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Re: Going Upstairs!!!

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Joana,

Not being able to go up stairs without a railing when I was 21 was what made me

start going to doctors to figure out what was wrong. I cannot go up one step

without leaning on something. I can't even go up a curb without leaning on a car

to get up.

My quads in my legs are so weak that I cannot get up a stair and primarily use

my arms as my legs.

Jackie

P.S. I am now 44

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I am 71 now and have been going stairs using mainly my arms to pull me up - and

like Jackie said, I too cannot step up even one stair (curb) without holding

onto something and pushing or pulling myself with my arms. Also have trouble

with inclines - must have a cane or rollerator to helpmyself walk up hills (and

I live in a very hilly section of PA). Good thing we have strong arms (so far).

June

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Dear Jackie,

Thank you for your email. Are you able to do some kind of exercise?

Maybe a Hydrotherapy perhaps? Please, feel free to email me anytime!

All the best wishes to you Jackie!

Joana

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Dear June,

Yes, That is true...we have strong arms and we have to thank God

after all for everything!

My dear brother in Brazil had a brain surgery when he was just in his

20's and left him paralized on the right side...and he is an amazing

brother, still working in his office fine, managing to walk with his

cane and always laughing at life.

I can not complain about CMT with him, he is head strong and always

think that life could be much worse!

Ps: We all have CMT, I and my 2 brothers in Brazil!!!

Anyway, nice to hear from you June.

Take Care Always!

Joana

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Like June, I hold on to the rails and pull myself up stairs, one step

at a time, because my leg muscles are not strong enough to lift my

body up the steps. Likewise, I have problems with inclines,

especially going up them. I usually have to hold on to something or

use a cane because my feet do not bend very far at the ankle and my

leg muscles cannot lift my body upward. --Joe

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