New poll for hyperaldosteronism

[Guest guest]

Enter your vote today! A new poll has been created for the

hyperaldosteronism group:

How often do you have lightness/brain fog

o all the time

o part of the day

o a few days a week

o a few days a month

o a few days a year

To vote, please visit the following web page:

hyperaldosteronism/surveys?id=2233942

Note: Please do not reply to this message. Poll votes are

not collected via email. To vote, you must go to the

web site listed above.

Thanks!

[Guest guest]

A good question is can u still do the checkbook?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Oct 2, 2009, at 8:22 AM, Francis Bill <georgewbill@...> wrote:

This would be one of the things. I would put it more like a reduced ability to concentrate.

> >

> > For example exactly what is meant by lightness? Trust you are not

> > talking about loafers ;-)

> >

> > What is meant by brain fog? Do you mean after you smoke special

> > cigarettes or what?

> >

> > Certainly not standard terms. So unless we know exactly what you and

> > those who are to answer know what your are talking about?

> >

> > Also want to know what brings it on? what makes it worse? What makes

> > it go away? Can you "tell" when it is coming on? How? If you know it

> > is coming on can you stop it? How do you do that?

> >

> > How long does it last? Describe how it comes on and goes away in as

> > much detail as possible.

> >

> > What time of day? Does food affect either? Do menses affect either.

> > Are meds you are taking related to either? Does peeing or having a BM

> > bring it on or off? Does it occur before during or after sexual

> > activity?

> >

> > Is your vision affected by either?

> >

> > What does you heart rate do during either? What does your breathing

> > rate do during either.

> >

> > Do you also get dizzy? If yes answer all the above.

> > Do you have vertigo? see above.

>

[Guest guest]

How do u document the poll "helped" anyone?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Oct 2, 2009, at 8:11 AM, Francis Bill <georgewbill@...> wrote:

Yes I would like to have somekind of diagnosis Be it Conn's or something else. I also want to help others that are struggling for a diagnosis.

Many SX for Conn's are unheard of for most doctors and many of them one can't really explain in a may that make sense to there doctors.

So to help others and my self we need all the help we can get. We need information in ways that makes sense to us. It needs to be readily available.

Right now this group seem to be the place to get this information. However the way this site works much good informatiom is very hard to find.

More should be in files but right now it is almost imposable to look at all the emails edit what is useful information and put it in the files.

Polls can be used by any one If the information only helps one person then that person gets the answer he needs. If the information is useful to every one it can be put in a file.

>

> I think he is really struggling for a diagnosis and is trying to see what

> others have experienced. Been there, done that.

>

> Val

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

>

>

> In general we recommend review by our group before polls are done. Helps

> minimize GIGO.

>

> AKA garbage in, garbage out.

>

> I think your poll with not yield much, but will wait till you get feedback.

>

[Guest guest]

Need to do a word doc with all the questions and items I mentioned and then let others review. a can tell u how she did her questioner after review we could merge hers with yours??Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Oct 2, 2009, at 7:37 AM, Valarie <val@...> wrote:

Does brain fog mean an inability to concentrate?

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Francis Bill

Sorry the Lightness was a typo. The terms seem to be common

terms that those with Conn's use. I know they aren't terms that a doctor always

understands. I have been asked mant times to describe what I feel. Something I

can't realy do.

The one problem with the poll is you can only ask one question. depending on

what input is given other polls can be used.

I have seen the term brain fog used a lot and after seeing it used I can under

stand what it means. I have refered to my self is being lightheaded. Now I

think brain fog fits better.

Since I don't drink or smoke including the special

cigarettes. I cant say what the felling is like when drunk. I have seen others

say there brain fog is somewhat the felling they get when drunk.

With me the fellings never goes away there are times it is better then others.

So far I don't know what makes it better or worse.

All the questions you ask should answered. Just don't know how to put some of

them in the polls

>

> For example exactly what is meant by lightness? Trust you are not

> talking about loafers ;-)

>

> What is meant by brain fog? Do you mean after you smoke special

> cigarettes or what?

>

> Certainly not standard terms. So unless we know exactly what you and

> those who are to answer know what your are talking about?

>

> Also want to know what brings it on? what makes it worse? What makes

> it go away? Can you "tell" when it is coming on? How? If you

know it

> is coming on can you stop it? How do you do that?

>

> How long does it last? Describe how it comes on and goes away in as

> much detail as possible.

>

> What time of day? Does food affect either? Do menses affect either.

> Are meds you are taking related to either? Does peeing or having a BM

> bring it on or off? Does it occur before during or after sexual

> activity?

