Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 Hi Tasha, Sounds like things are going well with his casting. The numbers are great and also impoving. In regards to Shriner's, are you aware that the treatment is free? If I am telling you something you already know, just ignore me. They may bill your insurance company, but if they get rejected, Shriner's WILL cover ALL costs. They will also cover housing, and there are travel arrangements that can be made if you need assistance. Maybe it's at least worth a call to them. Take care, Tasha Fontenot <ryanswalk@...> wrote: Hi everyone..........just wanted to update you on 's visit last Thursday for his 2nd cast. He did have some improvement. Out of cast his measurements went from 35 degrees to 21. In cast 15 to 10. All xrays done standing except the 21 measurement. My husband and I were happy that there is improvement. His cast looks somewhat different this time, but for some weird reason he seems SO much happier. It is much tighter around his hips and diapering is harder this time around. And he has much more ability to move his arms UP. Also it is higher up around his neck. His doctor said if he starts getting bigger he may go to the cast that starts at his chest(not over the shoulders). ish Rite does not give the RVAD and Cobb measurements. I am still dealing with giving them all the info on Ms. Metha's techniques. With all the confusions of leaving at 5am in the morning I left everything at home. I wasn't exactly prepared so I want to get my ducks in a row and make sure I give them everything that is important. Plus I want to print out some of your stories. We go back in December for his 3rd cast and I am really trying to have a positive attitude with everything. I am not unhappy with what they are doing................I just hear everything about the Shriner's way. Our insurance will not cover the boys until the end of November(IF at that time they cover any of this) and traveling would be a hard thing to pull off. So I am trying to give ish Rite a chance. I just don't know what else to do. I know many of you view the " Children's Hospitals " as not being able to help infantile scoliosis and that stays in the back of mind. DAILY! Of course it scares me to think we are wasting 's precious time, but what else do I do. I do know I am happy he is in a cast at all. That much I can be thankful for. At this time I can only pray God will take care of . Which I know he will...........I guess I have to be patient to see what He has in His plan for our family. Any comments what be wonderful to hear. Thanks, Tasha/ PS-I got his doctor to take pictures in the OR. I have a really good one of the table, but you can see his penis........can't figure out how to blur it out. And his back looked BEAUTIFUL. I didn't get to see it, but have pictures. They do things SO different. --------------------------------- Stay in the know. Pulse on the new .com. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 Hi Tasha I only have a second, so haven't read and reread your email, (and probably should before I reply LOL)...... > Our insurance will not cover the boys until the end of November (IF at that time they cover any of this) and traveling would be a hard thing to pull off. < I just wanted to say that Shriner's will see kids with or without insurance, and will certainly look at 's cast, and give you a second (and IMHO) honest evaluation. Shriner's will help with travel too..... I know here in Canada our insurance is very diffrent, but just wanted to mention that to you. Good luck! Jacki > > Hi everyone..........just wanted to update you on 's visit last Thursday for his 2nd cast. > He did have some improvement. > Out of cast his measurements went from 35 degrees to 21. > In cast 15 to 10. All xrays done standing except the 21 measurement. > My husband and I were happy that there is improvement. > His cast looks somewhat different this time, but for some weird reason he seems SO much happier. It is much tighter around his hips and diapering is harder this time around. And he has much more ability to move his arms UP. Also it is higher up around his neck. His doctor said if he starts getting bigger he may go to the cast that starts at his chest(not over the shoulders). > ish Rite does not give the RVAD and Cobb measurements. > I am still dealing with giving them all the info on Ms. Metha's techniques. With all the confusions of leaving at 5am in the morning I left everything at home. I wasn't exactly prepared so I want to get my ducks in a row and make sure I give them everything that is important. Plus I want to print out some of your stories. > We go back in December for his 3rd cast and I am really trying to have a positive attitude with everything. I am not unhappy with what they are doing................I just hear everything about the Shriner's way. > Our insurance will not cover the boys until the end of November (IF at that time