Guest guest Posted January 5, 1980 Report Share Posted January 5, 1980 Hi Kendra Been to any Mom and Tots fairs lately? This is Dave writing. You can be assured that the band does not slip. It is molded perfectly for the baby's head and can not be pulled off either. It also doesn't put a lot of pressure on the baby's head because the foam is shaved away as her head grows. I really don't know much about helmets either. I just like the fact that the band is the same whether you get it in Calgary or Florida. There is obviously lots of quality control. ----- Original Message ----- From: & Kendra Plagiocephalyonelist Sent: Monday, March 27, 2000 8:58 PM Subject: Re: full helmet From: & Kendra <kbgarv@...> Kay, I'm a little confused. We don't have our band yet, but I was under the impression that the babies heads were cast in order to get an EXACT fit, so that there would be no slippage and there by fixing the PROBLEM areas. I don't understand why so many of these helmets are able to slip around so much. How is it fixing the areas that need attention when it's sliding to areas that are fine??? Do the bands slip like this? I only hear about helmets slipping. I'm not trying to stir the pot, I'm just a little confused about this. Thanx, Kendra Sue W wrote: From: "Sue W" <sue.w.1@...> Hi To All: What a wonderful site! We're new to the site...our son is 6 months old. At two months we started repositioning as per our pediatrician. At four months our pediatrician decided to give one more month to see if his "flat head" would self correct. At five months we were referred to a pediatric neurosurgeon. We were then sent to an orthotic who made a helmet. Like Pat's daughter ('s grandmother), we were referred to Hasbro Children's Hospital in RI. Pat, I'm curious which neurosurgeon and othotic went to. We were referred to Dr. Duncan at Hasbro and Barry McCoy, Orthotic. We were told that the bands may cause the head to grow up (as opposed to rounding out). A full helmut was recommended for even at 5 months. His head is flat in the back and the orthotic said that looking from the top it should be more oval. I do not believe there is a close site to RI for the doc band anyway. (PS - What a great mom to help out your daughter with this!) has been in his helmet since Friday. It is definitely sliding forward too much, sometimes covering part of his eyes if he slides his head back. We have an appointment with the orthotic tomorrow morning to discuss. also managed to get the helmet completely off his head Friday night - I'm not sure how he managed it...it takes us two hands to remove! To all my questions are as follows: -How do we tell if the helmet is shaped appropriately? I am concerned after reading some of the comments regarding blisters. -Our helmet is fiberglass (I believe) with two layers of what looks like styrofoam. the helmet curves up around the ears so the ears are not covered. There is a slit up the back to the top center of the helmet, with a Velcro strap to tighten at the base of the neck. Also, we were given a chin strap to use at night. How can you tell when it is tight enough? ( fusses sometimes when I adjust it, but I can't tell if it hurts him or he just doesn't like the fussing with his head.) -I'm concerned that if the helmet continues to fall over his eyes, it might start adjusting his facial features, which appear fine (it's just the back of his head that is flat). -Does anyone know if a neurosurgeon vs. a plastic surgeon is the appropriate specialist to see regarding this? -Is there anything else we should discuss with the doctor or orthotic as we are at the beginning of this process? Thanks for any help you can provide! ----- Original Message ----- From: Pat <nanapat@...> <Plagiocephalyonelist> Sent: Saturday, March 25, 2000 1:23 AM Subject: Re: full helmet > From: Pat <nanapat@...> > > Dana and Everyone, > I am 's grandmother, who is monitoring this site for my daughter, > and forwarding pertinent info to her. is 10 months, and just > three weeks ago, the pediatrician decided he should be seen by a > neurologist. Previously he had mentioned "cosmetic surgery" at some > future date. > The neurologist was disappointed that had not been referred "by 4 > months" and he recommended a full helmet because of his age. He goes on > Thursday for the helmet. He was fitted two weeks ago, at Hasbro > Children's Hospital in Providence, RI after seeing the neurologist > there. My daughter asked about the DOC band (I love this > internet--didn't even know about it until I began searching and > reading). The neurologist said it was too late for the band. He > thought would wear the full helmet for 6 months. > I have forwarded all the helpful suggestions and information to my > daughter and her