>

> Is your vision affected by either?

>

> What does you heart rate do during either? What does your breathing

> rate do during either.

>

> Do you also get dizzy? If yes answer all the above.

> Do you have vertigo? see above.

[Guest guest]

i or your dr do not know how u feel only u can tell us that. Recommend writing it out and dr can ask other questions. Saves both time Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Oct 2, 2009, at 6:52 AM, Francis Bill <georgewbill@...> wrote:

Sorry the Lightness was a typo. The terms seem to be common terms that those with Conn's use. I know they aren't terms that a doctor always understands. I have been asked mant times to describe what I feel. Something I can't realy do.

The one problem with the poll is you can only ask one question. depending on what input is given other polls can be used.

I have seen the term brain fog used a lot and after seeing it used I can under stand what it means. I have refered to my self is being lightheaded. Now I think brain fog fits better.

Since I don't drink or smoke including the special

cigarettes. I cant say what the felling is like when drunk. I have seen others say there brain fog is somewhat the felling they get when drunk.

With me the fellings never goes away there are times it is better then others. So far I don't know what makes it better or worse.

All the questions you ask should answered. Just don't know how to put some of them in the polls

>

> >

> > Enter your vote today! A new poll has been created for the

> > hyperaldosteronism group:

> >

> > How often do you have lightness/brain fog

> >

> > o all the time

> > o part of the day

> > o a few days a week

> > o a few days a month

> > o a few days a year

> >

> > To vote, please visit the following web page:

> > hyperaldosteronism/surveys?id=2233942

> >

> > Note: Please do not reply to this message. Poll votes are

> > not collected via email. To vote, you must go to the

> > web site listed above.

> >

> > Thanks!

> >

> >

>

[Guest guest]

I see my doctor at least every 3 months. This is his choice to see me this often. We have talk many time about the lightheadness. I have tried to tell him what I feel but so far haven't been to successful. Partly because the feeling changes and partly he is trying to fit sx into his knowledge of them. To him lightheadness means you feel like you are going to faint and dizzness means the room spinning around. What I feel is not quite being dizzy of like I am going to faint. I is a feeling I can not truly explain. The brain fog seem to better fit.

Sorry the Lightness was a typo. The terms seem to be common terms that those with Conn's use. I know they aren't terms that a doctor always understands. I have been asked mant times to describe what I feel. Something I can't realy do. The one problem with the poll is you can only ask one question. depending on what input is given other polls can be used. I have seen the term brain fog used a lot and after seeing it used I can under stand what it means. I have refered to my self is being lightheaded. Now I think brain fog fits better. Since I don't drink or smoke including the special cigarettes. I cant say what the felling is like when drunk. I have seen others say there brain fog is somewhat the felling they get when drunk. With me the fellings never goes away there are times it is better then others. So far I don't know what makes it better or worse. All the questions you ask should answered. Just don't

know how to put some of them in the polls > > >> > Enter your vote today! A new poll has been created for the> > hyperaldosteronism group:> >> > How often do you have lightness/brain fog> >> > o all the time> > o part of the day> > o a few days a week> > o a few days a month> > o a few days a year> >> > To vote, please visit the following web page:> > group/hyperaldos teronism/ surveys?id= 2233942> >> > Note: Please do not reply to this message. Poll votes are> > not collected via email. To vote, you must go to the > > web site listed above.> >> > Thanks!> >> >>

[Guest guest]

Most of the time. There would be days like today I might not attempt to do it.

> > > >

> > > > For example exactly what is meant by lightness? Trust you are not

> > > > talking about loafers ;-)

> > > >

> > > > What is meant by brain fog? Do you mean after you smoke special

> > > > cigarettes or what?

> > > >

> > > > Certainly not standard terms. So unless we know exactly what you

> > and

> > > > those who are to answer know what your are talking about?

> > > >

> > > > Also want to know what brings it on? what makes it worse? What

> > makes

> > > > it go away? Can you " tell " when it is coming on? How? If you

> > know it

> > > > is coming on can you stop it? How do you do that?

> > > >

> > > > How long does it last? Describe how it comes on and goes away in

> > as

> > > > much detail as possible.

> > > >

> > > > What time of day? Does food affect either? Do menses affect

> > either.

> > > > Are meds you are taking related to either? Does peeing or having

> > a BM

> > > > bring it on or off? Does it occur before during or after sexual

> > > > activity?

> > > >

> > > > Is your vision affected by either?

> > > >

> > > > What does you heart rate do during either? What does your

> > breathing

> > > > rate do during either.

> > > >

> > > > Do you also get dizzy? If yes answer all the above.

