Guest guest Posted September 10, 2006 Report Share Posted September 10, 2006 Wow! That is awesome!!!! I am so happy for Jake. I, too, would be worried about not weaning him off the brace. But, I know you will be diligent in getting him x-rayed. If you see the slightest progression, I am sure he won't have a problem putting him right back into a brace. I am so happy to hear another successful casting story! Noelle (12-2-01) Ian (8-15-04) Jake update We returned from Erie late last night after our 3 month follow-up/brace check appointment for Jake. I'm happy and at same time terrified to report -- Jake's back is straight. Both curves now measure 0 degrees and the RVAD is 9. (Jake was out of brace for 1 week prior to x-ray due to hernia repair as you may recall.) That's the good part. The part I'm scared about is -- Dr. sent Jake home with NO brace. Stated he couldn't justify making a new brace for a spine with no measurements. What about the step-down or weaning period? Dr. said " He'll be fine. " We are to keep a watchful eye on his little spine now until our next x-ray which will be in 4 months' time. Dr. recommended having it done in pediatrician's office and sending a copy to him. If all is still well, fantastic. If there is any regression at all, we will head back to Erie. Scared silly, & Jake --------------------------------- Get your email and more, right on the new .com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2006 Report Share Posted September 11, 2006 Before brace he was 10o and 6o. In brace he was 2o and 6o. Now 0o and 0o. I still can't believe it!!!!! & Jake mosunshinebaby <mosunshinebaby@...> wrote: !! That's is SO wonderful! Such wonderful news! Sounds like such a positive & encouraging response, I'm sure he'll be just fine with the Dr. thinking so positive about it! What was he measuring in this brace 3 mos. ago? And out of brace? Just curious! Just keep a close watchful eye on it, I'm sure you intended too! Hopefully all continues to go well, I'm sure it will! Congratulations again!! ~Joy & Sol > > We returned from Erie late last night after our 3 month follow- up/brace check appointment for Jake. I'm happy and at same time terrified to report -- Jake's back is straight. Both curves now measure 0 degrees and the RVAD is 9. (Jake was out of brace for 1 week prior to x-ray due to hernia repair as you may recall.) That's the good part. The part I'm scared about is -- Dr. sent Jake home with NO brace. Stated he couldn't justify making a new brace for a spine with no measurements. What about the step-down or weaning period? Dr. said " He'll be fine. " We are to keep a watchful eye on his little spine now until our next x-ray which will be in 4 months' time. Dr. recommended having it done in pediatrician's office and sending a copy to him. If all is still well, fantastic. If there is any regression at all, we will head back to Erie. > > Scared silly, > & Jake > > > --------------------------------- > Get your email and more, right on the new .com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2006 Report Share Posted September 11, 2006 He said the key was to make sure Jake has another supine x-ray so comparison is consistent. Therefore, we cannot go back to Boston as they insist on prone x-rays. Still, yes, I'm am scared. Still praying, & Jake > > Wow! That is awesome!!!! I am so happy for Jake. I, too, would be worried about not weaning him off the brace. But, I know you will be diligent in getting him x-rayed. If you see the slightest progression, I am sure he won't have a problem putting him right back into a brace. > > I am so happy to hear another successful casting story! > > > Noelle (12-2-01) > Ian (8-15-04) > Jake update > > > We returned from Erie late last night after our 3 month follow- up/brace check appointment for Jake. I'm happy and at same time terrified to report -- Jake's back is straight. Both curves now measure 0 degrees and the RVAD is 9. (Jake was out of brace for 1 week prior to x-ray due to hernia repair as you may recall.) That's the good part. The part I'm scared about is -- Dr. sent Jake home with NO brace. Stated he couldn't justify making a new brace for a spine with no measurements. What about the step-down or weaning period? Dr. said " He'll be fine. " We are to keep a watchful eye on his little spine now until our next x-ray which will be in 4 months' time. Dr. recommended having it done in pediatrician's office and sending a copy to him. If all is still well, fantastic. If there is any regression at all, we will head back to Erie. > > Scared silly, > & Jake > > > --------------------------------- > Get your email and more, right on the new .com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2006 Report Share Posted September 11, 2006 THAT IS AWESOME!!! I am so happy for Jake and I am thrilled for you. I can only imagine how you must be feeling............extremely happy, but I can totally understand you being scared. , forgive me I can't remember, how old was Jake when he got his 1st cast? And what were his measurements. How many casts did he have before the brace? I get so excited when I hear all these amazing stories. I am so anxious for to get his 2nd cast to see what the 1st one has done. Although I do realize all children respond differently so I try not to get too excited. Again congrats on this new step forward. Tasha/ Viveiros <jviv314@...