husband, and they are thankful. Ironically, their > almost 5 year old has a speech delay (due to early ear infections, > tongue tied problem, and hearing difficulties), so I am interested in > that problem, too. Thanks to all of you! Pat > > > ------------------------------------------------------------------------ > GET A NEXTCARD VISA, in 30 seconds! Get rates > as low as 0.0% Intro APR and no hidden fees. > Apply NOW! > 1/975/3/_/689409/_/953953877/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2000 Report Share Posted March 24, 2000 What a great Mom & Grandma you are! My Mom was so consumed in how it hurt HER that her grandbaby was going thru this...it was like " hello! help ME get thru this! " BRAVO! Kimry (CA) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2000 Report Share Posted March 25, 2000 Dana and Everyone, I am 's grandmother, who is monitoring this site for my daughter, and forwarding pertinent info to her. is 10 months, and just three weeks ago, the pediatrician decided he should be seen by a neurologist. Previously he had mentioned " cosmetic surgery " at some future date. The neurologist was disappointed that had not been referred " by 4 months " and he recommended a full helmet because of his age. He goes on Thursday for the helmet. He was fitted two weeks ago, at Hasbro Children's Hospital in Providence, RI after seeing the neurologist there. My daughter asked about the DOC band (I love this internet--didn't even know about it until I began searching and reading). The neurologist said it was too late for the band. He thought would wear the full helmet for 6 months. I have forwarded all the helpful suggestions and information to my daughter and her husband, and they are thankful. Ironically, their almost 5 year old has a speech delay (due to early ear infections, tongue tied problem, and hearing difficulties), so I am interested in that problem, too. Thanks to all of you! Pat Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2000 Report Share Posted March 28, 2000 Hi Sue-- Our helmet looked a little different, I think, but was also loose for a while. My impression from reading messages from the group is that the DOC band is fitted more precisely at each visit than some of the helmets. In our case, we went for fittings every three weeks or so, but the helmet was on the big side until my son's head grew a little. We had a chin strap all the time, which prevented any removal. That would get grungy (to say the least) with drool (our guy was a big drooler) but I just covered it with cut up, knit headbands, which were the perfect width and avoided the need for me to do any sewing. We just removed the chin strap cover every day and washed it. We were referred to a plastic surgeon who is supposed to be very knowledgeable about these conditions. I am not sure whether a neurosurgeon would have been preferable. We may have just been lucky but our son's treatment was very successful. Eileen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2000 Report Share Posted March 28, 2000 Hi To All: What a wonderful site! We're new to the site...our son is 6 months old. At two months we started repositioning as per our pediatrician. At four months our pediatrician decided to give one more month to see if his " flat head " would self correct. At five months we were referred to a pediatric neurosurgeon. We were then sent to an orthotic who made a helmet. Like Pat's daughter ('s grandmother), we were referred to Hasbro Children's Hospital in RI. Pat, I'm curious which neurosurgeon and othotic went to. We were referred to Dr. Duncan at Hasbro and Barry McCoy, Orthotic. We were told that the bands may cause the head to grow up (as opposed to rounding out). A full helmut was recommended for even at 5 months. His head is flat in the back and the orthotic said that looking from the top it should be more oval. I do not believe there is a close site to RI for the doc band anyway. (PS - What a great mom to help out your daughter with this!) has been in his helmet since Friday. It is definitely sliding forward too much, sometimes covering part of his eyes if he slides his head back. We have an appointment with the orthotic tomorrow morning to discuss. also managed to get the helmet completely off his head Friday night - I'm not sure how he managed it...it takes us two hands to remove! To all my questions are as follows: -How do we tell if the helmet is shaped appropriately? I am concerned after reading some of the comments regarding blisters. -Our helmet is fiberglass (I believe) with two layers of what looks like styrofoam. the helmet curves up around the ears so the ears are not covered. There is a slit up the back to the top center of the helmet, with a Velcro strap to tighten