New poll for hyperaldosteronism

[Guest guest]

Early on, my communication on the Inet required me to use basic English as much as possible and I found even some technical terms like "metabolic syndrome" told me nothing.

Dr Grim changed that to eataholic syndrome - explains everything.

I have no idea what you might experience but I have seen people suddenly forget the point they're trying to make.

If a person has to think about whether they have "brain fog", probably means they don't have it.

Regards

Re: New poll for hyperaldosteronism

The term brain fog is in the PAsurveyresults.doc. So someone else has used it before. By it self it doesn't mean much but I can understand what they are talking about. We now have others trying to describe how they perceive it to be. I hope many more tell there stories. While it would be nice to have someway that truly explaines it. Some how I don't think you can truly do this. What we need to know is if it is Conn's related. I have this term used as well in searching for Conn's "a feeling of being unwell for a long time". Just what dose mean? I can relate to it as I am sure others can. But it does you doctor very little good to tell him this. I think there are many vague Sx at least at first with Conn's. Many of Conn's SX are the same for other diseases. There are may places I read High blood pressure may be the only SX on Conn's other then here I have never see many other SX of Conn's What are the text book SX of Conn's? Not what you know them to be but what do they teach in Med school. > >> >> >> > I think he is really struggling for a diagnosis and is trying to > >> see what> >> > others have experienced. Been there, done that.> >> >> >> > Val> >> >> >> > From: hyperaldosteronism> >> > [mailto:hyperaldosteronism] On Behalf Of > >> Clarence Grim> >> >> >> >> >> > In general we recommend review by our group before polls are > >> done. Helps> >> > minimize GIGO.> >> >> >> > AKA garbage in, garbage out.> >> >> >> > I think your poll with not yield much, but will wait till you get > >> feedback.> >> >> >>> >> >> >> >>__________ NOD32 4389 (20090902) Information __________This message was checked by NOD32 antivirus system.http://www.eset.com

[Guest guest]

Other then B/P meds nothing else is beind done as to LVH I do use a CPAP device.

A bit of history needs to be looked at. Over the past four years I have had 11

EKG's A 48 hour Halter monitor. A event monitor. A CT and MRI on the brain. 3

CT of the chest 2 abdominal CT. 2 stress tests 2 ECG several chest x rays ultra

sound of the kidneys 2 ultra sound of my legs to check for blood clots. A

pulmonary function test. 2 sleep studies. A scan of the carotid arterys. and

many lab tests.

From my doctors point of view nothing has been found to indicate any type of

Diagnoses. Or any clue why I have lightheadness/ dizzness shortness of breath

pitting edema or fatigued. Except maybe sleep apnea. After 2 years on the CPAP

device I still have all the SX Also still have problems with sleep.

What the test have showed is I have frequent asymptomatic PVCs, sinus

tachycardia, a 2.2 cm low density lesion off mid pole of left kidney 34 Hu

greater than expected for a simple cyst. A stable18 mm low density lesion in the

left adrenal gland which likely represents an adenoma and demonstrates no change

in size from 2006. CFH has been ruled out. The ECG are normal for my age. Stress

tests have ruled out most other heart problems.

Brain scan shows there is mild to moderate cerebral atrophy.

Of course I feel that my Sx are due to to the adenoma.

>

> Yes I would like to have somekind of diagnosis Be it Conn's or something

> else. I also want to help others that are struggling for a diagnosis.

>

> Many SX for Conn's are unheard of for most doctors and many of them one

> can't really explain in a may that make sense to there doctors.

>

> So to help others and my self we need all the help we can get. We need

> information in ways that makes sense to us. It needs to be readily

> available.

>

> Right now this group seem to be the place to get this information. However

> the way this site works much good informatiom is very hard to find.

>

> More should be in files but right now it is almost imposable to look at all

> the emails edit what is useful information and put it in the files.

>

> Polls can be used by any one If the information only helps one person then

> that person gets the answer he needs. If the information is useful to every

> one it can be put in a file.

