Guest guest Posted October 3, 2009 Report Share Posted October 3, 2009 I am not sure it is related to Conn's. For me, it is related to the high doses of blood pressure medication they have me on. For me, it is a feeling of general weakness that hits about an hour after meds, sometimes combined with tachycardia. Mentally, while you can think, you tend to miss details - which is why I do not drive during the first three hours after dosing. I don't feel drunk, but I miss steps in a process - like forgetting to check behind my left shoulder when changing lanes. I can make the car forward at speed and react to what's in front of me, but I may forget to do something essential in the process of driving. It's more like being hungover than drunk, but without the headache (unless the BP is out of control, then you get a headache too). Does this jibe with other people's experience? Bindner Web Directory (links to my sites and blogs): http://www.geocities.com/mikeybdc/index.html http://mikeybdc.blogspot.com Yes I would like to have somekind of diagnosis Be it Conn's or something else. I also want to help others that are struggling for a diagnosis. Many SX for Conn's are unheard of for most doctors and many of them one can't really explain in a may that make sense to there doctors. So to help others and my self we need all the help we can get. We need information in ways that makes sense to us. It needs to be readily available. Right now this group seem to be the place to get this information. However the way this site works much good informatiom is very hard to find. More should be in files but right now it is almost imposable to look at all the emails edit what is useful information and put it in the files. Polls can be used by any one If the information only helps one person then that person gets the answer he needs. If the information is useful to every one it can be put in a file. >> I think he is really struggling for a diagnosis and is trying to see what> others have experienced. Been there, done that.> > Val> > From: hyperaldosteronism> [mailto:hyperaldosteronism] On Behalf Of Clarence Grim> > > In general we recommend review by our group before polls are done. Helps> minimize GIGO. > > AKA garbage in, garbage out.> > I think your poll with not yield much, but will wait till you get feedback.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2009 Report Share Posted October 3, 2009 One final thing - with exertion (something as simple as taking a shower, running for the bus - even walking to the bus or standing up on the train, or carrying wash down stairs and walking back up - like just now) makes the symptoms worse - including the tachycardia as well as a disturbing straining feeling in the veins and arteries of the neck - right around the where the neck meets the jaw. Bindner Web Directory (links to my sites and blogs): http://www.geocities.com/mikeybdc/index.html http://mikeybdc.blogspot.com Yes I would like to have somekind of diagnosis Be it Conn's or something else. I also want to help others that are struggling for a diagnosis. Many SX for Conn's are unheard of for most doctors and many of them one can't really explain in a may that make sense to there doctors. So to help others and my self we need all the help we can get. We need information in ways that makes sense to us. It needs to be readily available. Right now this group seem to be the place to get this information. However the way this site works much good informatiom is very hard to find. More should be in files but right now it is almost imposable to look at all the emails edit what is useful information and put it in the files. Polls can be used by any one If the information only helps one person then that person gets the answer he needs. If the information is useful to every one it can be put in a file. >> I think he is really struggling for a diagnosis and is trying to see what> others have experienced. Been there, done that.> > Val> > From: hyperaldosteronism> [mailto:hyperaldosteronism] On Behalf Of Clarence Grim> > > In general we recommend review by our group before polls are done. Helps> minimize GIGO. > > AKA garbage in, garbage out.> > I think your poll with not yield much, but will wait till you get feedback.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2009 Report Share Posted October 3, 2009 See I'm not on a lot of BP meds but I still have lots of brain fog. I have to be super cautious driving because I experience the same things as you. I actually backed into something a month ago. It is a real eye-opener. Scary. Its one of those fun things. You're having a conversation and you completely forget what you want to say next...Or when you call directory assistance for a phone number and panic because you have to dial real fast or you'll completely forget the number. Better yet, doing math with your 11 year old and have to think " real " hard. Perhaps after the meds it has something to do with the blood pressure change (in your case) because of some kind of physiological compensation?? > > > > I think he is really struggling for a diagnosis and is trying to see what > > others have experienced. Been there, done that. > > > > Val > > > > From: hyperaldosteronism > > [mailto:hyperaldosteronism] On Behalf Of Clarence Grim > > > > > > In general we recommend review by our group before polls are done. Helps > > minimize GIGO. > > > > AKA garbage in, garbage out. > > > > I think your poll with not yield much, but will wait till you get feedback. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2009 Report Share Posted October 3, 2009 I am in the same boat as Chantal. I take Spiro and potassium but feel "brain fog" most all the time. My energy level stays pretty low and I have blamed it on that, but I find myself so confused that I struggle alot just remembering why I went to the grocery store. I write lists for everything but half the time forget to bring the list. I am extremely forgetful at work and even have trouble in conversations keeping focused.It's almost like a daze or just going thru the motions. It reminds me of the progesterone induced brain fog I had during pregnancy. Lori From: Chantal <chantalrobichaud29@...