> > > > Do you have vertigo? see above.

> > >

> >

> >

>

[Guest guest]

Hopeful by others telling if it helped them. If what my poll is already showing It could you help you. If someone comes to you and says they have brain fog you may have a better idea of what they mean.

Yes I would like to have somekind of diagnosis Be it Conn's or something else. I also want to help others that are struggling for a diagnosis. Many SX for Conn's are unheard of for most doctors and many of them one can't really explain in a may that make sense to there doctors. So to help others and my self we need all the help we can get. We need information in ways that makes sense to us. It needs to be readily available. Right now this group seem to be the place to get this information. However the way this site works much good informatiom is very hard to find. More should be in files but right now it is almost imposable to look at all the emails edit what is useful information and put it in the files. Polls can be used by any one If the information only helps one person then that person gets the answer he needs. If the information is useful to every one it can be put in a file. >> I think he is really struggling for a diagnosis and is trying to see what> others have experienced. Been there, done that.> > Val> > From: hyperaldosteronism> [mailto:hyperaldosteronism] On Behalf Of Clarence Grim> > > In general we recommend

review by our group before polls are done. Helps> minimize GIGO. > > AKA garbage in, garbage out.> > I think your poll with not yield much, but will wait till you get feedback.>

[Guest guest]

You have questions here that all doctors should ask. Also some of them should be asked outside of this format. Like the heart rate breathing and vision

Does brain fog mean an inability to concentrate?

Val

From: hyperaldosteronism [mailto:hyperaldost eronism@gro ups.com] On Behalf Of Francis Bill

Sorry the Lightness was a typo. The terms seem to be common terms that those with Conn's use. I know they aren't terms that a doctor always understands. I have been asked mant times to describe what I feel. Something I can't realy do. The one problem with the poll is you can only ask one question. depending on what input is given other polls can be used. I have seen the term brain fog used a lot and after seeing it used I can under stand what it means. I have refered to my self is being lightheaded. Now I think brain fog fits better. Since I don't drink or smoke including the special cigarettes. I cant say what the felling is like when drunk. I have seen others say there brain fog is somewhat the felling they get when drunk. With me the fellings never goes away there are times it is better then others. So far I don't know what makes it better or worse. All the questions you ask should

answered. Just don't know how to put some of them in the polls >> For example exactly what is meant by lightness? Trust you are not > talking about loafers ;-)> > What is meant by brain fog? Do you mean after you smoke special > cigarettes or what?> > Certainly not standard terms. So unless we know exactly what you and > those who are to answer know what your are talking about?> > Also want to know what brings it on? what makes it worse? What makes > it go away? Can you "tell" when it is coming on? How? If you know it > is coming on can you stop it? How do you do that?> > How long

does it last? Describe how it comes on and goes away in as > much detail as possible.> > What time of day? Does food affect either? Do menses affect either. > Are meds you are taking related to either? Does peeing or having a BM > bring it on or off? Does it occur before during or after sexual > activity?> > Is your vision affected by either?> > What does you heart rate do during either? What does your breathing > rate do during either.> > Do you also get dizzy? If yes answer all the above.> Do you have vertigo? see above.

[Guest guest]

If you want to make your own survey you can easily set one up on

kwiksurveys.com. It's easy to use, free, generates some statistics and they say

your info is secure.

a

> >

> > For example exactly what is meant by lightness? Trust you are not

> > talking about loafers ;-)

> >

> > What is meant by brain fog? Do you mean after you smoke special

> > cigarettes or what?

> >

> > Certainly not standard terms. So unless we know exactly what you and

> > those who are to answer know what your are talking about?

> >

> > Also want to know what brings it on? what makes it worse? What makes

> > it go away? Can you " tell " when it is coming on? How? If you know it

> > is coming on can you stop it? How do you do that?

> >

> > How long does it last? Describe how it comes on and goes away in as

> > much detail as possible.

> >

> > What time of day? Does food affect either? Do menses affect either.

> > Are meds you are taking related to either? Does peeing or having a BM

> > bring it on or off? Does it occur before during or after sexual

> > activity?

> >

> > Is your vision affected by either?

> >

> > What does you heart rate do during either? What does your breathing

> > rate do during either.

> >

> > Do you also get dizzy? If yes answer all the above.

> > Do you have vertigo? see above.

>

[Guest guest]

Is this how you did your poll? From your word file it looks like you had a

choice where one could write there own responses. I also think a poll off site

would reduce the numbers that reply.

> > >

> > > For example exactly what is meant by lightness? Trust you are not

> > > talking about loafers ;-)

> > >

> > > What is meant by brain fog? Do you mean after you smoke special

> > > cigarettes or what?

