Guest guest Posted September 16, 2009 Report Share Posted September 16, 2009 As of this email there have been 15904 posting to this group. Most be a lot of good information on here. Just would be very hard to find. There are 357 members on here. It would much easier to look at 357 files then 15904 emails. Maybe it is time to make more use on the files part of this group. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2009 Report Share Posted September 16, 2009 Look in the Files of the group and you'll find lots of information. It is also helpful for each to write his/her story and put it in the " stories " folder. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of georgewbill As of this email there have been 15904 posting to this group. Most be a lot of good information on here. Just would be very hard to find. There are 357 members on here. It would much easier to look at 357 files then 15904 emails. Maybe it is time to make more use on the files part of this group. _._,_.___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2009 Report Share Posted September 16, 2009 I know there is a lot of information in the files already. I believe there has to a lot more that is in the emails. It looks like from Val's reply to " Doc says possible aldosterone overproduction " . She has taking some time to get some of the information from emails and put it in files. It you do a search in emails it search for jwwright the newest email that comes up is Mar 16, 2009. My suggestion would be if you have some information that will help others searching for answers then it is best to put it in the files. I know some of you are on the Inspire site as well. One thing about the Inspire site is what ever is put on there will come up in search. If someone types in there symptoms it will lead them to Inspire. Since there is a link to this group it can bring them here. > > Look in the Files of the group and you'll find lots of information. It is > also helpful for each to write his/her story and put it in the " stories " > folder. > > Val > > From: hyperaldosteronism > [mailto:hyperaldosteronism ] On Behalf Of georgewbill > > > As of this email there have been 15904 posting to this group. Most be a lot > of good information on here. Just would be very hard to find. > > There are 357 members on here. It would much easier to look at 357 files > then 15904 emails. Maybe it is time to make more use on the files part of > this group. _._,_.___ > > Web Bug from > http://geo./serv?s=97359714/grpId=7299303/grpspId=1705132763/msgId= > 15905/stime=1253109344/nc1=3848644/nc2=5733763/nc3=5758220 > <http://www.mailscanner.info/images/1x1spacer.gif> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2009 Report Share Posted September 16, 2009 I believe u can search our emails as well but never tried. Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Sep 16, 2009, at 8:09 PM, Francis Bill <georgewbill@...> wrote: I know there is a lot of information in the files already. I believe there has to a lot more that is in the emails. It looks like from Val's reply to "Doc says possible aldosterone overproduction". She has taking some time to get some of the information from emails and put it in files. It you do a search in emails it search for jwwright the newest email that comes up is Mar 16, 2009. My suggestion would be if you have some information that will help others searching for answers then it is best to put it in the files. I know some of you are on the Inspire site as well. One thing about the Inspire site is what ever is put on there will come up in search. If someone types in there symptoms it will lead them to Inspire. Since there is a link to this group it can bring them here. > > Look in the Files of the group and you'll find lots of information. It is > also helpful for each to write his/her story and put it in the "stories" > folder. > > Val > > From: hyperaldosteronism > [mailto:hyperaldosteronism ] On Behalf Of georgewbill > > > As of this email there have been 15904 posting to this group. Most be a lot > of good information on here. Just would be very hard to find. > > There are 357 members on here. It would much easier to look at 357 files > then 15904 emails. Maybe it is time to make more use on the files part of > this group. _._,_.___ > > Web Bug from > http://geo./serv?s=97359714/grpId=7299303/grpspId=1705132763/msgId= > 15905/stime=1253109344/nc1=3848644/nc2=5733763/nc3=5758220 > <http://www.mailscanner.info/images/1x1spacer.gif> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2009 Report Share Posted September 16, 2009 What role would u like tonplay in getti g them organized?Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Sep 16, 2009, at 2:23 PM, jwwright <jwwright@...> wrote: Is there a suggestion? emails are nice because they are searchable. Are you trying to find something? Regards lost information As of this email there have been 15904 posting to this group. Most be a lot of good information on here. Just would be very hard to find. There are 357 members on here. It would much easier to look at 357 files then 15904 emails. Maybe it is time to make more use on the files part of this group. .