> wrote: We returned from Erie late last night after our 3 month follow-up/brace check appointment for Jake. I'm happy and at same time terrified to report -- Jake's back is straight. Both curves now measure 0 degrees and the RVAD is 9. (Jake was out of brace for 1 week prior to x-ray due to hernia repair as you may recall.) That's the good part. The part I'm scared about is -- Dr. sent Jake home with NO brace. Stated he couldn't justify making a new brace for a spine with no measurements. What about the step-down or weaning period? Dr. said " He'll be fine. " We are to keep a watchful eye on his little spine now until our next x-ray which will be in 4 months' time. Dr. recommended having it done in pediatrician's office and sending a copy to him. If all is still well, fantastic. If there is any regression at all, we will head back to Erie. Scared silly, & Jake --------------------------------- Get your email and more, right on the new .com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2006 Report Share Posted September 11, 2006 Yippee to Jake. I wouldn't be scared. If his spine has held up and continues to hold up perfectly straight, it should continue to grow stratight. Good luck to your guys and congratulations.... Enjoy. Jerry and Marissa Jake update We returned from Erie late last night after our 3 month follow-up/brace check appointment for Jake. I'm happy and at same time terrified to report -- Jake's back is straight. Both curves now measure 0 degrees and the RVAD is 9. (Jake was out of brace for 1 week prior to x-ray due to hernia repair as you may recall.) That's the good part. The part I'm scared about is -- Dr. sent Jake home with NO brace. Stated he couldn't justify making a new brace for a spine with no measurements. What about the step-down or weaning period? Dr. said " He'll be fine. " We are to keep a watchful eye on his little spine now until our next x-ray which will be in 4 months' time. Dr. recommended having it done in pediatrician's office and sending a copy to him. If all is still well, fantastic. If there is any regression at all, we will head back to Erie. Scared silly, & Jake --------------------------------- Get your email and more, right on the new .com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2006 Report Share Posted September 11, 2006 jennifer, that is such wonderful news!!! sorry we missed you on friday in erie. we headed out before you arrived. i'm curious. are they planning on converting to upright x-rays at some point? best, abigail --------------------------------- Get your own web address for just $1.99/1st yr. We'll help. Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 11, 2006 Report Share Posted September 11, 2006 Dear Jen Congratulations on a straight Jake. I know how scared you must feel, it is so hard to see them without isn't it? You really are afraid that any movement will undo all that hard work. What about if you take a photo of his back with him standing straight with his arms out and then you can have a comparison to keep looking back at during the next 4 months as he grows. It will give you peace of mind and let you check any changes. We have tried to do this with Bridget at the suggestion of her physio and it has helped me. Good luck Bert and Bridget Viveiros <jviv314@...> wrote: We returned from Erie late last night after our 3 month follow-up/brace check appointment for Jake. I'm happy and at same time terrified to report -- Jake's back is straight. Both curves now measure 0 degrees and the RVAD is 9. (Jake was out of brace for 1 week prior to x-ray due to hernia repair as you may recall.) That's the good part. The part I'm scared about is -- Dr. sent Jake home with NO brace. Stated he couldn't justify making a new brace for a spine with no measurements. What about the step-down or weaning period? Dr. said " He'll be fine. " We are to keep a watchful eye on his little spine now until our next x-ray which will be in 4 months' time. Dr. recommended having it done in pediatrician's office and sending a copy to him. If all is still well, fantastic. If there is any regression at all, we will head back to Erie. Scared silly, & Jake --------------------------------- Get your email and more, right on the new .com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2006 Report Share Posted September 14, 2006 Bridgette, Thank you for the words of encouragement! I hope continues to do well. If she was 13 degrees after the cast, what is she now? Sincerely, & Jake murphybridgette <mike-bridgette@...