>Subject: Re: Brain Fog Experienceshyperaldosteronism Date: Saturday, October 3, 2009, 4:29 PM See I'm not on a lot of BP meds but I still have lots of brain fog. I have to be super cautious driving because I experience the same things as you. I actually backed into something a month ago. It is a real eye-opener. Scary. Its one of those fun things. You're having a conversation and you completely forget what you want to say next...Or when you call directory assistance for a phone number and panic because you have to dial real fast or you'll completely forget the number. Better yet, doing math with your 11 year old and have to think "real" hard. Perhaps after the meds it has something to do with the blood pressure change (in your case) because of some kind of physiological compensation? ? > >> > I think he is really struggling for a diagnosis and is trying to see what> > others have experienced. Been there, done that.> > > > Val> > > > From: hyperaldosteronism> > [mailto:hyperaldost eronism] On Behalf Of Clarence Grim> > > > > > In general we recommend review by our group before polls are done. Helps> > minimize GIGO. > > > > AKA garbage in, garbage out.> > > > I think your poll with not yield much, but will wait till you get feedback.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2009 Report Share Posted October 3, 2009 I know what you are talking about when you say it is like being in a daze. Can you decribe the feeling of being in a daze. If you are like my you realy can't. > > > > > > I think he is really struggling for a diagnosis and is trying to see what > > > others have experienced. Been there, done that. > > > > > > Val > > > > > > From: hyperaldosteronism > > > [mailto:hyperaldost eronism] On Behalf Of Clarence Grim > > > > > > > > > In general we recommend review by our group before polls are done. Helps > > > minimize GIGO. > > > > > > AKA garbage in, garbage out. > > > > > > I think your poll with not yield much, but will wait till you get feedback. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2009 Report Share Posted October 3, 2009 It's like it takes longer to process things, like being in a state of slow animation or something.Like the lights are on but nobody's home ! LOLVery difficult to function most days. From: Francis Bill <georgewbill@...>Subject: Re: Brain Fog Experienceshyperaldosteronism Date: Saturday, October 3, 2009, 7:01 PM I know what you are talking about when you say it is like being in a daze. Can you decribe the feeling of being in a daze. If you are like my you realy can't. > > >> > > I think he is really struggling for a diagnosis and is trying to see what> > > others have experienced. Been there, done that.> > > > > > Val> > > > > > From: hyperaldosteronism> > > [mailto:hyperaldost eronism@ groups. com] On Behalf Of Clarence Grim> > > > > > > > > In general we recommend review by our group before polls are done. Helps> > > minimize GIGO. > > > > > > AKA garbage in, garbage out.> > > > > > I think your poll with not yield much, but will wait till you get feedback.> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2009 Report Share Posted October 3, 2009 And it is like an out of body experience (if I can call it that). You seem to go through the motions without really feeling what you are doing. And I too have anxiety driving my vehicle when I am like this as you do not feel 100% in control.... From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Lori Sent: Sunday, 4 October 2009 11:11 AM hyperaldosteronism Subject: Re: Re: Brain Fog Experiences It's like it takes longer to process things, like being in a state of slow animation or something.Like the lights are on but nobody's home ! LOLVery difficult to function most days. From: Francis Bill <georgewbill@...> Subject: Re: Brain Fog Experiences hyperaldosteronism Date: Saturday, October 3, 2009, 7:01 PM I know what you are talking about when you say it is like being in a daze. Can you decribe the feeling of being in a daze. If you are like my you realy can't. > > > > > > I think he is really struggling for a diagnosis and is trying to see what > > > others have experienced. Been there, done that. > > > > > > Val > > > > > > From: hyperaldosteronism > > > [mailto:hyperaldost eronism] On Behalf Of Clarence Grim > > > > > > > > > In general we recommend review by our group before polls are done. Helps > > > minimize GIGO. > > > > > > AKA garbage in, garbage out. > > > > > > I think your poll with not yield much, but will wait till you get feedback. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2009 Report Share Posted October 3, 2009 Read what others on the list have written http://f1.grp.fs.com/v1/wB3ISkp45r7zfX-JrgG16VxwnBkmfCYLYqG2x2_G0eyrk_1sAvOw7YC0DV07LXzNXzVE_xGm8lk49GFXym2AgVYed8IV/Conn%27s%20-%20Member%20Comments/Symptoms%20comments.doc This is in Files/Conn's/Member Comments Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Francis Bill I know what you are talking about when you say it is like being in a daze. Can you decribe the feeling of being in a daze. If you are like my you realy can't. > > I am in the same boat as Chantal. I take Spiro and potassium but feel " brain fog " most all the time. My energy level stays pretty low and I have blamed it on that, but I find myself so confused that I struggle alot just remembering why I went to the grocery store. I write lists for everything but half the time forget to bring the list. I am extremely forgetful at work and even have trouble in conversations keeping focused.It's almost like a daze or just going thru the motions. It reminds me of the progesterone induced brain fog I had during pregnancy. Lori > > From: Chantal <chantalrobichaud29@...> > See I'm not on a lot of BP meds but I still have lots of brain fog. I have to be super cautious driving because I experience the same things as you. I actually backed into something a month ago. It is a real eye-opener. Scary. > Its one of those fun things. You're having a conversation and you completely forget what you want to say next...Or when you call directory assistance for a phone number and panic because you have to dial real fast or you'll completely forget the number. Better yet, doing math with your 11 year old and have to think " real " hard. > Perhaps after the meds it has something to do with the blood pressure > change (in your case) because of some kind of physiological compensation? ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2009 Report Share Posted October 3, 2009 Can someone add the most recent comments about our ‘brain fogs’ to the list attached by the link below, as it makes it more relevant for the new members. It still blows my mind that all our medical practitioners fail to pay any real attention to this very difficult aspect of our illness. On 17 August 2009 I was booked in for a day surgery procedure that went horribly wrong and I had to stay in hospital 5 days due to serious problems . In that timeframe my BP dropped to around 98/55 which was unbelievable given that it generally sits around 150/90 (on a good day). Because of the low BP all medications I was on (spironolactone and atacand) were ceased, and the specialist advised me that my adrenals had suffered a shock from the surgery and it would take around six weeks for them to recover. Well, with the exception of a couple of days from that time frame, my BP has generally sat around 130/70 which is fantastic and completely foreign to me. I have completely ceased taking spiro at this stage and am only taking my 16mg of Atacand in the PM of every day and this seems to be keeping my BP at the 130/70 level. The reason I raise this however, is that after my regular monthly blood tests I had last week the Dr telephoned me to advise that my creatinine levels were too high and she straight away blamed the spiro. I pointed out that I was not on spiro so tomorrow I start my 24 hour urine collection to see what that shows. What is also interesting is that I have been feeling rather anxious since the whole hospital episode which I put down to that event giving me a scare. But now I am wondering if my aldosterone levels are higher than I think (albeit not currently reflected in my BP readings) and that this may be a link to the anxiety. I was diagnosed after AVS in July 08 of suffering bilateral hyperplasia PHA so I am looking forward to seeing what the current aldo reading is. I have only been working part time but start working some full days this week (the first time in 20 months), so I shall also be interested in seeing what effect that has on my BP. From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Valarie Sent: Sunday, 4 October 2009 3:21 PM hyperaldosteronism Subject: RE: Re: Brain Fog Experiences Read what others on the list have written http://f1.grp.fs.com/v1/wB3ISkp45r7zfX-JrgG16VxwnBkmfCYLYqG2x2_G0eyrk_1sAvOw7YC0DV07LXzNXzVE_xGm8lk49GFXym2AgVYed8IV/Conn%27s%20-%20Member%20Comments/Symptoms%20comments.doc This is in Files/Conn's/Member Comments Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Francis Bill I know what you are talking about when you say it is like being in a daze. Can you decribe the feeling of being in a daze. If you are like my you realy can't. > > I am in the same boat as Chantal. I take Spiro and potassium but feel " brain fog " most all the time. My energy level stays pretty low and I have blamed it on that, but I find myself so confused that I struggle alot just remembering why I went to the grocery store. I write lists for everything but half the time forget to bring the list. I am extremely forgetful at work and even have trouble in conversations keeping focused.It's almost like a daze or just going thru the motions. It reminds me of the progesterone induced brain fog I had during pregnancy. Lori > > From: Chantal <chantalrobichaud29@...> > See I'm not on a lot of BP meds but I still have lots of brain fog. I have to be super cautious driving because I experience the same things as you. I actually backed into something a month ago. It is a real eye-opener. Scary. > Its one of those fun things. You're having a conversation and you completely forget what you want to say next...Or when you call directory assistance for a phone number and panic because you have to dial real fast or you'll completely forget the number. Better yet, doing math with your 11 year old and have to think " real " hard. > Perhaps after the meds it has something to do with the blood pressure > change (in your case) because of some kind of physiological compensation? ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2009 Report Share Posted October 4, 2009 Yes, my experience is similar. I can feel when it is coming on. I can't connect it to any specific thing like timing of taking medications. It feels random. I experience it as feeling light-headed (similar to the first time I had a glass of wine). I cannot trust myself to drive safely or make decisions. I become forgetful. I get to a point where I just have to lie down and sleep. It is extremely uncomfortable and debilitating. I feel somehow disconnected from what's going on around me. I hate it. I have in the past taken antidepressants - they also made me feel strange in the head, but this is a different experience again. Carol megra0409 wrote: > > > And it is like an out of body experience (if I can call it that). You > seem to go through the motions without really feeling what you are > doing. And I too have anxiety driving my vehicle when I am like this > as you do not feel 100% in control.... > > > > *From:* hyperaldosteronism > [mailto:hyperaldosteronism ] *On Behalf Of *Lori > *Sent:* Sunday, 4 October 2009 11:11 AM > *To:* hyperaldosteronism > *Subject:* Re: Re: Brain Fog Experiences > > > > > > It's like it takes longer to process things, like being in a state of > slow animation or something.Like the lights are on but nobody's home ! > LOLVery difficult to function most days. > > > From: Francis Bill <georgewbill@...> > Subject: Re: Brain Fog Experiences > hyperaldosteronism > Date: Saturday, October 3, 2009, 7:01 PM > > > > I know what you are talking about when you say it is like being in a > daze. Can you decribe the feeling of being in a daze. If you are like > my you realy can't. > > > > > > > > > > I think he is really struggling for a diagnosis and is trying to > see what > > > > others have experienced. Been there, done that. > > > > > > > > Val > > > > > > > > From: hyperaldosteronism > > > > [mailto:hyperaldost eronism] On Behalf Of > Clarence Grim > > > > > > > > > > > > In general we recommend review by our group before polls are > done. Helps > > > > minimize GIGO. > > > > > > > > AKA garbage in, garbage out. > > > > > > > > I think your poll with not yield much, but will wait till you > get feedback. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2009 Report Share Posted October 4, 2009 Yes, my experience is similar. I can feel when it is coming on. I can't connect it to any specific thing like timing of taking medications. It feels random. I experience it as feeling light-headed (similar to the first time I had a glass of wine). I cannot trust myself to drive safely or make decisions. I become forgetful. I get to a point where I just have to lie down and sleep. It is extremely uncomfortable and debilitating. I feel somehow disconnected from what's going on around me. I hate it. I have in the past taken antidepressants - they also made me feel strange in the head, but this is a different experience again. Carol Lori wrote: > > > I am in the same boat as Chantal. I take Spiro and potassium but feel > " brain fog " most all the time. My energy level stays pretty low and I > have blamed it on that, but I find myself so confused that I struggle > alot just remembering why I went to the grocery store. I write lists > for everything but half the time forget to bring the list. I am > extremely forgetful at work and even have trouble in conversations > keeping focused.It's almost like a daze or just going thru the > motions. It reminds me of the progesterone induced brain fog I had > during pregnancy. Lori > > > > From: Chantal <chantalrobichaud29@...> > Subject: Re: Brain Fog Experiences > hyperaldosteronism > Date: Saturday, October 3, 2009, 4:29 PM > > > See I'm not on a lot of BP meds but I still have lots of brain > fog. I have to be super cautious driving because I experience the > same things as you. I actually backed into something a month ago. > It is a real eye-opener. Scary. > Its one of those fun things. You're having a conversation and you > completely forget what you want to say next...Or when you call > directory assistance for a phone number and panic because you have > to dial real fast or you'll completely forget the number. Better > yet, doing math with your 11 year old and have to think " real " hard. > Perhaps after the meds it has something to do with the blood pressure > change (in your case) because of some kind of physiological > compensation? ? > > > > > > > > I think he is really struggling for a diagnosis and is trying > to see what > > > others have experienced. Been there, done that. > > > > > > Val > > > > > > From: hyperaldosteronism > > > [mailto:hyperaldost eronism] On Behalf Of > Clarence Grim > > > > > > > > > In general we recommend review by our group before polls are > done. Helps > > > minimize GIGO. > > > > > > AKA garbage in, garbage out. > > > > > > I think your poll with not yield much, but will wait till you > get feedback. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2009 Report Share Posted October 4, 2009 To some degree I have all the Sx of what others are having. There is still the thing about the lightheadness/dizzy feeling that I think others have but really can't explain. This is a bit like telling someone what some color look's like. You can show them the color and they can see for themselves what it looks like. But you can not put it into words what it looks like. > > > > > > > > I think he is really struggling for a diagnosis and is trying to see > what > > > > others have experienced. Been there, done that. > > > > > > > > Val > > > > > > > > From: hyperaldosteronism > > > > [mailto:hyperaldost eronism] On Behalf Of Clarence > Grim > > > > > > > > > > > > In general we recommend review by our group before polls are done. > Helps > > > > minimize GIGO. > > > > > > > > AKA garbage in, garbage out. > > > > > > > > I think your poll with not yield much, but will wait till you get > feedback. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2009 Report Share Posted October 4, 2009 Did these sensation come before treatment, or only after being put on Spiro or Inspra? Bindner Web Directory (links to my sites and blogs): http://www.geocities.com/mikeybdc/index.html http://mikeybdc.blogspot.com >>> From: Francis Bill <georgewbill>> Subject: [hyperaldosteronism ] Re: Brain Fog Experiences> hyperaldosteronism> Date: Saturday, October 3, 2009, 7:01 PM>> >> I know what you are talking about when you say it is like being in a > daze. Can you decribe the feeling of being in a daze. If you are like > my you realy can't.>> > > > >> > > > I think he is really struggling for a diagnosis and is trying to > see what> > > > others have experienced. Been there, done that.> > > >> > > > Val> > > >> > > > From: hyperaldosteronism> > > > [mailto:hyperaldost eronism] On Behalf Of > Clarence Grim> > > >> > > >> > > > In general we recommend review by our group before polls are > done. Helps> > > > minimize GIGO.> > > >> > > > AKA garbage in, garbage out.> > > >> > > > I think your poll with not yield much, but will wait till you > get feedback.> > > >> > >> >>> >>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2009 Report Share Posted October 4, 2009 The most common BP meds that would do this are BB. Are any foggers oN them. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Oct 4, 2009, at 5:59 AM, Carol Christie <carolch@...> wrote: Yes, my experience is similar. I can feel when it is coming on. I can't connect it to any specific thing like timing of taking medications. It feels random. I experience it as feeling light-headed (similar to the first time I had a glass of wine). I cannot trust myself to drive safely or make decisions. I become forgetful. I get to a point where I just have to lie down and sleep. It is extremely uncomfortable and debilitating. I feel somehow disconnected from what's going on around me. I hate it. I have in the past taken antidepressants - they also made me feel strange in the head, but this is a different experience again. Carol Lori wrote: > > > I am in the same boat as Chantal. I take Spiro and potassium but feel > "brain fog" most all the time. My energy level stays pretty low and I > have blamed it on that, but I find myself so confused that I struggle > alot just remembering why I went to the grocery store. I write lists > for everything but half the time forget to bring the list. I am > extremely forgetful at work and even have trouble in conversations > keeping focused.It's almost like a daze or just going thru the > motions. It reminds me of the progesterone induced brain fog I had > during pregnancy. Lori > > > > From: Chantal <chantalrobichaud29 (DOT) ca> > Subject: Re: Brain Fog Experiences > hyperaldosteronism > Date: Saturday, October 3, 2009, 4:29 PM > > > See I'm