Guest guest Posted November 29, 2000 Report Share Posted November 29, 2000 Ahhh phooey on the school!! whyyyyyy do they make everything so difficult Sara gets her medicine before school and then at night. Heehee I don't think Sara's school would give me a hard time about her medicine, if she had to take it at school. Ive been up there at lunch time and the line for medicine goes out into the hallway. Good news about the cyst, as Sara's DR told me " noooooo tumor " with a heavy accent lol Kathy mom to Sara 8 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2000 Report Share Posted November 29, 2000 , you may want to share a copy of the " flag pole " mom story with the school. Ask them if they really want to have something like that happen at their school... just a thought. Kim. MRI results are in Whew...finally got the report in yesterday. does not have a cyst!! He has a small cerebellum (common for DS) and that would not cause the seizures. The cause of the seizure is UNKNOWN (actually most are unknown). He is tolerating the medicine well. I bought him colace for the constipation (his tummy was hard as a rock this afternoon). He refuses to take the colace..hummmm...everything else he takes fine. The pharmacist did tell me that the Bactrim would probably loosen up his stools...well tonight they did!! I am having a problem with the school and the medication. The rx says one thing...I wrote down the instructions (we have to bump the dose up every four days) and faxed this memo to the school with a cc to the Dr. Meanwhile, I send a copy of the medication form along with the memo (I put see Memo on the paper)...the Dr finally signs the form today and faxes it back. But the school will not allow it because the doctor did not write down the exact dosing. The Dr abbreviated it on paper when I was there (not on the rx though) and I understood it. I even made a note on the fax to the doctor to review and make sure I had it down. Sheesh!! Then yesterday, the nurse said they didn't think he needed the medication at school. He gets a dose at 6 am, one at 1:30 and the third one at 9:00 (bedtime). I told her, " what, I am suppose to quit my job so I can give him medication in the afternoon " . GEESH!!!!!!!!!!!!! What is their problem???? I had bought a box of fancy cookies at Trader Joes and was going to take it in to the school nurse. Not after that comment yesterday...I took them into work instead, hehehe!! Tim and I are giving his medication at school for now....not sure how much longer we can do this. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2000 Report Share Posted November 30, 2000 , Stick to your guns. I had to take Willie's Prescription bottle into the nurse's office and I asked the pharmasist for an extra the last time I had his Adderall filled. Other wise I would be doing the same thing! Hugs beth " The right to be heard does not automatically include the right to be taken seriously. " - Hubert Humphrey http://www.twinenterprises.com/trach/trachkids/kids2/br ittany.htm Beth(HMS) mom to beth 8(HMS), Brit 7 DS,tracheomalacia,asthma and reflux/corrected), and Willie 6 who is onry only. _________________________________________________________________ iVillage.com: Solutions for Your Life Check out the most exciting women's community on the Web http://www.ivillage.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2000 Report Share Posted November 30, 2000 In a message dated 11/30/00 12:38:30 PM Eastern Standard Time, Dawn.Shaw@... writes: << It's not for the school nurse to decide when he needs his medication!!!!! >> Of course you are right--it is not up to the school nurse to decided time of delievery of a medication--however he/she is governed by laws that require certain things. One is clear directions from the doctor that is attached to the medication and many states also require a written permission from the parent as well. S/he has to dot all her " i " s and cross all her " t " s. nancy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2000 Report Share Posted November 30, 2000 , It's not for the school nurse to decide when he needs his medication!!!!! Yikes, they drive you nuts huh? The Dr. makes that choice, not her. Sorry, this just gets me that they think they can second guess a prescription from a dr. and not just do their job!!!!!!!!! Dawn (mom to 7ds) I am having a problem with the school and the medication. The rx says one thing...I wrote down the instructions (we have to bump the dose up every four days) and faxed this memo to the school with a cc to the Dr. Meanwhile, I send a copy of the medication form along with the memo (I put see Memo on the paper)...the Dr finally signs the form today and faxes it back. But the school will not allow it because the doctor did not write down the exact dosing. The Dr abbreviated it on paper when I was there (not on the rx though) and I understood it. I even made a note on the fax to the doctor to review and make sure I had it down. Sheesh!! Then yesterday, the nurse said they didn't think he needed the medication at school. He gets a dose at 6 am, one at 1:30 and the third one at 9:00 (bedtime). I told her, " what, I am suppose to quit my job so I can give him medication in the afternoon " . GEESH!!!!!!!!!!!!! What is their problem???? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2003 Report Share Posted April 24, 2003 , I'm glad you are going to have another opinion. It's always better when surgery is suggested. My Mom had tennis elbow that wouldn't respond to any treatment. Out of desperation, she tried acupuncture, and it was very successful and has not returned. But my Mom doesn't have RA, so I'm not sure if that makes a difference. It may be worth a try if it avoids surgery. Tennis Elbow (Lateral Epicondylitis) Shock Wave Helps Tennis Elbow http://content.health.msn.com/content/article/48/39175.htm Acupuncture's Analgesic Effect on Tennis Elbow Pain http://acupuncture.com/Research/Elbow.htm Acupuncture for Tennis Elbow Study Suggests Treatment Is Effective, Even in Difficult Cases http://www.acupuncturetoday.com/archives2001/feb/02elbow.html http://www.nlm.nih.gov/medlineplus/elbowinjuriesanddisorders.html http://www.scoi.com/teniselb.htm http://www.medinfo.co.uk/conditions/tenniselbow.html http://www.intelihealth.com/IH/ihtIH/WSIHW000/9339/23813.html a > Hi, My doc. just called to say MRI showed ligament and tendon damage. > At first he said he wanted to operate to do a nerve release. Now he > says take out damaged parts and reattach good ligament and tendon to > bone. 6 to 9 months recovery. > Thats a little different. > I am going for another opinion. > Whitehouse, > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2004 Report Share Posted September 29, 2004 -Hi Dick, I'm sorry I can't remember your meds. They traced numbness and tingling in my hands and feet to remicade. I know other meds cn case neuropathy as well. Hope you find an answer, Marti - In , " woodworkerdp " <woodworkerdp@y...> wrote: > The MRI results are back and I don't have a pinched nerve. It did > show Osteoarthritis and joint deterioration which we already new but > not pinched nerve. So now it's back to the family doctor (internal > medicine) to continue trying to find out what is causing the > numbness in my arms, hands and fingers. I can't hold on to a > magazine to read without my hands and arms going numb and I also > drop a lot of things. It gets very discouraging. > > I have had the carpel tunnel test done and no carpel tunnel and now > the MRI and no pinched nerve. Does anyone know what else could > cause the numbness in the arms, hands and fingers? Any suggestions > to take to the doctors would be appreciated. I do have swelling in > the wrist from the arthritis but was told that wouldn't cause > numbness. > > Thanks > > Dick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2004 Report Share Posted September 30, 2004 I know when I had my first nerve conduction study that they only tested from the forearm to the fingertips. If they applied the " jolt " above the elbow and hooked the probes to your fingers, then the elbow was included. In my second test, they had me fold my arms at the elbow and wait several minutes. Even then, the signal was only very slightly delayed. I do know that arthritis is mentioned as a complicating factor in many of the articles you find on the net about ulnar neuropathy. I also know how uncomfortable and unsettling it is and I hope they get to the bottom of it soon! Good luck, keep reading and asking questions. Steve > > I have the same condition. I had a nerve conductivity test done > which showed nerve pinching in the elbows - even though I have some > pins and needles sensation above the elbow as well. > > > > Greg. > > [ ] MRI Resluts Are In > > > > > > The MRI results are back and I don't have a pinched nerve. It > did > > show Osteoarthritis and joint deterioration which we already new > but > > not pinched nerve. So now it's back to the family doctor > (internal > > medicine) to continue trying to find out what is causing the > > numbness in my arms, hands and fingers. I can't hold on to a > > magazine to read without my hands and arms going numb and I also > > drop a lot of things. It gets very discouraging. > > > > I have had the carpel tunnel test done and no carpel tunnel and > now > > the MRI and no pinched nerve. Does anyone know what else could > > cause the numbness in the arms, hands and fingers? Any > suggestions > > to take to the doctors would be appreciated. I do have swelling > in > > the wrist from the arthritis but was told that wouldn't cause > > numbness. > > > > Thanks > > > > Dick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2004 Report Share Posted September 30, 2004 - Hi Dick, Here is a link that talks about nerves and different causes for the problems with them. meds, RA, are mentioned...I know lipitor was one of the listed meds that can cause it...I am taking zocor. also...cancer meds...which could include MTX.maybe you could ask your doc about holding one to see if your problem improves. http://www.mayoclinic.com/invoke.cfm?objectid=299185F1-834D-4191- 9573A9B58C3D3D6B & dsection=3 it sure can et comlicated and discouraging! Marti -- In , " woodworkerdp " <woodworkerdp@y...