they cover any of this) and traveling would be a hard thing to pull off. > So I am trying to give ish Rite a chance. I just don't know what else to do. I know many of you view the " Children's Hospitals " as not being able to help infantile scoliosis and that stays in the back of mind. DAILY! Of course it scares me to think we are wasting 's precious time, but what else do I do. I do know I am happy he is in a cast at all. That much I can be thankful for. > At this time I can only pray God will take care of . Which I know he will...........I guess I have to be patient to see what He has in His plan for our family. > Any comments what be wonderful to hear. > Thanks, > Tasha/ > PS-I got his doctor to take pictures in the OR. I have a really good one of the table, but you can see his penis........can't figure out how to blur it out. And his back looked BEAUTIFUL. I didn't get to see it, but have pictures. They do things SO different. > > > > > --------------------------------- > Stay in the know. Pulse on the new .com. Check it out. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 Jacki and , We do not pay at ish Rite. If I remember correctly they are part of the Shriner Hospital network actually. I am not sure about insurance either..............I will battle with that come November/December. I did not know Shriner's helped with travel. Good to know. So much to think about. Thanks for your info ladies. Jacki, what does IMHO mean??????? Tasha/ jabostock <jabostock@...> wrote: Hi Tasha I only have a second, so haven't read and reread your email, (and probably should before I reply LOL)...... > Our insurance will not cover the boys until the end of November (IF at that time they cover any of this) and traveling would be a hard thing to pull off. < I just wanted to say that Shriner's will see kids with or without insurance, and will certainly look at 's cast, and give you a second (and IMHO) honest evaluation. Shriner's will help with travel too..... I know here in Canada our insurance is very diffrent, but just wanted to mention that to you. Good luck! Jacki > > Hi everyone..........just wanted to update you on 's visit last Thursday for his 2nd cast. > He did have some improvement. > Out of cast his measurements went from 35 degrees to 21. > In cast 15 to 10. All xrays done standing except the 21 measurement. > My husband and I were happy that there is improvement. > His cast looks somewhat different this time, but for some weird reason he seems SO much happier. It is much tighter around his hips and diapering is harder this time around. And he has much more ability to move his arms UP. Also it is higher up around his neck. His doctor said if he starts getting bigger he may go to the cast that starts at his chest(not over the shoulders). > ish Rite does not give the RVAD and Cobb measurements. > I am still dealing with giving them all the info on Ms. Metha's techniques. With all the confusions of leaving at 5am in the morning I left everything at home. I wasn't exactly prepared so I want to get my ducks in a row and make sure I give them everything that is important. Plus I want to print out some of your stories. > We go back in December for his 3rd cast and I am really trying to have a positive attitude with everything. I am not unhappy with what they are doing................I just hear everything about the Shriner's way. > Our insurance will not cover the boys until the end of November (IF at that time they cover any of this) and traveling would be a hard thing to pull off. > So I am trying to give ish Rite a chance. I just don't know what else to do. I know many of you view the " Children's Hospitals " as not being able to help infantile scoliosis and that stays in the back of mind. DAILY! Of course it scares me to think we are wasting 's precious time, but what else do I do. I do know I am happy he is in a cast at all. That much I can be thankful for. > At this time I can only pray God will take care of . Which I know he will...........I guess I have to be patient to see what He has in His plan for our family. > Any comments what be wonderful to hear. > Thanks, > Tasha/ > PS-I got his doctor to take pictures in the OR. I have a really good one of the table, but you can see his penis........can't figure out how to blur it out. And his back looked BEAUTIFUL. I didn't get to see it, but have pictures. They do things SO different. > > > > > --------------------------------- > Stay in the know. Pulse on the new .com. Check it out. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 tasha, i have to second michelle's e-mail and say that ryan's #s are definitely improving. that is a great sign that even though it may not be the shriners' casts, it is helping ryan significantly. this is so much better than a brace. i know it is difficult not to worry, but remember that at this point, ryan's heart and lungs are being given plenty of room to grow with such a low in cast curve. i say, great job! as for getting another opinion, if you are able to go to a shriners (especially slc or erie or philly), then that would be great. there are organizations to help get you there -- angelflight, for example. and then the care at the shriners is free. if you would like to post pictures, i would be happy to help. i do know how to cover or crop pictures. if you wanted to e-mail me the pictures to then post on the group (attachments are allowed due to past virus problems), i would be happy to do that for you. my e-mail is deshea@.... my best, deshea ---- Original message ---- >Date: Wed, 4 Oct 2006 10:01:01 -0700 (PDT) >From: Baird <michelle_r_baird@...> >Subject: Re: 's 2nd cast >infantile scoliosis treatment > > Hi Tasha, > Sounds like things are going well with his casting. > The numbers are great and also impoving. > In regards to Shriner's, are you aware that the > treatment is free? If I am telling you something you > already know, just ignore me. They may bill your > insurance company, but if they get rejected, > Shriner's WILL cover ALL costs. They will also cover > housing, and there are travel arrangements that can > be made if you need assistance. > Maybe it's at least worth a call to them. > Take care, > > Tasha Fontenot <ryanswalk@...> wrote: Hi > everyone..........just wanted to update you on > 's visit last Thursday for his 2nd cast. > He did have some improvement. > Out of cast his measurements went from 35 degrees to > 21. > In cast 15 to 10. All xrays done standing except the > 21 measurement. > My husband and I were happy that there is > improvement. > His cast looks somewhat different this time, but for > some weird reason he seems SO much happier. It is > much tighter around his hips and diapering is harder > this time around. And he has much more ability to > move his arms UP. Also it is higher up around his > neck. His doctor said if he starts getting bigger he > may go to the cast that starts at his chest(not over > the shoulders). > ish Rite does not give the RVAD and Cobb > measurements. > I am still dealing with giving them all the info on > Ms. Metha's techniques. With all the confusions of > leaving at 5am in the morning I left everything at > home. I wasn't exactly prepared so I want to get my > ducks in a row and make sure I give them everything > that is important. Plus I want to print out some of > your stories. > We go back in December for his 3rd cast and I am > really trying to have a positive attitude with > everything. I am not unhappy with what they are > doing................I just hear everything about > the Shriner's way. > Our insurance will not cover the boys until the end > of November(IF at that time they cover any of this) > and traveling would be a hard thing to pull off. > So I am trying to give ish Rite a chance. I > just don't know what else to do. I know many of you > view the " Children's Hospitals " as not being able to > help infantile scoliosis and that stays in the back > of mind. DAILY! Of course it scares me to think we > are wasting 's precious time, but what else do I > do. I do know I am happy he is in a cast at all. > That much I can be thankful for. > At this time I can only pray God will take care of > . Which I know he will...........I guess I have > to be patient to see what He has in His plan for our > family. > Any comments what be wonderful to hear. > Thanks, > Tasha/ > PS-I got his doctor to take pictures in the OR. I > have a really good one of the table, but you can see > his penis........can't figure out how to blur it > out. And his back looked BEAUTIFUL. I didn't get to > see it, but have pictures. They do things SO > different. > > --------------------------------- > Stay in the know. Pulse on the new .com. Check > it out. > > [Non-text portions of this message have been > removed] > > --------------------------------- > Get your own web address for just $1.99/1st yr. > We'll help. Small Business. > > [Non-text portions of this message have been > removed] > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 Hi Tasha Sounds like good improvement to me- you should be proud of yourself for getting him in the cast. Have you considered taking him to Shriners? I know that they treat children with and without insurance. Just my opinion- but I would think it would be well worth the hassle and travel expenses to have an ease of mind that is being treated the VERY best he can be while he is growing so fast. You don't want to lose that window of opportunity--- Just my opinion. Good luck. Hope he adjusts well with this cast. and Evan Tasha Fontenot <ryanswalk@...