at the base of the neck. Also, we were given a chin strap to use at night. How can you tell when it is tight enough? ( fusses sometimes when I adjust it, but I can't tell if it hurts him or he just doesn't like the fussing with his head.) -I'm concerned that if the helmet continues to fall over his eyes, it might start adjusting his facial features, which appear fine (it's just the back of his head that is flat). -Does anyone know if a neurosurgeon vs. a plastic surgeon is the appropriate specialist to see regarding this? -Is there anything else we should discuss with the doctor or orthotic as we are at the beginning of this process? Thanks for any help you can provide! ----- Original Message ----- From: Pat <nanapat@...> <Plagiocephalyonelist> Sent: Saturday, March 25, 2000 1:23 AM Subject: Re: full helmet > From: Pat <nanapat@...> > > Dana and Everyone, > I am 's grandmother, who is monitoring this site for my daughter, > and forwarding pertinent info to her. is 10 months, and just > three weeks ago, the pediatrician decided he should be seen by a > neurologist. Previously he had mentioned " cosmetic surgery " at some > future date. > The neurologist was disappointed that had not been referred " by 4 > months " and he recommended a full helmet because of his age. He goes on > Thursday for the helmet. He was fitted two weeks ago, at Hasbro > Children's Hospital in Providence, RI after seeing the neurologist > there. My daughter asked about the DOC band (I love this > internet--didn't even know about it until I began searching and > reading). The neurologist said it was too late for the band. He > thought would wear the full helmet for 6 months. > I have forwarded all the helpful suggestions and information to my > daughter and her husband, and they are thankful. Ironically, their > almost 5 year old has a speech delay (due to early ear infections, > tongue tied problem, and hearing difficulties), so I am interested in > that problem, too. Thanks to all of you! Pat > > > ------------------------------------------------------------------------ > GET A NEXTCARD VISA, in 30 seconds! Get rates > as low as 0.0% Intro APR and no hidden fees. > Apply NOW! > 1/975/3/_/689409/_/953953877/ > ------------------------------------------------------------------------ > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2000 Report Share Posted March 28, 2000 Kay, I'm a little confused. We don't have our band yet, but I was under the impression that the babies heads were cast in order to get an EXACT fit, so that there would be no slippage and there by fixing the PROBLEM areas. I don't understand why so many of these helmets are able to slip around so much. How is it fixing the areas that need attention when it's sliding to areas that are fine??? Do the bands slip like this? I only hear about helmets slipping. I'm not trying to stir the pot, I'm just a little confused about this. Thanx, Kendra Sue W wrote: From: "Sue W" <sue.w.1@...> Hi To All: What a wonderful site! We're new to the site...our son is 6 months old. At two months we started repositioning as per our pediatrician. At four months our pediatrician decided to give one more month to see if his "flat head" would self correct. At five months we were referred to a pediatric neurosurgeon. We were then sent to an orthotic who made a helmet. Like Pat's daughter ('s grandmother), we were referred to Hasbro Children's Hospital in RI. Pat, I'm curious which neurosurgeon and othotic went to. We were referred to Dr. Duncan at Hasbro and Barry McCoy, Orthotic. We were told that the bands may cause the head to grow up (as opposed to rounding out). A full helmut was recommended for even at 5 months. His head is flat in the back and the orthotic said that looking from the top it should be more oval. I do not believe there is a close site to RI for the doc band anyway. (PS - What a great mom to help out your daughter with this!) has been in his helmet since Friday. It is definitely sliding forward too much, sometimes covering part of his eyes if he slides his head back. We have an appointment with the orthotic tomorrow morning to discuss. also managed to get the helmet completely off his head Friday night - I'm not sure how he managed it...it takes us two hands to remove! To all my questions are as follows: -How do we tell if the helmet is shaped appropriately? I am concerned after reading some of the comments regarding blisters. -Our helmet is fiberglass (I believe) with two layers of what looks like styrofoam. the helmet curves up around the ears so the ears are not covered. There is a slit up the back to the top center of the helmet, with a Velcro strap to tighten at the base of the neck. Also, we were given a chin strap to use at night. How can you tell when it is tight enough? ( fusses sometimes when I adjust it, but I can't tell if it hurts him or he just doesn't like the fussing with his head.) -I'm concerned that if the helmet continues to fall over his eyes, it might start adjusting his facial features, which appear fine (it's just the back of his head that is flat). -Does anyone know if a neurosurgeon vs. a plastic surgeon is the appropriate specialist to see regarding this? -Is there anything else we should discuss with the doctor or orthotic as we are at the beginning of this process? Thanks for any help you can provide! ----- Original Message ----- From: Pat <nanapat@...