> wrote: --- Hi , I wanted to let you know that was,nt able to go into any tipe of Brace after her casting was done. It,a been since Nov.2005 and her back looks great to me we go back Oct.12th to see how things are.She was last seen by him in April and everyyhing was ok. then he said he would see her back in 6 months.But it will be 7 months when we go. If you would see anything Just get an earlier apt. When came out of her cast she was at a 13 degrees. Good luck and keep us posted. Bridgette, In infantile scoliosis treatment , Viveiros <jviv314@...> wrote: > > We returned from Erie late last night after our 3 month follow- up/brace check appointment for Jake. I'm happy and at same time terrified to report -- Jake's back is straight. Both curves now measure 0 degrees and the RVAD is 9. (Jake was out of brace for 1 week prior to x-ray due to hernia repair as you may recall.) That's the good part. The part I'm scared about is -- Dr. sent Jake home with NO brace. Stated he couldn't justify making a new brace for a spine with no measurements. What about the step-down or weaning period? Dr. said " He'll be fine. " We are to keep a watchful eye on his little spine now until our next x-ray which will be in 4 months' time. Dr. recommended having it done in pediatrician's office and sending a copy to him. If all is still well, fantastic. If there is any regression at all, we will head back to Erie. > > Scared silly, > & Jake > > > --------------------------------- > Get your email and more, right on the new .com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2006 Report Share Posted September 14, 2006 Trying to stay positive -- thanks! Doing happy dance, too & Jake " Deshea L. " <deshea@...> wrote: congratulations, jake and family! jennifer, i know that it is a bit of a worry, but really, you should be celebrating! it's time to think positively. of course, photos of his back like bert recommended can't hurt and will potentially reassure you over time, but " growth as a corrective force " by serial plaster casting seemed to have worked in jake's case. doing a happy dance for you guys! love, deshea On Sep 10, 2006, at 4:00 PM, Viveiros wrote: > We returned from Erie late last night after our 3 month follow-up/ > brace check appointment for Jake. I'm happy and at same time > terrified to report -- Jake's back is straight. Both curves now > measure 0 degrees and the RVAD is 9. (Jake was out of brace for 1 > week prior to x-ray due to hernia repair as you may recall.) That's > the good part. The part I'm scared about is -- Dr. sent Jake home > with NO brace. Stated he couldn't justify making a new brace for a > spine with no measurements. What about the step-down or weaning > period? Dr. said " He'll be fine. " We are to keep a watchful eye on > his little spine now until our next x-ray which will be in 4 > months' time. Dr. recommended having it done in pediatrician's > office and sending a copy to him. If all is still well, fantastic. > If there is any regression at all, we will head back to Erie. > > Scared silly, > & Jake > > > --------------------------------- > Get your email and more, right on the new .com > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2006 Report Share Posted September 15, 2006 --- Hi , We won't know what her curve is until Oct.12 She was 13 degrees in Nov. 2005 and still was 13 degrees in April 2006.So were keeping our fingers crossed it is still the same. Bridgette In infantile scoliosis treatment , Viveiros <jviv314@...> wrote: > > Bridgette, > > Thank you for the words of encouragement! I hope continues to do well. If she was 13 degrees after the cast, what is she now? > > Sincerely, > & Jake > > murphybridgette <mike-bridgette@...> wrote: > --- Hi , > I wanted to let you know that was,nt able to go into any tipe > of Brace after her casting was done. It,a been since Nov.2005 and > her back looks great to me we go back Oct.12th to see how things > are.She was last seen by him in April and everyyhing was ok. then he > said he would see her back in 6 months.But it will be 7 months when > we go. If you would see anything Just get an earlier apt. When > came out of her cast she was at a 13 degrees. Good luck and > keep us posted. > > Bridgette, > > In infantile scoliosis treatment , Viveiros > <jviv314@> wrote: > > > > We returned from Erie late last night after our 3 month follow- > up/brace check appointment for Jake. I'm happy and at same time > terrified to report -- Jake's back is straight. Both curves now > measure 0 degrees and the RVAD is 9. (Jake was out of brace for 1 > week prior to x-ray due to hernia repair as you may recall.) That's > the good part. The part I'm scared about is -- Dr. sent Jake home > with NO brace. Stated he couldn't justify making a new brace for a > spine with no measurements. What about the step-down or weaning > period? Dr. said " He'll be fine. " We are to keep a watchful eye on > his little spine now until our next x-ray which will be in 