> wrote: Hi everyone..........just wanted to update you on 's visit last Thursday for his 2nd cast. He did have some improvement. Out of cast his measurements went from 35 degrees to 21. In cast 15 to 10. All xrays done standing except the 21 measurement. My husband and I were happy that there is improvement. His cast looks somewhat different this time, but for some weird reason he seems SO much happier. It is much tighter around his hips and diapering is harder this time around. And he has much more ability to move his arms UP. Also it is higher up around his neck. His doctor said if he starts getting bigger he may go to the cast that starts at his chest(not over the shoulders). ish Rite does not give the RVAD and Cobb measurements. I am still dealing with giving them all the info on Ms. Metha's techniques. With all the confusions of leaving at 5am in the morning I left everything at home. I wasn't exactly prepared so I want to get my ducks in a row and make sure I give them everything that is important. Plus I want to print out some of your stories. We go back in December for his 3rd cast and I am really trying to have a positive attitude with everything. I am not unhappy with what they are doing................I just hear everything about the Shriner's way. Our insurance will not cover the boys until the end of November(IF at that time they cover any of this) and traveling would be a hard thing to pull off. So I am trying to give ish Rite a chance. I just don't know what else to do. I know many of you view the " Children's Hospitals " as not being able to help infantile scoliosis and that stays in the back of mind. DAILY! Of course it scares me to think we are wasting 's precious time, but what else do I do. I do know I am happy he is in a cast at all. That much I can be thankful for. At this time I can only pray God will take care of . Which I know he will...........I guess I have to be patient to see what He has in His plan for our family. Any comments what be wonderful to hear. Thanks, Tasha/ PS-I got his doctor to take pictures in the OR. I have a really good one of the table, but you can see his penis........can't figure out how to blur it out. And his back looked BEAUTIFUL. I didn't get to see it, but have pictures. They do things SO different. --------------------------------- Stay in the know. Pulse on the new .com. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 i forgot that on the group website there is a link for organizations that can help you get to a shriners: infantile scoliosis treatment/links/Volunteer_Sites_0\ 01083252667/ deshea ---- Original message ---- >Date: Wed, 4 Oct 2006 14:07:44 -0400 (EDT) >From: " Deshea L. " <deshea@...> >Subject: Re: 's 2nd cast >infantile scoliosis treatment > > tasha, > > i have to second michelle's e-mail and say that > ryan's #s are definitely improving. that is a great > sign that even though it may not be the shriners' > casts, it is helping ryan significantly. this is so > much better than a brace. i know it is difficult not > to worry, but remember that at this point, ryan's > heart and lungs are being given plenty of room to > grow with such a low in cast curve. i say, great > job! > > as for getting another opinion, if you are able to > go to a shriners (especially slc or erie or philly), > then that would be great. there are organizations to > help get you there -- angelflight, for example. and > then the care at the shriners is free. > > if you would like to post pictures, i would be happy > to help. i do know how to cover or crop pictures. if > you wanted to e-mail me the pictures to then post on > the group (attachments are allowed due to past virus > problems), i would be happy to do that for you. my > e-mail is deshea@.... > > my best, > deshea > > ---- Original message ---- > >Date: Wed, 4 Oct 2006 10:01:01 -0700 (PDT) > >From: Baird <michelle_r_baird@...> > >Subject: Re: 's 2nd cast > >infantile scoliosis treatment > > > > Hi Tasha, > > Sounds like things are going well with his > casting. > > The numbers are great and also impoving. > > In regards to Shriner's, are you aware that the > > treatment is free? If I am telling you something > you > > already know, just ignore me. They may bill your > > insurance company, but if they get rejected, > > Shriner's WILL cover ALL costs. They will also > cover > > housing, and there are travel arrangements that > can > > be made if you need assistance. > > Maybe it's at least worth a call to them. > > Take care, > > > > Tasha Fontenot <ryanswalk@...