not on a lot of BP meds but I still have lots of brain > fog. I have to be super cautious driving because I experience the > same things as you. I actually backed into something a month ago. > It is a real eye-opener. Scary. > Its one of those fun things. You're having a conversation and you > completely forget what you want to say next...Or when you call > directory assistance for a phone number and panic because you have > to dial real fast or you'll completely forget the number. Better > yet, doing math with your 11 year old and have to think "real" hard. > Perhaps after the meds it has something to do with the blood pressure > change (in your case) because of some kind of physiological > compensation? ? > > > > > > > > I think he is really struggling for a diagnosis and is trying > to see what > > > others have experienced. Been there, done that. > > > > > > Val > > > > > > From: hyperaldosteronism > > > [mailto:hyperaldost eronism] On Behalf Of > Clarence Grim > > > > > > > > > In general we recommend review by our group before polls are > done. Helps > > > minimize GIGO. > > > > > > AKA garbage in, garbage out. > > > > > > I think your poll with not yield much, but will wait till you > get feedback. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2009 Report Share Posted October 4, 2009 Also be sure to check BP with episodes. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Oct 4, 2009, at 2:27 AM, Carol Christie <carolch@...> wrote: Yes, my experience is similar. I can feel when it is coming on. I can't connect it to any specific thing like timing of taking medications. It feels random. I experience it as feeling light-headed (similar to the first time I had a glass of wine). I cannot trust myself to drive safely or make decisions. I become forgetful. I get to a point where I just have to lie down and sleep. It is extremely uncomfortable and debilitating. I feel somehow disconnected from what's going on around me. I hate it. I have in the past taken antidepressants - they also made me feel strange in the head, but this is a different experience again. Carol megra0409 wrote: > > > And it is like an out of body experience (if I can call it that). You > seem to go through the motions without really feeling what you are > doing. And I too have anxiety driving my vehicle when I am like this > as you do not feel 100% in control.... > > > > *From:* hyperaldosteronism > [mailto:hyperaldosteronism ] *On Behalf Of *Lori > *Sent:* Sunday, 4 October 2009 11:11 AM > *To:* hyperaldosteronism > *Subject:* Re: Re: Brain Fog Experiences > > > > > > It's like it takes longer to process things, like being in a state of > slow animation or something.Like the lights are on but nobody's home ! > LOLVery difficult to function most days. > > > From: Francis Bill <georgewbill > > Subject: Re: Brain Fog Experiences > hyperaldosteronism > Date: Saturday, October 3, 2009, 7:01 PM > > > > I know what you are talking about when you say it is like being in a > daze. Can you decribe the feeling of being in a daze. If you are like > my you realy can't. > > > > > > > > > > I think he is really struggling for a diagnosis and is trying to > see what > > > > others have experienced. Been there, done that. > > > > > > > > Val > > > > > > > > From: hyperaldosteronism > > > > [mailto:hyperaldost eronism] On Behalf Of > Clarence Grim > > > > > > > > > > > > In general we recommend review by our group before polls are > done. Helps > > > > minimize GIGO. > > > > > > > > AKA garbage in, garbage out. > > > > > > > > I think your poll with not yield much, but will wait till you > get feedback. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2009 Report Share Posted October 4, 2009 Mine is a feeling of detachment, almost like my mind is not fully connected to my body anymore. I used to have an almost photographic memory, I never forgot anything. Now I have to make lists. And worse, I find myself forgetting things at work. It's a constant thing for me, although some days are worse than others. I'll stop at this point before I convince myself that I should be on an anti-psychotic medication. ;-) a > > > > > >Â Â Â Â From: Chantal <chantalrobichaud29@...> > >Â Â Â Â Subject: > Re: Brain Fog Experiences > >Â Â Â Â hyperaldosteronism > >Â Â Â Â Date: Saturday, October 3, > 2009, 4:29 PM > > > >Â Â Â > >Â Â Â Â See I'm not on a lot of BP > meds but I still have lots of brain > >Â Â Â Â fog. I have to be super > cautious driving because I experience the > >Â Â Â Â same things as you. I actually > backed into something a month ago. > >Â Â Â Â It is a real eye-opener. > Scary. > >Â Â Â Â Its one of those fun things. > You're having a conversation and you > >Â Â Â Â completely forget what you > want to say next...Or when you call > >Â Â Â Â directory assistance for a > phone number and panic because you have > >Â Â Â Â to dial real fast or you'll > completely forget the number. Better > >Â Â Â Â yet, doing math with your 11 > year old and have to think " real " hard. > >Â Â Â Â Perhaps after the meds it has > something to do with the blood pressure > >Â Â Â Â change (in your case) because > of some kind of physiological > >Â Â Â Â compensation? ? > > > >Â Â Â Â > >Â Â Â Â > > > >Â Â Â Â > > I think he is really > struggling for a diagnosis and is trying > >Â Â Â Â to see what > >Â Â Â Â > > others have > experienced. Been there, done that. > >Â Â Â Â > > > >Â Â Â Â > > Val > >Â Â Â Â > > > >Â Â Â Â > > From: > hyperaldosteronism > >Â Â Â Â > > [mailto:hyperaldost > eronism] On Behalf Of > >Â Â Â Â Clarence Grim > >Â Â Â Â > > > >Â Â Â Â > > > >Â Â Â Â > > In general we > recommend review by our group before polls are > >Â Â Â Â done. Helps > >Â Â Â Â > > minimize GIGO. > >Â Â Â Â > > > >Â Â Â Â > > AKA garbage in, > garbage out. > >Â Â Â Â > > > >Â Â Â Â > > I think your poll > with not yield much, but will wait till you > >Â Â Â Â get feedback. > >Â Â Â Â > > > >Â Â Â Â > > > > > > > > > > > > > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2009 Report Share Posted October 4, 2009 Yes I am. But was having some problems before any meds given. > > > > > > > > > > I think he is really struggling for a diagnosis and is trying > > > to see what > > > > > others have experienced. Been there, done that. > > > > > > > > > > Val > > > > > > > > > > From: hyperaldosteronism > > > > > [mailto:hyperaldost eronism] On Behalf Of > > > Clarence Grim > > > > > > > > > > > > > > > In general we recommend review by our group before polls are > > > done. Helps > > > > > minimize GIGO. > > > > > > > > > > AKA garbage in, garbage out. > > > > > > > > > > I think your poll with not yield much, but will wait till you > > > get feedback. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2009 Report Share Posted October 4, 2009 I've been on a BB for the past two years but I noticed symptoms/problems before then. a >>> From: Chantal <chantalrobichaud29 (DOT) ca>> Subject: [hyperaldosteronism ] Re: Brain Fog Experiences> hyperaldosteronism> Date: Saturday, October 3, 2009, 4:29 PM>> > See I'm not on a lot of BP meds but I still have lots of brain> fog. I have to be super cautious driving because I experience the> same things as you. I actually backed into something a month ago.> It is a real eye-opener. Scary.> Its one of those fun things. You're having a conversation and you> completely forget what you want to say next...Or when you call> directory assistance for a phone number and panic because you have> to dial real fast or you'll completely forget the number. Better> yet, doing math with your 11 year old and have to think "real" hard.> Perhaps after the meds it has something to do with the blood pressure> change (in your case) because of some kind of physiological> compensation? ?>> > > >> > > I think he is really struggling for a diagnosis and is trying> to see what> > > others have experienced. Been there, done that.> > >> > > Val> > >> > > From: hyperaldosteronism> > > [mailto:hyperaldost eronism] On Behalf Of> Clarence Grim> > >> > >> > > In general we recommend review by our group before polls are> done. Helps> > > minimize GIGO.> > >> > > AKA garbage in, garbage out.> > >> > > I think your poll with not yield much, but will wait till you> get feedback.> > >> >>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2009 Report Share Posted October 4, 2009 If your adrenals were shocked by the surgery-very unlikely BTW ur kidneys were also shocked and this would be the most cause of impaired renal function? Did u get abiotics during that hosp? They can aalso impair renal function?Atavand can also do this if renin high or renal artery stenosis. I don't recall the time frame of the spiro Rx but if HTN was severe lowering BP may increase Cr till kidneys heal then may Cr may be lower than when first started. My most likely reAson would be kidNey insult with the "All went teribbly wrong". Need mode details on this course of events. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Oct 3, 2009, at 10:06 PM, megra0409 <megra0409@...> wrote: Can someone add the most recent comments about our ‘brain fogs’ to the list attached by the link below, as it makes it more relevant for the new members. It still blows my mind that all our medical practitioners fail to pay any real attention to this very difficult aspect of our illness. On 17 August 2009 I was booked in for a day surgery procedure that went horribly wrong and I had to stay in hospital 5 days due to serious problems . In that timeframe my BP dropped to around 98/55 which was unbelievable given that it generally sits around 150/90 (on a good day). Because of the low BP all medications I was on (spironolactone and atacand) were ceased, and the specialist advised me that my adrenals had suffered a shock from the surgery and it would take around six weeks for them to recover. Well, with the exception of a couple of days from that time frame, my BP has generally sat around 130/70 which is fantastic and completely foreign to me. I have completely ceased taking spiro at this stage and am only taking my 16mg of Atacand in the PM of every day and this seems to be keeping my BP at the 130/70 level. The reason I raise this however, is that after my regular monthly blood tests I had last week the Dr telephoned me to advise that my creatinine levels were too high and she straight away blamed the spiro. I pointed out that I was not on spiro so tomorrow I start my 24 hour urine collection to see what that shows. What is also interesting is that I have been feeling rather anxious since the whole hospital episode which I put down to that event giving me a scare. But now I am wondering if my aldosterone levels are higher than I think (albeit not currently reflected in my BP readings) and that this may be a link to the anxiety. I was diagnosed after AVS in July 08 of suffering bilateral hyperplasia PHA so I am looking forward to seeing what the current aldo reading is. I have only been working part time but start working some full days this week (the first time in 20 months), so I shall also be interested in seeing what effect that has on my BP. From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Valarie Sent: Sunday, 4 October 2009 3:21 PM hyperaldosteronism Subject: RE: Re: Brain Fog Experiences Read what others on the list have written http://f1.grp.fs.com/v1/wB3ISkp45r7zfX-JrgG16VxwnBkmfCYLYqG2x2_G0eyrk_1sAvOw7YC0DV07LXzNXzVE_xGm8lk49GFXym2AgVYed8IV/Conn%27s%20-%20Member%20Comments/Symptoms%20comments.doc This is in Files/Conn's/Member Comments Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Francis Bill I know what you are talking about when you say it is like being in a daze. Can you decribe the feeling of being in a daze. If you are like my you realy can't. > > I am in the same boat as Chantal. I take Spiro and potassium but feel "brain fog" most all the time. My energy level stays pretty low and I have blamed it on that, but I find myself so confused that I struggle alot just remembering why I went to the grocery store. I write lists for everything but half the time forget to bring the list. I am extremely forgetful at work and even have trouble in conversations keeping focused.It's almost like a daze or just going thru the motions. It reminds me of the progesterone induced brain fog I had during pregnancy. Lori > > From: Chantal <chantalrobichaud29@...> > See I'm not on a lot of BP meds but I still have lots of brain fog. I have to be super cautious driving because I experience the same things as you. I actually backed into something a month ago. It is a real eye-opener. Scary. > Its one of those fun things. You're having a conversation and you completely forget what you want to say next...Or when you call directory assistance for a phone number and panic because you have to dial real fast or you'll completely forget the number. Better yet, doing math with your 11 year old and have to think "real" hard. > Perhaps after the meds it has something to do with the blood pressure > change (in your case) because of some kind of physiological compensation? ? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2009 Report Share Posted October 4, 2009 My brain fog doesn't seem to correlate with BP. My BP ranges anywhere form extremely high 150/120 to very low 90/60 >>> From: Francis Bill <georgewbill >> Subject: [hyperaldosteronism ] Re: Brain Fog Experiences> hyperaldosteronism> Date: Saturday, October 3, 2009, 7:01 PM>> >> I know what you are talking about when you say it is like being in a > daze. Can you decribe the feeling of being in a daze. If you are like > my you realy can't.>> > > > >> > > > I think he is really struggling for a diagnosis and is trying to > see what> > > > others have experienced. Been there, done that.> > > >> > > > Val> > > >> > > > From: hyperaldosteronism> > > > [mailto:hyperaldost eronism] On Behalf Of > Clarence Grim> > > >> > > >> > > > In general we recommend review by our group before polls are > done. Helps> > > > minimize GIGO.> > > >> > > > AKA garbage in, garbage out.> > > >> > > > I think your poll with not yield much, but will wait till you > get feedback.> > > >> > >> >>> >>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2009 Report Share Posted October 4, 2009 Not on BBs - 50mg spiro and 240mg isoptin Carol Clarence Grim wrote: > > > The most common BP meds that would do this are BB. Are any foggers oN > them. > > Tiped sad Send form mi > iPhone ;-) > > May your pressure be low! > > CE Grim MD > Specializing in Difficult > Hypertension > > On Oct 4, 2009, at 5:59 AM, Carol Christie <carolch@... > <mailto:carolch@...>> wrote: > >> >> >> Yes, my experience is similar. I can feel when it is coming on. I can't >> connect it to any specific thing like timing of taking medications. It >> feels random. I experience it as feeling light-headed (similar to the >> first time I had a glass of wine). I cannot trust myself to drive safely >> or make decisions. I become forgetful. I get to a point where I just >> have to lie down and sleep. It is extremely uncomfortable and >> debilitating. I feel somehow disconnected from what's going on around >> me. I hate it. >> I have in the past taken antidepressants - they also made me feel >> strange in the head, but this is a different experience again. >> >> Carol >> >> Lori wrote: >> > >> > >> > I am in the same boat as Chantal. I take Spiro and potassium but feel >> > " brain fog " most all the time. My energy level stays pretty low and I >> > have blamed it on that, but I find myself so confused that I struggle >> > alot just remembering why I went to the grocery store. I write lists >> > for everything but half the time forget to bring the list. I am >> > extremely forgetful at work and even have trouble in conversations >> > keeping focused.It <http://focused.It>'s almost like a daze or just >> going thru the >> > motions. It reminds me of the progesterone induced brain fog I had >> > during pregnancy. Lori >> > >> > >> > >> > From: Chantal <chantalrobichaud29@ >> <mailto:chantalrobichaud29%40.ca>.ca <http://.ca>> >> > Subject: Re: Brain Fog Experiences >> > hyperaldosteronism >> <mailto:hyperaldosteronism%40> >> > Date: Saturday, October 3, 2009, 4:29 PM >> > >> > >> > See I'm not on a lot of BP meds but I still have lots of brain >> > fog. I have to be super cautious driving because I experience the >> > same things as you. I actually backed into something a month ago. >> > It is a real eye-opener. Scary. >> > Its one of those fun things. You're having a conversation and you >> > completely forget what you want to say next...Or when you call >> > directory assistance for a phone number and panic because you have >> > to dial real fast or you'll completely forget the number. Better >> > yet, doing math with your 11 year old and have to think " real " hard. >> > Perhaps after the meds it has something to do with the blood pressure >> > change (in your case) because of some kind of physiological >> > compensation? ? >> > >> > >> > > > >> > > > I think he is really struggling for a diagnosis and is trying >> > to see what >> > > > others have experienced. Been there, done that. >> > > > >> > > > Val >> > > > >> > > > From: hyperaldosteronism >> > > > [mailto:hyperaldost eronism] On Behalf Of >> > Clarence Grim >> > > > >> > > > >> > > > In general we recommend review by our group before polls are >> > done. Helps >> > > > minimize GIGO. >> > > > >> > > > AKA garbage in, garbage out. >> > > > >> > > > I think your poll with not yield much, but will wait till you >> > get feedback. >> > > > >> > > >> > >> > >> > >> > >> > >> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2009 Report Share Posted October 4, 2009 My two cents... I have not had any symptoms resembling " fog " or anxiety or depression either before or after starting medications for Conn's. Sounds very frustrating. As a programmer, I doubt I would be able to do my job if I had those symptoms unless they occurred infrequently. For the record, I am on 75mg Inspra (eplerenone) per day, plus 10mg Norvasc (amlodipine). This combo seems to be working well for me. I am not following the DASH diet per se, but I did cut a lot of salt from my diet of the past. -Sam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2009 Report Share Posted October 4, 2009 I'm in the process of being diagnosed... I have the symptoms and I have yet to start a MCB. I think it is all aldosterone/blood pressure/perhaps hypokalemia related. The dizziness could be blood pressure but I think the " fog " feeling is related to some unsurpressed aldosterone effect. Again, I had blood pressure issues during my pregnancies (lots of symptoms) but the fog is worse now so I'm speculating the aldosterone has overcome (stage 3-4) and now I'm fully PA.