> > >

> > > Certainly not standard terms. So unless we know exactly what you and

> > > those who are to answer know what your are talking about?

> > >

> > > Also want to know what brings it on? what makes it worse? What makes

> > > it go away? Can you " tell " when it is coming on? How? If you know it

> > > is coming on can you stop it? How do you do that?

> > >

> > > How long does it last? Describe how it comes on and goes away in as

> > > much detail as possible.

> > >

> > > What time of day? Does food affect either? Do menses affect either.

> > > Are meds you are taking related to either? Does peeing or having a BM

> > > bring it on or off? Does it occur before during or after sexual

> > > activity?

> > >

> > > Is your vision affected by either?

> > >

> > > What does you heart rate do during either? What does your breathing

> > > rate do during either.

> > >

> > > Do you also get dizzy? If yes answer all the above.

> > > Do you have vertigo? see above.

> >

>

[Guest guest]

But when u try can u do it?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Oct 2, 2009, at 2:04 PM, Francis Bill <georgewbill@...> wrote:

Most of the time. There would be days like today I might not attempt to do it.

> > > >

> > > > For example exactly what is meant by lightness? Trust you are not

> > > > talking about loafers ;-)

> > > >

> > > > What is meant by brain fog? Do you mean after you smoke special

> > > > cigarettes or what?

> > > >

> > > > Certainly not standard terms. So unless we know exactly what you

> > and

> > > > those who are to answer know what your are talking about?

> > > >

> > > > Also want to know what brings it on? what makes it worse? What

> > makes

> > > > it go away? Can you "tell" when it is coming on? How? If you

> > know it

> > > > is coming on can you stop it? How do you do that?

> > > >

> > > > How long does it last? Describe how it comes on and goes away in

> > as

> > > > much detail as possible.

> > > >

> > > > What time of day? Does food affect either? Do menses affect

> > either.

> > > > Are meds you are taking related to either? Does peeing or having

> > a BM

> > > > bring it on or off? Does it occur before during or after sexual

> > > > activity?

> > > >

> > > > Is your vision affected by either?

> > > >

> > > > What does you heart rate do during either? What does your

> > breathing

> > > > rate do during either.

> > > >

> > > > Do you also get dizzy? If yes answer all the above.

> > > > Do you have vertigo? see above.

> > >

> >

> >

>

[Guest guest]

But I nor other Drs know what u mean by brain fog Please describe in detail. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Oct 2, 2009, at 1:36 PM, Bill <georgewbill@...> wrote:

I see my doctor at least every 3 months. This is his choice to see me this often. We have talk many time about the lightheadness. I have tried to tell him what I feel but so far haven't been to successful. Partly because the feeling changes and partly he is trying to fit sx into his knowledge of them. To him lightheadness means you feel like you are going to faint and dizzness means the room spinning around. What I feel is not quite being dizzy of like I am going to faint. I is a feeling I can not truly explain. The brain fog seem to better fit.

Sorry the Lightness was a typo. The terms seem to be common terms that those with Conn's use. I know they aren't terms that a doctor always understands. I have been asked mant times to describe what I feel. Something I can't realy do. The one problem with the poll is you can only ask one question. depending on what input is given other polls can be used. I have seen the term brain fog used a lot and after seeing it used I can under stand what it means. I have refered to my self is being lightheaded. Now I think brain fog fits better. Since I don't drink or smoke including the special cigarettes. I cant say what the felling is like when drunk. I have seen others say there brain fog is somewhat the felling they get when drunk. With me the fellings never goes away there are times it is better then others. So far I don't know what makes it better or worse. All the questions you ask should answered. Just don't

know how to put some of them in the polls > > >> > Enter your vote today! A new poll has been created for the> > hyperaldosteronism group:> >> > How often do you have lightness/brain fog> >> > o all the time> > o part of the day> > o a few days a week> > o a few days a month> > o a few days a year> >> > To vote, please visit the following web page:> > group/hyperaldos teronism/ surveys?id= 2233942> >> > Note: Please do not reply to this message. Poll votes are> > not collected via email. To vote, you must go to the > > web site listed above.> >> > Thanks!> >> >>

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[Guest guest]

My article discusses this and should be definitive. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Oct 2, 2009, at 8:11 AM, Francis Bill <georgewbill@...> wrote:

Yes I would like to have somekind of diagnosis Be it Conn's or something else. I also want to help others that are struggling for a diagnosis.

Many SX for Conn's are unheard of for most doctors and many of them one can't really explain in a may that make sense to there doctors.

