Guest guest Posted October 7, 2005 Report Share Posted October 7, 2005 , , I feel the same way. Despite CMT, challenges and limitations, I get up each day, am thankful and get ready for work. My QOL is dependent on my attitude; I always try to approach my day with a grateful heart. If doctors want to know WHY CMT affects our QOL, they should ask US! I have a feeling they would get many different responses, as we are all different with our CMT needs and affectedness rates. As for WHAT doctors can do - I'd like to see them get off 'pedestals' and out of research labs and become part of groups like ; so to speak, get in the trenches, shut up and LISTEN. It would be great to have some kind of " The CMT Persons Forum " - where we have panelists, all with CMT, a moderator, and a room full of medical professionals LISTENING, taking notes. Videocast the whole thing also. And yes, I am interested in seeing further NT-3 and Vitamin C trials too. Seko Quote Link to comment Share on other sites More sharing options...
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