>

[Guest guest]

i recommend taking the MMSE self adm one from England when having such an episode and have ur dr do the formal MMSE. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Oct 2, 2009, at 11:32 PM, Helen Drewe <hdrewe@...> wrote:

For example, I define "brain fog" as

- when I am reading, and suddenly I am unable to understand what is on the page- when I am watching TV and nothing makes sense

- having a conversation, then suddenly not remembering and feeling confused

- difficulty concentrating at times.

The episodes for me can come on suddenly, at other times it can last most of the day.

I note that it doesnt seem to correlate with K levels.

On Sat, Oct 3, 2009 at 3:40 PM, megra0409 <megra0409bigpond> wrote:

· Cognitive dysfunction (or brain fog) is defined as unusually poor mental function, associated with confusion, forgetfulness and difficulty concentrating.

When I have these episodes, the description above is most suitable and I too call it a ‘brain fog’.

From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

Sent: Saturday, 3 October 2009 1:48 PMhyperaldosteronism

Subject: Re: Re: New poll for hyperaldosteronism

But I nor other Drs know what u mean by brain fog

Please describe in detail. Tiped sad Send form mi

iPhone ;-)

May your pressure be low!

CE Grim MD

Specializing in Difficult

Hypertension

On Oct 2, 2009, at 1:36 PM, Bill <georgewbill > wrote:

I see my doctor at least every 3 months. This is his choice to see me this often. We have talk many time about the lightheadness. I have tried to tell him what I feel but so far haven't been to successful. Partly because the feeling changes and partly he is trying to fit sx into his knowledge of them. To him lightheadness means you feel like you are going to faint and dizzness means the room spinning around. What I feel is not quite being dizzy of like I am going to faint. I is a feeling I can not truly explain. The brain fog seem to better fit.

Sorry the Lightness was a typo. The terms seem to be common terms that those with Conn's use. I know they aren't terms that a doctor always understands. I have been asked mant times to describe what I feel. Something I can't realy do.

The one problem with the poll is you can only ask one question. depending on what input is given other polls can be used. I have seen the term brain fog used a lot and after seeing it used I can under stand what it means. I have refered to my self is being lightheaded. Now I think brain fog fits better.

Since I don't drink or smoke including the special cigarettes. I cant say what the felling is like when drunk. I have seen others say there brain fog is somewhat the felling they get when drunk. With me the fellings never goes away there are times it is better then others. So far I don't know what makes it better or worse.

All the questions you ask should answered. Just don't know how to put some of them in the polls

> > >> > Enter your vote today! A new poll has been created for the> > hyperaldosteronism group:> >> > How often do you have lightness/brain fog> >> > o all the time

> > o part of the day> > o a few days a week> > o a few days a month> > o a few days a year> >> > To vote, please visit the following web page:> > group/hyperaldos teronism/ surveys?id= 2233942

> >> > Note: Please do not reply to this message. Poll votes are> > not collected via email. To vote, you must go to the > > web site listed above.> >> > Thanks!

> >> >>

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[Guest guest]

I had sleep apnea on a beta blocker after I put on weight. It is reduced, but not elimiated that I have stopped the BB, but taking off the weight is what is needed for me, which won't happen while my drugs knock me out of ketosis.

Bindner

Web Directory (links to my sites and blogs):

http://www.geocities.com/mikeybdc/index.html

http://mikeybdc.blogspot.com

From: Francis Bill <georgewbill@...>Subject: Re: New poll for hyperaldosteronismhyperaldosteronism Date: Sunday, October 4, 2009, 10:48 AM

Other then B/P meds nothing else is beind done as to LVH I do use a CPAP device. A bit of history needs to be looked at. Over the past four years I have had 11 EKG's A 48 hour Halter monitor. A event monitor. A CT and MRI on the brain. 3 CT of the chest 2 abdominal CT. 2 stress tests 2 ECG several chest x rays ultra sound of the kidneys 2 ultra sound of my legs to check for blood clots. A pulmonary function test. 2 sleep studies. A scan of the carotid arterys. and many lab tests. From my doctors point of view nothing has been found to indicate any type of Diagnoses. Or any clue why I have lightheadness/ dizzness shortness of breath pitting edema or fatigued. Except maybe sleep apnea. After 2 years on the CPAP device I still have all the SX Also still have problems with sleep. What the test have showed is I have frequent asymptomatic PVCs, sinus tachycardia, a 2.2 cm low density lesion off mid pole of left kidney 34 Hu greater than

