Guest guest Posted September 22, 2009 Report Share Posted September 22, 2009 No I don't understand every thing about ALDO/SALT as I don't think every one one here does. I am trying to learn more about it. What I do know is that ALDO makes you retain salt. The salt in turn makes you retain water. I think the increase in water increases blood presure. If you don't have conn's then renin keeps aldo in check so salt is somewhat keep in check so you retain less water. If you have conn's you there is no control of ALDO. Depending on how much uncontroled ALDO you have you will retain x amount of salt and water. Even if your salt intake is not overly high your system can't remove all the salt it needs to. Now the trick is to find the right amount salt you need with out getting to much or to little. Since we need some salt to stay alive it we can only do so much with salt intake. Some days we may only need 500 MG of salt and others we need 1500 MG Now for me If I truely have Conn's and one days I don't have to much salt then my B/P is around 120/80 and on days I have to much salt my B/P can be over 200/100. Now as to Aldo without salt I have no idea about and from other postings many others on here don't. that is why I wrote I also know that there is a lot of misinformation about aldo on the Internet. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Is there a suggestion? > > > > > > > emails are nice because they are searchable. > > > > > > > Are you trying to find something? > > > > > > > > > > > > > > Regards > > > > > > > > > > > > > > lost information > > > > > > > > > > > > > > > > > > > > > > > > > > > > As of this email there have been 15904 posting to this > > group. > > > > Most > > > > > > be a lot of good information on here. Just would be very hard > > > > to find. > > > > > > > > > > > > > > There are 357 members on here. It would much easier to look > > > > at 357 > > > > > > files then 15904 emails. Maybe it is time to make more use > > on the > > > > > > files part of this group. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > . > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________ NOD32 4389 (20090902) Information __________ > > > > > > > > > > > > > > This message was checked by NOD32 antivirus system. > > > > > > > http://www.eset.com > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 There is a file here called AldosteronePresentation.pdf. I get frow reading it that Aldosterone does many things it you with salt playing a role. I may be misreading what it says. To me it seems like it is the Aldosterone doing the harm. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Is there a suggestion? > > > > > > > > emails are nice because they are searchable. > > > > > > > > Are you trying to find something? > > > > > > > > > > > > > > > > Regards > > > > > > > > > > > > > > > > lost information > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > As of this email there have been 15904 posting to this > > > group. > > > > > Most > > > > > > > be a lot of good information on here. Just would be very hard > > > > > to find. > > > > > > > > > > > > > > > > There are 357 members on here. It would much easier to look > > > > > at 357 > > > > > > > files then 15904 emails. Maybe it is time to make more use > > > on the > > > > > > > files part of this group. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > . > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________ NOD32 4389 (20090902) Information __________ > > > > > > > > > > > > > > > > This message was checked by NOD32 antivirus system. > > > > > > > > http://www.eset.com > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 No. No excess salt no aldo harm. Clarence Grimlowerbp2@... On Sep 23, 2009, at 7:48 PM, Francis Bill wrote: There is a file here called AldosteronePresentation.pdf. I get frow reading it that Aldosterone does many things it you with salt playing a role. I may be misreading what it says. To me it seems like it is the Aldosterone doing the harm. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Is there a suggestion? > > > > > > > > emails are nice because they are searchable. > > > > > > > > Are you trying to find something? > > > > > > > > > > > > > > > > Regards > > > > > > > > > > > > > > > > lost information > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > As of this email there have been 15904 posting to this > > > group. > > > > > Most > > > > > > > be a lot of good information on here. Just would be very hard > > > > > to find. > > > > > > > > > > > > > > > > There are 357 members on here. It would much easier to look > > > > > at 357 > > > > > > > files then 15904 emails. Maybe it is time to make more use > > > on the > > > > > > > files part of this group. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > . > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________ NOD32 4389 (20090902) Information __________ > > > > > > > > > > > > > > > > This message was checked by NOD32 antivirus system. > > > > > > > > http://www.eset.com > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 Did you read this? If so Did I miss something. It does say they have only learned some of this in the past ten years. They call it new Biology. If this file isn't giving the right information it shouldn't be on here. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Is there a suggestion? > > > > > > > > > > emails are nice because they are searchable. > > > > > > > > > > Are you trying to find something? > > > > > > > > > > > > > > > > > > > > Regards > > > > > > > > > > > > > > > > > > > > lost information > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > As of this email there have been 15904 posting to this > > > > > group. > > > > > > > Most > > > > > > > > > be a lot of good information on here. Just would be > > very hard > > > > > > > to find. > > > > > > > > > > > > > > > > > > > > There are 357 members on here. It would much easier > > to look > > > > > > > at 357 > > > > > > > > > files then 15904 emails. Maybe it is time to make > > more use > > > > > on the > > > > > > > > > files part of this group. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > . > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________ NOD32 4389 (20090902) Information > > __________ > > > > > > > > > > > > > > > > > > > > This message was checked by NOD32 antivirus system. > > > > > > > > > > http://www.eset.com > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 These are slides I use in one of my lectures. It is better when I give it in person. Also slides Are animated in PPT Tiped sad Sen form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Sep 23, 2009, at 9:42 PM, Francis Bill <georgewbill@...> wrote: Did you read this? If so Did I miss something. It does say they have only learned some of this in the past ten years. They call it new Biology. If this file isn't giving the right information it shouldn't be on here. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Is there a suggestion? > > > > > > > > > > emails are nice because they are searchable. > > > > > > > > > > Are you trying to find something? > > > > > > > > > > > > > > > > > > > > Regards > > > > > > > > > > > > > > > > > > > > lost information > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > As of this email there have been 15904 posting to this > > > > > group. > > > > > > > Most > > > > > > > > > be a lot of good information on here. Just would be > > very hard > > > > > > > to find. > > > > > > > > > > > > > > > > > > > > There are 357 members on here. It would much easier > > to look > > > > > > > at 357 > > > > > > > > > files then 15904 emails. Maybe it is time to make > > more use > > > > > on the > > > > > > > > > files part of this group. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > . > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________ NOD32 4389 (20090902) Information > > __________ > > > > > > > > > > > > > > > > > > > > This message was checked by NOD32 antivirus system. > > > > > > > > > > http://www.eset.com > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 Hi Dr Grim I have PA - bilateral adrenal hyperplasia, on 100mg of spiro daily, dashing and adding more activity (working through pain in joints, etc.) I have had the diagnosis for almost 2 years now. BP 145/70 to 120/60. Glad I know about dashing - today for example, felt symptoms creeping up on me and had a spinach salad and banana for lunch - all good! Cheers Sue From: Clarence Grim <lowerbp2@...