> wrote: Hi > > everyone..........just wanted to update you on > > 's visit last Thursday for his 2nd cast. > > He did have some improvement. > > Out of cast his measurements went from 35 degrees > to > > 21. > > In cast 15 to 10. All xrays done standing except > the > > 21 measurement. > > My husband and I were happy that there is > > improvement. > > His cast looks somewhat different this time, but > for > > some weird reason he seems SO much happier. It is > > much tighter around his hips and diapering is > harder > > this time around. And he has much more ability to > > move his arms UP. Also it is higher up around his > > neck. His doctor said if he starts getting bigger > he > > may go to the cast that starts at his chest(not > over > > the shoulders). > > ish Rite does not give the RVAD and Cobb > > measurements. > > I am still dealing with giving them all the info > on > > Ms. Metha's techniques. With all the confusions of > > leaving at 5am in the morning I left everything at > > home. I wasn't exactly prepared so I want to get > my > > ducks in a row and make sure I give them > everything > > that is important. Plus I want to print out some > of > > your stories. > > We go back in December for his 3rd cast and I am > > really trying to have a positive attitude with > > everything. I am not unhappy with what they are > > doing................I just hear everything about > > the Shriner's way. > > Our insurance will not cover the boys until the > end > > of November(IF at that time they cover any of > this) > > and traveling would be a hard thing to pull off. > > So I am trying to give ish Rite a chance. I > > just don't know what else to do. I know many of > you > > view the " Children's Hospitals " as not being able > to > > help infantile scoliosis and that stays in the > back > > of mind. DAILY! Of course it scares me to think we > > are wasting 's precious time, but what else do > I > > do. I do know I am happy he is in a cast at all. > > That much I can be thankful for. > > At this time I can only pray God will take care of > > . Which I know he will...........I guess I > have > > to be patient to see what He has in His plan for > our > > family. > > Any comments what be wonderful to hear. > > Thanks, > > Tasha/ > > PS-I got his doctor to take pictures in the OR. I > > have a really good one of the table, but you can > see > > his penis........can't figure out how to blur it > > out. And his back looked BEAUTIFUL. I didn't get > to > > see it, but have pictures. They do things SO > > different. > > > > --------------------------------- > > Stay in the know. Pulse on the new .com. > Check > > it out. > > > > [Non-text portions of this message have been > > removed] > > > > --------------------------------- > > Get your own web address for just $1.99/1st yr. > > We'll help. Small Business. > > > > [Non-text portions of this message have been > > removed] > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 Tasha, I can tell you a little about our experience with travel from Houston to Erie for Lexi's appts. The others are right, Shriner's sees children with or without insurance. You are correct also..ish Rite is affiliated with the Mason's which of course are affiliated with the Shriner's!! ( I come from a long line of Mason's and Shriner's) When we travelled one of the times I actually contacted one of our local Shriner Temples and asked them if they could help with travel expenses. They actually paid for our flights to Erie that trip. We paid first and then they reimbursed within 2 weeks of me sending them the receipt. I can't speak for all Temples, but most of them will help in whatever way they can with expenses. This is what they do...their extravagant philanthropy is just amazing to me! If you guys do decide to travel to a Shriner's Hospital, I would call around to some of your local Temples. Are you in the Dallas area? I can't remember exactly where you live again. Good luck and it sounds like is definitely improving!! Tracey Re: Re: 's 2nd cast Jacki and , We do not pay at ish Rite. If I remember correctly they are part of the Shriner Hospital network actually. I am not sure about insurance either..............I will battle with that come November/December. I did not know Shriner's helped with travel. Good to know. So much to think about. Thanks for your info ladies. Jacki, what does IMHO mean??????? Tasha/ jabostock <jabostock@...> wrote: Hi Tasha I only have a second, so haven't read and reread your email, (and probably should before I reply LOL)...... > Our insurance will not cover the boys until the end of November (IF at that time they cover any of this) and traveling would be a hard thing to pull off. < I just wanted to say that Shriner's will see kids with or without insurance, and will certainly look at 's cast, and give you a second (and IMHO) honest evaluation. Shriner's will help with travel too..... I know here in Canada our insurance is very diffrent, but just wanted to mention that to you. Good luck! Jacki > > Hi everyone..........just wanted to update you on 's visit last Thursday for his 2nd cast. > He did have some improvement. > Out of cast his measurements went from 35 degrees to 21. > In cast 15 to 10. All xrays done standing except the 21 measurement. > My husband and I were happy that there is improvement. > His cast looks somewhat different this time, but for some weird reason he seems SO much happier. It is much tighter around his hips and diapering is harder this time around. And he has much more ability to move his arms UP. Also it is higher up around his neck. His doctor said if he starts getting bigger he may go to the cast that starts at his