Re: Dealing with young child in TLSO brace...

[Guest guest]

hi connie,

it's good to " hear " from you. i'm glad that billy is doing so well post

surgery. i took a peak at the x-rays, and he looks so straight!

my son lucas is almost 5 and had worn a tlso awhile back, then in casts, and now

a spinecor brace. with a cast, lucas did need help with some things in the

bathroom (if you get my drift). thankfully last year, he was going to a private

preschool so the teachers were more willing to help him. this year, he is going

to a public preschool so they are not allowed to help children in the bathroom.

he is in the spinecor now, so he had to " learn " how to do certain things

himself. it is taking practice. he wears his underwear over the brace as he

did with the cast so that he can pull them up and down. he had to learn how to

get his pants over the brace. i highly recommend elastic waistband until billy

gets used to it.

if you don't mind, i will privately e-mail you one thing since it is a bit more

graphic.

deshea

---- Original message ----

>Date: Thu, 28 Sep 2006 17:16:12 EDT

>From: conni60640@...

>Subject: Dealing with young child in TLSO brace...

>infantile scoliosis treatment , scoliosis-in-children

>

> Hi everyone, it's been a while since I posted. My

> son is six and has

> congenital scoliosis and is now six weeks post

> fusion (T11 - sacrum with

> pedicle screws and rods). He is currently in a cast

> and will be getting a

> Wilmington TLSO brace on Tuesday. From what I've

> seen, the brace opens in the

> front at side and attaches with velcro straps...

> Does anyone else have a little one wearing a TLSO,

> and if so, how do they

> deal with toileting/dressing issues with the brace?

> Like getting undies and

> pants up and down by themselves in school? He's been

> out of school so far with

> homebound tutoring but I'd really like to get him

> back into school before he

> misses too much!

>

> Connie

> Mom to Sara 14, Nicky 8 (GI issues, megacolon), and

> 6

> (CRS/VACTERLS incl. tethered spinal cord (repaired

> 9/00 and 8/06) perineal

> fistula imperforate anus (repaired 5/00), single

> kidney, PDA (closed on its

> own), malformed pelvis and hemisacrum, long segment

> lumbosacral levoscoliosis

> with hemivertebrae (fusion T11-sacrum 8/06) , extra

> left rib, genital

> anomalies with hypospadius (repairs 9/00,11/00,

> 5/01,12/01,12/03), hypoplastic left

> leg with clubfoot (repaired 5/01), tibial torsion

> and 4.5cm length discrepancy

> - wears AFO and 4.5cm lift, SUA, GI reflux,

> DGE/gastroparesis, mild

> swallowing dysphagia, eating issues and the most

> beautiful smile ever)

> _conni60640@..._ (mailto:conni60640@...)

>

> Our website

> _http://members.tripod.com/conni60640-ivil/_

> (http://members.tripod.com/conni60640-ivil/)

>

> VACTERL/VATER support

> _VACTERLNetwork/_

> (VACTERLNetwork/)

>

> TC support group

> _LMC-TCS/_

> (LMC-TCS/)

>

> Congenital scoliosis support group

> _CongenitalScoliosisSupport/_

> (CongenitalScoliosisSupport/)

>

> S. Jersey

>

> [Non-text portions of this message have been

> removed]

>

>

[Guest guest]

I don't know if it will or not. Lacie is a girl and only three (she

is potty trained). We try to do elastic pants, and a little larger

underwear so that they are easy up and down. Her biggest struggle

was getting up and down off the potty. A small step stool has done

wonders for her.

>

> hi connie,

>

> it's good to " hear " from you. i'm glad that billy is doing so

well post surgery. i took a peak at the x-rays, and he looks so

straight!

>

> my son lucas is almost 5 and had worn a tlso awhile back, then in

casts, and now a spinecor brace. with a cast, lucas did need help

with some things in the bathroom (if you get my drift). thankfully

last year, he was going to a private preschool so the teachers were

more willing to help him. this year, he is going to a public

preschool so they are not allowed to help children in the bathroom.

he is in the spinecor now, so he had to " learn " how to do certain

things himself. it is taking practice. he wears his underwear over

the brace as he did with the cast so that he can pull them up and

down. he had to learn how to get his pants over the brace. i

highly recommend elastic waistband until billy gets used to it.

>

> if you don't mind, i will privately e-mail you one thing since it

is a bit more graphic.

>

> deshea

>

> ---- Original message ----

> >Date: Thu, 28 Sep 2006 17:16:12 EDT

> >From: conni60640@...

> >Subject: Dealing with young child in TLSO

brace...

> >infantile scoliosis treatment , scoliosis-in-

children

> >

> > Hi everyone, it's been a while since I posted. My

> > son is six and has

> > congenital scoliosis and is now six weeks post

> > fusion (T11 - sacrum with

> > pedicle screws and rods). He is currently in a cast

> > and will be getting a

> > Wilmington TLSO brace on Tuesday. From what I've

> > seen, the brace opens in the

> > front at side and attaches with velcro straps...

> > Does anyone else have a little one wearing a TLSO,

> > and if so, how do they

> > deal with toileting/dressing issues with the brace?

> > Like getting undies and

> > pants up and down by themselves in school? He's been

> > out of school so far with

> > homebound tutoring but I'd really like to get him

> > back into school before he

> > misses too much!

> >

> > Connie

> > Mom to Sara 14, Nicky 8 (GI issues, megacolon), and

> > 6

> > (CRS/VACTERLS incl. tethered spinal cord (repaired

> > 9/00 and 8/06) perineal

> > fistula imperforate anus (repaired 5/00), single

> > kidney, PDA (closed on its

> > own), malformed pelvis and hemisacrum, long segment

> > lumbosacral levoscoliosis

> > with hemivertebrae (fusion T11-sacrum 8/06) , extra

> > left rib, genital

> > anomalies with hypospadius (repairs 9/00,11/00,

> > 5/01,12/01,12/03), hypoplastic left

> > leg with clubfoot (repaired 5/01), tibial torsion

> > and 4.5cm length discrepancy

> > - wears AFO and 4.5cm lift, SUA, GI reflux,

> > DGE/gastroparesis, mild

> > swallowing dysphagia, eating issues and the most

> > beautiful smile ever)

> > _conni60640@..._ (mailto:conni60640@...)

> >

> > Our website

> > _http://members.tripod.com/conni60640-ivil/_

> > (http://members.tripod.com/conni60640-ivil/)

> >

> > VACTERL/VATER support

> > _VACTERLNetwork/_

> > (VACTERLNetwork/)

> >

> > TC support group

> > _LMC-TCS/_

> > (LMC-TCS/)

> >

> > Congenital scoliosis support group

> >

_CongenitalScoliosisSupport/_

> >

(CongenitalScoliosisSupport/)

> >

> > S. Jersey

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>