> <Plagiocephalyonelist> Sent: Saturday, March 25, 2000 1:23 AM Subject: Re: full helmet > From: Pat <nanapat@...> > > Dana and Everyone, > I am 's grandmother, who is monitoring this site for my daughter, > and forwarding pertinent info to her. is 10 months, and just > three weeks ago, the pediatrician decided he should be seen by a > neurologist. Previously he had mentioned "cosmetic surgery" at some > future date. > The neurologist was disappointed that had not been referred "by 4 > months" and he recommended a full helmet because of his age. He goes on > Thursday for the helmet. He was fitted two weeks ago, at Hasbro > Children's Hospital in Providence, RI after seeing the neurologist > there. My daughter asked about the DOC band (I love this > internet--didn't even know about it until I began searching and > reading). The neurologist said it was too late for the band. He > thought would wear the full helmet for 6 months. > I have forwarded all the helpful suggestions and information to my > daughter and her husband, and they are thankful. Ironically, their > almost 5 year old has a speech delay (due to early ear infections, > tongue tied problem, and hearing difficulties), so I am interested in > that problem, too. Thanks to all of you! Pat > > > ------------------------------------------------------------------------ > GET A NEXTCARD VISA, in 30 seconds! Get rates > as low as 0.0% Intro APR and no hidden fees. > Apply NOW! > 1/975/3/_/689409/_/953953877/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2000 Report Share Posted March 29, 2000 Hi Sue, goes Thursday for his helmet. My daughter is taking all your questions with her. She is seeing the same neurosurgeon and orthodist as you are, only she has yet to see Dr. Duncan. Her pediatrician sent her directly to Barry McCoy. After stumbling into this site, and after reading some of the letters here, my daughter immediately called the neurosurgeon, Dr. Duncan, who was recommended by a person who works in the OR with him. Naturally, she can't get an appt. for a month. We are as concerned as you. We will share our experiences. Hopefully in a short time, we can say, Hooray, it's all over, and our babies and grandbabies are in fine " shape " ! Nana Pat Sue W wrote: > From: " Sue W " <sue.w.1@...> > > Hi To All: > > What a wonderful site! > > We're new to the site...our son is 6 months old. At two months we > started repositioning as per our pediatrician. At four months our > pediatrician decided to give one more month to see if his " flat head " > would self correct. At five months we were referred to a pediatric > neurosurgeon. We were then sent to an orthotic who made a helmet. > > Like Pat's daughter ('s grandmother), we were referred to Hasbro > Children's Hospital in RI. Pat, I'm curious which neurosurgeon and othotic > went to. We were referred to Dr. Duncan at Hasbro and Barry McCoy, > Orthotic. We were told that the bands may cause the head to grow up (as > opposed to rounding out). A full helmut was recommended for even at 5 > months. His head is flat in the back and the orthotic said that looking > from the top it should be more oval. I do not believe there is a close site > to RI for the doc band anyway. (PS - What a great mom to help out your > daughter with this!) > > has been in his helmet since Friday. It is definitely sliding forward > too much, sometimes covering part of his eyes if he slides his head back. > We have an appointment with the orthotic tomorrow morning to discuss. > also managed to get the helmet completely off his head Friday night - I'm > not sure how he managed it...it takes us two hands to remove! > > To all my questions are as follows: > > -How do we tell if the helmet is shaped appropriately? I am concerned after > reading some of the comments regarding blisters. > -Our helmet is fiberglass (I believe) with two layers of what looks like > styrofoam. the helmet curves up around the ears so the ears are not > covered. There is a slit up the back to the top center of the helmet, with > a Velcro strap to tighten at the base of the neck. Also, we were