Guest guest Posted November 6, 2005 Report Share Posted November 6, 2005 I also get aggravated shaky hands from caffeine. But for some reason I just can't resist the espresso after lunch! And sometimes the latte in the morning. Just one of those things, I go through detoxing bouts about once a year and cut it out, then I do eventually add it back as I love it so much. But even my dentist says it should go - as it stains teeth. I try to drink green tea, but that too has caffeine (some reason though it does not impact my hands too badly). - Donna from London Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2005 Report Share Posted November 7, 2005 Donna, I am 59 years old and drink maybe 36 oz. ( 3 twelve oz mugs) of coffee daily. I have a tremor, but it is not affected by coffee unless I drink an unusually large amount. My heart is mot affected in any unusual way. Like anything else, moderation is the key. Tom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2005 Report Share Posted November 7, 2005 I drink at least 3 cups off coffee in the am.on cold days I have 2 in the afternoon. I love coffee. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2005 Report Share Posted November 7, 2005 Wow, Tom, 36 oz. of coffee daily contains a lot of caffeine! Do you think your tremor would diminish if you drank less? Just curious. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2005 Report Share Posted November 8, 2005 , I have cut down on coffee in the past and it didn't seem to matter much, but if I drink more than that, I can get bit more tremor. No doubt there are individual differences. All the research suggests that you can drink significant amounts of coffee for many years with no known negative consequences. The tremor is another matter, but my personal experience has been as I have said--it doesn't affect me much. And, I really love a fresh cup of steaming dark roast in the morning.. Tom Re: Caffeine > Wow, Tom, 36 oz. of coffee daily contains a lot of caffeine! Do you > think > your tremor would diminish if you drank less? Just curious. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2005 Report Share Posted November 8, 2005 I don't think caffeine plays any different role in those with CMT versus the general public. I can have three cups at night and sleep like a baby but my friend that does not have CMT, can't drink coffee after noon. Caffeine affects people differently. Personally, coffee is my only " vice " and I can't imagine life without it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 8, 2005 Report Share Posted November 8, 2005 As much as I'd like to blame CMT for everything, maybe my individual sensitivity to caffiene has nothing to do with it? I can drink my one cup in the morning, but if I have any more than that I won't sleep at night. I also cannot have anything with chocolate in it, or I won't sleep. I can't have any alchoholic beverages either (won't sleep) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2006 Report Share Posted August 3, 2006 I have also cut caffeine out of my diet. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2006 Report Share Posted August 3, 2006 Patty: Good Morning! I have completely cut caffeine our of my diet. I had trouble with my heart racing, jittery problems, etc. I feel so much better now! I also cut out chocolate since it is a " sister " drug to caffeine. If you happen to eat " Oreo " cookies--they are the worst...the chocolate is so consintrated in them my doctor said I could eat a couple of candy bars and they wouldn't do as much damage. It was really hard at first to not have either caffeine or chocolate but now it is easy. I don't hardly ever drink even " Caffeine Free " pop, mostly drink water and I feel a lot better. Actually starting to loose some weight, which is wonderful. Since I have an AFO on my left leg, exercise is very difficult, or long periods of walking. Thanks, Jane >From: " pkilloren " <pkilloren@...> >Reply- > >Subject: caffeine >Date: Wed, 02 Aug 2006 11:40:08 -0000 > >I seem to suddenly have a problem with caffeine. I have even cut back >to 1/2 reg. 1/2 decaf. I wonder if I cut back to total decaf if this >would help with some of the symptoms I have (numbness, zinging in my >index finger). Right now it seems to make me jittery and I'm sure >that can't help my nervous system. But I LOVE my coffee. > >Has anyone noticed a change in symptoms since cutting out caffeine? > >Patty > > > > > > _________________________________________________________________ Express yourself instantly with MSN Messenger! Download today - it's FREE! http://messenger.msn.click-url.com/go/onm00200471ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
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