Guest guest Posted July 21, 2005 Report Share Posted July 21, 2005 Thank you very much for your response Penny. It is encouraging to hear about people such as yourself who have been dealing with CMT their entire lives and are still having a full and productive life. After we were told that Carley could possibly have CMT the first piece of research that I read stated that one of the types of CMT resulted in children being wheelchair bound by their teenage years. I obviously feared the worse after reading this. I have come to realize that this isn't necessarily the case with people who have CMT. I guess my wife and I decided to go ahead with the tests now so that we are aware of what we are dealing with. The neurologist thought their could be a chance that their are inflammatory issues making her symptoms worse which could be treated. Back in April she had a nerve conduction velocity test which came back very low for a child her age. They then tested both my wife and I. My wife came back normal but my reading was borderline abnormal. That is why he thinks it is probably a bad gene passed on by me. It was a surprise to me because I have never had any symptoms. I have been a runner since high school and been active all through my life. He said the best case scenerio would be that Carley also has a mild case of CMT but the inflammatory issues are making the symptoms worse. My mom cannot recall anyone else in our family every having any CMT symptoms. Her tests are scheduled for August 4 so I guess we will find out shortly after. Mike Quote Link to comment Share on other sites More sharing options...
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