Re: Hayden (6 mo) continues to resolve

[Guest guest]

Marsha,

I don't want to rain on your nice sunny hopeful thoughts, and I hope

they are correct, but I do want to warn you that our daughter held at 19

degrees on her own without any brace or cast for 2 years, then in one

growth spurt it was 35. So even though I understand your desire to

protect her from the x-ray radiation, it really is the best way to be

positive of what her back is doing.

E

________________________________

From: infantile scoliosis treatment

[mailto:infantile scoliosis treatment ] On Behalf Of mlmjra

Sent: Tuesday, February 20, 2007 4:44 AM

infantile scoliosis treatment

Subject: Hayden (6 mo) continues to resolve

Hi to everyone,

I haven't been absent....just lurking.....but still reading many

posts, especially from the new members. I continue to be amazed by

so many new cases of Inf. Scoli.

This evening I posted a couple of new pictures of Hayden's back that

appears to be resolving and straightening itself. I think the last

time I posted was in December after her visit with Dr. Gupta at

Shriners here in Sacramento, at which time her xrays read as 21

degrees and RVAD of 3. The 21 degrees hadn't changed then from her

earlier xrays at 7 weeks old (in Sept). If you happen to look at

Hayden's latest picture you'll see that her spine doesn't look like

it is crooked at all now......or maybe just the tiniest bit. And

the hump around and below the shoulder blade and the other concave

side seem to have disappeared. The torticollis has been gone for

some time now and she seems to have perfectly stong neck muscles

now.

Her next visit isn't until April and personally I'm hoping Dr. Gupta

doesn't want to xray her and just does a visual on her back.

We know she's not out of the woods but everything sure looks good

lately.

My heart goes out to all of you who have little ones who continue to

need braces and/or casts. You have all come to the right place on

this site for advice, knowlege and support. After doing research

and lurking here for the last few months I am soooo impressed by

what I continue to hear and learn from all of you devoted and loving

parents.

Marsha

Grandmom (Nana)to baby girl Hayden

born Aug. 6, 2006

[Guest guest]

Just curious..............how many has this happen to? Curve held at a certain

degree and then growth spurt occurs and curve gets worse?

I know every child is different and 's doctor has told me there is always

that chance................just curious how common it is for infantile

scoliosis.

Thanks, Tasha

BTW , how old was your daughter when that happen? Did she have to go

back in a cast or brace? What was the treatment?

" D. Esser " <cesser@...> wrote:

Marsha,

I don't want to rain on your nice sunny hopeful thoughts, and I hope

they are correct, but I do want to warn you that our daughter held at 19

degrees on her own without any brace or cast for 2 years, then in one

growth spurt it was 35. So even though I understand your desire to

protect her from the x-ray radiation, it really is the best way to be

positive of what her back is doing.

E

________________________________

From: infantile scoliosis treatment

[mailto:infantile scoliosis treatment ] On Behalf Of mlmjra

Sent: Tuesday, February 20, 2007 4:44 AM

infantile scoliosis treatment

Subject: Hayden (6 mo) continues to resolve

Hi to everyone,

I haven't been absent....just lurking.....but still reading many

posts, especially from the new members. I continue to be amazed by

so many new cases of Inf. Scoli.

This evening I posted a couple of new pictures of Hayden's back that

appears to be resolving and straightening itself. I think the last

time I posted was in December after her visit with Dr. Gupta at

Shriners here in Sacramento, at which time her xrays read as 21

degrees and RVAD of 3. The 21 degrees hadn't changed then from her

earlier xrays at 7 weeks old (in Sept). If you happen to look at

Hayden's latest picture you'll see that her spine doesn't look like

it is crooked at all now......or maybe just the tiniest bit. And

the hump around and below the shoulder blade and the other concave

side seem to have disappeared. The torticollis has been gone for

some time now and she seems to have perfectly stong neck muscles

now.

Her next visit isn't until April and personally I'm hoping Dr. Gupta

doesn't want to xray her and just does a visual on her back.

We know she's not out of the woods but everything sure looks good

lately.