(That is if I truly have PA (My last pregnancy was rough, if it was PA, I was probably a stage 2) > > > > > > > > > > I think he is really struggling for a diagnosis and is trying to > > see what > > > > > others have experienced. Been there, done that. > > > > > > > > > > Val > > > > > > > > > > From: hyperaldosteronism > > > > > [mailto:hyperaldost eronism] On Behalf Of > > Clarence Grim > > > > > > > > > > > > > > > In general we recommend review by our group before polls are > > done. Helps > > > > > minimize GIGO. > > > > > > > > > > AKA garbage in, garbage out. > > > > > > > > > > I think your poll with not yield much, but will wait till you > > get feedback. > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2009 Report Share Posted October 4, 2009 I know, I know. I hear you. Some good (part of a day, until I feel myself getting weak and have to pop a potassium -did you ever see the likes?) days but most are rough.. I've come to realize that I'm going to have to try real hard with the energy/memory I have for the time being? Patience is at an all time low... Trying real hard. It is like something else is running our bodies and we're trying to overcome it. Aliens? No seriously, it is rough.. I told my hubby to remind me this week when I'm having a super rough day that I had a pretty good week-end and to remember I can get through to the next good spell.( feeling floppy, panic day " I need to go to the ER, my pressure is terrible, I feel like I'm dying day " -It is on and off, I can't pinpoint if it is the minimal sodium I take in that triggers it or some kind of dairy/wheat allergy that tips the balance, almost like it takes time for my body to get rid of the toxic levels of aldosterone/?, poor little kidneys working on overdrive) Anyhow, I understand what you are saying, for awhile I was like " am I bipolar-from day to day?-what a rollercoster ride!!! Chantal > > >Â Â Â Â > > > > >Â Â Â Â > > I think he is really > > struggling for a diagnosis and is trying > > >Â Â Â Â to see what > > >Â Â Â Â > > others have > > experienced. Been there, done that. > > >Â Â Â Â > > > > >Â Â Â Â > > Val > > >Â Â Â Â > > > > >Â Â Â Â > > From: > > hyperaldosteronism > > >Â Â Â Â > > [mailto:hyperaldost > > eronism] On Behalf Of > > >Â Â Â Â Clarence Grim > > >Â Â Â Â > > > > >Â Â Â Â > > > > >Â Â Â Â > > In general we > > recommend review by our group before polls are > > >Â Â Â Â done. Helps > > >Â Â Â Â > > minimize GIGO. > > >Â Â Â Â > > > > >Â Â Â Â > > AKA garbage in, > > garbage out. > > >Â Â Â Â > > > > >Â Â Â Â > > I think your poll > > with not yield much, but will wait till you > > >Â Â Â Â get feedback. > > >Â Â Â Â > > > > >Â Â Â Â > > > > > > > > > > > > > > > > > > > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2009 Report Share Posted October 5, 2009 See is better if you are able to get of isoptin as spiro in increased. May your pressure be low!Clarence E. Grim, BS, MS, MDSpecializing in Primary Aldosteronism the most common cause of "Difficult/Drug Resistant High Blood Pressure". Other research interests focus on the interactions of recent evolutionary forces on the body's ability to handle salt and the effect of dietary salt on blood pressure in populations today.Listed in Best Doctors of America 2009. On Oct 4, 2009, at 6:36 PM, Carol Christie wrote: Not on BBs - 50mg spiro and 240mg isoptin Carol Clarence Grim wrote: > > > The most common BP meds that would do this are BB. Are any foggers oN > them. > > Tiped sad Send form mi > iPhone ;-) > > May your pressure be low! > > CE Grim MD > Specializing in Difficult > Hypertension > > On Oct 4, 2009, at 5:59 AM, Carol Christie <carolchgil.au > <mailto:carolchgil.au>> wrote: > >> >> >> Yes, my experience is similar. I can feel when it is coming on. I can't >> connect it to any specific thing like timing of taking medications. It >> feels random. I experience it as feeling light-headed (similar to the >> first time I had a glass of wine). I cannot trust myself to drive safely >> or make decisions. I become forgetful. I get to a point where I just >> have to lie down and sleep. It is extremely uncomfortable and >> debilitating. I feel somehow disconnected from what's going on around >> me. I hate it. >> I have in the past taken antidepressants - they also made me feel >> strange in the head, but this is a different experience again. >> >> Carol >> >> Lori wrote: >> > >> > >> > I am in the same boat as Chantal. I take Spiro and potassium but feel >> > "brain fog" most all the time. My energy level stays pretty low and I >> > have blamed it on that, but I find myself so confused that I struggle >> > alot just remembering why I went to the grocery store. I write lists >> > for everything but half the time forget to bring the list. I am >> > extremely forgetful at work and even have trouble in conversations >> > keeping focused.It <http://focused.It>'s almost like a daze or just >> going thru the >> > motions. It reminds me of the progesterone induced brain fog I had >> > during pregnancy. Lori >> > >> > >> > >> > From: Chantal <chantalrobichaud29@ >> <mailto:chantalrobichaud29%40.ca>.ca <http://.ca>> >> > Subject: Re: Brain Fog Experiences >> > hyperaldosteronism >> <mailto:hyperaldosteronism%40> >> > Date: Saturday, October 3, 2009, 4:29 PM >> > >> > >> > See I'm not on a lot of BP meds but I still have lots of brain >> > fog. I have to be super cautious driving because I experience the >> > same things as you. I actually backed into something a month ago. >> > It is a real eye-opener. Scary. >> > Its one of those fun things. You're having a conversation and you >> > completely forget what you want to say next...Or when you call >> > directory assistance for a phone number and panic because you have >> > to dial real fast or you'll completely forget the number. Better >> > yet, doing math with your 11 year old and have to think "real" hard. >> > Perhaps after the meds it has something to do with the blood pressure >> > change (in your case) because of some kind of physiological >> > compensation? ? >> > >> > >> > > > >> > > > I think he is really struggling for a diagnosis and is trying >> > to see what >> > > > others have experienced. Been there, done that. >> > > > >> > > > Val >> > > > >> > > > From: hyperaldosteronism >> > > > [mailto:hyperaldost eronism] On Behalf Of >> > Clarence Grim >> > > > >> > > > >> > > > In general we recommend review by our group before polls are >> > done. Helps >> > > > minimize GIGO. >> > > > >> > > > AKA garbage in, garbage out. >> > > > >> > > > I think your poll with not yield much, but will wait till you >> > get feedback. >> > > > >> > > >> > >> > >> > >> > >> > >> > > > Quote Link to comment Share on other sites More sharing options...
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