4 months' > time. Dr. recommended having it done in pediatrician's office and > sending a copy to him. If all is still well, fantastic. If there > is any regression at all, we will head back to Erie. > > > > Scared silly, > > & Jake > > > > > > --------------------------------- > > Get your email and more, right on the new .com > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 Hello to all. I've been inactive on the group as of late due to holidays and everyday craziness, but I still think good thoughts and pray for all our little ones everyday. After this message I'll go back read through the almost 250 posts I've missed. Jake had an x-ray taken last week to see where he's at after 4 months out of the brace. We took the x-ray locally and sent a copy to Dr. Khoury to examine. To my experienced but untrained eye his back looked just as good as it did 4 months ago, but we waited anxiously for Dr. K to give us a call with his thoughts. He was ecstatic! He said Jake's back looked great, he hasn't regressed at all and he was very excited with the results thus far. He mentioned something about a study they are conducting but I was overwhelmed with our news and didn't ask any questions on that front. As far as numbers go, Dr was so enthusiastic over x-ray and I was so grateful that I didn't ask for measurements. (In September 2006 his numbers were 0o and 2o). Our next step -- continue to keep an eye on his spine and go for another x-ray in 8 months. We are so thankful to having found , ISOP, and this group. I hate to think where we might be today without you all. Thank you all so much. Sincerely, & Jake Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 , Great success story! Love to hear the updates, especially since Cole is just a few months behind Jake in treatment, it gives us assureance for the next steps. Take care. jviv314 <jviv314@...> wrote: Hello to all. I've been inactive on the group as of late due to holidays and everyday craziness, but I still think good thoughts and pray for all our little ones everyday. After this message I'll go back read through the almost 250 posts I've missed. Jake had an x-ray taken last week to see where he's at after 4 months out of the brace. We took the x-ray locally and sent a copy to Dr. Khoury to examine. To my experienced but untrained eye his back looked just as good as it did 4 months ago, but we waited anxiously for Dr. K to give us a call with his thoughts. He was ecstatic! He said Jake's back looked great, he hasn't regressed at all and he was very excited with the results thus far. He mentioned something about a study they are conducting but I was overwhelmed with our news and didn't ask any questions on that front. As far as numbers go, Dr was so enthusiastic over x-ray and I was so grateful that I didn't ask for measurements. (In September 2006 his numbers were 0o and 2o). Our next step -- continue to keep an eye on his spine and go for another x-ray in 8 months. We are so thankful to having found , ISOP, and this group. I hate to think where we might be today without you all. Thank you all so much. Sincerely, & Jake --------------------------------- We won't tell. Get more on shows you hate to love (and love to hate): TV's Guilty Pleasures list. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2007 Report Share Posted January 19, 2007 Jenifer, Great success story! Love to hear the updates, especially since Cole is just a few months behind Jake in treatment, it gives us assureance for the next steps. Take care. jviv314 <jviv314@...> wrote: Hello to all. I've been inactive on the group as of late due to holidays and everyday craziness, but I still think good thoughts and pray for all our little ones everyday. After this message I'll go back read through the almost 250 posts I've missed. Jake had an x-ray taken last week to see where he's at after 4 months out of the brace. We took the x-ray locally and sent a copy to Dr. Khoury to examine. To my experienced but untrained eye his back looked just as good as it did 4 months ago, but we waited anxiously for Dr. K to give us a call with his thoughts. He was ecstatic! He said Jake's back looked great, he hasn't regressed at all and he was very excited with the results thus far. He mentioned something about a study they are conducting but I was overwhelmed with our news and didn't ask any questions on that front. As far as numbers go, Dr was so enthusiastic over x-ray and I was so grateful that I didn't ask for measurements. (In September 2006 his numbers were 0o and 2o). Our next step -- continue to keep an eye on his spine and go for another x-ray in 8 months. We are so thankful to having found , ISOP, and this group. I hate to think where we might be today without you all. Thank you all so much. Sincerely, & Jake --------------------------------- Be a PS3 game guru. Get your game face on with the latest PS3 news and previews at Games. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.