Re: Charcot-Marie-Tooth disease impairs quality of life: why? And how do we improve it?

[Guest guest]

Hi all,

For me it is simple. I sometimes feel as if my feet and legs are made of lead,

and at that point my eyelids feel the same way too! The hardest part is the

fatigue that hits occasionally, due to exertion.

Oh and I wish I had a better selection of shoes in my wardrobe, the high arches

I have had most of my life limit my shoe choices - even the heels I do wear wind

up irritating my peroneal tendon.

But I would struggle to say my quality of life was impaired, or that I could

look to a doctor for a fix. I would love research into any therapies that would

halt progress and reverse damage. That would be a true gift.

All the best from London!

Donna