chest(not over the shoulders). > ish Rite does not give the RVAD and Cobb measurements. > I am still dealing with giving them all the info on Ms. Metha's techniques. With all the confusions of leaving at 5am in the morning I left everything at home. I wasn't exactly prepared so I want to get my ducks in a row and make sure I give them everything that is important. Plus I want to print out some of your stories. > We go back in December for his 3rd cast and I am really trying to have a positive attitude with everything. I am not unhappy with what they are doing................I just hear everything about the Shriner's way. > Our insurance will not cover the boys until the end of November (IF at that time they cover any of this) and traveling would be a hard thing to pull off. > So I am trying to give ish Rite a chance. I just don't know what else to do. I know many of you view the " Children's Hospitals " as not being able to help infantile scoliosis and that stays in the back of mind. DAILY! Of course it scares me to think we are wasting 's precious time, but what else do I do. I do know I am happy he is in a cast at all. That much I can be thankful for. > At this time I can only pray God will take care of . Which I know he will...........I guess I have to be patient to see what He has in His plan for our family. > Any comments what be wonderful to hear. > Thanks, > Tasha/ > PS-I got his doctor to take pictures in the OR. I have a really good one of the table, but you can see his penis........can't figure out how to blur it out. And his back looked BEAUTIFUL. I didn't get to see it, but have pictures. They do things SO different. > > > > > --------------------------------- > Stay in the know. Pulse on the new .com. Check it out. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 Internet 'Speak' for - " In my humble opinion " - Though I've read it can mean " In my Honest Opinion " too. HTH (Hope That Helps!) Jacki > > > > Hi everyone..........just wanted to update you on 's visit > last Thursday for his 2nd cast. > > He did have some improvement. > > Out of cast his measurements went from 35 degrees to 21. > > In cast 15 to 10. All xrays done standing except the 21 > measurement. > > My husband and I were happy that there is improvement. > > His cast looks somewhat different this time, but for some weird > reason he seems SO much happier. It is much tighter around his hips > and diapering is harder this time around. And he has much more > ability to move his arms UP. Also it is higher up around his neck. > His doctor said if he starts getting bigger he may go to the cast > that starts at his chest(not over the shoulders). > > ish Rite does not give the RVAD and Cobb measurements. > > I am still dealing with giving them all the info on Ms. Metha's > techniques. With all the confusions of leaving at 5am in the > morning I left everything at home. I wasn't exactly prepared so I > want to get my ducks in a row and make sure I give them everything > that is important. Plus I want to print out some of your stories. > > We go back in December for his 3rd cast and I am really trying > to have a positive attitude with everything. I am not unhappy with > what they are doing................I just hear everything about the > Shriner's way. > > Our insurance will not cover the boys until the end of November > (IF at that time they cover any of this) and traveling would be a > hard thing to pull off. > > So I am trying to give ish Rite a chance. I just don't > know what else to do. I know many of you view the " Children's > Hospitals " as not being able to help infantile scoliosis and that > stays in the back of mind. DAILY! Of course it scares me to think > we are wasting 's precious time, but what else do I do. I do > know I am happy he is in a cast at all. That much I can be thankful > for. > > At this time I can only pray God will take care of . Which > I know he will...........I guess I have to be patient to see what He > has in His plan for our family. > > Any comments what be wonderful to hear. > > Thanks, > > Tasha/ > > PS-I got his doctor to take pictures in the OR. I have a really > good one of the table, but you can see his penis........can't figure > out how to blur it out. And his back looked BEAUTIFUL. I didn't > get to see it, but have pictures. They do things SO different. > > > > > > > > > > --------------------------------- > > Stay in the know. Pulse on the new .com. Check it out. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2006 Report Share Posted October 4, 2006 Thanks -many times I have thought of going to Shriners. Like I said I am not unhappy with ish Rite and we are seeing improvement.............there is just a lot to think about and consider what we will do after his 3rd cast in December. He is doing wonderful in his new cast. SO MUCH better than the 1st time around. Tasha <basketsnboyds@...