>hyperaldosteronism Sent: Sunday, 20 September, 2009 1:54:42 PMSubject: Re: Re: lost information Sue: good feed back. Dont recall that you have PA or low K? Clarence Grim lowerbp2mac (DOT) com On Sep 18, 2009, at 6:49 PM, marysue hopper wrote: Wow, I can totally relate to what you're saying. I have been struggling with some of the issues Conn's has raised in my life, the most prevalent being pain - and my salt addictions. I found once I drowned myself with water (about 3 or 4 350ml bottles a day) the salt cravings left. I know the bedside manner of many a doctor is awful. The thing is they see so many people refuse an answer they have seen work over and over again. Their advice can help but it isn't what we want when we're in pain, fatigued, muscle aches, emotional turmoil (and in my case throw in menopause into the mix). As much as I was sure they were wrong, following their advice has helped me, Dr. Grim's advice included. For me, I asked myself - what if they're right? I never stayed off really salty foods long enough to understand how my body functioned without the high sodium intake. But after the last 5 months limiting sodium and increasing potassium rich foods, I must say I feel younger, more energetic and my pain is tolerable most times, and forgotten sometimes. I hope you get some answers soon, it's such a despairing place to be when you're sick, and you can't see an end to it - especially if you can remember how good it felt to be fit. My sympathy for sure. Sue From: <laurabcoleman>hyperaldosteronismSent: Saturday, 19 September, 2009 10:53:32 AMSubject: RE: [hyperaldosteronism ] Re: lost information Yes, of course. That is very good advice. It would be silly to have a surgery if it didn't fix the problem. I hope that the tumor IS causing the problem. From: Valarie <val@...>Subject: RE: [hyperaldosteronism ] Re: lost informationhyperaldosteronismDate: Friday, September 18, 2009, 4:48 PM , before having an adrenalectomy, be sure the tumor is responsible for producing the excess aldosterone. Val From: hyperaldosteronism [mailto:hyperaldost eronism@gro ups.com] On Behalf Of Bill,I'm with you on this one. My personal experience with salt and the dash diet is that after a year of being completely off salt and following dash, I became quite ill...much more so that now. I craved salt which is something I mentioned to my endocrinologist. .High Blood Pressure is an obvious externally viewed symptom that most people understand. But hormones are subtle and interact in even more subtle and unique ways inside each individual. My blood pressure seems to be managed by medication, and I went to the endocrinologist for those subtle symptoms that are ruining my life.When I asked my PCP for a referral to an endocrinologist, I had no idea or knowledge of conn's disease; I just knew I had an adrenal gland tumor and I was sick in many vague ways that all added up to keeping me housebound.Everything I read so far says that if the excess hormone is coming from a tumor, removing the tumor slowly eliminates all those subtle symptoms that are ruining my life. Hungry? Try some spicy marinated chicken fillets for dinner tonight, courtesy of Xtra Food. Email slow, clunky, unreliable? Switch to Xtra Mail, New Zealand's new email address. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2009 Report Share Posted September 23, 2009 Good have you done out questionnaire for those with PA? a can direct you. See item 7 below if you have not already done this.Do we have Sue's story in our files? Welcome1. Read my article in our files on the evolution of PA (Evolution_of_PA-Grim.pdf ) and take to all members of health care team. Tell us what stage you believe you are in.2. Read our Conn's stories files and then give us your own in as much detail as you can. To see others' stories, on the Hyperaldosteronism home page, go to Files/Conns Stories. You'll find instructions in "A - How to put your story here.doc " 3. Get the DASH diet book by T. et al, read it and use it. $8 in paperback at your local bookstore.or go to http://www.nhlbi.nih.gov/health/public/heart/hbp/dash/new_dash.pdfdownload this 64 page booklet free and do the Week on the DASH Diet for 2 weeks. If you are on BP meds be prepared for a large fall in BP and let your Dr. know you are doing this.4. Measure your BP daily so you can see if it is getting better. If you are taking meds be sure to tell your health care team you are doing this as your BP may plummet to normal quickly.5. Go to familyhistory.hhs.gov and do your detailed family medical history so we can review with you to help Dx familial causes of high blood pressure and heart disease. If BP runs in your family you may save others in your family by checking their BP yourself.6. Go to our file/Conn's Articles of Note/Medications/Bravo spir 1973.pdf and read this article and take to your health care team.7. If you have been Dxed with PA already and are on Rx or have had surgery please go to http://www.kwiksurveys.com/online-survey.php?surveyID=HIJIO_f2685379 and complete our survey with as much information as you know. If there is some information you don'k know ask us and we will help. If you need to update this as you journey thru the diagnostic/treatment process you can add another entry but label it as Nameyymmdd. For example today 6/12/09 for me would be Grim090612. This ever increasing number will allow us and you to sort your multiple entries into a dated order. 8. If you are new to medical lingo then download the acroyms from bloodpressureline/message/291869. To learn the state of the science about salt and blood pressure please spend some time looking at http://www.worldactiononsalt.com/evidence/treatment_trials.htmClarence E. Grim BS, MS, MD, FACP, FACCBoard Certified in Internal Medicine, Geriatrics, and High Blood PressureClinincal Professor of Internal Medicine and Cardiology, Medical College of WisconsinSpecializing in Difficult to Control HIgh Blood Pressure. On Sep 23, 2009, at 11:33 PM, marysue hopper wrote: Hi Dr Grim I have PA - bilateral adrenal hyperplasia, on 100mg of spiro daily, dashing and adding more activity (working through pain in joints, etc.) I have had the diagnosis for almost 2 years now. BP 145/70 to 120/60. Glad I know about dashing - today for example, felt symptoms creeping up on me and had a spinach salad and banana for lunch - all good! Cheers Sue From: Clarence Grim <lowerbp2mac>hyperaldosteronism Sent: Sunday, 20 September, 2009 1:54:42 PMSubject: Re: Re: lost information Sue: good feed back. Dont recall that you have PA or low K? Clarence Grim lowerbp2mac (DOT) com On Sep 18, 2009, at 6:49 PM, marysue hopper wrote: Wow, I can totally relate to what you're saying. I have been struggling with some of the issues Conn's has raised in my life, the most prevalent being pain - and my salt addictions. I found once I drowned myself with water (about 3 or 4 350ml bottles a day) the salt cravings left. I know the bedside manner of many a doctor is awful. The thing is they see so many people refuse an answer they have seen work over and over again. Their advice can help but it isn't what we want when we're in pain, fatigued, muscle aches, emotional turmoil (and in my case throw in menopause into the mix). As much as I was sure they were wrong, following their advice has helped me, Dr. Grim's advice included. For me, I asked myself - what if they're right? I never stayed off really salty foods long enough to understand how my body functioned without the high sodium intake. But after the last 5 months limiting sodium and increasing potassium rich foods, I must say I feel younger, more energetic and my pain is tolerable most times, and forgotten sometimes. I hope you get some answers soon, it's such a despairing place to be when you're sick, and you can't see an end to it - especially if you can remember how good it felt to be fit. My sympathy for sure. Sue From: <laurabcoleman>hyperaldosteronismSent: Saturday, 19 September, 2009 10:53:32 AMSubject: RE: [hyperaldosteronism ] Re: lost information Yes, of course. That is very good advice. It would be silly to have a surgery if it didn't fix the problem. I hope that the tumor IS causing the problem. From: Valarie <val@...>Subject: RE: [hyperaldosteronism ] Re: lost informationhyperaldosteronismDate: Friday, September 18, 2009, 4:48 PM , before having an adrenalectomy, be sure the tumor is responsible for producing the excess aldosterone. Val From: hyperaldosteronism [mailto:hyperaldost eronism@gro ups.com] On Behalf Of Bill,I'm with you on this one. My personal experience with salt and the dash diet is that after a year of being completely off salt and following dash, I became quite ill...much more so that now. I craved salt which is something I mentioned to my endocrinologist. .High Blood Pressure is an obvious externally viewed symptom that most people understand. But hormones are subtle and interact in even more subtle and unique ways inside each individual. My blood pressure seems to be managed by medication, and I went to the endocrinologist for those subtle symptoms that are ruining my life.When I asked my PCP for a referral to an endocrinologist, I had no idea or knowledge of conn's disease; I just knew I had an adrenal gland tumor and I was sick in many vague ways that all added up to keeping me housebound.Everything I read so far says that if the excess hormone is coming from a tumor, removing the tumor slowly eliminates all those subtle symptoms that are ruining my life. Hungry? Try some spicy marinated chicken fillets for dinner tonight, courtesy of Xtra Food. Email slow, clunky, unreliable? Switch to Xtra Mail, New Zealand's new email address. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2009 Report Share Posted September 24, 2009 Over all it isn't how Aldosterone/salt works but as to what it does. My point is there must be other ways to tell that ones body is making to much Aldosterone. I have small things I see in me that I wounder if they are related to something bigger. Because my PAC/PRA ratio doesn't seem high enough indcate I have to much Aldosterone in my blood, I can't say I have conn's. Maybe I don't. From all that I can find out from this group and other places My symptoms fit conn's. I like what this says. Adrenal masses (AMs) are often discovered incidentally and are then termed adrenal incidentalomas (AIs). They are often discovered after an imaging procedure is performed that is unrelated to the adrenal gland. Usually, the patient has no signs of hormonal excess. My question is why were they doing a scan. Mine was done because I have shortness of breath. Other then doing other testing how can they tell if the patient has no signs of hormonal excess. Besides high B/P and low K there has to other ways to tell if you have to much Aldosterone. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Is there a suggestion? > > > > > > > > > > > > emails are nice because they are searchable. > > > > > > > > > > > > Are you trying to find something? > > > > > > > > > > > > > > > > > > > > > > > > Regards > > > > > > > > > > > > > > > > > > > > > > > > lost information > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > As of this email there have been 15904 posting > > to this > > > > > > > group. > > > > > > > > > Most > > > > > > > > > > > be a lot of good information on here. Just would be > > > > very hard > > > > > > > > > to find. > > > > > > > > > > > > > > > > > > > > > > > > There are 357 members on here. It would much > > easier > > > > to look > > > > > > > > > at 357 > > > > > > > > > > > files then 15904 emails. Maybe it is time to make > > > > more use > > > > > > > on the > > > > > > > > > > > files part of this group. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > . > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________ NOD32 4389 (20090902) Information > > > > __________ > > > > > > > > > > > > > > > > > > > > > > > > This message was checked by NOD32 antivirus > > system. > > > > > > > > > > > > http://www.eset.com > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2009 Report Share Posted September 24, 2009 heya am wendy i was just wondering . does enyone get disability allowance ? i have conns and am from u.hyperaldosteronism From: marysuehopper@...Date: Wed, 23 Sep 2009 21:33:25 -0700Subject: Re: Re: lost information Hi Dr Grim I have PA - bilateral adrenal hyperplasia, on 100mg of spiro daily, dashing and adding more activity (working through pain in joints, etc.) I have had the diagnosis for almost 2 years now. BP 145/70 to 120/60. Glad I know about dashing - today for example, felt symptoms creeping up on me and had a spinach salad and banana for lunch - all good! Cheers Sue From: Clarence Grim <lowerbp2mac>hyperaldosteronism Sent: Sunday, 20 September, 2009 1:54:42 PMSubject: Re: Re: lost information Sue: good feed back. Dont recall that you have PA or low K? Clarence Grim lowerbp2mac (DOT) com On Sep 18, 2009, at 6:49 PM, marysue hopper wrote: Wow, I can totally relate to what you're saying. I have been struggling with some of the issues Conn's has raised in my life, the most prevalent being pain - and my salt addictions. I found once I drowned myself with water (about 3 or 4 350ml bottles a day) the salt cravings left. I know the bedside manner of many a doctor is awful. The thing is they see so many people refuse an answer they have seen work over and over again. Their advice can help but it isn't what we want when we're in pain, fatigued, muscle aches, emotional turmoil (and in my case throw in menopause into the mix). As much as I was sure they were wrong, following their advice has helped me, Dr. Grim's advice included. For me, I asked myself - what if they're right? I never stayed off really salty foods long enough to understand how my body functioned without the high sodium intake. But after the last 5 months limiting sodium and increasing potassium rich foods, I must say I feel younger, more energetic and my pain is tolerable most times, and forgotten sometimes. I hope you get some answers soon, it's such a despairing place to be when you're sick, and you can't see an end to it - especially if you can remember how good it felt to be fit. My sympathy for sure. Sue From: <laurabcoleman>hyperaldosteronismSent: Saturday, 19 September, 2009 10:53:32 AMSubject: RE: [hyperaldosteronism ] Re: lost information Yes, of course. That is very good advice. It would be silly to have a surgery if it didn't fix the problem. I hope that the tumor IS causing the problem. From: Valarie <val@...>Subject: RE: [hyperaldosteronism ] Re: lost informationhyperaldosteronismDate: Friday, September 18, 2009, 4:48 PM , before having an adrenalectomy, be sure the tumor is responsible for producing the excess aldosterone. Val From: hyperaldosteronism [mailto:hyperaldost eronism@gro ups.com] On Behalf Of Bill,I'm with you on this one. My personal experience with salt and the dash diet is that after a year of being completely off salt and following dash, I became quite ill...much more so that now. I craved salt which is something I mentioned to my endocrinologist. .High Blood Pressure is an obvious externally viewed symptom that most people understand. But hormones are subtle and interact in even more subtle and unique ways inside each individual. My blood pressure seems to be managed by medication, and I went to the endocrinologist for those subtle symptoms that are ruining my life.When I asked my PCP for a referral to an endocrinologist, I had no idea or knowledge of conn's disease; I just knew I had an adrenal gland tumor and I was sick in many vague ways that all added up to keeping me housebound.Everything I read so far says that if the excess hormone is coming from a tumor, removing the tumor slowly eliminates all those subtle symptoms that are ruining my life. Hungry? Try some spicy marinated chicken fillets for dinner tonight, courtesy of Xtra Food. Email slow, clunky, unreliable? Switch to Xtra Mail, New Zealand's new email address. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2009 Report Share Posted September 24, 2009 You may be able to SSA disability check out http://www.ssa.gov/disability/professionals/bluebook/AdultListings.htm for a list of what they will pay for. It dose no harm to try more times then not they will say no the first time. The important part is the apply as soon as you can. Keep trying even it you have to get a lawyer. If you do end up getting it they will pay from when you first applied. I get a VA non service connected pension based on Chronic Fatigue Syndrome lightheartedness and shortness of breath. I don't truly have Chronic Fatigue Syndrome as I don't have enough of the symptoms of it. but because it is in my record I am labeled with it and many times If I go to the ED once they so this in my record they don't look at any thing else. All you can From: Valarie <val@...>Subject: RE: [hyperaldosteronism ] Re: lost informationhyperaldosteronismDate: Friday, September 18, 2009, 4:48 PM , before having an adrenalectomy, be sure the tumor is responsible for producing the excess aldosterone. Val From: hyperaldosteronism [mailto:hyperaldost eronism@gro ups.com] On Behalf Of Bill,I'm with you on this one. My personal experience with salt and the dash diet is that after a year of being completely off salt and following dash, I became quite ill...much more so that now. I craved salt which is something I mentioned to my endocrinologist. .High Blood Pressure is an obvious externally viewed symptom that most people understand. But hormones are subtle and interact in even more subtle and unique ways inside each individual. My blood pressure seems to be managed by medication, and I went to the endocrinologist for those subtle symptoms that are ruining my life.When I asked my PCP for a referral to an endocrinologist, I had no idea or knowledge of conn's disease; I just knew I had an adrenal gland tumor and I was sick in many vague ways that all added up to keeping me housebound.Everything I read so far says that if the excess hormone is coming from a tumor, removing the tumor slowly eliminates all those subtle symptoms that are ruining my life. Hungry? Try some spicy marinated chicken fillets for dinner tonight, courtesy of Xtra Food. Email slow, clunky, unreliable? Switch to Xtra Mail, New Zealand's new email address. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2009 Report Share Posted September 24, 2009 Yes renin is low but aldo is not. If renin is very low and the system is working aldo will be low. If it is not then aldo is driving the renin down. Well Aldo/salt. Clarence Grimlowerbp2@... On Sep 24, 2009, at 7:25 AM, Francis Bill wrote: Over all it isn't how Aldosterone/salt works but as to what it does. My point is there must be other ways to tell that ones body is making to much Aldosterone. I have small things I see in me that I wounder if they are related to something bigger. Because my PAC/PRA ratio doesn't seem high enough indcate I have to much Aldosterone in my blood, I can't say I have conn's. Maybe I don't. From all that I can find out from this group and other places My symptoms fit conn's. I like what this says. Adrenal masses (AMs) are often discovered incidentally and are then termed adrenal incidentalomas (AIs). They are often discovered after an imaging procedure is performed that is unrelated to the adrenal gland. Usually, the patient has no signs of hormonal excess. My question is why were they doing a scan. Mine was done because I have shortness of breath. Other then doing other testing how can they tell if the patient has no signs of hormonal excess. Besides high B/P and low K there has to other ways to tell if you have to much Aldosterone. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Is there a suggestion? > > > > > > > > > > > > emails are nice because they are searchable. > > > > > > > > > > > > Are you trying to find something? > > > > > > > > > > > > > > > > > > > > > > > > Regards > > > > > > > > > > > > > > > > > > > > > > > > lost information > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > As of this email there have been 15904 posting > > to this > > > > > > > group. > > > > > > > > > Most > > > > > > > > > > > be a lot of good information on here. Just would be > > > > very hard > > > > > > > > > to find. > > > > > > > > > > > > > > > > > > > > > > > > There are 357 members on here. It would much > > easier > > > > to look > > > > > > > > > at 357 > > > > > > > > > > > files then 15904 emails. Maybe it is time to make > > > > more use > > > > > > > on the > > > > > > > > > > > files part of this group. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > . > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________ NOD32 4389 (20090902) Information > > > > __________ > > > > > > > > > > > > > > > > > > > > > > > > This message was checked by NOD32 antivirus > > system. > > > > > > > > > > > > http://www.eset.com > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2009 Report Share Posted September 25, 2009 With me both aldo and renin are with range. This is because I believe the meds I take changed the test results. This sees to happen to a lot of Conn's people. It is probably the biggest reason Conn's goes undiagnosed for so long if at all. Time of day of blood draw change results. When the lab wants the draw to be done before 10:00AM and it is done at 3:00PM does this matter? Here is list of things that I think should be looked at as beings Conn's related. B/P readings that change from high to low. K that 3.8 or below. Meds that are given to increse K but only have little effect. Glucose that is 92 or higher with it being over the high of the range at times. Urine with low SP.GR. Fluid retention. At least one adnormal EKG. A CT that shows the adrenal adenoma. This is after you have ruled out CHF and ECG and stress test have ruled out heart related problems. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Is there a suggestion? > > > > > > > > > > > > > > emails are nice because they are searchable. > > > > > > > > > > > > > > Are you trying to find something? > > > > > > > > > > > > > > > > > > > > > > > > > > > > Regards > > > > > > > > > > > > > > > > > > > > > > > > > > > > lost information > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > As of this email there have been 15904 posting > > > > to this > > > > > > > > > group. > > > > > > > > > > > Most > > > > > > > > > > > > > be a lot of good information on here. Just > > would be > > > > > > very hard > > > > > > > > > > > to find. > > > > > > > > > > > > > > > > > > > > > > > > > > > > There are 357 members on here. It would much > > > > easier > > > > > > to look > > > > > > > > > > > at 357 > > > > > > > > > > > > > files then 15904 emails. Maybe it is time to > > make > > > > > > more use > > > > > > > > > on the > > > > > > > > > > > > > files part of this group. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > . > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________ NOD32 4389 (20090902) Information > > > > > > __________ > > > > > > > > > > > > > > > > > > > > > > > > > > > > This message was checked by NOD32 antivirus > > > > system. > > > > > > > > > > > > > > http://www.eset.com > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2009 Report Share Posted September 25, 2009 Is your name Francis Bill or Bill Francis? Time of day does matter with aldo. It follows a diurnal patter - highest in the morning and falling throughout the day. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Francis Bill With me both aldo and renin are with range. This is because I believe the meds I take changed the test results. This sees to happen to a lot of Conn's people. It is probably the biggest reason Conn's goes undiagnosed for so long if at all. Time of day of blood draw change results. When the lab wants the draw to be done before 10:00AM and it is done at 3:00PM does this matter? Here is list of things that I think should be looked at as beings Conn's related. B/P readings that change from high to low. K that 3.8 or below. Meds that are given to increse K but only have little effect. Glucose that is 92 or higher with it being over the high of the range at times. Urine with low SP.GR. Fluid retention. At least one adnormal EKG. A CT that shows the adrenal adenoma. This is after you have ruled out CHF and ECG and stress test have ruled out heart related problems. > > Yes renin is low but aldo is not. > > If renin is very low and the system is working aldo will be low. If > it is not then aldo is driving the renin down. Well Aldo/salt. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2009 Report Share Posted September 25, 2009 I have done the survey when it first came out - I haven't written my story because it's been pretty straightforward - no dramas. SueFrom: Clarence Grim <lowerbp2@...>hyperaldosteronism Sent: Thursday, 24 September, 2009 4:58:10 PMSubject: Re: Re: lost information Good have you done out questionnaire for those with PA? a can direct you. See item 7 below if you have not already done this.Do we have Sue's story in our files? Welcome1. Read my article in our files on the evolution of PA (Evolution_of_ PA-Grim.pdf ) and take to all members of health care team. Tell us what stage you believe you are in.2. Read our Conn's stories files and then give us your own in as much detail as you can. To see others' stories, on the Hyperaldosteronism home page, go to Files/Conns Stories. You'll find instructions in "A - How to put your story here.doc " 3. Get the DASH diet book by T. et al, read it and use it. $8 in paperback at your local bookstore.or go to http://www.nhlbi. nih.gov/health/ public/heart/ hbp/dash/ new_dash. pdfdownload this 64 page booklet free and do the Week on the DASH Diet for 2 weeks. If you are on BP meds be prepared for a large fall in BP and let your Dr. know you are doing this.4. Measure your BP daily so you can see if it is getting better. If you are taking meds be sure to tell your health care team you are doing this as your BP may plummet to normal quickly.5. Go to familyhistory. hhs.gov and do your detailed family medical history so we can review with you to help Dx familial causes of high blood pressure and heart disease. If BP runs in your family you may save others in your family by checking their BP yourself.6. Go to our file/Conn's Articles of Note/Medications/ Bravo spir 1973.pdf and read this article and take to your health care team.7. If you have been Dxed with PA already and are on Rx or have had surgery please go to http://www.kwiksurv eys.com/online- survey.php? surveyID= HIJIO_f2685379 and complete our survey with as much information as you know. If there is some information you don'k know ask us and we will help. If you need to update this as you journey thru the diagnostic/treatmen t process you can add another entry but label it as Nameyymmdd. For example today 6/12/09 for me would be Grim090612. This ever increasing number will allow us and you to sort your multiple entries into a dated order. 