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2009 Report Share Posted September 17, 2009 "organization" is a task. We started with folders, we thought would be good to organize, but folders are like file cabinets. There's not an option to search all folders and files together - that's why most files are not in folders. So we have a long list of files in alpha order, but they can be searched with the browser search. Searching in a file is tedious, but the fact is the groups are mostly HTN, and HTN facts are organized there. Facts that relate to HTN. If someone spends the time to copy the files page, to outlook express or a word file, and expand each folder's files into that list they'll have a list on their computer. Takes only an hour on a slow net. Another thing you can do is think about a book outline - chapters, but that falls into the art of organizing stuff for a book, or presentation and that is NOT easy. Take the subject of PA, search Medline for "primary aldosteronism" and copy the list to your computer. There's only 7501. Not like reviewing the HTN ~200,000. But even 1000 is overwhelming to some. So consider "primary aldosteronism diagnosis" or "primary aldosteronism treatment" or "primary aldosteronism cause" or "primary aldosteronism etiology". If there's already a handy book to get an outline, from the folders are easy - each can be a chapter. A lot of work and then you think put a link to the book, because this is a website not a complete reference. That's why I ask for a suggestion. In the early days of computers and software one youngster decided to write his own, and published it to shareware. It was good clean software but the users wanted good additions, and each add-on had to be integrated. He eventually jumped off the bridge in LA. True story. Regards lost information As of this email there have been 15904 posting to this group. Most be a lot of good information on here. Just would be very hard to find. There are 357 members on here. It would much easier to look at 357 files then 15904 emails. Maybe it is time to make more use on the files part of this group. .. __________ NOD32 4389 (20090902) Information __________This message was checked by NOD32 antivirus system.http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2009 Report Share Posted September 17, 2009 Since there is a new posting about Cushing I did a search of the emails. There are at least 458 emails that have the word Cushing in them. Like you say organization is a task. The task might not as big as it seems. Lets just say we have a folder called onset of systems. As long as any one add to this folder there onset of systems each one could add something to it. If I wanted to know about the onset of systems I could open this folder and could search it. > > > > > Is there a suggestion? > emails are nice because they are searchable. > Are you trying to find something? > > Regards > > lost information > > > > As of this email there have been 15904 posting to this group. Most be a lot of good information on here. Just would be very hard to find. > > There are 357 members on here. It would much easier to look at 357 files then 15904 emails. Maybe it is time to make more use on the files part of this group. > > > > > . > > > > > > __________ NOD32 4389 (20090902) Information __________ > > This message was checked by NOD32 antivirus system. > http://www.eset.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2009 Report Share Posted September 17, 2009 Sounds worth a try, so do it. Regards lost information> > > > As of this email there have been 15904 posting to this group. Most be a lot of good information on here. Just would be very hard to find. > > There are 357 members on here. It would much easier to look at 357 files then 15904 emails. Maybe it is time to make more use on the files part of this group. > > > > > .> > > > > > __________ NOD32 4389 (20090902) Information __________> > This message was checked by NOD32 antivirus system.> http://www.eset.com>__________ NOD32 4389 (20090902) Information __________This message was checked by NOD32 antivirus system.http://www.eset.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2009 Report Share Posted September 17, 2009 Do u mean when the sx appeAred)Tiped sad Send form miiPhone ;-)May your pressure be low!CE Grim MDSpecializing in DifficultHypertensionOn Sep 17, 2009, at 6:30 PM, Francis Bill <georgewbill@...> wrote: Since there is a new posting about Cushing I did a search of the emails. There are at least 458 emails that have the word Cushing in them. Like you say organization is a task. The task might not as big as it seems. Lets just say we have a folder called onset of systems. As long as any one add to this folder there onset of systems each one could add something to it. If I wanted to know about the onset of systems I could open this folder and could search it. > > > > > Is there a suggestion? > emails are nice because they are searchable. > Are you trying to find something? > > Regards > > lost information > > > > As of this email there have been 15904 posting to this group. Most be a lot of good information on here. Just would be very hard to find. > > There are 357 members on here. It would much easier to look at 357 files then 15904 emails. Maybe it is time to make more use on the files part of this group. > > > > > . > > > > > > __________ NOD32 4389 (20090902) Information __________ > > This message was checked by NOD32 antivirus system. > http://www.eset.