My heart goes out to all of you who have little ones who continue to

need braces and/or casts. You have all come to the right place on

this site for advice, knowlege and support. After doing research

and lurking here for the last few months I am soooo impressed by

what I continue to hear and learn from all of you devoted and loving

parents.

Marsha

Grandmom (Nana)to baby girl Hayden

born Aug. 6, 2006

[Guest guest]

I don't know how many it happens to, but we recognized her curve early

(before her 1st birthday), it was measured at 19 and we were told that

it could resolve, stay the same or get worse and that at that degree we

should watch and wait. She went through several growth spurts without

any change. Then it changed to 21 and he said if it got to 25 he would

brace her to maintain it, but at the next visit (when she was 2 and 3/4)

it was up to 35 and he immediately (as in didn't care that we were

moving 2 days before) put her into a cast. At the time I was so mad,

because I had never even considered casting (or even heard of it) and

thought moving to a new home and being put into a cast was too much for

a little one, but now I know he was right to move so quickly. I

honestly wish that he would have casted her earlier so that we could

have harnessed the rapid growth to straighten her, but all of my reading

(including Mehta) seems to say that he was following protocol in waiting

and watching at 19 and 21 degrees.

I would be curious to know how many it has happened to and wonder if

that data could push doctors to cast little ones earlier.

E

________________________________

From: infantile scoliosis treatment

[mailto:infantile scoliosis treatment ] On Behalf Of Tasha Fontenot

Sent: Tuesday, February 20, 2007 2:29 PM

infantile scoliosis treatment

Subject: RE: Hayden (6 mo) continues to resolve

Just curious..............how many has this happen to? Curve held at a

certain degree and then growth spurt occurs and curve gets worse?

I know every child is different and 's doctor has told me there is

always that chance................just curious how common it is for

infantile scoliosis.

Thanks, Tasha

BTW , how old was your daughter when that happen? Did she have

to go back in a cast or brace? What was the treatment?

" D. Esser " <cesser@... <mailto:cesser%40habush.com> >

wrote: Marsha,

I don't want to rain on your nice sunny hopeful thoughts, and I hope

they are correct, but I do want to warn you that our daughter held at 19

degrees on her own without any brace or cast for 2 years, then in one

growth spurt it was 35. So even though I understand your desire to

protect her from the x-ray radiation, it really is the best way to be

positive of what her back is doing.

E

________________________________

From: infantile scoliosis treatment

<mailto:infantile scoliosis treatment%40>

[mailto:infantile scoliosis treatment

<mailto:infantile scoliosis treatment%40> ] On Behalf Of mlmjra

Sent: Tuesday, February 20, 2007 4:44 AM

infantile scoliosis treatment

<mailto:infantile scoliosis treatment%40>

Subject: Hayden (6 mo) continues to resolve

Hi to everyone,

I haven't been absent....just lurking.....but still reading many

posts, especially from the new members. I continue to be amazed by

so many new cases of Inf. Scoli.

This evening I posted a couple of new pictures of Hayden's back that

appears to be resolving and straightening itself. I think the last

time I posted was in December after her visit with Dr. Gupta at

Shriners here in Sacramento, at which time her xrays read as 21

degrees and RVAD of 3. The 21 degrees hadn't changed then from her

earlier xrays at 7 weeks old (in Sept). If you happen to look at

Hayden's latest picture you'll see that her spine doesn't look like

it is crooked at all now......or maybe just the tiniest bit. And

the hump around and below the shoulder blade and the other concave

side seem to have disappeared. The torticollis has been gone for

some time now and she seems to have perfectly stong neck muscles

now.

Her next visit isn't until April and personally I'm hoping Dr. Gupta

doesn't want to xray her and just does a visual on her back.

We know she's not out of the woods but everything sure looks good

lately.

My heart goes out to all of you who have little ones who continue to

need braces and/or casts. You have all come to the right place on

this site for advice, knowlege and support. After doing research

and lurking here for the last few months I am soooo impressed by

what I continue to hear and learn from all of you devoted and loving

parents.