So to help others and my self we need all the help we can get. We need information in ways that makes sense to us. It needs to be readily available.

Right now this group seem to be the place to get this information. However the way this site works much good informatiom is very hard to find.

More should be in files but right now it is almost imposable to look at all the emails edit what is useful information and put it in the files.

Polls can be used by any one If the information only helps one person then that person gets the answer he needs. If the information is useful to every one it can be put in a file.

>

> I think he is really struggling for a diagnosis and is trying to see what

> others have experienced. Been there, done that.

>

> Val

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

>

>

> In general we recommend review by our group before polls are done. Helps

> minimize GIGO.

>

> AKA garbage in, garbage out.

>

> I think your poll with not yield much, but will wait till you get feedback.

>

[Guest guest]

No that is not true. They learned all of this in Medical School. Assuming they went to class that day. U should know that many medical students don't go to class but read Class notes. Patients suffer from this schrade. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Oct 2, 2009, at 8:11 AM, Francis Bill <georgewbill@...> wrote:

Yes I would like to have somekind of diagnosis Be it Conn's or something else. I also want to help others that are struggling for a diagnosis.

Many SX for Conn's are unheard of for most doctors and many of them one can't really explain in a may that make sense to there doctors.

So to help others and my self we need all the help we can get. We need information in ways that makes sense to us. It needs to be readily available.

Right now this group seem to be the place to get this information. However the way this site works much good informatiom is very hard to find.

More should be in files but right now it is almost imposable to look at all the emails edit what is useful information and put it in the files.

Polls can be used by any one If the information only helps one person then that person gets the answer he needs. If the information is useful to every one it can be put in a file.

>

> I think he is really struggling for a diagnosis and is trying to see what

> others have experienced. Been there, done that.

>

> Val

>

> From: hyperaldosteronism

> [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

>

>

> In general we recommend review by our group before polls are done. Helps

> minimize GIGO.

>

> AKA garbage in, garbage out.

>

> I think your poll with not yield much, but will wait till you get feedback.

>

[Guest guest]

Sorry I still have no idea what brain fog means. Please clarify. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Oct 2, 2009, at 3:29 PM, Bill <georgewbill@...> wrote:

Hopeful by others telling if it helped them. If what my poll is already showing It could you help you. If someone comes to you and says they have brain fog you may have a better idea of what they mean.

Yes I would like to have somekind of diagnosis Be it Conn's or something else. I also want to help others that are struggling for a diagnosis. Many SX for Conn's are unheard of for most doctors and many of them one can't really explain in a may that make sense to there doctors. So to help others and my self we need all the help we can get. We need information in ways that makes sense to us. It needs to be readily available. Right now this group seem to be the place to get this information. However the way this site works much good informatiom is very hard to find. More should be in files but right now it is almost imposable to look at all the emails edit what is useful information and put it in the files. Polls can be used by any one If the information only helps one person then that person gets the answer he needs. If the information is useful to every one it can be put in a file. >> I think he is really struggling for a diagnosis and is trying to see what> others have experienced. Been there, done that.> > Val> > From: hyperaldosteronism> [mailto:hyperaldosteronism] On Behalf Of Clarence Grim> > > In general we recommend

review by our group before polls are done. Helps> minimize GIGO. > > AKA garbage in, garbage out.> > I think your poll with not yield much, but will wait till you get feedback.>

[Guest guest]

If he can't understand he can't help. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Oct 2, 2009, at 1:36 PM, Bill <georgewbill@...> wrote:

I see my doctor at least every 3 months. This is his choice to see me this often. We have talk many time about the lightheadness. I have tried to tell him what I feel but so far haven't been to successful. Partly because the feeling changes and partly he is trying to fit sx into his knowledge of them. To him lightheadness means you feel like you are going to faint and dizzness means the room spinning around. What I feel is not quite being dizzy of like I am going to faint. I is a feeling I can not truly explain. The brain fog seem to better fit.