expected for a simple cyst. A stable18 mm low density lesion in the left adrenal gland which likely represents an adenoma and demonstrates no change in size from 2006. CFH has been ruled out. The ECG are normal for my age. Stress tests have ruled out most other heart problems. Brain scan shows there is mild to moderate cerebral atrophy. Of course I feel that my Sx are due to to the adenoma. > > Yes I would like to have somekind of diagnosis Be it Conn's or something> else. I also want to help others that are struggling for a diagnosis. > > Many SX for Conn's are unheard of for most doctors and many of them one> can't really explain in a may that make sense to there doctors. > > So to help others and my self we need all the help we can get. We need>

information in ways that makes sense to us. It needs to be readily> available. > > Right now this group seem to be the place to get this information. However> the way this site works much good informatiom is very hard to find. > > More should be in files but right now it is almost imposable to look at all> the emails edit what is useful information and put it in the files. > > Polls can be used by any one If the information only helps one person then> that person gets the answer he needs. If the information is useful to every> one it can be put in a file.>

[Guest guest]

LVH begins with first ingesrtion of more salt than ur body canhandle. The heart must get "stronger" thicker to increase BP AND KEEP it up. Soso lowering BP/salt intake is the key. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Oct 4, 2009, at 7:48 AM, Francis Bill <georgewbill@...> wrote:

Other then B/P meds nothing else is beind done as to LVH I do use a CPAP device. A bit of history needs to be looked at. Over the past four years I have had 11 EKG's A 48 hour Halter monitor. A event monitor. A CT and MRI on the brain. 3 CT of the chest 2 abdominal CT. 2 stress tests 2 ECG several chest x rays ultra sound of the kidneys 2 ultra sound of my legs to check for blood clots. A pulmonary function test. 2 sleep studies. A scan of the carotid arterys. and many lab tests.

From my doctors point of view nothing has been found to indicate any type of Diagnoses. Or any clue why I have lightheadness/ dizzness shortness of breath pitting edema or fatigued. Except maybe sleep apnea. After 2 years on the CPAP device I still have all the SX Also still have problems with sleep.

What the test have showed is I have frequent asymptomatic PVCs, sinus tachycardia, a 2.2 cm low density lesion off mid pole of left kidney 34 Hu greater than expected for a simple cyst. A stable18 mm low density lesion in the left adrenal gland which likely represents an adenoma and demonstrates no change in size from 2006. CFH has been ruled out. The ECG are normal for my age. Stress tests have ruled out most other heart problems.

Brain scan shows there is mild to moderate cerebral atrophy.

Of course I feel that my Sx are due to to the adenoma.

>

> Yes I would like to have somekind of diagnosis Be it Conn's or something

> else. I also want to help others that are struggling for a diagnosis.

>

> Many SX for Conn's are unheard of for most doctors and many of them one

> can't really explain in a may that make sense to there doctors.

>

> So to help others and my self we need all the help we can get. We need

> information in ways that makes sense to us. It needs to be readily

> available.

>

> Right now this group seem to be the place to get this information. However

> the way this site works much good informatiom is very hard to find.

>

> More should be in files but right now it is almost imposable to look at all

> the emails edit what is useful information and put it in the files.

>

> Polls can be used by any one If the information only helps one person then

> that person gets the answer he needs. If the information is useful to every

> one it can be put in a file.

>

[Guest guest]

drugs will not knock u out of ketozis unless they Are DM drugs. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Oct 4, 2009, at 9:09 AM, Bindner <mikeybdc@...> wrote:

I had sleep apnea on a beta blocker after I put on weight. It is reduced, but not elimiated that I have stopped the BB, but taking off the weight is what is needed for me, which won't happen while my drugs knock me out of ketosis.