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2009 Report Share Posted September 17, 2009 That is what I mean. Also would be nice things like PVC's EKG's and all abnormal blood and urine tests. Some of what I have read on other web sites about high Aldosterone say it can do other things to other body systems. One thing I find to believe is that 80% of the time the tumor doesn't do any thing. > > > > > > > > > > > > > > > Is there a suggestion? > > > emails are nice because they are searchable. > > > Are you trying to find something? > > > > > > Regards > > > > > > lost information > > > > > > > > > > > > As of this email there have been 15904 posting to this group. Most > > be a lot of good information on here. Just would be very hard to find. > > > > > > There are 357 members on here. It would much easier to look at 357 > > files then 15904 emails. Maybe it is time to make more use on the > > files part of this group. > > > > > > > > > > > > > > > . > > > > > > > > > > > > > > > > > > __________ NOD32 4389 (20090902) Information __________ > > > > > > This message was checked by NOD32 antivirus system. > > > http://www.eset.com > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2009 Report Share Posted September 17, 2009 Guess you have not read my article on the evolution of PA.Aldo excess does nothing. Aldo excess AND high salt diet does it all. No salt in the diet no hyperald problems. May your pressure be low!Clarence E. Grim, BS, MS, MDSpecializing in Difficult High Blood Pressure and the interactions of recent evolutionary forces and environmental factors on blood pressure in populations today. On Sep 17, 2009, at 10:06 PM, Francis Bill wrote: That is what I mean. Also would be nice things like PVC's EKG's and all abnormal blood and urine tests. Some of what I have read on other web sites about high Aldosterone say it can do other things to other body systems. One thing I find to believe is that 80% of the time the tumor doesn't do any thing. > > > > > > > > > > > > > > > Is there a suggestion? > > > emails are nice because they are searchable. > > > Are you trying to find something? > > > > > > Regards > > > > > > lost information > > > > > > > > > > > > As of this email there have been 15904 posting to this group. Most > > be a lot of good information on here. Just would be very hard to find. > > > > > > There are 357 members on here. It would much easier to look at 357 > > files then 15904 emails. Maybe it is time to make more use on the > > files part of this group. > > > > > > > > > > > > > > > . > > > > > > > > > > > > > > > > > > __________ NOD32 4389 (20090902) Information __________ > > > > > > This message was checked by NOD32 antivirus system. > > > http://www.eset.com > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2009 Report Share Posted September 18, 2009 I understand the relationship between aldo and salt. I also know that there is a lot of misinformation about aldo on the Internet. One of the things I see is aldo does someing in the liver that can changes blood sugar levels. Also read that Aldo can affect other body systems. Nothing is said about salt as being a part on it. Untit things change as to how doctors look at Conn's many will do as all in this group have done. We all have done our own research. Most know more about Conn's then most doctors do. This group should be the place that has the best information about any thing related to Conn's. Some how this information needs to be in a place that is easy to find. > > > > > > > > > > > > > > > > > > > > > > > > > Is there a suggestion? > > > > > emails are nice because they are searchable. > > > > > Are you trying to find something? > > > > > > > > > > Regards > > > > > > > > > > lost information > > > > > > > > > > > > > > > > > > > > As of this email there have been 15904 posting to this group. > > Most > > > > be a lot of good information on here. Just would be very hard > > to find. > > > > > > > > > > There are 357 members on here. It would much easier to look > > at 357 > > > > files then 15904 emails. Maybe it is time to make more use on the > > > > files part of this group. > > > > > > > > > > > > > > > > > > > > > > > > > . > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________ NOD32 4389 (20090902) Information __________ > > > > > > > > > > This message was checked by NOD32 antivirus system. > > > > > http://www.eset.com > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2009 Report Share Posted September 18, 2009 Bill,I'm with you on this one. My personal experience with salt and the dash diet is that after a year of being completely off salt and following dash, I became quite ill...much more so that now. I craved salt which is something I mentioned to my endocrinologist..High Blood Pressure is an obvious externally viewed symptom that most people understand. But hormones are subtle and interact in even more subtle and unique ways inside each individual. My blood pressure seems to be managed by medication, and I went to the endocrinologist for those subtle symptoms that are ruining my life.When I asked my PCP for a referral to an endocrinologist, I had no idea or knowledge of conn's disease; I just knew I had an adrenal gland tumor and I was sick in many vague ways that all added up to keeping me housebound.Everything I read so far says that if the excess hormone is coming from a tumor, removing the tumor slowly eliminates all those subtle symptoms that are ruining my life.From: Francis Bill <georgewbill@...