Re: s trip to Erie (Bad news)

[Guest guest]

Bridgette,

So sorry to hear bad news about 's curve. Hopefully this night brace

will take care of things. When was her final cast removed and how long did she

wear a brace afterwards? I diligently check Madison's back everynight when I am

bathing her for just this reason. Your instinct is always going to be right.

You know her better than anyone of course. I know it's hard, but try no to

worry. You are an outstanding mommy for and always looking out for her.

You are nipping it in the bud hopefully. Dr. S is going to take great care of

her. I will keep you guys in my thoughts, please keep us posted.

Jen

murphybridgette <mike-bridgette@...> wrote:

Hi everyone,

We got bad news was seen by 4 doctors today. She had her x-

ray done.Just as I thought she has progressed. She now is at 20

degrees. March 2006 she was 13 degrees. It's not much but thats 7

degrees more in just 7 months. They are going to try putting her in

a night brace. She was fitted for it today and they said it would

take a few weeks to get it and then Dr. wanted to see her a

month after she has been wearing it. Dr. is concern that she

may progress more as she has her growth splurts. He wants us to she

there genitices because she is still so flexable.She seen one in our

area when she was 18 months old. They said she should be seen again

when she was 4-5 years old. So were going to try theres but there is

a waiting list to see them so they will call when they can get her

in. the curve is higher up around the 4T 5T area. Before when she

was at 66 degrees it was around the 6T area. I had that gut feeling

that she was progressing and kept asking my husband,motherinlaw if

they thought she was. They both said she they did'nt think so.When

so was getting her x-rays I was thinking she might be at 20 degrees.

I told the Docs that and they laughed that I was right. well I will

keep you all updated.

Bridgette,s mom

---------------------------------

Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+

countries) for 2¢/min or less.

[Guest guest]

Hi Bridget,

I know how frustrated you must be feeling and am sorry for the bad news. It is

good that they caught it now and hopefully a brace will do the trick. I too

worry about the growth period times out of cast/brace. Of course Cole is still

in a cast, but I am always thinking of his future. What was brooks curve when

you stopped casting? What was brooks curve when you stopped bracing? How old was

she when she was done with bracing. I know you have shared this info. in the

past, but it's hard to keep up with everyone's info. Sorry. Good luck to

in her brace, and let us know what the geneticist says when you get in.

/Cole

murphybridgette <mike-bridgette@...> wrote:

Hi everyone,

We got bad news was seen by 4 doctors today. She had her x-

ray done.Just as I thought she has progressed. She now is at 20

degrees. March 2006 she was 13 degrees. It's not much but thats 7

degrees more in just 7 months. They are going to try putting her in

a night brace. She was fitted for it today and they said it would

take a few weeks to get it and then Dr. wanted to see her a

month after she has been wearing it. Dr. is concern that she

may progress more as she has her growth splurts. He wants us to she

there genitices because she is still so flexable.She seen one in our

area when she was 18 months old. They said she should be seen again

when she was 4-5 years old. So were going to try theres but there is

a waiting list to see them so they will call when they can get her

in. the curve is higher up around the 4T 5T area. Before when she

was at 66 degrees it was around the 6T area. I had that gut feeling

that she was progressing and kept asking my husband,motherinlaw if

they thought she was. They both said she they did'nt think so.When

so was getting her x-rays I was thinking she might be at 20 degrees.

I told the Docs that and they laughed that I was right. well I will

keep you all updated.

Bridgette,s mom

---------------------------------

Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+

countries) for 2¢/min or less.

[Guest guest]

Hi Bridgette

Bummer about s curve being on the move but it's great that it is only 20

and still flexible. The night brace should work well hopefully. does

still do physio? great that you picked upp on it so quickly. It just shows

that the mum usually knows. I hope you are doing well and that all your family

are healthy.

We have some lovely pphotos of Bridget and in the playground at

Shriners together last May. They had a great time.

