welcome Deborah and son

[Guest guest]

Hi Deborah,

Please pass this along to your son. I was very hesitant to join a group,

especially as my doctors have told me that I have very asymptomatic CMT (I have

no problems walking, although I do have high arched feet and am starting to lose

feeling in my tops of my toes) - especially when talking about classic CMT. I

joined as I thought it would be a good way to learn from other people, and

to understand more about the neurological condition I have been diagnosed with.

I find the group hugely beneficial - sure, sometimes the questions and

messages kind of scare me as I do not have the symptoms some speak about, but I

have learned that I do share some similarity with many people, that things I

have always had and thought were nuisance issues (like bad knees) could indeed

be a common symptom. The medical literature that Gretchen posts is inspiring,

and as well there are great tips that people share (I certainly had not thought

of vitamin C as more than a cold stopper before joining the group).

Please pass along my message and email to your son. It is so important to have

a place to go to ask questions, especially of people who have experience and

have tried many different things at different stages of their life.

Kind regards,

Donna from London