Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 Are you looking for kids who have not yet been casted? We might be able to go to Philly, but Ian is already in his 6th cast. He's due for his next one up in Erie on the 26th of this month. Noelle (12-2-01) Ian (8-15-04) URGENT - Call for Qualified Patients to be Examined and Cast by Dr. Mehta Hello, CAST Parents! My name is Holly LeMaster, and I'm a member of the ISOP Advisory Board. I'm writing to you on 's behalf - Olivia had her first VEPTR-hybrid expansion at Shriner's in Salt Lake City this morning, and she's recovering nicely. , of course, is at her side and I'm standing in here for her today. We just got word early this morning that Dr. Mehta will be doing an Early Treatment Trial Project at the Philadelphia Shriners hospital on September 20 - 21. We've been trying to make this happen for several weeks, and didn't want to announce it until we were absolutely sure it would go forward. We know this is short notice, and we certainly apologize for that. We still have room on the schedule for several children to be examined and cast by Dr. Mehta. We need the very best candidates for early treatment in this program and would like to treat children who: . Are younger than 4 years . Have recently been diagnosed with progressive infantile scoliosis . Have had an MRI to rule out congenital scoliosis If your child meets these criteria and you can be in Philadelphia on the 20th (examinations) and 21st (casting) of this month, please send me a personal email at Holly@... . Space and time are limited since this will be a 2-day ETTP. Please know it is possible that we may have more applicants than space. If that occurs, Dr. Mehta will make the final determination about which patients are most likely to benefit from participating. There is paperwork that will have to be filled in and returned quickly, and of course you'll have travel arrangements to make. Please let me know as soon as possible if you'd like your child to be considered for this program. Thank you! Holly LeMaster Holly@... 303-601-0463 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 this is fabulous news to have an ettp at a non-casting location! great job heather! deshea ---- Original message ---- >Date: Tue, 05 Sep 2006 18:10:37 -0000 >From: " hollylemaster " <holly@...> >Subject: URGENT - Call for Qualified Patients to be Examined and Cast by Dr. Mehta >infantile scoliosis treatment > > Hello, CAST Parents! > > My name is Holly LeMaster, and I'm a member of the > ISOP Advisory > Board. I'm writing to you on 's behalf - > Olivia had her first > VEPTR-hybrid expansion at Shriner's in Salt Lake > City this morning, > and she's recovering nicely. , of course, is > at her side and > I'm standing in here for her today. > > We just got word early this morning that Dr. Mehta > will be doing an > Early Treatment Trial Project at the Philadelphia > Shriners hospital > on September 20 – 21. We've been trying to make > this happen for > several weeks, and didn't want to announce it until > we were > absolutely sure that would go forward. We know this > is short notice, > and we certainly apologize for that. > > We still have room on the schedule for several > children to be > examined and cast by Dr. Mehta. We need the very > best candidates for > early treatment in this program and would like to > treat children who: > • Are younger than 4 years > • Have recently been diagnosed with progressive > infantile > scoliosis > • Have had an MRI to rule out congenital scoliosis > > If your child meets these criteria and you can be in > Philadelphia on > the 20th (examinations) and 21st (casting) of this > month, please > send me a personal email at Holly@... . Space > and time are > limited since this will be a 2-day ETTP. Please know > it is possible > that we may have more applicants than space. If that > occurs, Dr. > Mehta will make the final determination about which > patients are > most likely to benefit from participating. > > There is paperwork that will have to be filled in > and returned > quickly, and of course you'll have travel > arrangements to make. > Please let me know as soon as possible if you'd like > your child to > be considered for this program. > > Thanks! > > Holly LeMaster > Holly@... > 303-601-0463 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 Thank you for the update on Olivia! She is an amazing little girl. And congratulations on getting the Mehta visit set up! Those children are going to be so very lucky!! hollylemaster <holly@...