Thinking of you both

Bert

murphybridgette <mike-bridgette@...> wrote:

Hi everyone,

We got bad news was seen by 4 doctors today. She had her x-

ray done.Just as I thought she has progressed. She now is at 20

degrees. March 2006 she was 13 degrees. It's not much but thats 7

degrees more in just 7 months. They are going to try putting her in

a night brace. She was fitted for it today and they said it would

take a few weeks to get it and then Dr. wanted to see her a

month after she has been wearing it. Dr. is concern that she

may progress more as she has her growth splurts. He wants us to she

there genitices because she is still so flexable.She seen one in our

area when she was 18 months old. They said she should be seen again

when she was 4-5 years old. So were going to try theres but there is

a waiting list to see them so they will call when they can get her

in. the curve is higher up around the 4T 5T area. Before when she

was at 66 degrees it was around the 6T area. I had that gut feeling

that she was progressing and kept asking my husband,motherinlaw if

they thought she was. They both said she they did'nt think so.When

so was getting her x-rays I was thinking she might be at 20 degrees.

I told the Docs that and they laughed that I was right. well I will

keep you all updated.

Bridgette,s mom

---------------------------------

How low will we go? Check out Messenger’s low PC-to-Phone call rates.

[Guest guest]

Hi Briggette

Sorry to hear that the news on is worrying - I knew too when

Siobhan's back had gotten worse - Mother's instinct!

We'll hope that the night-time brace works - If not, would it be

worth looking into the SpineCor?

Take care.

Jacki

>

> Hi everyone,

>

>

> We got bad news was seen by 4 doctors today. She had her x-

> ray done.Just as I thought she has progressed. She now is at 20

> degrees. March 2006 she was 13 degrees. It's not much but thats 7

> degrees more in just 7 months. They are going to try putting her

in

> a night brace. She was fitted for it today and they said it would

> take a few weeks to get it and then Dr. wanted to see her

a

> month after she has been wearing it. Dr. is concern that

she

> may progress more as she has her growth splurts. He wants us to

she

> there genitices because she is still so flexable.She seen one in

our

> area when she was 18 months old. They said she should be seen

again

> when she was 4-5 years old. So were going to try theres but there

is

> a waiting list to see them so they will call when they can get her

> in. the curve is higher up around the 4T 5T area. Before when she

> was at 66 degrees it was around the 6T area. I had that gut

feeling

> that she was progressing and kept asking my husband,motherinlaw if

> they thought she was. They both said she they did'nt think so.When

> so was getting her x-rays I was thinking she might be at 20

degrees.

> I told the Docs that and they laughed that I was right. well I

will

> keep you all updated.

>

>

> Bridgette,s mom

>

[Guest guest]

hi bridgette,

as everyone has already said, i too am sad to hear the brooke has

progressed. i guess mother's instinct is a force to be reckoned with

and you have proven that on multiple occasions!

a couple of questions:

by a night brace -- do you mean a charleston/bending brace to

overcorrect the curve or a tlso type that will only be worn at night?

is she a c curve now or still an s?

as for the geneticist, is dr. sanders thinking some type of

connective tissue disorder like ehlers danlos or marfans? i wonder

what type of testing they will recommend. did she ever have an

echo? when were you able to make the appt for?

i also have to ask as did jacki -- what about a spinecor? i know

that she was fitted for it last november, but it didn't work out.

i'm not sure why. anyway, i don't want to pressure you or anything,

but just want to put that in the back of your mind if dr. sanders

thinks that at least part-time bracing might be a longer term thing.

but on the positive side -- if brooke's curve can stay at or below

20o through the juvenile growth spurt, then she has a good chance of

avoiding any type of surgery once she hits puberty. i forget which

paper that is, but i can get it if you are interested.

my thoughts are with you, bridgette. if you ever need to talk,

please e-mail or call.

my best,

deshea

On Oct 13, 2006, at 2:40 AM, murphybridgette wrote:

> Hi everyone,

>

> We got bad news was seen by 4 doctors today. She had her x-

> ray done.Just as I thought she has progressed. She now is at 20

> degrees. March 2006 she was 13 degrees. It's not much but thats 7

> degrees more in just 7 months. They are going to try putting her in

> a night brace. She was fitted for it today and they said it would

> take a few weeks to get it and then Dr. wanted to see her a

> month after she has been wearing it. Dr. is concern that she

> may progress more as she has her growth splurts. He wants us to she

> there genitices because she is still so flexable.She seen one in our

> area when she was 18 months old. They said she should be seen again

> when she was 4-5 years old. So were going to try theres but there is

> a waiting list to see them so they will call when they can get her

> in. the curve is higher up around the 4T 5T area. Before when she

> was at 66 degrees it was around the 6T area. I had that gut feeling

> that she was progressing and kept asking my husband,motherinlaw if

> they thought she was. They both said she they did'nt think so.When

> so was getting her x-rays I was thinking she might be at 20 degrees.

> I told the Docs that and they laughed that I was right. well I will

> keep you all updated.

>

> Bridgette,s mom

>

>

>

[Guest guest]

Bridgette,

Hang in there, hon. She is still very low, so I am sure Dr. (being the

brilliant chap that he is) will come up with an effective plan. Lets try and

chat today, or tomorrow.

Call me, or I'll call you.

love,

hrh

Re: s trip to Erie (Bad news)

hi bridgette,

as everyone has already said, i too am sad to hear the brooke has

progressed. i guess mother's instinct is a force to be reckoned with

and you have proven that on multiple occasions!

a couple of questions:

by a night brace -- do you mean a charleston/bending brace to

overcorrect the curve or a tlso type that will only be worn at night?

is she a c curve now or still an s?

as for the geneticist, is dr. sanders thinking some type of

connective tissue disorder like ehlers danlos or marfans? i wonder

what type of testing they will recommend. did she ever have an

echo? when were you able to make the appt for?

i also have to ask as did jacki -- what about a spinecor? i know

that she was fitted for it last november, but it didn't work out.

i'm not sure why. anyway, i don't want to pressure you or anything,

but just want to put that in the back of your mind if dr. sanders

thinks that at least part-time bracing might be a longer term thing.

but on the positive side -- if brooke's curve can stay at or below

20o through the juvenile growth spurt, then she has a good chance of

avoiding any type of surgery once she hits puberty. i forget which

paper that is, but i can get it if you are interested.

my thoughts are with you, bridgette. if you ever need to talk,

please e-mail or call.

my best,

deshea

On Oct 13, 2006, at 2:40 AM, murphybridgette wrote:

> Hi everyone,

>

> We got bad news was seen by 4 doctors today. She had her x-

> ray done.Just as I thought she has progressed. She now is at 20

> degrees. March 2006 she was 13 degrees. It's not much but thats 7

> degrees more in just 7 months. They are going to try putting her in

> a night brace. She was fitted for it today and they said it would

> take a few weeks to get it and then Dr. wanted to see her a

> month after she has been wearing it. Dr. is concern that she

> may progress more as she has her growth splurts. He wants us to she

> there genitices because she is still so flexable.She seen one in our

> area when she was 18 months old. They said she should be seen again

> when she was 4-5 years old. So were going to try theres but there is

> a waiting list to see them so they will call when they can get her

> in. the curve is higher up around the 4T 5T area. Before when she

> was at 66 degrees it was around the 6T area. I had that gut feeling

> that she was progressing and kept asking my husband,motherinlaw if

> they thought she was. They both said she they did'nt think so.When

> so was getting her x-rays I was thinking she might be at 20 degrees.

> I told the Docs that and they laughed that I was right. well I will

> keep you all updated.

>

> Bridgette,s mom

>

>

>

[Guest guest]

-Hi Deshea,

I believe it is a charleston Brace they said that it would over

correct it. The spinecor did'nt work for her because it made her

curve worse.The geneticist they want her to see has a waiting list.

so not sure when we will get in.they asked if she ever had any skin

taken and tested I said no just blood work and exam. When we seen

the other geneticist when was 18 months old they were

thinking she might have ehlers danlos thats why they wanted to she

her back when she was 4-5 years old to see if she was still

flexiable. She also had an echo done when she was 18 months old at

that time she had an heart mermmer and the lady that was doing the

echo that she seen somthing but then could see it anymore. They also

wanted to see her back when she got older.I had told myself it

had prgoressed I was going to make another apt. for them both

I still going to try to get her into our geneticist also.

thanks everyone for thinking of .