Bindner

Web Directory (links to my sites and blogs):

http://www.geocities.com/mikeybdc/index.html

http://mikeybdc.blogspot.com

From: Francis Bill <georgewbill >Subject: Re: New poll for hyperaldosteronismhyperaldosteronism Date: Sunday, October 4, 2009, 10:48 AM

Other then B/P meds nothing else is beind done as to LVH I do use a CPAP device. A bit of history needs to be looked at. Over the past four years I have had 11 EKG's A 48 hour Halter monitor. A event monitor. A CT and MRI on the brain. 3 CT of the chest 2 abdominal CT. 2 stress tests 2 ECG several chest x rays ultra sound of the kidneys 2 ultra sound of my legs to check for blood clots. A pulmonary function test. 2 sleep studies. A scan of the carotid arterys. and many lab tests. From my doctors point of view nothing has been found to indicate any type of Diagnoses. Or any clue why I have lightheadness/ dizzness shortness of breath pitting edema or fatigued. Except maybe sleep apnea. After 2 years on the CPAP device I still have all the SX Also still have problems with sleep. What the test have showed is I have frequent asymptomatic PVCs, sinus tachycardia, a 2.2 cm low density lesion off mid pole of left kidney 34 Hu greater than

expected for a simple cyst. A stable18 mm low density lesion in the left adrenal gland which likely represents an adenoma and demonstrates no change in size from 2006. CFH has been ruled out. The ECG are normal for my age. Stress tests have ruled out most other heart problems. Brain scan shows there is mild to moderate cerebral atrophy. Of course I feel that my Sx are due to to the adenoma. > > Yes I would like to have somekind of diagnosis Be it Conn's or something> else. I also want to help others that are struggling for a diagnosis. > > Many SX for Conn's are unheard of for most doctors and many of them one> can't really explain in a may that make sense to there doctors. > > So to help others and my self we need all the help we can get. We need>

information in ways that makes sense to us. It needs to be readily> available. > > Right now this group seem to be the place to get this information. However> the way this site works much good informatiom is very hard to find. > > More should be in files but right now it is almost imposable to look at all> the emails edit what is useful information and put it in the files. > > Polls can be used by any one If the information only helps one person then> that person gets the answer he needs. If the information is useful to every> one it can be put in a file.>

[Guest guest]