Sorry the Lightness was a typo. The terms seem to be common terms that those with Conn's use. I know they aren't terms that a doctor always understands. I have been asked mant times to describe what I feel. Something I can't realy do. The one problem with the poll is you can only ask one question. depending on what input is given other polls can be used. I have seen the term brain fog used a lot and after seeing it used I can under stand what it means. I have refered to my self is being lightheaded. Now I think brain fog fits better. Since I don't drink or smoke including the special cigarettes. I cant say what the felling is like when drunk. I have seen others say there brain fog is somewhat the felling they get when drunk. With me the fellings never goes away there are times it is better then others. So far I don't know what makes it better or worse. All the questions you ask should answered. Just don't

know how to put some of them in the polls > > >> > Enter your vote today! A new poll has been created for the> > hyperaldosteronism group:> >> > How often do you have lightness/brain fog> >> > o all the time> > o part of the day> > o a few days a week> > o a few days a month> > o a few days a year> >> > To vote, please visit the following web page:> > group/hyperaldos teronism/ surveys?id= 2233942> >> > Note: Please do not reply to this message. Poll votes are> > not collected via email. To vote, you must go to the > > web site listed above.> >> > Thanks!> >> >>

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·

Cognitive

dysfunction (or brain fog) is defined as unusually poor mental

function, associated with confusion, forgetfulness and difficulty

concentrating.

When I have these episodes, the

description above is most suitable and I too call it a ‘brain fog’.

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

Sent: Saturday, 3 October 2009 1:48 PM

hyperaldosteronism

Subject: Re: Re: New poll for hyperaldosteronism

But I nor other Drs know what u mean by brain fog

Please describe in detail.

Tiped sad Send form mi

iPhone ;-)

May your pressure be low!

CE Grim MD

Specializing in Difficult

Hypertension

On Oct 2, 2009, at 1:36 PM, Bill <georgewbill@...> wrote:

I see my doctor at least every 3 months. This is his

choice to see me this often. We have talk many time about the lightheadness.

I have tried to tell him what I feel but so far haven't been to successful.

Partly because the feeling changes and partly he is trying to fit sx

into his knowledge of them. To him lightheadness means you feel like you are

going to faint and dizzness means the room spinning around. What I feel

is not quite being dizzy of like I am going to faint. I is a feeling I

can not truly explain. The brain fog seem to better

fit.

Sorry the Lightness was a

typo. The terms seem to be common terms that those with Conn's use. I know

they aren't terms that a doctor always understands. I have been asked mant

times to describe what I feel. Something I can't realy do.

The one problem with the poll is you can only ask one question. depending on

what input is given other polls can be used.

I have seen the term brain fog used a lot and after seeing it used I can

under stand what it means. I have refered to my self is being lightheaded.

Now I think brain fog fits better.

Since I don't drink or smoke including the special

cigarettes. I cant say what the felling is like when drunk. I have seen

others say there brain fog is somewhat the felling they get when drunk.

With me the fellings never goes away there are times it is better then

others. So far I don't know what makes it better or worse.

All the questions you ask should answered. Just don't know how to put some of

them in the polls

>

> >

> > Enter your vote today! A new poll has been created for the

> > hyperaldosteronism group:

> >

> > How often do you have lightness/brain fog

> >

> > o all the time

> > o part of the day

> > o a few days a week

> > o a few days a month

> > o a few days a year

> >

> > To vote, please visit the following web page:

> > group/hyperaldos teronism/

surveys?id= 2233942

> >

> > Note: Please do not reply to this message. Poll votes are

> > not collected via email. To vote, you must go to the

> > web site listed above.

> >

> > Thanks!

> >

> >

>

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For example, I define " brain fog " as

- when I am reading, and suddenly I am unable to understand what is on the page- when I am watching TV and nothing makes sense

- having a conversation, then suddenly not remembering  and feeling confused

- difficulty concentrating at times.

The episodes for me can come on suddenly, at other times it can last most of the day.

I note that it doesnt seem to correlate with K levels.

On Sat, Oct 3, 2009 at 3:40 PM, megra0409 <megra0409@...> wrote:

 

·         Cognitive dysfunction (or brain fog) is defined as unusually poor mental function, associated with confusion, forgetfulness and difficulty concentrating.

 

When I have these episodes, the description above is most suitable and I too call it a ‘brain fog’.

 

 

From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

Sent: Saturday, 3 October 2009 1:48 PMhyperaldosteronism

Subject: Re: Re: New poll for hyperaldosteronism

 

 

But I nor other Drs know what u mean by brain fog 

 

Please describe in detail. Tiped sad Send form mi

iPhone ;-)

 

May your pressure be low!

 

CE Grim MD

Specializing in Difficult

Hypertension

On Oct 2, 2009, at 1:36 PM, Bill <georgewbill@...> wrote:

 

I see my doctor at least every 3 months. This is his choice to see me this often. We have talk many time about the lightheadness. I have tried to tell him what I feel but so far haven't been to successful. Partly because the feeling changes and partly he is trying to fit sx into his knowledge of them. To him lightheadness means you feel like you are going to faint and dizzness means the room spinning around. What I feel is not quite being dizzy of like I am going to faint. I is a feeling I can not truly explain. The brain fog seem to better fit.      

