > > That's sorta the thing in the PSA test. When I

> > talked to

> > > > > > > > the Dr,

> > > > > > > > > > I said: I believe if you do enough biopsies you will

> > find a

> > > > > > > > > > carcinoma cell.

> > > > > > > > > > > > Then that requires a chain of things I don't

> > want to think

> > > > > > > > about.

> > > > > > > > > > > > The alternative is to wait and recheck PSA - a

> > simple

> > > > > > test.

> > > > > > > > > > > > I could wait another 30 yrs before removing the

> > prostate.

> > > > > > > > > > > >

> > > > > > > > > > > > I think we're over testing and over surgering.

> > > >

>

[Guest guest]

I forgot to include this one:

urine potassium 38.8 mmol/L

> > > > > > > > > > > >

> > > > > > > > > > > > That's sorta the thing in the PSA test. When I

> > talked to

> > > > > > > > the Dr,

> > > > > > > > > > I said: I believe if you do enough biopsies you will

> > find a

> > > > > > > > > > carcinoma cell.

> > > > > > > > > > > > Then that requires a chain of things I don't

> > want to think

> > > > > > > > about.

> > > > > > > > > > > > The alternative is to wait and recheck PSA - a

> > simple

> > > > > > test.

> > > > > > > > > > > > I could wait another 30 yrs before removing the

> > prostate.

> > > > > > > > > > > >

> > > > > > > > > > > > I think we're over testing and over surgering.

> > > >

>

[Guest guest]

I see extra floaters.... The other symptoms is difficult to explain...

My vision change in my rt eye : I actually thought my sunglasses were

defective/dirty so I bought a new pair. Take your glasses and put fingerprints

on them. Now, look through them. This is what my second vision symptom is

like, not really blurry, not really hazy but..I can't find the appropriate term-

Like you are looking through glasses that need a cleaning? What is the

appropriate term-I have yet to find one that describes this vision change

accurately.

My third vision symptom is a subtle pressure on the eye- this doesn't occur

concurrently with vision symptom 1 and 2. My eye feels like it is bulging a

bit- I thought maybe this symptom was related to my eyelids being so puffy.

These symptoms are there most of the time but I get the odd break where my

vision is unaffected. In addition to this, I check my pressure to see if it is

pressure related and it isn't...

My endo. said the vision would be " double " if it was Cushing's and he indicated

that my eye symptoms are something else and discuss with family dr. She wants

an MRI because of the vision. My optometrist says my vision has worsened

slightly in that eye but my retina picture looked healthy. (2 months ago) I'm

seeing the opthamologist on the 18th of nov.

That's it on the vision thing

Thanks Again

much appreciated

Chantal

> > > > > > > > > > > > >

> > > > > > > > > > > > > That's sorta the thing in the PSA test. When I

> > talked to

> > > > > > > > > the Dr,

> > > > > > > > > > > I said: I believe if you do enough biopsies you

> > will find a

> > > > > > > > > > > carcinoma cell.

> > > > > > > > > > > > > Then that requires a chain of things I don't

> > want to

> > > > >

>

[Guest guest]

I would think that your optometrist checked you for cataracts and glaucoma.

> > > > > > > > > > > > > >

> > > > > > > > > > > > > > That's sorta the thing in the PSA test. When I

> > > talked to

> > > > > > > > > > the Dr,

> > > > > > > > > > > > I said: I believe if you do enough biopsies you

> > > will find a

> > > > > > > > > > > > carcinoma cell.

> > > > > > > > > > > > > > Then that requires a chain of things I don't

> > > want to

> > > > > >

> >

>

[Guest guest]

I had produced 3300ml (normal 400-1800ML) of urine on that day. I was also on

4-5 k-dur (100-120meq/day) at the time and the endo wanted me on sodium at the

time, did not want me to limit salt (wanted me on 2000mg/day) I think at that

point I was on less than that. I was super scared of sodium at that time... I

increased my sodium for my ARR only...I had only the one 24 hour urine and it

was at my request.

Thanks again,

chantal

Now that I " m dashing I can ask my family doctor to do another 24 hour urine and

do the calculation...

>

> I also need to have the total volume of the urine to get how much K you are

eating.

>

> If you make 2 L of urine a day then you are eating abut 39 mM/L x 2L = 78 mM K

per day. The DASH diet should have about 2.5 x this K. So you were not

DASHing at that time.,

>

[Guest guest]

Yes, did the glaucoma check, it was OK. BTW, I went to the cushing help site

once again (a great site) and looked over all my symptoms... a lot fit and a lot

there is overlap. I can't wait to get my ARR to get a diagnosis or move on..

thanks for all the great input!

Chantal

going to make my oj, banana, avocado, flax, gojo berry, spirula, wheat germ,

pumpkin seed smoothy and pop my potassium:)

Still having a good day, on a bit of a high yet, actually sweating a lot more,

gone the opposite, last week freezing cold and this week, heat intolerant!

Actually made it through the night without a bathroom trip and slept 5 straight

hours! My thirst is increasing though so I have a feeling I'm going to

switch back again so I'm going to DASH to the max and more!

> > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > That's sorta the thing in the PSA test. When I

> > > > talked to

> > > > > > > > > > > the Dr,

> > > > > > > > > > > > > I said: I believe if you do enough biopsies you

> > > > will find a

> > > > > > > > > > > > > carcinoma cell.

> > > > > > > > > > > > > > > Then that requires a chain of things I don't

> > > > want to

> > > > > > >

> > >

> >

>

[Guest guest]

As I said a while ago my brother has Sarcoidosis. As a result of being treated

with Prednisone he has cushings. Both the Sarcoidosis and the Prednisone have

affected his eyes. Your vision problem sound a lot like what the Sarcoidosis did

to his. With treatent his eye site is normal but has to have his eyes checked

very often.

The prednisone caused cataracts. So had to have them removed.

You might want to see how your SX match diseases that cause inflammation or

autoimmune diseases.

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > > That's sorta the thing in the PSA test. When I

> > > > > talked to

> > > > > > > > > > > > the Dr,

> > > > > > > > > > > > > > I said: I believe if you do enough biopsies you

> > > > > will find a

> > > > > > > > > > > > > > carcinoma cell.

> > > > > > > > > > > > > > > > Then that requires a chain of things I don't

> > > > > want to

> > > > > > > >

> > > >

> > >

> >

>

[Guest guest]

I think if eye Dr does there job then will most likey learn something.

> >

>

[Guest guest]

If my calculations are right 3300ml is about 3.5 US gal.

> >

> > I also need to have the total volume of the urine to get how much K you are

eating.

> >

> > If you make 2 L of urine a day then you are eating abut 39 mM/L x 2L = 78 mM

K per day. The DASH diet should have about 2.5 x this K. So you were not

DASHing at that time.,

> >

>

[Guest guest]

3.3 litres is about 0.87 US gallons

> > >

> > > I also need to have the total volume of the urine to get how much K you

are eating.

> > >

> > > If you make 2 L of urine a day then you are eating abut 39 mM/L x 2L = 78

mM K per day. The DASH diet should have about 2.5 x this K. So you were not

DASHing at that time.,

> > >

> >

>

[Guest guest]

I see now I missed a step. I guess from brain fog.

> > > >

> > > > I also need to have the total volume of the urine to get how much K you

are eating.

> > > >

> > > > If you make 2 L of urine a day then you are eating abut 39 mM/L x 2L =

78 mM K per day. The DASH diet should have about 2.5 x this K. So you were

not DASHing at that time.,

> > > >

> > >

> >

>

[Guest guest]

I can't find it but didn't you say you had at least two blood test done at

different times on the same day for cortisol. From what I read this should have

given some clue as to having cushings.

> > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > > That's sorta the thing in the PSA test. When I

> > > > > talked to

> > > > > > > > > > > > the Dr,

> > > > > > > > > > > > > > I said: I believe if you do enough biopsies you

> > > > > will find a

> > > > > > > > > > > > > > carcinoma cell.

> > > > > > > > > > > > > > > > Then that requires a chain of things I don't

> > > > > want to

> > > > > > > >

> > > >

> > >

> >

>

[Guest guest]

Might be best for us all to stick with metric units as once you start on quarts

and gallons there are both US quarts (946ml) & gallons (3785ml) and Imperial

quarts (1137ml) and gallons (4546ml) with a significant difference between the

two systems.

> > > >

> > > > I also need to have the total volume of the urine to get how much K you

are eating.

> > > >

> > > > If you make 2 L of urine a day then you are eating abut 39 mM/L x 2L =

78 mM K per day. The DASH diet should have about 2.5 x this K. So you were not

DASHing at that time.,

> > > >

> > >

> >

>

[Guest guest]

I have no doubt that if any of us went to see you it would be you that would do

the research. Many of us don't have doctors that do this. It is true there any

many false leads but in the end most can sort them out. Since many of feel very

hopeless because we can find no help we do not mind doing a very long and

bothersome task.

> > > > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > > > > That's sorta the thing in the PSA

> > test. When I

> > > > > > > talked to

> > > > > > > > > > > > > > the Dr,

> > > > > > > > > > > > > > > > I said: I believe if you do enough

> > biopsies you

> > > > > > > will find a

> > > > > > > > > > > > > > > > carcinoma cell.

> > > > > > > > > > > > > > > > > > Then that requires a chain of things

> > I don't

> > > > > > > want to

> > > > > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

> >

>

[Guest guest]

I have no doubt that if any of us went to see you it would be you that would do

the research. Many of us don't have doctors that do this. It is true there any

many false leads but in the end most can sort them out. Since many of feel very

hopeless because we can find no help we do not mind doing a very long and

bothersome task.

> > > > > > > > > > > > > > > > > >

> > > > > > > > > > > > > > > > > > That's sorta the thing in the PSA

> > test. When I

> > > > > > > talked to

> > > > > > > > > > > > > > the Dr,

> > > > > > > > > > > > > > > > I said: I believe if you do enough

> > biopsies you

> > > > > > > will find a

> > > > > > > > > > > > > > > > carcinoma cell.

> > > > > > > > > > > > > > > > > > Then that requires a chain of things

> > I don't

> > > > > > > want to

> > > > > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

> >

>