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Joana,

I have never traveled to Europe, but it sounds like it is easier for you to get

around there than it is here where I live. I would never go anywhere if I did

not have a car. I am so dependent on it, but now with price of gas, it is

getting harder.

I went to NIH today and they are doing 3 seperate genetic tests on me to see if

we can determine what I have. They are still leaning towards CMT, but one of the

axonal autosomal recessive ones. Now that I understand the difference, I can

start to learn and advocate more for myself. The good news is they are giving me

a referral for someone who will evaluate my walk and help me with picking out

the proper bracing for my self.

As far as improving posture, I know what you mean. When I see a reflection of

myself when walking I see that i walk hunched over. I think I do that to try to

push my body forward and sometime I concentrate on keeping my shoulders up and

trying to walk as normal as possible. It takes a lot of concentrating!

Keep on swimming and it sounds like you are getting around just fine!

Jackie

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