Guest guest Posted October 1, 2005 Report Share Posted October 1, 2005 Bobbie, where in Michigan are you located? Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2005 Report Share Posted October 1, 2005 Elaine, Just outside of Grand Rapids. Bobbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2005 Report Share Posted October 2, 2005 Bobbie My Doctors are located in Farmington Hills. They are at the MIND CLINIC. M Michigan I Institute N Neurology D Disorders It is located on Orchard Lake Rd near 12 Mile Rd. It is about 3 minutes from expressway 696 and Orchard Lake Rd. This building was built and ran for nothing else but neurology problems and my Doctor Simpson and Dr. Rentz are awesome. They care and take their time. They are 2 of 4 who run the MDA Clinic. Their staff is awesome. If you feel you need something, they will write the prescription for your insurance company, Medicare or Medicaid so you can get it. If you feel you need a scooter they will write that also and help you get it. They will pay $2,000 maximum for it. They can do their own testing there as well on another floor. I really believe it would do you justice to make an appointment to see them. If you think that you might like to give it a try call them at 1-734-416-7076 and ask for . If she is not in leave a message, she is their right hand at the clinic and you can talk to her and she will lead you in the right direction. I wish you were closer than the 3-4 hour trip. We could get together. If you decide you want an appointment, let me know and I will meet you there and we can visit before or after. All appointments are in the afternoon for adults starting at 12:30. It would be worth the trip and I guarantee you won't regret it. This place is awesome. Been dealing with them for 8 years now and my sister about 3 years before that. You will have several people talk to you taking all kinds of notes before the Dr. sees you. Please give it a shot. I know in my heart you won't regret it. I'd invite you to stay with me overnight, but am renting a room here in a friends house and there are 3 very large dogs that can throw me off balance. But if you make a day trip out of it or an overnight trip I love to get together and talk. Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2005 Report Share Posted October 2, 2005 I was reading your messages, and I live in Grand Rapids Michigan. This is pretty cool we live so close to each other. Missy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2005 Report Share Posted October 2, 2005 I live just outside of Detroit. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2005 Report Share Posted October 2, 2005 That is really cool. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2005 Report Share Posted October 3, 2005 I live outside of Detroit too. Garden City Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2005 Report Share Posted October 3, 2005 It would be really cool if all of us in Michigan could find a half way point and meet and talk. I think that would be great. Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2005 Report Share Posted October 3, 2005 Wow! That is where I live. Right by the high school. Sunshine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2005 Report Share Posted October 4, 2005 Sunshine You in Garden City too? If so wow. I'm off of Cherry Hill and Venoy. Small world Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2005 Report Share Posted October 4, 2005 I live in Livonia, MI. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2005 Report Share Posted October 4, 2005 Elaine, I agree. That would be fun! Missy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2005 Report Share Posted October 4, 2005 Elaine, Yes, I'm on the other side of GC-- right off of Middlebelt near Warren. Sunshine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 Sunshine, Would you like to get together some time? Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2005 Report Share Posted October 5, 2005 Oh You are so close, I use to work at 5 and Farmington. Would you also be interested in getting together? There seems to be a few of us close by Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 Elaine, Thank you for the information. I'll have to check it out. I'm way behind on my emails. Which is normal for me anymore. Bobbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2005 Report Share Posted October 6, 2005 Hi Elaine, Yes, I'd be very interested in getting together with others in our area. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 I have been reading messages from this site for about 13 years and have finally decided to respond. I have CMT1A and it was confirmed 13 yeas ago. Never knew I had CMT when I was younger.I also have three children who have CMT. My daughter is 21 yrs old, one son who is 13 yrs., old and another who is 8yrs, old. The 8 yr. old was a big surprise to our family and the fear that it would be a 50% chance that he would have CMT. MY daughter has had 2 surgeries on her left foot. One when she was 18 yrs. old and the other when she was 20 yrs old. I'm sure she be going in for a 3rd surgery to fix the toes. My 13 year old will be going in for his first surgery the summer of 2010 and the other foot will be operated on during the summer of 2011.I live in Michigan and for years could never find a doctor to help my daughter. Her foot was 2 1/2 sizes smaller than her right foot and it also toed in. We had to take her to land for her first surgery and finally found a doctor in michigan to perform the second surgery. Luckly my husband works in the medical field and we were luckly to find this doctor. It's been hard knowing three of our children were born with CMT and will have to go through life with this disability. I recently found out that I have relatives with CMT but have never met them. They live in TN. I do have a cousin Tina who lives in Michigan and I noticed this on the CMT site and would really like to know if were related. CMT1A Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 , Are you asking me if i am your cousin Tina? i do live in michigan and i do have cmt1a. i know all my 1st cousins, so i maybe a 2nd, and i do have family in tn. From: heartpumper@... Date: Mon, 3 Aug 2009 01:17:52 -0400 Subject: Re: Michigan CMT I have been reading messages from this site for about 13 years and have finally decided to respond. I have CMT1A and it was confirmed 13 yeas ago. Never knew I had CMT when I was younger.I also have three children who have CMT. My daughter is 21 yrs old, one son who is 13 yrs., old and another who is 8yrs, old. The 8 yr. old was a big surprise to our family and the fear that it would be a 50% chance that he would have CMT. MY daughter has had 2 surgeries on her left foot. One when she was 18 yrs. old and the other when she was 20 yrs old. I'm sure she be going in for a 3rd surgery to fix the toes. My 13 year old will be going in for his first surgery the summer of 2010 and the other foot will be operated on during the summer of 2011.I live in Michigan and for years could never find a doctor to help my daughter. Her foot was 2 1/2 sizes smaller than her right foot and it also toed in. We had to take her to land for her first surgery and finally found a doctor in michigan to perform the second surgery. Luckly my husband works in the medical field and we were luckly to find this doctor. It's been hard knowing three of our children were born with CMT and will have to go through life with this disability. I recently found out that I have relatives with CMT but have never met them. They live in TN. I do have a cousin Tina who lives in Michigan and I noticed this on the CMT site and would really like to know if were related. CMT1A Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2009 Report Share Posted August 3, 2009 Tina, Yes, I was wondering if we were related. I have an aunt Dorothy who lives in TN who has 5 boys. Also, I have an aunt Betty who lives in Warren,Mi who has 2 daughters, Debbie and Tina. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 4, 2009 Report Share Posted August 4, 2009 george, no i am not related to them. thanks , but who knew, such a small world. From: heartpumper@... Date: Mon, 3 Aug 2009 16:53:04 -0400 Subject: Re: Michigan CMT Tina, Yes, I was wondering if we were related. I have an aunt Dorothy who lives in TN who has 5 boys. Also, I have an aunt Betty who lives in Warren,Mi who has 2 daughters, Debbie and Tina. Quote Link to comment Share on other sites More sharing options...
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