> wrote: Hi Tasha Sounds like good improvement to me- you should be proud of yourself for getting him in the cast. Have you considered taking him to Shriners? I know that they treat children with and without insurance. Just my opinion- but I would think it would be well worth the hassle and travel expenses to have an ease of mind that is being treated the VERY best he can be while he is growing so fast. You don't want to lose that window of opportunity--- Just my opinion. Good luck. Hope he adjusts well with this cast. and Evan Tasha Fontenot <ryanswalk@...> wrote: Hi everyone..........just wanted to update you on 's visit last Thursday for his 2nd cast. He did have some improvement. Out of cast his measurements went from 35 degrees to 21. In cast 15 to 10. All xrays done standing except the 21 measurement. My husband and I were happy that there is improvement. His cast looks somewhat different this time, but for some weird reason he seems SO much happier. It is much tighter around his hips and diapering is harder this time around. And he has much more ability to move his arms UP. Also it is higher up around his neck. His doctor said if he starts getting bigger he may go to the cast that starts at his chest(not over the shoulders). ish Rite does not give the RVAD and Cobb measurements. I am still dealing with giving them all the info on Ms. Metha's techniques. With all the confusions of leaving at 5am in the morning I left everything at home. I wasn't exactly prepared so I want to get my ducks in a row and make sure I give them everything that is important. Plus I want to print out some of your stories. We go back in December for his 3rd cast and I am really trying to have a positive attitude with everything. I am not unhappy with what they are doing................I just hear everything about the Shriner's way. Our insurance will not cover the boys until the end of November(IF at that time they cover any of this) and traveling would be a hard thing to pull off. So I am trying to give ish Rite a chance. I just don't know what else to do. I know many of you view the " Children's Hospitals " as not being able to help infantile scoliosis and that stays in the back of mind. DAILY! Of course it scares me to think we are wasting 's precious time, but what else do I do. I do know I am happy he is in a cast at all. That much I can be thankful for. At this time I can only pray God will take care of . Which I know he will...........I guess I have to be patient to see what He has in His plan for our family. Any comments what be wonderful to hear. Thanks, Tasha/ PS-I got his doctor to take pictures in the OR. I have a really good one of the table, but you can see his penis........can't figure out how to blur it out. And his back looked BEAUTIFUL. I didn't get to see it, but have pictures. They do things SO different. --------------------------------- Stay in the know. Pulse on the new .com. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 5, 2006 Report Share Posted October 5, 2006 Hi Tasha, Thanks for the update on . You have done a great job in getting your son treated early. Please let me know via private e-mail (heather@...) , if ISOP can help you provide early treatment info to your docs at ish Rite. I am very interested in seeing the O.R. photos, if that would be possible. Please let me know. Thanks, HRH 's 2nd cast Hi everyone..........just wanted to update you on 's visit last Thursday for his 2nd cast. He did have some improvement. Out of cast his measurements went from 35 degrees to 21. In cast 15 to 10. All xrays done standing except the 21 measurement. My husband and I were happy that there is improvement. His cast looks somewhat different this time, but for some weird reason he seems SO much happier. It is much tighter around his hips and diapering is harder this time around. And he has much more ability to move his arms UP. Also it is higher up around his neck. His doctor said if he starts getting bigger he may go to the cast that starts at his chest(not over the shoulders). ish Rite does not give the RVAD and Cobb measurements. I am still dealing with giving them all the info on Ms. Metha's techniques. With all the confusions of leaving at 5am in the morning I left everything at home. I wasn't exactly prepared so I want to get my ducks in a row and make sure I give them everything that is important. Plus I want to print out some of your stories. We go back in December for his 3rd cast and I am really trying to have a positive attitude with everything. I am not unhappy with what they are doing................I just hear everything about the Shriner's way. Our insurance will not cover the boys until the end of November(IF at that time they cover any of this) and traveling would be a hard thing to pull off. So I am trying to give ish Rite a chance. I just don't know what else to do. I know many of you view the " Children's Hospitals " as not being able to help infantile scoliosis and that stays in the back of mind. DAILY! Of course it scares me to think we are wasting 's precious time, but what else do I do. I do know I am happy he is in a cast at all. That much I can be thankful for. At this time I can only pray God will take care of . Which I know he will...........I guess I have to be patient to see what He has in His plan for our family. Any comments what be wonderful to hear. Thanks, Tasha/ PS-I got his doctor to take pictures in the OR. I have a really good one of the table, but you can see his penis........can't figure out how to blur it out. And his back looked BEAUTIFUL. I didn't get to see it, but have pictures. They do things SO different. --------------------------------- Stay in the know. Pulse on the new .com. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2006 Report Share Posted October 6, 2006 Hi everyone, I added a new album for with pictures of last week when he got his 2nd cast. A couple from the O.R..............I wanted to add his Xray pictures, but I am not sure you can make them out. I'll give it a try later. Tasha heather hyatt <heather@...> wrote: Hi Tasha, Thanks for the update on . You have done a great job in getting your son treated early. Please let me know via private e-mail (heather@...) , if ISOP can help you provide early treatment info to your docs at ish Rite. I am very interested in seeing the O.R. photos, if that would be possible. Please let me know. Thanks, HRH 's 2nd cast Hi everyone..........just wanted to update you on 's visit last Thursday for his 2nd cast. He did have some improvement. Out of cast his measurements went from 35 degrees to 21. In cast 15 to 10. All xrays done standing except the 21 measurement. My husband and I were happy that there is improvement. His cast looks somewhat different this time, but for some weird reason he seems SO much happier. It is much tighter around his hips and diapering is harder this time around. And he has much more ability to move his arms UP. Also it is higher up around his neck. His doctor said if he starts getting bigger he may go to the cast that starts at his chest(not over the shoulders). ish Rite does not give the RVAD and Cobb measurements. I am still dealing with giving them all the info on Ms. Metha's techniques. With all the confusions of leaving at 5am in the morning I left everything at home. I wasn't exactly prepared so I want to get my ducks in a row and make sure I give them everything that is important. Plus I want to print out some of your stories. We go back in December for his 3rd cast and I am really trying to have a positive attitude with everything. I am not unhappy with what they are doing................I just hear everything about the Shriner's way. Our insurance will not cover the boys until the end of November(IF at that time they cover any of this) and traveling would be a hard thing to pull off. So I am trying to give ish Rite a chance. I just don't know what else to do. I know many of you view the " Children's Hospitals " as not being able to help infantile scoliosis and that stays in the back of mind. DAILY! Of course it scares me to think we are wasting 's precious time, but what else do I do. I do know I am happy he is in a cast at all. That much I can be thankful for. At this time I can only pray God will take care of . Which I know he will...........I guess I have to be patient to see what He has in His plan for our family. Any comments what be wonderful to hear. Thanks, Tasha/ PS-I got his doctor to take pictures in the OR. I have a really good one of the table, but you can see his penis........can't figure out how to blur it out. And his back looked BEAUTIFUL. I didn't get to see it, but have pictures. They do things SO different. --------------------------------- Stay in the know. Pulse on the new .com. Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2011 Report Share Posted January 10, 2011 Saying a little prayer for ! Heidi, Bexon's Mommy, (3.5 years old, in 9th cast from Salt Lake City Shriners, currently down from 63 degrees to 14.6 in cast. You can read Bexon's Story on www.GirltoMom.com)From: Richmondgirl <seaskew25@...>infantile scoliosis treatment Sent: Sun, January 9, 2011 5:32:35 AMSubject: 's 2nd cast We are leaving today to head back to Duke to see what the Dr says. We are hoping that he will tell us good news and that his cast was successful the 1st go around. Please say a little prayer that the Lord will lead us to the best care for our little boy. Thanks - 's mommy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2011 Report Share Posted January 10, 2011 Sending thoughts and prayers for good news your way! > > We are leaving today to head back to Duke to see what the Dr says. We are hoping that he will tell us good news and that his cast was successful the 1st go around. Please say a little prayer that the Lord will lead us to the best care for our little boy. Thanks > > - 's mommy > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.