>Subject: Re: lost informationhyperaldosteronism Date: Friday, September 18, 2009, 8:34 AM I understand the relationship between aldo and salt. I also know that there is a lot of misinformation about aldo on the Internet. One of the things I see is aldo does someing in the liver that can changes blood sugar levels. Also read that Aldo can affect other body systems.. Nothing is said about salt as being a part on it. Untit things change as to how doctors look at Conn's many will do as all in this group have done. We all have done our own research. Most know more about Conn's then most doctors do. This group should be the place that has the best information about any thing related to Conn's. Some how this information needs to be in a place that is easy to find. > > > > > > > > > > > > > > > > > > > > > > > > > Is there a suggestion? > > > > > emails are nice because they are searchable. > > > > > Are you trying to find something? > > > > > > > > > > Regards > > > > > > > > > > [hyperaldosteronism ] lost information > > > > > > > > > > > > > > > > > > > > As of this email there have been 15904 posting to this group. > > Most > > > > be a lot of good information on here. Just would be very hard > > to find. > > > > > > > > > > There are 357 members on here. It would much easier to look > > at 357 > > > > files then 15904 emails. Maybe it is time to make more use on the > > > > files part of this group. > > > > > > > > > > > > > > > > > > > > > > > > > . > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________ NOD32 4389 (20090902) Information __________ > > > > > > > > > > This message was checked by NOD32 antivirus system. > > > > > http://www.eset. com > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2009 Report Share Posted September 18, 2009 , before having an adrenalectomy, be sure the tumor is responsible for producing the excess aldosterone. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Bill, I'm with you on this one. My personal experience with salt and the dash diet is that after a year of being completely off salt and following dash, I became quite ill...much more so that now. I craved salt which is something I mentioned to my endocrinologist.. High Blood Pressure is an obvious externally viewed symptom that most people understand. But hormones are subtle and interact in even more subtle and unique ways inside each individual. My blood pressure seems to be managed by medication, and I went to the endocrinologist for those subtle symptoms that are ruining my life. When I asked my PCP for a referral to an endocrinologist, I had no idea or knowledge of conn's disease; I just knew I had an adrenal gland tumor and I was sick in many vague ways that all added up to keeping me housebound. Everything I read so far says that if the excess hormone is coming from a tumor, removing the tumor slowly eliminates all those subtle symptoms that are ruining my life. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2009 Report Share Posted September 18, 2009 Yes, of course. That is very good advice. It would be silly to have a surgery if it didn't fix the problem. I hope that the tumor IS causing the problem.From: Valarie <val@...>Subject: RE: Re: lost informationhyperaldosteronism Date: Friday, September 18, 2009, 4:48 PM , before having an adrenalectomy, be sure the tumor is responsible for producing the excess aldosterone. Val From: hyperaldosteronism [mailto:hyperaldost eronism@gro ups.com] On Behalf Of Bill, I'm with you on this one. My personal experience with salt and the dash diet is that after a year of being completely off salt and following dash, I became quite ill...much more so that now. I craved salt which is something I mentioned to my endocrinologist. . High Blood Pressure is an obvious externally viewed symptom that most people understand. But hormones are subtle and interact in even more subtle and unique ways inside each individual. My blood pressure seems to be managed by medication, and I went to the endocrinologist for those subtle symptoms that are ruining my life. When I asked my PCP for a referral to an endocrinologist, I had no idea or knowledge of conn's disease; I just knew I had an adrenal gland tumor and I was sick in many vague ways that all added up to keeping me housebound. Everything I read so far says that if the excess hormone is coming from a tumor, removing the tumor slowly eliminates all those subtle symptoms that are ruining my life. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2009 Report Share Posted September 18, 2009 Wow, I can totally relate to what you're saying.I have been struggling with some of the issues Conn's has raised in my life, the most prevalent being pain - and my salt addictions. I found once I drowned myself with water (about 3 or 4 350ml bottles a day) the salt cravings left. I know the bedside manner of many a doctor is awful. The thing is they see so many people refuse an answer they have seen work over and over again.Their advice can help but it isn't what we want when we're in pain, fatigued, muscle aches, emotional turmoil (and in my case throw in menopause into the mix). As much as I was sure they were wrong, following their advice has helped me, Dr. Grim's advice included.For me, I asked myself - what if they're right? I never stayed off really salty foods long enough to understand how my body functioned without the high sodium intake. But after the last 5 months limiting sodium and increasing potassium rich foods, I must say I feel younger, more energetic and my pain is tolerable most times, and forgotten sometimes.I hope you get some answers soon, it's such a despairing place to be when you're sick, and you can't see an end to it - especially if you can remember how good it felt to be fit.My sympathy for sure. SueFrom: <laurabcoleman@...>hyperaldosteronism Sent: Saturday, 19 September, 2009 10:53:32 AMSubject: RE: Re: lost information Yes, of course. That is very good advice. It would be silly to have a surgery if it didn't fix the problem. I hope that the tumor IS causing the problem.From: Valarie <val@...