Here is the history of my EKGs

29-AUG-2005 11 :03:00

Vent. rate 110 BPM

PR interval 176 ms

ORS duration 104 ms

OT/OTc 340/460 ms

P-R-T axes 63 -27 68

25mm/s 10mm/mV 100Hz 005E 12SLJ8 CID: 8

Sinus tachycardia

Nonspecific ST abnormality

Abnormal ekg

No previous ECG's available for comparison

12-SEP-2005 14:28:00

Vent. rate 69 BPM

PR interval 156 ms

ORS duration 104 ms

OT/Otc 400/428 ms

P-R-T axes 58 3 32

Normal sinus rhythm

Normal ECG

When compared with ECG of 29-AUG-200S 11:03,

Heart rate has decreased

08-DEC-2005 14:09:00

Vent. rate 88 BPM

PR interval 156 ms

ORS duration 104 ms

OT/OTc 368/445 ms

P-R-T axes 64 -16 64

Normal sinus rhythm

Normal ECG

When compared with ECG of 12-SEP-2005 14:28,

No significant change was found

06-JUN-2006 14:29:00

Vent. rate 86 BPM

PR interval 152 ms

ORS duration 104 ms

OT/OTc 376/450 ms

P-R-T axes 55 -19 46

Normal sinus rhythm

Norma l ECG

When compared with ECG of 08 - DEC- 2005 14 : 09 ,

No significant change was found

06-JUN-2006 14:29:00

Vent. rate 86 BPM

PR interval 152 ms

ORS duration 104 ms

OT/OTc 376/450 ms

P-R-T axes 55 -19 46

Normal sinus rhythm

Norma l ECG

When compared with ECG of 08 - DEC- 2005 14 : 09 ,

No significant change was found

23-FEB-2007 14: 11: 06

Vent. rate 90 BPM

PR interval 160 ms

ORS duration 100 ms

OT/OTc 380/464 ms

P-R-T axes 60 -20 50

Normal sinus rhythm

Left ward axis

Normal ECG

01-NOV-2008 12:51:18

Vent rate 66 BPM

PR interval 128 ms

QRS duration 98 ms

QT/QTc 426/446 ms

P-R-T axes 29 -16 -8

Normal sinus rymthm

Normal ECG

13-DEC-2008 23 :34:32

Vent. rate 101 BPM

PR interval 126 ms

QRS duration 94 ms Abnormal ekg

QT/QTc 366/474 ms

P-R-T axes 33 -28 16

Sinus tachycardia

Nonspecific T wave abnormality

04-JAN-2009 01 :49:38

Vent. rate 102 BPM

PR interval 128 ms

ORS duration 100 ms

OT/OTc 376/490 ms

P-R-T axes 33 -26 37

Sinus tachycardia

Other wise normal ECG

14-JAN-2009 11 :44:53

Vent. rate 89 BPM

PR interval 178 ms

ORS duration 104 ms

OT/OTe 380/462 ms

P-R-T axes 61 -21 48

Normal sinus rhythm

Leftward axis

Borderline ECG

22-FEB-2009 12:22:53

Vent. rate 78 BPM

Male Caucasian PR interval 128 ms

QRS duration 94 ms

QT/QTc 414/471 ms

P-R-T axes 37 -18 14

Normal sinus

Leftward axis

Incomplete right bundle branch block

Left ventricular hypertrophy

Nonspecific ST and T wave abnormality

This is my doctor's responce to the last EKG

I located the reading for the ECG done in the emergency department in February.

The four readings you mentioned were Leftward Axis, Incomplete Right Bundle

Branch Block, Left Ventricular Hypertrophy and Nonspecific ST and T wave

abnormality.

The leftward axis and left ventricular hypertrophy are both findings that often

accompany high blood pressure.

The incomplete right bundle branch block is something frequently seen in

patients like you with severe sleep apnea. It means that the right side of your

heart has to work extra hard associated with the sleep apnea. It underscores how

important it is for you to use your CP AP therapy.

The Nonspecific ST and T wave abnormality are just what it says - non-specific.

They have no special relevance to your problems oflight-headedness, fatigue and

episodic breathlessness.

I am sorry that you continue to feel poorly but feel we have done all the

necessary testing to seek an explanation.

> > >

> > > Yes I would like to have somekind of diagnosis Be it Conn's or

> > something

> > > else. I also want to help others that are struggling for a

> > diagnosis.

> > >

> > > Many SX for Conn's are unheard of for most doctors and many of

> > them one

> > > can't really explain in a may that make sense to there doctors.

> > >

> > > So to help others and my self we need all the help we can get. We

> > need

> > > information in ways that makes sense to us. It needs to be readily

> > > available.

> > >

> > > Right now this group seem to be the place to get this information.

> > However

> > > the way this site works much good informatiom is very hard to find.

> > >

> > > More should be in files but right now it is almost imposable to

> > look at all

> > > the emails edit what is useful information and put it in the files.

> > >

> > > Polls can be used by any one If the information only helps one

> > person then

> > > that person gets the answer he needs. If the information is useful

> > to every

> > > one it can be put in a file.

> > >

> >

> >

>

[Guest guest]

I don't have all the information on my last stess test. It was done after the

last EKG. My Dr told me it was normal so I don't think that the LVH showed up

during the stress test.

> > > >

> > > > Yes I would like to have somekind of diagnosis Be it Conn's or

> > > something

> > > > else. I also want to help others that are struggling for a

> > > diagnosis.

> > > >

> > > > Many SX for Conn's are unheard of for most doctors and many of

> > > them one

> > > > can't really explain in a may that make sense to there doctors.

> > > >

> > > > So to help others and my self we need all the help we can get. We

> > > need

> > > > information in ways that makes sense to us. It needs to be readily

> > > > available.

> > > >

> > > > Right now this group seem to be the place to get this information.

> > > However

> > > > the way this site works much good informatiom is very hard to find.

> > > >

> > > > More should be in files but right now it is almost imposable to

> > > look at all

> > > > the emails edit what is useful information and put it in the files.

