Guest guest Posted July 13, 2005 Report Share Posted July 13, 2005 Hi Deborah, and welcome! Please tell your son hello from me and let him know that although he feels 'alone' among his family and friends, he is definitely not alone. I am from a family with CMT history, (father & older sister), and learned I had CMT at a very young age. I remember kids at the town pond asking what was wrong with my feet; being picked last for teams in gym class; and wanting so much to 'be normal', to fit in. Even with family members with CMT, I still felt alone, outcast, different from my peers, and angry. Very angry. With God for making me this way. With our culture for emphasizing the physical over the mental and spiritual. With my body for betraying me. At 40, I am still dealing with some of this anger, although not as frequently as I used to. It's amazing what 10 years of therapy can do! One thing I have realized is that over the years I developed a strong attitude of " I can't " . This may have saved me from experiencing temporary embarassment, but it has also kept me from trying many new things - made me miss out. It still does, as it is a hard habit to break! As a young adult, your son is going to have to travel his own road and make his own decisions. But if he can glean anything from our experiences, he will be better for it. Be patient, focus on the positive of what he CAN do, and try not to take it personally if he won't confide in you. Quote Link to comment Share on other sites More sharing options...
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