>Subject: RE: [hyperaldosteronism ] Re: lost informationhyperaldosteronismDate: Friday, September 18, 2009, 4:48 PM , before having an adrenalectomy, be sure the tumor is responsible for producing the excess aldosterone. Val From: hyperaldosteronism [mailto:hyperaldost eronism@gro ups.com] On Behalf Of Bill, I'm with you on this one. My personal experience with salt and the dash diet is that after a year of being completely off salt and following dash, I became quite ill...much more so that now. I craved salt which is something I mentioned to my endocrinologist. . High Blood Pressure is an obvious externally viewed symptom that most people understand. But hormones are subtle and interact in even more subtle and unique ways inside each individual. My blood pressure seems to be managed by medication, and I went to the endocrinologist for those subtle symptoms that are ruining my life. When I asked my PCP for a referral to an endocrinologist, I had no idea or knowledge of conn's disease; I just knew I had an adrenal gland tumor and I was sick in many vague ways that all added up to keeping me housebound. Everything I read so far says that if the excess hormone is coming from a tumor, removing the tumor slowly eliminates all those subtle symptoms that are ruining my life. Hungry? Try some spicy marinated chicken fillets for dinner tonight, courtesy of Xtra Food. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2009 Report Share Posted September 18, 2009 The one thing I communicated clearly to my endocrinologist is that when I went off salt & salty foods [for over a year], I got really ill. When I began to eat salt again, my blood pressure stayed the same. You see, I know all about the dash diet. I worked with a dietitian at the cancer center during that entire year. And this is the other problem, I think. I am very disciplined, intelligent and used to be very capable. Now I lack the energy to do much, but I still can problem solve and do pattern management: observe all the variables, see which ones occur together, and alter one at a time to see which makes a difference.So, while I am totally glad for you that the elimination of sodium and increase in potassium rich foods made a difference, it didn't do this for me. Now what usually happens is if a doc has an agenda [like the several who only saw the need for bariatric surgery], they either don't pay attention or believe me. Neither of those two responses are helpful.From: Valarie <val@...>Subject: RE: [hyperaldosteronism ] Re: lost informationhyperaldosteronismDate: Friday, September 18, 2009, 4:48 PM , before having an adrenalectomy, be sure the tumor is responsible for producing the excess aldosterone. Val From: hyperaldosteronism [mailto:hyperaldost eronism@gro ups.com] On Behalf Of Bill, I'm with you on this one. My personal experience with salt and the dash diet is that after a year of being completely off salt and following dash, I became quite ill...much more so that now. I craved salt which is something I mentioned to my endocrinologist. . High Blood Pressure is an obvious externally viewed symptom that most people understand. But hormones are subtle and interact in even more subtle and unique ways inside each individual. My blood pressure seems to be managed by medication, and I went to the endocrinologist for those subtle symptoms that are ruining my life. When I asked my PCP for a referral to an endocrinologist, I had no idea or knowledge of conn's disease; I just knew I had an adrenal gland tumor and I was sick in many vague ways that all added up to keeping me housebound. Everything I read so far says that if the excess hormone is coming from a tumor, removing the tumor slowly eliminates all those subtle symptoms that are ruining my life. Hungry? Try some spicy marinated chicken fillets for dinner tonight, courtesy of Xtra Food. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2009 Report Share Posted September 18, 2009 Not enough salt is more of a problem the to much. > > From: Valarie <val@...> > Subject: RE: [hyperaldosteronism ] Re: lost information > hyperaldosteronism > Date: Friday, September 18, 2009, 4:48 PM > > > > > > > > > > > > > > > > > > , before having an adrenalectomy, be sure the tumor is > responsible for producing the excess aldosterone. > > > > > > Val > > > > > > From: hyperaldosteronism > [mailto:hyperaldost eronism@gro ups.com] On Behalf Of > > > > > > > > > > > > > Bill, > > > > I'm with you on this one. My personal experience with salt and the dash diet > is that after a year of being completely off salt and following dash, I became > quite ill...much more so that now. I craved salt which is something I > mentioned to my endocrinologist. . > > > > High Blood Pressure is an obvious externally viewed symptom that most people > understand. > > > > But hormones are subtle and interact in even more subtle and unique ways > inside each individual. My blood pressure seems to be managed by medication, > and I went to the endocrinologist for those subtle symptoms that are ruining > my life. > > > > When I asked my PCP for a referral to an endocrinologist, I had no idea or knowledge > of conn's disease; I just knew I had an adrenal gland tumor and I was sick in > many vague ways that all added up to keeping me housebound. > > > > Everything I read so far says that if the excess hormone is coming from a > tumor, removing the tumor slowly eliminates all those subtle symptoms that > are ruining my life. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hungry? Try some spicy marinated chicken fillets for dinner tonight, courtesy of Xtra Food. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2009 Report Share Posted September 19, 2009 I don't know where you ever learned that myth or myther?After smoking the leading cause of premature disability and death is high blood pressure. Almost all high blood pressure is lowered by DASHing (low salt and high K and low fat combo). Thus excess salt is much more dangerous to the population than not enough salt today. In the old days where there was no salt or if there is no salt such as during the Siege of Leningrad or the Dutch Starvation or in India during the Raj or during slavery there was not enough salt and many died from this. Clarence Grimlowerbp2@... On Sep 18, 2009, at 7:32 PM, Francis Bill wrote: Not enough salt is more of a problem the to much. > > From: Valarie <val@...> > Subject: RE: [hyperaldosteronism ] Re: lost information > hyperaldosteronism > Date: Friday, September 18, 2009, 4:48 PM > > > > > > > > > > > > > > > > > > , before having an adrenalectomy, be sure the tumor is > responsible for producing the excess aldosterone. > > > > > > Val > > > > > > From: hyperaldosteronism > [mailto:hyperaldost eronism@gro ups.com] On Behalf Of > > > > > > > > > > > > > Bill, > > > > I'm with you on this one. My personal experience with salt and the dash diet > is that after a year of being completely off salt and following dash, I became > quite ill...much more so that now. I craved salt which is something I > mentioned to my endocrinologist. . > > > > High Blood Pressure is an obvious externally viewed symptom that most people > understand. > > > > But hormones are subtle and interact in even more subtle and unique ways > inside each individual. My blood pressure seems to be managed by medication, > and I went to the endocrinologist for those subtle symptoms that are ruining > my life. > > > > When I asked my PCP for a referral to an endocrinologist, I had no idea or knowledge > of conn's disease; I just knew I had an adrenal gland tumor and I was sick in > many vague ways that all added up to keeping me housebound. > > > > Everything I read so far says that if the excess hormone is coming from a > tumor, removing the tumor slowly eliminates all those subtle symptoms that > are ruining my life. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hungry? Try some spicy marinated chicken fillets for dinner tonight, courtesy of Xtra Food. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2009 Report Share Posted September 19, 2009 Sue: good feed back. Dont recall that you have PA or low K? Clarence Grimlowerbp2@... On Sep 18, 2009, at 6:49 PM, marysue hopper wrote: Wow, I can totally relate to what you're saying.I have been struggling with some of the issues Conn's has raised in my life, the most prevalent being pain - and my salt addictions. I found once I drowned myself with water (about 3 or 4 350ml bottles a day) the salt cravings left. I know the bedside manner of many a doctor is awful. The thing is they see so many people refuse an answer they have seen work over and over again.Their advice can help but it isn't what we want when we're in pain, fatigued, muscle aches, emotional turmoil (and in my case throw in menopause into the mix). As much as I was sure they were wrong, following their advice has helped me, Dr. Grim's advice included.For me, I asked myself - what if they're right? I never stayed off really salty foods long enough to understand how my body functioned without the high sodium intake. But after the last 5 months limiting sodium and increasing potassium rich foods, I must say I feel younger, more energetic and my pain is tolerable most times, and forgotten sometimes.I hope you get some answers soon, it's such a despairing place to be when you're sick, and you can't see an end to it - especially if you can remember how good it felt to be fit.My sympathy for sure. SueFrom: <laurabcoleman >hyperaldosteronism Sent: Saturday, 19 September, 2009 10:53:32 AMSubject: RE: Re: lost information Yes, of course. That is very good advice. It would be silly to have a surgery if it didn't fix the problem. I hope that the tumor IS causing the problem.From: Valarie <val@...>Subject: RE: [hyperaldosteronism ] Re: lost informationhyperaldosteronismDate: Friday, September 18, 2009, 4:48 PM , before having an adrenalectomy, be sure the tumor is responsible for producing the excess aldosterone. Val From: hyperaldosteronism [mailto:hyperaldost eronism@gro ups.com] On Behalf Of Bill, I'm with you on this one. My personal experience with salt and the dash diet is that after a year of being completely off salt and following dash, I became quite ill...much more so that now. I craved salt which is something I mentioned to my endocrinologist. . High Blood Pressure is an obvious externally viewed symptom that most people understand. But hormones are subtle and interact in even more subtle and unique ways inside each individual. My blood pressure seems to be managed by medication, and I went to the endocrinologist for those subtle symptoms that are ruining my life. When I asked my PCP for a referral to an endocrinologist, I had no idea or knowledge of conn's disease; I just knew I had an adrenal gland tumor and I was sick in many vague ways that all added up to keeping me housebound. Everything I read so far says that if the excess hormone is coming from a tumor, removing the tumor slowly eliminates all those subtle symptoms that are ruining my life. Hungry? Try some spicy marinated chicken fillets for dinner tonight, courtesy of Xtra Food. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2009 Report Share Posted September 19, 2009 Didn't believe you needed bariatic surgery. I got lost here someplace.How much do you weigh now? Clarence Grimlowerbp2@... On Sep 18, 2009, at 7:32 PM, Francis Bill wrote: Not enough salt is more of a problem the to much. > > From: Valarie <val@...> > Subject: RE: [hyperaldosteronism ] Re: lost information > hyperaldosteronism > Date: Friday, September 18, 2009, 4:48 PM > > > > > > > > > > > > > > > > > > , before having an adrenalectomy, be sure the tumor is > responsible for producing the excess aldosterone. > > > > > > Val > > > > > > From: hyperaldosteronism > [mailto:hyperaldost eronism@gro ups.com] On Behalf Of > > > > > > > > > > > > > Bill, > > > > I'm with you on this one. My personal experience with salt and the dash diet > is that after a year of being completely off salt and following dash, I became > quite ill...much more so that now. I craved salt which is something I > mentioned to my endocrinologist. . > > > > High Blood Pressure is an obvious externally viewed symptom that most people > understand. > > > > But hormones are subtle and interact in even more subtle and unique ways > inside each individual. My blood pressure seems to be managed by medication, > and I went to the endocrinologist for those subtle symptoms that are ruining > my life. > > > > When I asked my PCP for a referral to an endocrinologist, I had no idea or knowledge > of conn's disease; I just knew I had an adrenal gland tumor and I was sick in > many vague ways that all added up to keeping me housebound. > > > > Everything I read so far says that if the excess hormone is coming from a > tumor, removing the tumor slowly eliminates all those subtle symptoms that > are ruining my life. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hungry? Try some spicy marinated chicken fillets for dinner tonight, courtesy of Xtra Food. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2009 Report Share Posted September 19, 2009 Good that meant you were on a really low salt diet. Not the task is to find how much you can increase the salt and fell well. That assumes your problem was high blood pressure. Clarence Grimlowerbp2@... On Sep 18, 2009, at 7:13 PM, wrote: The one thing I communicated clearly to my endocrinologist is that when I went off salt & salty foods [for over a year], I got really ill. When I began to eat salt again, my blood pressure stayed the same. You see, I know all about the dash diet. I worked with a dietitian at the cancer center during that entire year. And this is the other problem, I think. I am very disciplined, intelligent and used to be very capable. Now I lack the energy to do much, but I still can problem solve and do pattern management: observe all the variables, see which ones occur together, and alter one at a time to see which makes a difference.So, while I am totally glad for you that the elimination of sodium and increase in potassium rich foods made a difference, it didn't do this for me. Now what usually happens is if a doc has an agenda [like the several who only saw the need for bariatric surgery], they either don't pay attention or believe me. Neither of those two responses are helpful.From: Valarie <val@...>Subject: RE: [hyperaldosteronism ] Re: lost informationhyperaldosteronismDate: Friday, September 18, 2009, 4:48 PM , before having an adrenalectomy, be sure the tumor is responsible for producing the excess aldosterone. Val From: hyperaldosteronism [mailto:hyperaldost eronism@gro ups.com] On Behalf Of Bill, I'm with you on this one. My personal experience with salt and the dash diet is that after a year of being completely off salt and following dash, I became quite ill...much more so that now. I craved salt which is something I mentioned to my endocrinologist. . High Blood Pressure is an obvious externally viewed symptom that most people understand. But hormones are subtle and interact in even more subtle and unique ways inside each individual. My blood pressure seems to be managed by medication, and I went to the endocrinologist for those subtle symptoms that are ruining my life. When I asked my PCP for a referral to an endocrinologist, I had no idea or knowledge of conn's disease; I just knew I had an adrenal gland tumor and I was sick in many vague ways that all added up to keeping me housebound. Everything I read so far says that if the excess hormone is coming from a tumor, removing the tumor slowly eliminates all those subtle symptoms that are ruining my life. Hungry? Try some spicy marinated chicken fillets for dinner tonight, courtesy of Xtra Food. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2009 Report Share Posted September 19, 2009 To paraphrase and President: Hope is good but knowing it will get better is more audacious. Clarence Grimlowerbp2@... On Sep 18, 2009, at 5:53 PM, wrote: Yes, of course. That is very good advice. It would be silly to have a surgery if it didn't fix the problem. I hope that the tumor IS causing the problem.From: Valarie <val@...