 

Sorry the Lightness was a typo. The terms seem to be common terms that those with Conn's use. I know they aren't terms that a doctor always understands. I have been asked mant times to describe what I feel. Something I can't realy do.

The one problem with the poll is you can only ask one question. depending on what input is given other polls can be used. I have seen the term brain fog used a lot and after seeing it used I can under stand what it means. I have refered to my self is being lightheaded. Now I think brain fog fits better.

Since I don't drink or smoke including the special cigarettes. I cant say what the felling is like when drunk. I have seen others say there brain fog is somewhat the felling they get when drunk. With me the fellings never goes away there are times it is better then others. So far I don't know what makes it better or worse.

All the questions you ask should answered. Just don't know how to put some of them in the polls

> > >> > Enter your vote today! A new poll has been created for the> > hyperaldosteronism group:> >> > How often do you have lightness/brain fog> >> > o all the time

> > o part of the day> > o a few days a week> > o a few days a month> > o a few days a year> >> > To vote, please visit the following web page:> > group/hyperaldos teronism/ surveys?id= 2233942

> >> > Note: Please do not reply to this message. Poll votes are> > not collected via email. To vote, you must go to the > > web site listed above.> >> > Thanks!

> >> >>

 

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At least for me this is only a part of it. Do you have a feeling of things are

quite real? feel like a zombie? Almost feel like you are dizzy?

> > >

> > > >

> > > > Enter your vote today! A new poll has been created for the

> > > > hyperaldosteronism group:

> > > >

> > > > How often do you have lightness/brain fog

> > > >

> > > > o all the time

> > > > o part of the day

> > > > o a few days a week

> > > > o a few days a month

> > > > o a few days a year

> > > >

> > > > To vote, please visit the following web page:

> > > > group/hyperaldos teronism/ surveys?id=

> > 2233942

> > > >

> > > > Note: Please do not reply to this message. Poll votes are

> > > > not collected via email. To vote, you must go to the

> > > > web site listed above.

> > > >

> > > > Thanks!

> > > >

> > > >

> > >

> >

> >

> >

> > Messages in this topic

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<hyperaldosteronism/message/469;_ylc=X3oDMTM0OGVka\

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[Guest guest]

My Harvard-educated family

practice doc had never heard about PA.

My endo seems totally foggy about it. My ob/gyn has not only heard about it

but understands the issues. Go

figure.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

No

that is not true. They learned all of this in Medical School. Assuming they

went to class that day. U should know that many medical students don't go to

class but read Class notes.

Patients

suffer from this schrade.

On Oct 2, 2009, at 8:11 AM, Francis Bill <georgewbill@...> wrote:

Many SX for Conn's are unheard of for most doctors and many

of them one can't really explain in a may that make sense to there doctors.

[Guest guest]

Francis/ is probably somewhere in the evolution to

PA. The problem is that he has

LVH. How that is being addressed.

Val

From: hyperaldosteronism

[mailto:hyperaldosteronism ] On Behalf Of Clarence Grim

My

article discusses this and should be definitive.

On Oct 2, 2009, at 8:11 AM, Francis Bill <georgewbill@...> wrote:

Yes I would like to have somekind of diagnosis Be it Conn's

or something else. I also want to help others that are struggling for a

diagnosis.

Many SX for Conn's are unheard of for most doctors and many of them one can't

really explain in a may that make sense to there doctors.

So to help others and my self we need all the help we can get. We need

information in ways that makes sense to us. It needs to be readily available.

Right now this group seem to be the place to get this information. However the

way this site works much good informatiom is very hard to find.

More should be in files but right now it is almost imposable to look at all the

emails edit what is useful information and put it in the files.

Polls can be used by any one If the information only helps one person then that

person gets the answer he needs. If the information is useful to every one it

can be put in a file.

[Guest guest]

The term brain fog is in the PAsurveyresults.doc. So someone else has used it

before. By it self it doesn't mean much but I can understand what they are

talking about. We now have others trying to describe how they perceive it to be.

I hope many more tell there stories.

While it would be nice to have someway that truly explaines it. Some how I don't

think you can truly do this. What we need to know is if it is Conn's related.

I have this term used as well in searching for Conn's " a feeling of being unwell

for a long time " . Just what dose mean? I can relate to it as I am sure others

can. But it does you doctor very little good to tell him this.

I think there are many vague Sx at least at first with Conn's. Many of Conn's SX

are the same for other diseases.

There are may places I read High blood pressure may be the only SX on Conn's

other then here I have never see many other SX of Conn's What are the text book

SX of Conn's? Not what you know them to be but what do they teach in Med school.