Marsha

Grandmom (Nana)to baby girl Hayden

born Aug. 6, 2006

[Guest guest]

Hi ,

When you say that your daughter's measurement was 19 degrees, then 21 degrees,

was that the Cobb measurement or the RVAD? One reason we are so hopeful is that

Hayden's RVAD on the Dec. xray was only 3.

But like I say, we know she is not out of the woods and are watching her very

closely. But thanks for your thoughts, we're just hoping and praying for the

best.

Marsha

Hayden (6 mo) continues to resolve

Hi to everyone,

I haven't been absent....just lurking.....but still reading many

posts, especially from the new members. I continue to be amazed by

so many new cases of Inf. Scoli.

This evening I posted a couple of new pictures of Hayden's back that

appears to be resolving and straightening itself. I think the last

time I posted was in December after her visit with Dr. Gupta at

Shriners here in Sacramento, at which time her xrays read as 21

degrees and RVAD of 3. The 21 degrees hadn't changed then from her

earlier xrays at 7 weeks old (in Sept). If you happen to look at

Hayden's latest picture you'll see that her spine doesn't look like

it is crooked at all now......or maybe just the tiniest bit. And

the hump around and below the shoulder blade and the other concave

side seem to have disappeared. The torticollis has been gone for

some time now and she seems to have perfectly stong neck muscles

now.

Her next visit isn't until April and personally I'm hoping Dr. Gupta

doesn't want to xray her and just does a visual on her back.

We know she's not out of the woods but everything sure looks good

lately.

My heart goes out to all of you who have little ones who continue to

need braces and/or casts. You have all come to the right place on

this site for advice, knowlege and support. After doing research

and lurking here for the last few months I am soooo impressed by

what I continue to hear and learn from all of you devoted and loving

parents.

Marsha

Grandmom (Nana)to baby girl Hayden

born Aug. 6, 2006

[Guest guest]

Ian held his curve and did not progress for about 7 months are so and then began

to rapidly progress.

Noelle (12-2-01)

Ian (8-15-04)

Hayden (6 mo) continues to resolve

Hi to everyone,

I haven't been absent....just lurking.....but still reading many

posts, especially from the new members. I continue to be amazed by

so many new cases of Inf. Scoli.

This evening I posted a couple of new pictures of Hayden's back that

appears to be resolving and straightening itself. I think the last

time I posted was in December after her visit with Dr. Gupta at

Shriners here in Sacramento, at which time her xrays read as 21

degrees and RVAD of 3. The 21 degrees hadn't changed then from her

earlier xrays at 7 weeks old (in Sept). If you happen to look at

Hayden's latest picture you'll see that her spine doesn't look like

it is crooked at all now......or maybe just the tiniest bit. And

the hump around and below the shoulder blade and the other concave

side seem to have disappeared. The torticollis has been gone for

some time now and she seems to have perfectly stong neck muscles

now.

Her next visit isn't until April and personally I'm hoping Dr. Gupta

doesn't want to xray her and just does a visual on her back.

We know she's not out of the woods but everything sure looks good

lately.

My heart goes out to all of you who have little ones who continue to

need braces and/or casts. You have all come to the right place on

this site for advice, knowlege and support. After doing research

and lurking here for the last few months I am soooo impressed by

what I continue to hear and learn from all of you devoted and loving

parents.

Marsha

Grandmom (Nana)to baby girl Hayden

born Aug. 6, 2006

[Guest guest]

Hi ,

I am assuming this was before he started the casting process?

How has he done in the cast? Forgive me I can't remember.

Tasha

Claflin <noellesmommy@...> wrote:

Ian held his curve and did not progress for about 7 months are so and then began

to rapidly progress.

Noelle (12-2-01)

Ian (8-15-04)

Hayden (6 mo) continues to resolve

Hi to everyone,

I haven't been absent....just lurking.....but still reading many

posts, especially from the new members. I continue to be amazed by

so many new cases of Inf. Scoli.

