Re: Hayden / does anyone know doll_face95 () ??

January 9, 2007

No, I do not know her at all...it doesn't ring a bell. I hadn't heard of anyone

on this board resolving on their own. I don't think I joined this board until

right around the time you mentioned her last posting, so she probably posted

before I was very active. I thought Ian was resolving for a while there and so

I didn't read and post on here all that much during the time frame of April 05

to July 05. Try emailing either or Deshea...they probably remember her

and can tell you more.

Noelle (12-2-01)

Ian (8-15-04)

Hayden's Visit at Sacramento Shriners

Hi Everyone,

Hayden had her lst visit with a specialist yesterday.....Dr. Gupta

at Shriners here in Sacramento. She had her second xrays and her

Cobb was the same as it was on September 27th at 7 weeks old.....21

degrees and the doctor greeted us with some fantastic news......RVAD

of 3!!!! There is no progression thus far and the doctor said he

was pretty sure this would resolve itself. So she may be one of the

lucky ones. We are thanking the Lord for this wonderful Christmas

gift.

He wants to see her again in 4 months and of course we will be

watching her like hawks. The left side of her back doesn't look as

muscular as it did, with the right side looking a little more

concave. As she grows stronger and is rolling over and lifting up

trying to scoot, etc. I think her muscles are strengthening and

holding that spine in place.......my theory anyway.

When we asked Dr. Gupta about the spines that do resolve themselves

vs. the ones that don't he said " just as we do not know what causes

some to progress we also do not know what causes some to resolve " .

He had a theory and I wish I had taped our conversation....he said

he believes there is something neuro??????? going on that reverses

itself.

At any rate we know Hayden's not out of the woods yet and will

require monitoring for a long time to come.

I did speak to Dr. Gupta re: the Min Mehta casting method and AMIL

table, etc. He was very familiar with Dr. Mehta but not so familiar

with the difference in the method of casting. He gave me his fax #

and I am forwarding him information.

I will continue to update everyone in the near future and also

continue to pray for all of your precious children.

Marsha

>

> How was your trip today?

> Let us know what the Docs said about Hayden.

> Thanks.

>

> and Evan

>

January 10, 2007

I remember her. She is very busy. Her dd was discovered to have scoli too, not

self-resolving. She also goes to school and works so just doesn't have time to

post any more. Maybe you could e-mail her privately?

Claflin <noellesmommy@...> wrote: No, I do not know

her at all...it doesn't ring a bell. I hadn't heard of anyone on this board

resolving on their own. I don't think I joined this board until right around the

time you mentioned her last posting, so she probably posted before I was very

active. I thought Ian was resolving for a while there and so I didn't read and

post on here all that much during the time frame of April 05 to July 05. Try

emailing either or Deshea...they probably remember her and can tell you

more.