8. If you are new to medical lingo then download the acroyms from http://health. groups.. com/group/ bloodpressurelin e/message/ 291869. To learn the state of the science about salt and blood pressure please spend some time looking at http://www.worldact iononsalt. com/evidence/ treatment_ trials.htmClarence E. Grim BS, MS, MD, FACP, FACCBoard Certified in Internal Medicine, Geriatrics, and High Blood PressureClinincal Professor of Internal Medicine and Cardiology, Medical College of WisconsinSpecializing in Difficult to Control HIgh Blood Pressure. On Sep 23, 2009, at 11:33 PM, marysue hopper wrote: Hi Dr Grim I have PA - bilateral adrenal hyperplasia, on 100mg of spiro daily, dashing and adding more activity (working through pain in joints, etc.) I have had the diagnosis for almost 2 years now. BP 145/70 to 120/60. Glad I know about dashing - today for example, felt symptoms creeping up on me and had a spinach salad and banana for lunch - all good! Cheers Sue From: Clarence Grim <lowerbp2mac (DOT) com>hyperaldosteronismSent: Sunday, 20 September, 2009 1:54:42 PMSubject: Re: [hyperaldosteronism ] Re: lost information Sue: good feed back. Dont recall that you have PA or low K? Clarence Grim lowerbp2mac (DOT) com On Sep 18, 2009, at 6:49 PM, marysue hopper wrote: Wow, I can totally relate to what you're saying. I have been struggling with some of the issues Conn's has raised in my life, the most prevalent being pain - and my salt addictions. I found once I drowned myself with water (about 3 or 4 350ml bottles a day) the salt cravings left. I know the bedside manner of many a doctor is awful. The thing is they see so many people refuse an answer they have seen work over and over again. Their advice can help but it isn't what we want when we're in pain, fatigued, muscle aches, emotional turmoil (and in my case throw in menopause into the mix). As much as I was sure they were wrong, following their advice has helped me, Dr. Grim's advice included. For me, I asked myself - what if they're right? I never stayed off really salty foods long enough to understand how my body functioned without the high sodium intake. But after the last 5 months limiting sodium and increasing potassium rich foods, I must say I feel younger, more energetic and my pain is tolerable most times, and forgotten sometimes. I hope you get some answers soon, it's such a despairing place to be when you're sick, and you can't see an end to it - especially if you can remember how good it felt to be fit. My sympathy for sure. Sue From: <laurabcoleman>hyperaldosteronismSent: Saturday, 19 September, 2009 10:53:32 AMSubject: RE: [hyperaldosteronism ] Re: lost information Yes, of course. That is very good advice. It would be silly to have a surgery if it didn't fix the problem. I hope that the tumor IS causing the problem. From: Valarie <val@...>Subject: RE: [hyperaldosteronism ] Re: lost informationhyperaldosteronismDate: Friday, September 18, 2009, 4:48 PM , before having an adrenalectomy, be sure the tumor is responsible for producing the excess aldosterone. Val From: hyperaldosteronism [mailto:hyperaldost eronism@gro ups.com] On Behalf Of Bill,I'm with you on this one. My personal experience with salt and the dash diet is that after a year of being completely off salt and following dash, I became quite ill...much more so that now. I craved salt which is something I mentioned to my endocrinologist. .High Blood Pressure is an obvious externally viewed symptom that most people understand. But hormones are subtle and interact in even more subtle and unique ways inside each individual. My blood pressure seems to be managed by medication, and I went to the endocrinologist for those subtle symptoms that are ruining my life.When I asked my PCP for a referral to an endocrinologist, I had no idea or knowledge of conn's disease; I just knew I had an adrenal gland tumor and I was sick in many vague ways that all added up to keeping me housebound.Everything I read so far says that if the excess hormone is coming from a tumor, removing the tumor slowly eliminates all those subtle symptoms that are ruining my life. Hungry? Try some spicy marinated chicken fillets for dinner tonight, courtesy of Xtra Food. Email slow, clunky, unreliable? Switch to Xtra Mail, New Zealand's new email address. Email slow, clunky, unreliable? Switch to Xtra Mail, New Zealand's new email address. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2009 Report Share Posted September 25, 2009 It is Francis Bill. From: Valarie <val@...>Subject: RE: Re: lost informationhyperaldosteronism Date: Friday, September 25, 2009, 3:43 PM Is your name Francis Bill or Bill Francis? Time of day does matter with aldo. It follows a diurnal patter - highest in the morning and falling throughout the day. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Francis Bill With me both aldo and renin are with range. This is because I believe the meds I take changed the test results. This sees to happen to a lot of Conn's people. It is probably the biggest reason Conn's goes undiagnosed for so long if at all. Time of day of blood draw change results. When the lab wants the draw to be done before 10:00AM and it is done at 3:00PM does this matter? Here is list of things that I think should be looked at as beings Conn's related. B/P readings that change from high to low. K that 3.8 or below. Meds that are given to increse K but only have little effect. Glucose that is 92 or higher with it being over the high of the range at times. Urine with low SP.GR. Fluid retention. At least one adnormal EKG. A CT that shows the adrenal adenoma. This is after you have ruled out CHF and ECG and stress test have ruled out heart related problems. >> Yes renin is low but aldo is not.> > If renin is very low and the system is working aldo will be low. If > it is not then aldo is driving the renin down. Well Aldo/salt.> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2009 Report Share Posted September 25, 2009 I think we need to change the term difficult to control High blood pressure to uncontrol blood pressure. From what others post and what my blood pressure does Blood pressure isn't always high. At times it is very normal other times it is very high. I don't know if this because of uncontrolled Aldo/salt or that every one with high blood pressure has this happen. From: Valarie <val@...>Subject: RE: Re: lost informationhyperaldosteronism Date: Friday, September 25, 2009, 3:43 PM Is your name Francis Bill or Bill Francis? Time of day does matter with aldo. It follows a diurnal patter - highest in the morning and falling throughout the day. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Francis Bill With me both aldo and renin are with range. This is because I believe the meds I take changed the test results. This sees to happen to a lot of Conn's people. It is probably the biggest reason Conn's goes undiagnosed for so long if at all. Time of day of blood draw change results. When the lab wants the draw to be done before 10:00AM and it is done at 3:00PM does this matter? Here is list of things that I think should be looked at as beings Conn's related. B/P readings that change from high to low. K that 3.8 or below. Meds that are given to increse K but only have little effect. Glucose that is 92 or higher with it being over the high of the range at times. Urine with low SP.GR. Fluid retention. At least one adnormal EKG. A CT that shows the adrenal adenoma. This is after you have ruled out CHF and ECG and stress test have ruled out heart related problems. >> Yes renin is low but aldo is not.> > If renin is very low and the system is working aldo will be low. If > it is not then aldo is driving the renin down. Well Aldo/salt.> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2009 Report Share Posted September 25, 2009 You don't get my point. A renin in the lowest range of normal should be associated with an aldo in the lowest range of normal. So if renin is lowish and aldo is not that is abnormal. Clarence Grimlowerbp2@... On Sep 25, 2009, at 10:43 AM, Valarie wrote: Is your name Francis Bill or Bill Francis? Time of day does matter with aldo. It follows a diurnal patter - highest in the morning and falling throughout the day. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Francis Bill With me both aldo and renin are with range. This is because I believe the meds I take changed the test results. This sees to happen to a lot of Conn's people. It is probably the biggest reason Conn's goes undiagnosed for so long if at all. Time of day of blood draw change results. When the lab wants the draw to be done before 10:00AM and it is done at 3:00PM does this matter? Here is list of things that I think should be looked at as beings Conn's related. B/P readings that change from high to low. K that 3.8 or below. Meds that are given to increse K but only have little effect. Glucose that is 92 or higher with it being over the high of the range at times. Urine with low SP.GR. Fluid retention. At least one adnormal EKG. A CT that shows the adrenal adenoma. This is after you have ruled out CHF and ECG and stress test have ruled out heart related problems. > > Yes renin is low but aldo is not. > > If renin is very low and the system is working aldo will be low. If > it is not then aldo is driving the renin down. Well Aldo/salt. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2009 Report Share Posted September 26, 2009 I am not sure what you refer to as fluctuate. BP is never constant. Indeed it changes from heart beat to heart beat.24 hr studies show that during sleep the systolic BP will go down to what the diastolic pressure is during the day in many. For example if your diastolic pressure is as high as 90 during some times of the day the sleep systolic will be lower than 90 at times.The task of blood pressure regualtion is to keep blood flow going at a constant rate to most organs of the body especially the brain. This flow must meet demand. Thus when you exercise BP goes up to get blood thru the muscles which are contracting. Eating, reading, speaking, thinking, watcing TV can induce swings in BP as well. This makes assessing what the BP "is" in a person a bit of a control systems problem. What one should do is to take the BP in a careful fashion, detailed in our files, close to the same time every day after being seated for at least 5 min. Take average of 3 or last 2 of 3 and that is the BP that should be used to guide your Dx and Rx of BP. Of course most Drs offices do not take BP correctly (3 x and seated 5 min in a straight backed chair (not with feet hanging down while sitting on the exam table). Using a mercury manometer (or other regularly calibrated device) and a stethoscope with the correct size cuff placed correctly on the arm and the arm supported so the center of the cuff is at heart level.Without controlling all these factos folks are over or under Dxed with HTN and over or under treated to their goal BP. So tell us how you and your Dr measure BP. Clarence Grimlowerbp2@... On Sep 25, 2009, at 5:55 PM, Bill wrote: I think we need to change the term difficult to control High blood pressure to uncontrol blood pressure. From what others post and what my blood pressure does Blood pressure isn't always high. At times it is very normal other times it is very high. I don't know if this because of uncontrolled Aldo/salt or that every one with high blood pressure has this happen. From: Valarie <val@...>Subject: RE: Re: lost informationhyperaldosteronism Date: Friday, September 25, 2009, 3:43 PM Is your name Francis Bill or Bill Francis? Time of day does matter with aldo. It follows a diurnal patter - highest in the morning and falling throughout the day. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Francis Bill With me both aldo and renin are with range. This is because I believe the meds I take changed the test results. This sees to happen to a lot of Conn's people. It is probably the biggest reason Conn's goes undiagnosed for so long if at all. Time of day of blood draw change results. When the lab wants the draw to be done before 10:00AM and it is done at 3:00PM does this matter? Here is list of things that I think should be looked at as beings Conn's related. B/P readings that change from high to low. K that 3.8 or below. Meds that are given to increse K but only have little effect. Glucose that is 92 or higher with it being over the high of the range at times. Urine with low SP.GR. Fluid retention. At least one adnormal EKG. A CT that shows the adrenal adenoma. This is after you have ruled out CHF and ECG and stress test have ruled out heart related problems. >> Yes renin is low but aldo is not.> > If renin is very low and the system is working aldo will be low. If > it is not then aldo is driving the renin down. Well Aldo/salt.> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2009 Report Share Posted September 26, 2009 Still a no drama story will be comforting to those who have a similar story and think they must not have PA because they have had not "drama" such as muscle cramps, getting up to pee 10x a night, diabetes, fatigue, so weak they could not get out of a chair or turn the key on in their car or get out of bed in the am. Clarence Grimlowerbp2@... On Sep 25, 2009, at 4:23 PM, marysue hopper wrote: I have done the survey when it first came out - I haven't written my story because it's been pretty straightforward - no dramas. SueFrom: Clarence Grim <lowerbp2mac>hyperaldosteronism Sent: Thursday, 24 September, 2009 4:58:10 PMSubject: Re: Re: lost information Good have you done out questionnaire for those with PA? a can direct you. See item 7 below if you have not already done this.Do we have Sue's story in our files? Welcome1. Read my article in our files on the evolution of PA (Evolution_of_ PA-Grim.pdf ) and take to all members of health care team. Tell us what stage you believe you are in.2. Read our Conn's stories files and then give us your own in as much detail as you can. To see others' stories, on the Hyperaldosteronism home page, go to Files/Conns Stories. You'll find instructions in "A - How to put your story here.doc " 3. Get the DASH diet book by T. et al, read it and use it. $8 in paperback at your local bookstore.or go to http://www.nhlbi. nih.gov/health/ public/heart/ hbp/dash/ new_dash. pdfdownload this 64 page booklet free and do the Week on the DASH Diet for 2 weeks. If you are on BP meds be prepared for a large fall in BP and let your Dr. know you are doing this.4. Measure your BP daily so you can see if it is getting better. If you are taking meds be sure to tell your health care team you are doing this as your BP may plummet to normal quickly.5. Go to familyhistory. hhs.gov and do your detailed family medical history so we can review with you to help Dx familial causes of high blood pressure and heart disease. If BP runs in your family you may save others in your family by checking their BP yourself.6. Go to our file/Conn's Articles of Note/Medications/ Bravo spir 1973.pdf and read this article and take to your health care team.7. If you have been Dxed with PA already and are on Rx or have had surgery please go to http://www.kwiksurv eys.com/online- survey.php? surveyID= HIJIO_f2685379 and complete our survey with as much information as you know. If there is some information you don'k know ask us and we will help. If you need to update this as you journey thru the diagnostic/treatmen t process you can add another entry but label it as Nameyymmdd. For example today 6/12/09 for me would be Grim090612. This ever increasing number will allow us and you to sort your multiple entries into a dated order. 8. If you are new to medical lingo then download the acroyms from http://health. groups.. com/group/ bloodpressurelin e/message/ 291869. To learn the state of the science about salt and blood pressure please spend some time looking at http://www.worldact iononsalt. com/evidence/ treatment_ trials.htmClarence E. Grim BS, MS, MD, FACP, FACCBoard Certified in Internal Medicine, Geriatrics, and High Blood PressureClinincal Professor of Internal Medicine and Cardiology, Medical College of WisconsinSpecializing in Difficult to Control HIgh Blood Pressure. On Sep 23, 2009, at 11:33 PM, marysue hopper wrote: Hi Dr Grim I have PA - bilateral adrenal hyperplasia, on 100mg of spiro daily, dashing and adding more activity (working through pain in joints, etc.) I have had the diagnosis for almost 2 years now. BP 145/70 to 120/60. Glad I know about dashing - today for example, felt symptoms creeping up on me and had a spinach salad and banana for lunch - all good! Cheers Sue From: Clarence Grim <lowerbp2mac (DOT) com>hyperaldosteronismSent: Sunday, 20 September, 2009 1:54:42 PMSubject: Re: [hyperaldosteronism ] Re: lost information Sue: good feed back. Dont recall that you have PA or low K? Clarence Grim lowerbp2mac (DOT) com On Sep 18, 2009, at 6:49 PM, marysue hopper wrote: Wow, I can totally relate to what you're saying. I have been struggling