This evening I posted a couple of new pictures of Hayden's back that

appears to be resolving and straightening itself. I think the last

time I posted was in December after her visit with Dr. Gupta at

Shriners here in Sacramento, at which time her xrays read as 21

degrees and RVAD of 3. The 21 degrees hadn't changed then from her

earlier xrays at 7 weeks old (in Sept). If you happen to look at

Hayden's latest picture you'll see that her spine doesn't look like

it is crooked at all now......or maybe just the tiniest bit. And

the hump around and below the shoulder blade and the other concave

side seem to have disappeared. The torticollis has been gone for

some time now and she seems to have perfectly stong neck muscles

now.

Her next visit isn't until April and personally I'm hoping Dr. Gupta

doesn't want to xray her and just does a visual on her back.

We know she's not out of the woods but everything sure looks good

lately.

My heart goes out to all of you who have little ones who continue to

need braces and/or casts. You have all come to the right place on

this site for advice, knowlege and support. After doing research

and lurking here for the last few months I am soooo impressed by

what I continue to hear and learn from all of you devoted and loving

parents.

Marsha

Grandmom (Nana)to baby girl Hayden

born Aug. 6, 2006

[Guest guest]

Oops. I forgot to say he is now 11 degrees.

Noelle (12-2-01)

Ian (8-15-04)

Hayden (6 mo) continues to resolve

Hi to everyone,

I haven't been absent....just lurking.....but still reading many

posts, especially from the new members. I continue to be amazed by

so many new cases of Inf. Scoli.

This evening I posted a couple of new pictures of Hayden's back that

appears to be resolving and straightening itself. I think the last

time I posted was in December after her visit with Dr. Gupta at

Shriners here in Sacramento, at which time her xrays read as 21

degrees and RVAD of 3. The 21 degrees hadn't changed then from her

earlier xrays at 7 weeks old (in Sept). If you happen to look at

Hayden's latest picture you'll see that her spine doesn't look like

it is crooked at all now......or maybe just the tiniest bit. And

the hump around and below the shoulder blade and the other concave

side seem to have disappeared. The torticollis has been gone for

some time now and she seems to have perfectly stong neck muscles

now.

Her next visit isn't until April and personally I'm hoping Dr. Gupta

doesn't want to xray her and just does a visual on her back.

We know she's not out of the woods but everything sure looks good

lately.

My heart goes out to all of you who have little ones who continue to

need braces and/or casts. You have all come to the right place on

this site for advice, knowlege and support. After doing research

and lurking here for the last few months I am soooo impressed by

what I continue to hear and learn from all of you devoted and loving

parents.

Marsha

Grandmom (Nana)to baby girl Hayden

born Aug. 6, 2006

[Guest guest]

Yes, this was before he was casted. He was diagnosed at 6 months and we began

casting at 15 months. I guess it was closer to 9 months that he stayed stable.

Noelle (12-2-01)

Ian (8-15-04)

Hayden (6 mo) continues to resolve

Hi to everyone,

I haven't been absent....just lurking.....but still reading many

posts, especially from the new members. I continue to be amazed by

so many new cases of Inf. Scoli.

This evening I posted a couple of new pictures of Hayden's back that

appears to be resolving and straightening itself. I think the last

time I posted was in December after her visit with Dr. Gupta at

Shriners here in Sacramento, at which time her xrays read as 21

degrees and RVAD of 3. The 21 degrees hadn't changed then from her

earlier xrays at 7 weeks old (in Sept). If you happen to look at

Hayden's latest picture you'll see that her spine doesn't look like

it is crooked at all now......or maybe just the tiniest bit. And

the hump around and below the shoulder blade and the other concave

side seem to have disappeared. The torticollis has been gone for

some time now and she seems to have perfectly stong neck muscles

now.

Her next visit isn't until April and personally I'm hoping Dr. Gupta

doesn't want to xray her and just does a visual on her back.

We know she's not out of the woods but everything sure looks good

lately.

My heart goes out to all of you who have little ones who continue to

need braces and/or casts. You have all come to the right place on

this site for advice, knowlege and support. After doing research

and lurking here for the last few months I am soooo impressed by

what I continue to hear and learn from all of you devoted and loving

parents.

Marsha

Grandmom (Nana)to baby girl Hayden

born Aug. 6, 2006