given a > chin strap to use at night. How can you tell when it is tight enough? > ( fusses sometimes when I adjust it, but I can't tell if it hurts him > or he just doesn't like the fussing with his head.) > -I'm concerned that if the helmet continues to fall over his eyes, it might > start adjusting his facial features, which appear fine (it's just the back > of his head that is flat). > -Does anyone know if a neurosurgeon vs. a plastic surgeon is the appropriate > specialist to see regarding this? > -Is there anything else we should discuss with the doctor or orthotic as we > are at the beginning of this process? > > Thanks for any help you can provide! > > ----- Original Message ----- > From: Pat <nanapat@...> > <Plagiocephalyonelist> > Sent: Saturday, March 25, 2000 1:23 AM > Subject: Re: full helmet > > > From: Pat <nanapat@...> > > > > Dana and Everyone, > > I am 's grandmother, who is monitoring this site for my daughter, > > and forwarding pertinent info to her. is 10 months, and just > > three weeks ago, the pediatrician decided he should be seen by a > > neurologist. Previously he had mentioned " cosmetic surgery " at some > > future date. > > The neurologist was disappointed that had not been referred " by 4 > > months " and he recommended a full helmet because of his age. He goes on > > Thursday for the helmet. He was fitted two weeks ago, at Hasbro > > Children's Hospital in Providence, RI after seeing the neurologist > > there. My daughter asked about the DOC band (I love this > > internet--didn't even know about it until I began searching and > > reading). The neurologist said it was too late for the band. He > > thought would wear the full helmet for 6 months. > > I have forwarded all the helpful suggestions and information to my > > daughter and her husband, and they are thankful. Ironically, their > > almost 5 year old has a speech delay (due to early ear infections, > > tongue tied problem, and hearing difficulties), so I am interested in > > that problem, too. Thanks to all of you! Pat > > > > > > ------------------------------------------------------------------------ > > GET A NEXTCARD VISA, in 30 seconds! Get rates > > as low as 0.0% Intro APR and no hidden fees. > > Apply NOW! > > 1/975/3/_/689409/_/953953877/ > > ------------------------------------------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2000 Report Share Posted March 29, 2000 Pat: We went to see Barry again today as 's helmet was slipping and bonking him on the nose! He did cut down the front a bit. It was great that we got the helmet on Friday and Barry was able to see us today as we were having a problem. Barry does seem very educated...he was the one who mentioned the Doc Band which enables me to find this site. I have heard that Dr. Duncan is very good. He is chief of pediatric neurosurgery at Hasbro and RI Hospital (so he is the " top guy " ). I think he may also teach or have a connection to Brown University as his e-mail address on his business card refers to Brown. We are scheduled to see him again in two months. Good luck tomorrow. Barry made the plaster cast for 's helmet in minutes. It was not really messy and was fine with it. (I did have a pacifier on hand). We then went back in two weeks for the helmet. From some of the other e-mail I've read, the casting seems to be a quite an ordeal. It really was a very quick process for us. Let me know how you make out. Sue ----- Original Message ----- From: Pat <nanapat@...> <Plagiocephalyonelist> Sent: Tuesday, March 28, 2000 8:03 PM Subject: Re: full helmet > From: Pat <nanapat@...> > > Hi Sue, > goes Thursday for his helmet. My daughter is taking all your questions > with her. She is seeing the same neurosurgeon and orthodist as you are, only > she has yet to see Dr. Duncan. Her pediatrician sent her directly to Barry > McCoy. After stumbling into this site, and after reading some of the letters > here, my daughter immediately called the neurosurgeon, Dr. Duncan, who was > recommended by a person who works in the OR with him. Naturally, she can't get > an appt. for a month. > We are as concerned as you. We will share our experiences. Hopefully in a > short time, we can say, Hooray, it's all over, and our babies and grandbabies > are in fine " shape " ! > Nana Pat > > Sue W wrote: > > > From: " Sue W " <sue.w.1@...