Bridgette

- In infantile scoliosis treatment , " Deshea L. "

<deshea@...> wrote:

>

> hi bridgette,

>

> as everyone has already said, i too am sad to hear the brooke has

> progressed. i guess mother's instinct is a force to be reckoned

with

> and you have proven that on multiple occasions!

>

> a couple of questions:

>

> by a night brace -- do you mean a charleston/bending brace to

> overcorrect the curve or a tlso type that will only be worn at

night?

>

> is she a c curve now or still an s?

>

> as for the geneticist, is dr. sanders thinking some type of

> connective tissue disorder like ehlers danlos or marfans? i

wonder

> what type of testing they will recommend. did she ever have an

> echo? when were you able to make the appt for?

>

> i also have to ask as did jacki -- what about a spinecor? i know

> that she was fitted for it last november, but it didn't work

out.

> i'm not sure why. anyway, i don't want to pressure you or

anything,

> but just want to put that in the back of your mind if dr. sanders

> thinks that at least part-time bracing might be a longer term

thing.

>

> but on the positive side -- if brooke's curve can stay at or

below

> 20o through the juvenile growth spurt, then she has a good chance

of

> avoiding any type of surgery once she hits puberty. i forget

which

> paper that is, but i can get it if you are interested.

>

> my thoughts are with you, bridgette. if you ever need to talk,

> please e-mail or call.

>

> my best,

> deshea

>

> On Oct 13, 2006, at 2:40 AM, murphybridgette wrote:

>

> > Hi everyone,

> >

> > We got bad news was seen by 4 doctors today. She had her

x-

> > ray done.Just as I thought she has progressed. She now is at 20

> > degrees. March 2006 she was 13 degrees. It's not much but thats 7

> > degrees more in just 7 months. They are going to try putting her

in

> > a night brace. She was fitted for it today and they said it would

> > take a few weeks to get it and then Dr. wanted to see

her a

> > month after she has been wearing it. Dr. is concern that

she

> > may progress more as she has her growth splurts. He wants us to

she

> > there genitices because she is still so flexable.She seen one in

our

> > area when she was 18 months old. They said she should be seen

again

> > when she was 4-5 years old. So were going to try theres but

there is

> > a waiting list to see them so they will call when they can get

her

> > in. the curve is higher up around the 4T 5T area. Before when she

> > was at 66 degrees it was around the 6T area. I had that gut

feeling

> > that she was progressing and kept asking my husband,motherinlaw

if

> > they thought she was. They both said she they did'nt think

so.When

> > so was getting her x-rays I was thinking she might be at 20

degrees.

> > I told the Docs that and they laughed that I was right. well I

will

> > keep you all updated.

> >

> > Bridgette,s mom

> >

> >

> >

>

>

>

>

[Guest guest]

---Hi ,

has been out of her cast since Nov.2005. She did not go into

any tpe of brace after her cast came off. They tryed to use the

spinecor but it made her have more of a curve.

I will keep everyone posted.

Thanks,

Bridgette

In infantile scoliosis treatment ,

<jenstewart73@...> wrote:

>

> Bridgette,

>

> So sorry to hear bad news about 's curve. Hopefully this

night brace will take care of things. When was her final cast

removed and how long did she wear a brace afterwards? I diligently

check Madison's back everynight when I am bathing her for just this

reason. Your instinct is always going to be right. You know her

better than anyone of course. I know it's hard, but try no to

worry. You are an outstanding mommy for and always looking

out for her. You are nipping it in the bud hopefully. Dr. S is

going to take great care of her. I will keep you guys in my

thoughts, please keep us posted.