> > > >

> > > > Polls can be used by any one If the information only helps one

> > > person then

> > > > that person gets the answer he needs. If the information is useful

> > > to every

> > > > one it can be put in a file.

> > > >

> > >

> > >

> >

>

[Guest guest]

Perhaps you should see if NIH will accept you?

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Francis Bill

Other then B/P meds nothing else is beind done as to LVH I do use a CPAP

device. A bit of history needs to be looked at. Over the past four years I have

had 11 EKG's A 48 hour Halter monitor. A event monitor. A CT and MRI on the

brain. 3 CT of the chest 2 abdominal CT. 2 stress tests 2 ECG several chest x

rays ultra sound of the kidneys 2 ultra sound of my legs to check for blood

clots. A pulmonary function test. 2 sleep studies. A scan of the carotid

arterys. and many lab tests.

From my doctors point of view nothing has been found to indicate any type of

Diagnoses. Or any clue why I have lightheadness/ dizzness shortness of breath

pitting edema or fatigued. Except maybe sleep apnea. After 2 years on the CPAP

device I still have all the SX Also still have problems with sleep.

What the test have showed is I have frequent asymptomatic PVCs, sinus

tachycardia, a 2.2 cm low density lesion off mid pole of left kidney 34 Hu

greater than expected for a simple cyst. A stable18 mm low density lesion in

the left adrenal gland which likely represents an adenoma and demonstrates no

change in size from 2006. CFH has been ruled out. The ECG are normal for my

age. Stress tests have ruled out most other heart problems.

Brain scan shows there is mild to moderate cerebral atrophy.

Of course I feel that my Sx are due to to the adenoma.

..

[Guest guest]

this may well be related to Brain Fog. May your pressure be low!Clarence E. Grim, BS, MS, MDSpecializing in Primary Aldosteronism the most common cause of "Difficult/Drug Resistant High Blood Pressure". Other research interests focus on the interactions of recent evolutionary forces on the body's ability to handle salt and the effect of dietary salt on blood pressure in populations today.Listed in Best Doctors of America 2009. On Oct 4, 2009, at 10:28 PM, Valarie wrote:Brain scan shows there is mild to moderate cerebral atrophy.

[Guest guest]

according to neurology they don't think so.

>

> > Brain scan shows there is mild to moderate cerebral atrophy.

>

[Guest guest]

I can't see the results unless I respond. Can't respond because none has been

found.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ]

Enter your vote today! A new poll has been created for the

hyperaldosteronism group:

How big is your adrenal tumor(s)?

o 1 - 2 mm

o 3 - 4 mm

o 5 - 6 mm

o 7 - 8 mm

o 9 mm

o 1 cm

o 2 cm

o 3 cm

o 4 cm

o 5 cm

o 6 cm

o 7 cm

o 8 cm

o 9 cm

o > 10 cm

To vote, please visit the following web page:

hyperaldosteronism/surveys?id=2239439

Note: Please do not reply to this message. Poll votes are

not collected via email. To vote, you must go to the

web site listed above.

Thanks!

[Guest guest]

Sorry Val, it doesn't give me an option to change that. I'll leave it open for 1 week and then have the results sent to the group site.

a

From: Valarie <val@...>Subject: RE: New poll for hyperaldosteronismhyperaldosteronism Date: Monday, October 19, 2009, 11:58 AM

I can't see the results unless I respond. Can't respond because none has been found.

Val

From: hyperaldosteronism [mailto:hyperaldosteronism ] Enter your vote today! A new poll has been created for the hyperaldosteronism group:How big is your adrenal tumor(s)? o 1 - 2 mm o 3 - 4 mm o 5 - 6 mm o 7 - 8 mm o 9 mm o 1 cm o 2 cm o 3 cm o 4 cm o 5 cm o 6 cm o 7 cm o 8 cm o 9 cm o > 10 cm To vote, please visit the following web page:hyperaldosteronism/surveys?id=2239439 Note: Please do not reply to this message. Poll votes are not collected via email. To vote, you must go to the web

site listed above.Thanks!