Guest guest Posted November 8, 2006 Report Share Posted November 8, 2006 Hi everyone, and I go to pick up her Brace Nov.16th will anyone be there at that time? Sorry I have'nt been on the group. My oldest daughter is haveing alot of health problems. She may need to have her kidney removed.The Doc said you only see what she has going on with her kidney once every 10 years. its her right kidney. She has 2 aneurysm,2- 3 AVMS and a stonoise they think this is why she has her blood presure problem since age 10 they think she was born with the stonoise.I have started doing reseach on all of this and I have found that AVM can be linked to connected tissue disorder. Im still reseaching but there were some links to Marfans.My oldest daughter has sight scoliosis. When i find out more I will let you all know how everthing is going. Bridgette (s mom) Quote Link to comment Share on other sites More sharing options...
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