>

> Jen

>

> murphybridgette <mike-bridgette@...> wrote:

> Hi everyone,

>

> We got bad news was seen by 4 doctors today. She had her x-

> ray done.Just as I thought she has progressed. She now is at 20

> degrees. March 2006 she was 13 degrees. It's not much but thats 7

> degrees more in just 7 months. They are going to try putting her

in

> a night brace. She was fitted for it today and they said it would

> take a few weeks to get it and then Dr. wanted to see her

a

> month after she has been wearing it. Dr. is concern that

she

> may progress more as she has her growth splurts. He wants us to

she

> there genitices because she is still so flexable.She seen one in

our

> area when she was 18 months old. They said she should be seen

again

> when she was 4-5 years old. So were going to try theres but there

is

> a waiting list to see them so they will call when they can get her

> in. the curve is higher up around the 4T 5T area. Before when she

> was at 66 degrees it was around the 6T area. I had that gut

feeling

> that she was progressing and kept asking my husband,motherinlaw if

> they thought she was. They both said she they did'nt think so.When

> so was getting her x-rays I was thinking she might be at 20

degrees.

> I told the Docs that and they laughed that I was right. well I

will

> keep you all updated.

>

> Bridgette,s mom

>

>

>

>

>

>

> ---------------------------------

> Messenger with Voice. Make PC-to-Phone Calls to the US (and

30+ countries) for 2¢/min or less.

>

>

[Guest guest]

--Hi everyone we got a letter saying that s apt. for the to

see the Genetics for June 26 2007 I'll say thats is a waiting list.I

going to see if we can see our other Genetics that we seen before if

it's no such a wait. Then I can see what they both say.

Hope everyone is doing well,

Bridgette,

- In infantile scoliosis treatment , " murphybridgette " <mike-

bridgette@...> wrote:

>

> ---Hi ,

> has been out of her cast since Nov.2005. She did not go

into

> any tpe of brace after her cast came off. They tryed to use the

> spinecor but it made her have more of a curve.

> I will keep everyone posted.

>

> Thanks,

> Bridgette

>

> In infantile scoliosis treatment ,

> <jenstewart73@> wrote:

> >

> > Bridgette,

> >

> > So sorry to hear bad news about 's curve. Hopefully

this

> night brace will take care of things. When was her final cast

> removed and how long did she wear a brace afterwards? I

diligently

> check Madison's back everynight when I am bathing her for just

this

> reason. Your instinct is always going to be right. You know her

> better than anyone of course. I know it's hard, but try no to

> worry. You are an outstanding mommy for and always looking

> out for her. You are nipping it in the bud hopefully. Dr. S is

> going to take great care of her. I will keep you guys in my

> thoughts, please keep us posted.

> >

> > Jen

> >

> > murphybridgette <mike-bridgette@> wrote:

> > Hi everyone,

> >

> > We got bad news was seen by 4 doctors today. She had her

x-

> > ray done.Just as I thought she has progressed. She now is at 20

> > degrees. March 2006 she was 13 degrees. It's not much but thats

7

> > degrees more in just 7 months. They are going to try putting her

> in

> > a night brace. She was fitted for it today and they said it

would

> > take a few weeks to get it and then Dr. wanted to see

her

> a

> > month after she has been wearing it. Dr. is concern that

> she

> > may progress more as she has her growth splurts. He wants us to

> she

> > there genitices because she is still so flexable.She seen one in

> our

> > area when she was 18 months old. They said she should be seen

> again

> > when she was 4-5 years old. So were going to try theres but

there

> is

> > a waiting list to see them so they will call when they can get

her

> > in. the curve is higher up around the 4T 5T area. Before when

she

> > was at 66 degrees it was around the 6T area. I had that gut

> feeling

> > that she was progressing and kept asking my husband,motherinlaw

if

> > they thought she was. They both said she they did'nt think

so.When

> > so was getting her x-rays I was thinking she might be at 20

> degrees.

> > I told the Docs that and they laughed that I was right. well I

> will

> > keep you all updated.

> >

> > Bridgette,s mom

> >

> >

> >

> >

> >

> >

> > ---------------------------------

> > Messenger with Voice. Make PC-to-Phone Calls to the US

(and

> 30+ countries) for 2¢/min or less.

> >

> >

[Guest guest]

--- Hi Deshea,

I'm going to try to get her in to the one we went to before when

was about 18 months old. I hope the wait for this one won'nt

be long.I'll still take to erie in June to see what they have to say

also.