>Subject: RE: Re: lost informationhyperaldosteronism Date: Friday, September 18, 2009, 4:48 PM , before having an adrenalectomy, be sure the tumor is responsible for producing the excess aldosterone. Val From: hyperaldosteronism [mailto:hyperaldost eronism@gro ups.com] On Behalf Of Bill, I'm with you on this one. My personal experience with salt and the dash diet is that after a year of being completely off salt and following dash, I became quite ill...much more so that now. I craved salt which is something I mentioned to my endocrinologist. . High Blood Pressure is an obvious externally viewed symptom that most people understand. But hormones are subtle and interact in even more subtle and unique ways inside each individual. My blood pressure seems to be managed by medication, and I went to the endocrinologist for those subtle symptoms that are ruining my life. When I asked my PCP for a referral to an endocrinologist, I had no idea or knowledge of conn's disease; I just knew I had an adrenal gland tumor and I was sick in many vague ways that all added up to keeping me housebound. Everything I read so far says that if the excess hormone is coming from a tumor, removing the tumor slowly eliminates all those subtle symptoms that are ruining my life. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2009 Report Share Posted September 19, 2009 : and how exactly did you become "quite ill". This is a very non-descript term. I trust your Drs ask for more details than just "quite ill". My guess is that most Endos have never heard of the DASH. But should have if they treat DM or HTN or PA. Clarence Grimlowerbp2@... On Sep 18, 2009, at 4:48 PM, Valarie wrote: , before having an adrenalectomy, be sure the tumor is responsible for producing the excess aldosterone. Val From: hyperaldosteronism [mailto:hyperaldosteronism ] On Behalf Of Bill, I'm with you on this one. My personal experience with salt and the dash diet is that after a year of being completely off salt and following dash, I became quite ill...much more so that now. I craved salt which is something I mentioned to my endocrinologist.. High Blood Pressure is an obvious externally viewed symptom that most people understand. But hormones are subtle and interact in even more subtle and unique ways inside each individual. My blood pressure seems to be managed by medication, and I went to the endocrinologist for those subtle symptoms that are ruining my life. When I asked my PCP for a referral to an endocrinologist, I had no idea or knowledge of conn's disease; I just knew I had an adrenal gland tumor and I was sick in many vague ways that all added up to keeping me housebound. Everything I read so far says that if the excess hormone is coming from a tumor, removing the tumor slowly eliminates all those subtle symptoms that are ruining my life. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2009 Report Share Posted September 21, 2009 Guess you do not understand completely the need for excess diet salt to develop the high blood pressure and low K and all other symptoms and signs of aldo excess. In other words no excess salt no aldo effect.In the animal model it is called the DOCA/SALT or ALDO/SALT model. Aldo without salt does not cause high blood pressure, or cardiac or renal fibrosis etc. So we should always be talking about it as aldo/salt toxicity that produces the effects of "aldo". No excess salt not effects of aldo.From now on I propose that we always use the term ALDO/SALT when we talk about the effects of aldo or ALDO/NA. Recommendations?Few Endocrinologists really appreciate this. Look at the Endo Soc Guidelines for PA in our files. No mention of the key role of salt in the process nor of the importance of using the DASH diet to minimize the effects of ALDO--WHOPS Aldo/Na.Remember that our physiology (and that of all other organisms out of the sea) evolved under conditions of almost no salt in the diet other than what was in the blood of what was eaten. Recommend you get a copy of Denton's The Hunger for Salt and digest it-with or without salt. Big Lib should have it and prob can find on ebay or book stores used. There was a paperback edition. Clarence Grimlowerbp2@... On Sep 18, 2009, at 8:34 AM, Francis Bill wrote: I understand the relationship between aldo and salt. I also know that there is a lot of misinformation about aldo on the Internet. One of the things I see is aldo does someing in the liver that can changes blood sugar levels. Also read that Aldo can affect other body systems. Nothing is said about salt as being a part on it. Untit things change as to how doctors look at Conn's many will do as all in this group have done. We all have done our own research. Most know more about Conn's then most doctors do. This group should be the place that has the best information about any thing related to Conn's. Some how this information needs to be in a place that is easy to find. > > > > > > > > > > > > > > > > > > > > > > > > > Is there a suggestion? > > > > > emails are nice because they are searchable. > > > > > Are you trying to find something? > > > > > > > > > > Regards > > > > > > > > > > lost information > > > > > > > > > > > > > > > > > > > > As of this email there have been 15904 posting to this group. > > Most > > > > be a lot of good information on here. Just would be very hard > > to find. > > > > > > > > > > There are 357 members on here. It would much easier to look > > at 357 > > > > files then 15904 emails. Maybe it is time to make more use on the > > > > files part of this group. > > > > > > > > > > > > > > > > > > > > > > > > > . > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________ NOD32 4389 (20090902) Information __________ > > > > > > > > > > This message was checked by NOD32 antivirus system. > > > > > http://www.eset.com > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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