with some of the issues Conn's has raised in my life, the most prevalent being pain - and my salt addictions. I found once I drowned myself with water (about 3 or 4 350ml bottles a day) the salt cravings left. I know the bedside manner of many a doctor is awful. The thing is they see so many people refuse an answer they have seen work over and over again. Their advice can help but it isn't what we want when we're in pain, fatigued, muscle aches, emotional turmoil (and in my case throw in menopause into the mix). As much as I was sure they were wrong, following their advice has helped me, Dr. Grim's advice included. For me, I asked myself - what if they're right? I never stayed off really salty foods long enough to understand how my body functioned without the high sodium intake. But after the last 5 months limiting sodium and increasing potassium rich foods, I must say I feel younger, more energetic and my pain is tolerable most times, and forgotten sometimes. I hope you get some answers soon, it's such a despairing place to be when you're sick, and you can't see an end to it - especially if you can remember how good it felt to be fit. My sympathy for sure. Sue From: <laurabcoleman>hyperaldosteronismSent: Saturday, 19 September, 2009 10:53:32 AMSubject: RE: [hyperaldosteronism ] Re: lost information Yes, of course. That is very good advice. It would be silly to have a surgery if it didn't fix the problem. I hope that the tumor IS causing the problem. From: Valarie <val@...>Subject: RE: [hyperaldosteronism ] Re: lost informationhyperaldosteronismDate: Friday, September 18, 2009, 4:48 PM , before having an adrenalectomy, be sure the tumor is responsible for producing the excess aldosterone. Val From: hyperaldosteronism [mailto:hyperaldost eronism@gro ups.com] On Behalf Of Bill,I'm with you on this one. My personal experience with salt and the dash diet is that after a year of being completely off salt and following dash, I became quite ill...much more so that now. I craved salt which is something I mentioned to my endocrinologist. .High Blood Pressure is an obvious externally viewed symptom that most people understand. But hormones are subtle and interact in even more subtle and unique ways inside each individual. My blood pressure seems to be managed by medication, and I went to the endocrinologist for those subtle symptoms that are ruining my life.When I asked my PCP for a referral to an endocrinologist, I had no idea or knowledge of conn's disease; I just knew I had an adrenal gland tumor and I was sick in many vague ways that all added up to keeping me housebound.Everything I read so far says that if the excess hormone is coming from a tumor, removing the tumor slowly eliminates all those subtle symptoms that are ruining my life. Hungry? Try some spicy marinated chicken fillets for dinner tonight, courtesy of Xtra Food. Email slow, clunky, unreliable? Switch to Xtra Mail, New Zealand's new email address. Email slow, clunky, unreliable? Switch to Xtra Mail, New Zealand's new email address. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2009 Report Share Posted September 26, 2009 I do understand what you are saying about renin in the lowest range of normal should be associated with an aldo in the lowest range of normal. So if renin is lowish and aldo is not that is abnormal. Must other doctors don't see it that way. I am trying to find other ways that might indicate that your renin aldo system isn't right. Since the renin aldo tests can be changed by many things it take some like you to understand them. There is only one of you and not many others like you. This makes it hard for someone like me to get a doctor to say I have Conn's or not. Right now I have to sets of labs done by two doctors by two labs. I there have been 6 other doctors that have look at the labs. no one from here says they show any problem. You seem to think that the labs show I could have Conn's. Since the renin aldo ratio is 7 or 8 and most doctors think this ratio should be much higher around 20. It is unlikey that until my ratio gets that high then the doctors around here wil still tell we I dont have Conn's.Right now My Doctor has no clue as to why I have Lightheadness, Shortness of breath, sometimes dizzness, chronic fatigue, PVC, fulid retention. At this Point all he wants to do is wait and see if any thing new shows up. I have told him with all the tests they have done there has to be a clue to what is going on with me. I have many tests that are out side of normal. By them selfs that may no mean much But all put together there should be a clue. Is your name Francis Bill or Bill Francis? Time of day does matter with aldo. It follows a diurnal patter - highest in the morning and falling throughout the day. Val From: hyperaldosteronism [mailto:hyperaldost eronism@gro ups.com] On Behalf Of Francis Bill With me both aldo and renin are with range. This is because I believe the meds I take changed the test results. This sees to happen to a lot of Conn's people. It is probably the biggest reason Conn's goes undiagnosed for so long if at all. Time of day of blood draw change results. When the lab wants the draw to be done before 10:00AM and it is done at 3:00PM does this matter? Here is list of things that I think should be looked at as beings Conn's related. B/P readings that change from high to low. K that 3.8 or below. Meds that are given to increse K but only have little effect. Glucose that is 92 or higher with it being over the high of the range at times. Urine with low SP.GR. Fluid retention. At least one adnormal EKG. A CT that shows the adrenal adenoma. This is after you have ruled out CHF and ECG and stress test have ruled out heart related problems. > > Yes renin is low but aldo is not. > > If renin is very low and the system is working aldo will be low. If > it is not then aldo is driving the renin down. Well Aldo/salt. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2009 Report Share Posted September 26, 2009 I don't know if you watched this video but Dr Sica says much the same thing as you about the low renin mid range aldo. Resistant Hypertension.wmv In this video conversation, Dr. Black talks with Domenic Sica, MD, about how clinicians do -- or should -- define, recognize, and treat Resistant Hypertension 3842 KB Is your name Francis Bill or Bill Francis? Time of day does matter with aldo. It follows a diurnal patter - highest in the morning and falling throughout the day. Val From: hyperaldosteronism [mailto:hyperaldost eronism@gro ups.com] On Behalf Of Francis Bill With me both aldo and renin are with range. This is because I believe the meds I take changed the test results. This sees to happen to a lot of Conn's people. It is probably the biggest reason Conn's goes undiagnosed for so long if at all. Time of day of blood draw change results. When the lab wants the draw to be done before 10:00AM and it is done at 3:00PM does this matter? Here is list of things that I think should be looked at as beings Conn's related. B/P readings that change from high to low. K that 3.8 or below. Meds that are given to increse K but only have little effect. Glucose that is 92 or higher with it being over the high of the range at times. Urine with low SP.GR. Fluid retention. At least one adnormal EKG. A CT that shows the adrenal adenoma. This is after you have ruled out CHF and ECG and stress test have ruled out heart related problems. > > Yes renin is low but aldo is not. > > If renin is very low and the system is working aldo will be low. If > it is not then aldo is driving the renin down. Well Aldo/salt. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2009 Report Share Posted September 26, 2009 High blood pressure is one. Read my evolution Article again and again and it will become clear. Other drs don't understand this concept. Big tumor come from small tumors. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Sep 26, 2009, at 7:56 AM, Bill <georgewbill@...