Waiting on blood work for 3 year old daughter/ I have QUESTIONS

[Guest guest]

Hi, my daughter is suppected of having CMT, the neurologist does

not want to label her yet. CMT does not run in the family.

She began walking at age of 11 months, I noticed she had a funny walk

at about 1 and a half, she started toe-walking. It wasn't until she

was about 2 and a half that I took her to a different pediatrician.

He noticed she had high arches and drop-foot. Her left foot is

bending to the right (the ankle part)

She has had an MRI (normal). Blood work sent to Athena, their web

site states that it takes 21-28 days well I probably won't find out

until the 29th of this month. I want to know already. She is going

to receive an AFO for her left foot only.

What I would like to know which of the CMT's is the best one to have,

if you do have it? When you were diagnosed as a kid what were your

limitations? I know my daughter wants to run and jump and she tries

so hard will the AFO's help, surgery, therapy? I know that everyone is

different, but I would love to hear your story.