Can you refer us to a good CMT doctor in Los Angeles?

[Guest guest]

Hi everyone,

What a wonderful site this is! We've learned so much already! Maybe

you can help us with doctors?

My 16 year old son's Neurologist feels that he probably has CMT but

cannot diagnosis it as his nerve test and EMG numbers came back in

normal range. Will's gene test was negative. MRIs of his spine and

brain showed no tumors.

Will's right foot has a high arch and hammer toes. Left foot is not

affected so far. He began Physical Therapy yesterday (2X a week).

Will's Neurologist referred him to a specialist, Dr. Said Beydoun at

USC but was turned down because he only sees adults.

Can any one refer us to a good CMT doctor or Neurologist in the L.A.

area that will see teenagers?

Thank you!

Will's Mom