> wrote: I do understand what you are saying about renin in the lowest range of normal should be associated with an aldo in the lowest range of normal. So if renin is lowish and aldo is not that is abnormal. Must other doctors don't see it that way. I am trying to find other ways that might indicate that your renin aldo system isn't right. Since the renin aldo tests can be changed by many things it take some like you to understand them. There is only one of you and not many others like you. This makes it hard for someone like me to get a doctor to say I have Conn's or not. Right now I have to sets of labs done by two doctors by two labs. I there have been 6 other doctors that have look at the labs. no one from here says they show any problem. You seem to think that the labs show I could have Conn's. Since the renin aldo ratio is 7 or 8 and most doctors think this ratio should be much higher around 20. It is unlikey that until my ratio gets that high then the doctors around here wil still tell we I dont have Conn's.Right now My Doctor has no clue as to why I have Lightheadness, Shortness of breath, sometimes dizzness, chronic fatigue, PVC, fulid retention. At this Point all he wants to do is wait and see if any thing new shows up. I have told him with all the tests they have done there has to be a clue to what is going on with me. I have many tests that are out side of normal. By them selfs that may no mean much But all put together there should be a clue. Is your name Francis Bill or Bill Francis? Time of day does matter with aldo. It follows a diurnal patter - highest in the morning and falling throughout the day. Val From: hyperaldosteronism [mailto:hyperaldost eronism@gro ups.com] On Behalf Of Francis Bill With me both aldo and renin are with range. This is because I believe the meds I take changed the test results. This sees to happen to a lot of Conn's people. It is probably the biggest reason Conn's goes undiagnosed for so long if at all. Time of day of blood draw change results. When the lab wants the draw to be done before 10:00AM and it is done at 3:00PM does this matter? Here is list of things that I think should be looked at as beings Conn's related. B/P readings that change from high to low. K that 3.8 or below. Meds that are given to increse K but only have little effect. Glucose that is 92 or higher with it being over the high of the range at times. Urine with low SP.GR. Fluid retention. At least one adnormal EKG. A CT that shows the adrenal adenoma. This is after you have ruled out CHF and ECG and stress test have ruled out heart related problems. > > Yes renin is low but aldo is not. > > If renin is very low and the system is working aldo will be low. If > it is not then aldo is driving the renin down. Well Aldo/salt. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2009 Report Share Posted September 26, 2009 Review endo control systems. When the driving force for Aldo is reninand renin is low aldo Should be low. If not then the Aldo is driving the Aldo down. AKA LOW RENIN ESSENTIAL HYPERTENSION whichwe have shown is due to very small adenomas or hyperasia. Keep working on this concept. It took me 4 Years to figure it out. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Sep 26, 2009, at 7:56 AM, Bill <georgewbill@...> wrote: I do understand what you are saying about renin in the lowest range of normal should be associated with an aldo in the lowest range of normal. So if renin is lowish and aldo is not that is abnormal. Must other doctors don't see it that way. I am trying to find other ways that might indicate that your renin aldo system isn't right. Since the renin aldo tests can be changed by many things it take some like you to understand them. There is only one of you and not many others like you. This makes it hard for someone like me to get a doctor to say I have Conn's or not. Right now I have to sets of labs done by two doctors by two labs. I there have been 6 other doctors that have look at the labs. no one from here says they show any problem. You seem to think that the labs show I could have Conn's. Since the renin aldo ratio is 7 or 8 and most doctors think this ratio should be much higher around 20. It is unlikey that until my ratio gets that high then the doctors around here wil still tell we I dont have Conn's.Right now My Doctor has no clue as to why I have Lightheadness, Shortness of breath, sometimes dizzness, chronic fatigue, PVC, fulid retention. At this Point all he wants to do is wait and see if any thing new shows up. I have told him with all the tests they have done there has to be a clue to what is going on with me. I have many tests that are out side of normal. By them selfs that may no mean much But all put together there should be a clue. Is your name Francis Bill or Bill Francis? Time of day does matter with aldo. It follows a diurnal patter - highest in the morning and falling throughout the day. Val From: hyperaldosteronism [mailto:hyperaldost eronism@gro ups.com] On Behalf Of Francis Bill With me both aldo and renin are with range. This is because I believe the meds I take changed the test results. This sees to happen to a lot of Conn's people. It is probably the biggest reason Conn's goes undiagnosed for so long if at all. Time of day of blood draw change results. When the lab wants the draw to be done before 10:00AM and it is done at 3:00PM does this matter? Here is list of things that I think should be looked at as beings Conn's related. B/P readings that change from high to low. K that 3.8 or below. Meds that are given to increse K but only have little effect. Glucose that is 92 or higher with it being over the high of the range at times. Urine with low SP.GR. Fluid retention. At least one adnormal EKG. A CT that shows the adrenal adenoma. This is after you have ruled out CHF and ECG and stress test have ruled out heart related problems. > > Yes renin is low but aldo is not. > > If renin is very low and the system is working aldo will be low. If > it is not then aldo is driving the renin down. Well Aldo/salt. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2009 Report Share Posted September 26, 2009 It is my doctor that needs to read your evolution Article. I will try to get him to read it. Not sure how open he will be to reading it. Again My list while it my not be 100% right seems to be things others with Conn's have. So are they Conn's related? There is a good list of SX on here that many Doctors say have nothing to do with Conn's But most with Conn's have many of them. Would like to see how many have tests that show what is in this list. Maybe they can add others. Here is list of things that I think should be looked at as beings Conn's related. B/P readings that change from high to low. K that 3.8 or below. Meds that are given to increse K but only have little effect. Glucose that is 92 or higher with it being over the high of the range at times. Urine with low SP.GR. Fluid retention. At least one adnormal EKG. A CT that shows the adrenal adenoma. This is after you have ruled out CHF and ECG and stress test have ruled out heart related problems. > >> > > >> > Yes renin is low but aldo is not. > >> > > >> > If renin is very low and the system is working aldo will be low. If > >> > it is not then aldo is driving the renin down. Well Aldo/salt. > >> > > >> > > >> > >> > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2009 Report Share Posted September 26, 2009 I have been teaching them for years. And VVTiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Sep 26, 2009, at 7:37 AM, Bill <georgewbill@...> wrote: I don't know if you watched this video but Dr Sica says much the same thing as you about the low renin mid range aldo. Resistant Hypertension.wmv In this video conversation, Dr. Black talks with Domenic Sica, MD, about how clinicians do -- or should -- define, recognize, and treat Resistant Hypertension 3842 KB Is your name Francis Bill or Bill Francis? Time of day does matter with aldo. It follows a diurnal patter - highest in the morning and falling throughout the day. Val From: hyperaldosteronism [mailto:hyperaldost eronism@gro ups.com] On Behalf Of Francis Bill With me both aldo and renin are with range. This is because I believe the meds I take changed the test results. This sees to happen to a lot of Conn's people. It is probably the biggest reason Conn's goes undiagnosed for so long if at all. Time of day of blood draw change results. When the lab wants the draw to be done before 10:00AM and it is done at 3:00PM does this matter? Here is list of things that I think should be looked at as beings Conn's related. B/P readings that change from high to low. K that 3.8 or below. Meds that are given to increse K but only have little effect. Glucose that is 92 or higher with it being over the high of the range at times. Urine with low SP.GR. Fluid retention. At least one adnormal EKG. A CT that shows the adrenal adenoma. This is after you have ruled out CHF and ECG and stress test have ruled out heart related problems. > > Yes renin is low but aldo is not. > > If renin is very low and the system is working aldo will be low. If > it is not then aldo is driving the renin down. Well Aldo/salt. > > Messages in this topic (89) Reply (via web post) | Start a new topic Recent Activity 1 New Links Visit Your Group Give Back for Good Get inspired by a good cause. Y! Toolbar Get it Free! easy 1-click access to your groups. Quote Link to comment Share on other sites More sharing options...
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