> wrote: > Thank you everyone, > > This is a list of the meds I am now on. At the time the numbness > started, about 4 years ago, I wasn't on any of these meds. As time > has gone on, the numbness has gotten worse. As I noted, I can't > even hold a magazine without my hands and arms going numb. > > I see the doctor in the morning and will mention about the elbow. > Did x-rays show the condition, Or is there another test that needs > to be done to the elbow? I thought the elbows were test when I had > the carpel tunnel test done. Is this a different test? > > Lipitor, 40 mg, > > Methotrexate, 2.5 mg, 5 a week > > Folic Acid, 400 mcg, 6 a day > > Diovan, 80/12.5, > > Nexium, 40 mg, > > Torsemide, 20 mg > > Potassium, 595 mg > > Temazepam, 15mg > > Enbrel, 25mg vial, injections twice a week > > Mobic, 7.5 mg, 1 - 2 > > Ultracet, 0-M/650, 1 or 2 tablets 4 times a Day > > Hydrocodone/APAP 10/500 TABMCK, > > Foradil Aerolizer, 12mcg > > Pulmicort, 200mcg, > > Blephamide Opth. Susp, 10ml > > Singulair, 10 mg > > Alabutterol Inhaler > > > > Thanks for all your help. > > > > > I have the same condition. I had a nerve conductivity test done > which showed nerve pinching in the elbows - even though I have some > pins and needles sensation above the elbow as well. > > > > Greg. > > [ ] MRI Resluts Are In > > > > > > The MRI results are back and I don't have a pinched nerve. It > did > > show Osteoarthritis and joint deterioration which we already new > but > > not pinched nerve. So now it's back to the family doctor > (internal > > medicine) to continue trying to find out what is causing the > > numbness in my arms, hands and fingers. I can't hold on to a > > magazine to read without my hands and arms going numb and I also > > drop a lot of things. It gets very discouraging. > > > > I have had the carpel tunnel test done and no carpel tunnel and > now > > the MRI and no pinched nerve. Does anyone know what else could > > cause the numbness in the arms, hands and fingers? Any > suggestions > > to take to the doctors would be appreciated. I do have swelling > in > > the wrist from the arthritis but was told that wouldn't cause > > numbness. > > > > Thanks > > > > Dick Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2005 Report Share Posted October 11, 2005 louise, So happy to hear that this was something simple and treatable. This diagnosis certainly makes sense. We all have a tendancy to think the worse, especially with our children. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2005 Report Share Posted October 11, 2005 What wonderful news louise!! You're the mom and you know your child the best. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2005 Report Share Posted October 12, 2005 louise, So relieved to hear the results. Now you know what to expect if she has another sinus infection. I'm surprised she never spiked a fever. My soon to be 3 year old with CMT has also had sinus problems. After a course of antibiotics and contstant post nasal drip and cough, My pediatrician called with his MRI results ( which was done for his nuero workup before his CMT diagnosis) showing inus inflamation and asked if he was symptomatic...yes like I've been trying to tell you. Although he was only 18 months at the time I can imagine he too had a headache. I am right there with you. The constant worring about their health. The latest with has been a persistant hives lasting 5 weeks with no relieve from Zertec. We finnally saw an alllergist since he also has asthma. It is not a allergic reaction but possibly a histamine reaction to a virus he might have had 7 weeks ago or a disease process manifesting as a rash and will need further blood test if he doesn't respond to a 2 week course of Zertec. So of course I too think of the worst and fear the possibility of putting him through more blood test. He has had at least 6 different blood draws for gentic testing and the ruling out process. Take Care Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2005 Report Share Posted October 13, 2005 HI, Louise I am so happy to hear the MRI results. I am sorry Katelyn has an infection but happy that is all it is. My kids have really scared me only to find out it was nothing. What a great feeling " Nothing " is .. I hope we can help you in the future. Quote Link to comment Share on other sites More sharing options...
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