Bridgette

In infantile scoliosis treatment , " Deshea L. "

<deshea@...> wrote:

>

> bridgette,

>

> oh my god, that is completely ridiculous! i can't believe that at

all. is this the only place that you can go to? does dr. sanders

know of any other place you can go? i know that is somewhat

dependent on health insurance, but yikes!

>

> deshea

>

> ---- Original message ----

> >Date: Thu, 19 Oct 2006 20:01:59 -0000

> >From: " murphybridgette " <mike-bridgette@...>

> >Subject: Re: s trip to Erie (Bad

news)

> >infantile scoliosis treatment

> >

> > --Hi everyone we got a letter saying that s

> > apt. for the to

> > see the Genetics for June 26 2007 I'll say thats is

> > a waiting list.I

> > going to see if we can see our other Genetics that

> > we seen before if

> > it's no such a wait. Then I can see what they both

> > say.

> >

> > Hope everyone is doing well,

> > Bridgette,

> >

> > - In infantile scoliosis treatment ,

> > " murphybridgette " <mike-

> > bridgette@> wrote:

> > >

> > > ---Hi ,

> > > has been out of her cast since Nov.2005.

> > She did not go

> > into

> > > any tpe of brace after her cast came off. They

> > tryed to use the

> > > spinecor but it made her have more of a curve.

> > > I will keep everyone posted.

> > >

> > > Thanks,

> > > Bridgette

> > >

> > > In infantile scoliosis treatment ,

> >

> > > <jenstewart73@> wrote:

> > > >

> > > > Bridgette,

> > > >

> > > > So sorry to hear bad news about 's curve.

> > Hopefully

> > this

> > > night brace will take care of things. When was her

> > final cast

> > > removed and how long did she wear a brace

> > afterwards? I

> > diligently

> > > check Madison's back everynight when I am bathing

> > her for just

> > this

> > > reason. Your instinct is always going to be right.

> > You know her

> > > better than anyone of course. I know it's hard,

> > but try no to

> > > worry. You are an outstanding mommy for and

> > always looking

> > > out for her. You are nipping it in the bud

> > hopefully. Dr. S is

> > > going to take great care of her. I will keep you

> > guys in my

> > > thoughts, please keep us posted.

> > > >

> > > > Jen

> > > >

> > > > murphybridgette <mike-bridgette@> wrote:

> > > > Hi everyone,

> > > >

> > > > We got bad news was seen by 4 doctors

> > today. She had her

> > x-

> > > > ray done.Just as I thought she has progressed.

> > She now is at 20

> > > > degrees. March 2006 she was 13 degrees. It's not

> > much but thats

> > 7

> > > > degrees more in just 7 months. They are going to

> > try putting her

> > > in

> > > > a night brace. She was fitted for it today and

> > they said it

> > would

> > > > take a few weeks to get it and then Dr.

> > wanted to see

> > her

> > > a

> > > > month after she has been wearing it. Dr.

> > is concern that

> > > she

> > > > may progress more as she has her growth splurts.

> > He wants us to

> > > she

> > > > there genitices because she is still so

> > flexable.She seen one in

> > > our

> > > > area when she was 18 months old. They said she

> > should be seen

> > > again

> > > > when she was 4-5 years old. So were going to try

> > theres but

> > there

> > > is

> > > > a waiting list to see them so they will call

> > when they can get

> > her

> > > > in. the curve is higher up around the 4T 5T

> > area. Before when

> > she

> > > > was at 66 degrees it was around the 6T area. I

> > had that gut

> > > feeling

> > > > that she was progressing and kept asking my

> > husband,motherinlaw

> > if

> > > > they thought she was. They both said she they

> > did'nt think

> > so.When

> > > > so was getting her x-rays I was thinking she

> > might be at 20

> > > degrees.

> > > > I told the Docs that and they laughed that I was

> > right. well I

> > > will

> > > > keep you all updated.

> > > >

> > > > Bridgette,s mom

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > ---------------------------------

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> > > >

> > > > [Non-text portions of this message have been

> > removed]

> > > >

> > >

> >

> >

>