> >> >

> >> > I think he is really struggling for a diagnosis and is trying to

> >> see what

> >> > others have experienced. Been there, done that.

> >> >

> >> > Val

> >> >

> >> > From: hyperaldosteronism

> >> > [mailto:hyperaldosteronism] On Behalf Of

> >> Clarence Grim

> >> >

> >> >

> >> > In general we recommend review by our group before polls are

> >> done. Helps

> >> > minimize GIGO.

> >> >

> >> > AKA garbage in, garbage out.

> >> >

> >> > I think your poll with not yield much, but will wait till you get

> >> feedback.

> >> >

> >>

> >

> >

> >

> >

>

[Guest guest]

First The name thing. I have many Email accounts set up. Each one for different

reasons. I wanted a place that only has this groups information. I set up a

account uesing my fathers name Bill. At the time I didn't know that the

name would show up with every posting. Once I realized this I change the profile

name to my name. Francis. It only changed it as to this site and not in my

account. If I reply to posting on the group site Francis Bill shows up. From my

account Bill shows up.

I will post more about my EKGs and other tests. Of the many I have had only one

EKG show the LVH. not sure why this is but would like to know if it could be due

to low k on that day. My thinking is K plays a role in your body's electrical

system. EKGs are measurements of your hearts electrical system. Can low k change

hearts electrical system and give wrong reading on EKG?

>

> Yes I would like to have somekind of diagnosis Be it Conn's or something

> else. I also want to help others that are struggling for a diagnosis.

>

> Many SX for Conn's are unheard of for most doctors and many of them one

> can't really explain in a may that make sense to there doctors.

>

> So to help others and my self we need all the help we can get. We need

> information in ways that makes sense to us. It needs to be readily

> available.

>

> Right now this group seem to be the place to get this information. However

> the way this site works much good informatiom is very hard to find.

>

> More should be in files but right now it is almost imposable to look at all

> the emails edit what is useful information and put it in the files.

>

> Polls can be used by any one If the information only helps one person then

> that person gets the answer he needs. If the information is useful to every

> one it can be put in a file.

>

[Guest guest]

I think calling it "saltaholic syndrome" is more accurate. Now that I take no ACE inhibitors, I can indulge in as much potassium chloride as I need to flavor my food. My only downfall is cheese.

Bindner

Web Directory (links to my sites and blogs):

http://www.geocities.com/mikeybdc/index.html

http://mikeybdc.blogspot.com

From: jwwright <jwwright@...>Subject: Re: Re: New poll for hyperaldosteronismhyperaldosteronism Date: Saturday, October 3, 2009, 1:03 PM

Early on, my communication on the Inet required me to use basic English as much as possible and I found even some technical terms like "metabolic syndrome" told me nothing.

Dr Grim changed that to eataholic syndrome - explains everything.

I have no idea what you might experience but I have seen people suddenly forget the point they're trying to make.

If a person has to think about whether they have "brain fog", probably means they don't have it.

Regards

[hyperaldosteronism ] Re: New poll for hyperaldosteronism

The term brain fog is in the PAsurveyresults. doc. So someone else has used it before. By it self it doesn't mean much but I can understand what they are talking about. We now have others trying to describe how they perceive it to be. I hope many more tell there stories. While it would be nice to have someway that truly explaines it. Some how I don't think you can truly do this. What we need to know is if it is Conn's related. I have this term used as well in searching for Conn's "a feeling of being unwell for a long time". Just what dose mean? I can relate to it as I am sure others can. But it does you doctor very little good to tell him this. I think there are many vague Sx at least at first with Conn's. Many of Conn's SX are the same for other diseases. There are may places I read High blood pressure may be the only SX on Conn's other then here I have never see many other SX of Conn's What are the text book SX of

Conn's? Not what you know them to be but what do they teach in Med school. > >> >> >> > I think he is really struggling for a diagnosis and is trying to > >> see what> >> > others have experienced. Been there, done that.> >> >> >> >

Val> >> >> >> > From: hyperaldosteronism> >> > [mailto:hyperaldost eronism] On Behalf Of > >> Clarence Grim> >> >> >> >> >> > In general we recommend review by our group before polls are > >> done. Helps> >> > minimize GIGO.> >> >> >> > AKA garbage in, garbage out.> >> >> >> > I think your poll with not yield much, but will wait till you get > >> feedback.> >> >> >>> >> >> >> >>__________ NOD32 4389 (20090902) Information __________This message was checked by NOD32 antivirus system.http://www.eset.

com