> > > > > Hi To All: > > > > What a wonderful site! > > > > We're new to the site...our son is 6 months old. At two months we > > started repositioning as per our pediatrician. At four months our > > pediatrician decided to give one more month to see if his " flat head " > > would self correct. At five months we were referred to a pediatric > > neurosurgeon. We were then sent to an orthotic who made a helmet. > > > > Like Pat's daughter ('s grandmother), we were referred to Hasbro > > Children's Hospital in RI. Pat, I'm curious which neurosurgeon and othotic > > went to. We were referred to Dr. Duncan at Hasbro and Barry McCoy, > > Orthotic. We were told that the bands may cause the head to grow up (as > > opposed to rounding out). A full helmut was recommended for even at 5 > > months. His head is flat in the back and the orthotic said that looking > > from the top it should be more oval. I do not believe there is a close site > > to RI for the doc band anyway. (PS - What a great mom to help out your > > daughter with this!) > > > > has been in his helmet since Friday. It is definitely sliding forward > > too much, sometimes covering part of his eyes if he slides his head back. > > We have an appointment with the orthotic tomorrow morning to discuss. > > also managed to get the helmet completely off his head Friday night - I'm > > not sure how he managed it...it takes us two hands to remove! > > > > To all my questions are as follows: > > > > -How do we tell if the helmet is shaped appropriately? I am concerned after > > reading some of the comments regarding blisters. > > -Our helmet is fiberglass (I believe) with two layers of what looks like > > styrofoam. the helmet curves up around the ears so the ears are not > > covered. There is a slit up the back to the top center of the helmet, with > > a Velcro strap to tighten at the base of the neck. Also, we were given a > > chin strap to use at night. How can you tell when it is tight enough? > > ( fusses sometimes when I adjust it, but I can't tell if it hurts him > > or he just doesn't like the fussing with his head.) > > -I'm concerned that if the helmet continues to fall over his eyes, it might > > start adjusting his facial features, which appear fine (it's just the back > > of his head that is flat). > > -Does anyone know if a neurosurgeon vs. a plastic surgeon is the appropriate > > specialist to see regarding this? > > -Is there anything else we should discuss with the doctor or orthotic as we > > are at the beginning of this process? > > > > Thanks for any help you can provide! > > > > ----- Original Message ----- > > From: Pat <nanapat@...> > > <Plagiocephalyonelist> > > Sent: Saturday, March 25, 2000 1:23 AM > > Subject: Re: full helmet > > > > > From: Pat <nanapat@...> > > > > > > Dana and Everyone, > > > I am 's grandmother, who is monitoring this site for my daughter, > > > and forwarding pertinent info to her. is 10 months, and just > > > three weeks ago, the pediatrician decided he should be seen by a > > > neurologist. Previously he had mentioned " cosmetic surgery " at some > > > future date. > > > The neurologist was disappointed that had not been referred " by 4 > > > months " and he recommended a full helmet because of his age. He goes on > > > Thursday for the helmet. He was fitted two weeks ago, at Hasbro > > > Children's Hospital in Providence, RI after seeing the neurologist > > > there. My daughter asked about the DOC band (I love this > > > internet--didn't even know about it until I began searching and > > > reading). The neurologist said it was too late for the band. He > > > thought would wear the full helmet for 6 months. > > > I have forwarded all the helpful suggestions and information to my > > > daughter and her husband, and they are thankful. Ironically, their > > > almost 5 year old has a speech delay (due to early ear infections, > > > tongue tied problem, and hearing difficulties), so I am interested in > > > that problem, too. Thanks to all of you! Pat > > > > > > > > > ------------------------------------------------------------------------ > > > GET A NEXTCARD VISA, in 30 seconds! Get rates > > > as low as 0.0% Intro APR and no hidden fees. > > > Apply NOW! > > > 1/975/3/_/689409/_/953953877/ > > > ------------------------------------------------------------------------ > > > > > > > > > > > > > > > > > > > ------------------------------------------------------------------------ > > PERFORM CPR ON YOUR APR! > > Get a NextCard Visa, in 30 seconds! Get rates as low as > > 0.0% Intro or 9.9% Fixed APR and no hidden fees. > > Apply NOW! > > 1/2121/3/_/689409/_/954212762/ > > ------------------------------------------------------------------------ > > > > > > > > > ------------------------------------------------------------------------ > Good friends, school spirit, hair-dos you'd like to forget. > Classmates.com has them all. And with 4.4 million alumni already > registered, there's a good chance you'll find your friends here: > 1/2623/3/_/689409/_/954283103/ > ------------------------------------------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
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