> wrote: Hello, CAST Parents! My name is Holly LeMaster, and I'm a member of the ISOP Advisory Board. I'm writing to you on 's behalf - Olivia had her first VEPTR-hybrid expansion at Shriner's in Salt Lake City this morning, and she's recovering nicely. , of course, is at her side and I'm standing in here for her today. We just got word early this morning that Dr. Mehta will be doing an Early Treatment Trial Project at the Philadelphia Shriners hospital on September 20 – 21. We've been trying to make this happen for several weeks, and didn't want to announce it until we were absolutely sure it would go forward. We know this is short notice, and we certainly apologize for that. We still have room on the schedule for several children to be examined and cast by Dr. Mehta. We need the very best candidates for early treatment in this program and would like to treat children who: • Are younger than 4 years • Have recently been diagnosed with progressive infantile scoliosis • Have had an MRI to rule out congenital scoliosis If your child meets these criteria and you can be in Philadelphia on the 20th (examinations) and 21st (casting) of this month, please send me a personal email at Holly@... . Space and time are limited since this will be a 2-day ETTP. Please know it is possible that we may have more applicants than space. If that occurs, Dr. Mehta will make the final determination about which patients are most likely to benefit from participating. There is paperwork that will have to be filled in and returned quickly, and of course you'll have travel arrangements to make. Please let me know as soon as possible if you'd like your child to be considered for this program. Thank you! Holly LeMaster Holly@... 303-601-0463 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 Hi Holly: My name is and I am the mother of who was diagnosed with scoliosis at 12 months. She was at 20 degrees then and held at 20 until she was 2 1/2, when she went to 35 and our Milwaukee doctor casted her. An MRI was done and was negative. Our doctor's casting is a bit different from Dr. Mehta's, but nonetheless she was back down to 20 degrees after 4 months of casting. He then braced her which brought her down to 12 degrees. At that point he decreased her brace time to 16 hours and she regressed to 28 degrees (this was in June 2006). We just got home from his office today and she is back at 35 degrees and I am waiting for his nurse to call and set the casting date. Although I am happy with our doctor I would love the opportunity to get Dr. Mehta's opinion. Sammy's fourth birthday will be Dec. 9 of this year. Please let me know if you have any additional questions. Sincerely, Esser ________________________________ From: infantile scoliosis treatment on behalf of hollylemaster Sent: Tue 9/5/2006 1:10 PM infantile scoliosis treatment Subject: URGENT - Call for Qualified Patients to be Examined and Cast by Dr. Mehta Hello, CAST Parents! My name is Holly LeMaster, and I'm a member of the ISOP Advisory Board. I'm writing to you on 's behalf - Olivia had her first VEPTR-hybrid expansion at Shriner's in Salt Lake City this morning, and she's recovering nicely. , of course, is at her side and I'm standing in here for her today. We just got word early this morning that Dr. Mehta will be doing an Early Treatment Trial Project at the Philadelphia Shriners hospital on September 20 - 21. We've been trying to make this happen for several weeks, and didn't want to announce it until we were absolutely sure that would go forward. We know this is short notice, and we certainly apologize for that. We still have room on the schedule for several children to be examined and cast by Dr. Mehta. We need the very best candidates for early treatment in this program and would like to treat children who: * Are younger than 4 years * Have recently been diagnosed with progressive infantile scoliosis * Have had an MRI to rule out congenital scoliosis If your child meets these criteria and you can be in Philadelphia on the 20th (examinations) and 21st (casting) of this month, please send me a personal email at Holly@... <mailto:Holly%40Gen-En.com> . Space and time are limited since this will be a 2-day ETTP. Please know it is possible that we may have more applicants than space. If that occurs, Dr. Mehta will make the final determination about which patients are most likely to benefit from participating. There is paperwork that will have to be filled in and returned quickly, and of course you'll have travel arrangements to make. Please let me know as soon as possible if you'd like your child to be considered for this program. Thanks! Holly LeMaster Holly@... <mailto:Holly%40Gen-En.com> 303-601-0463 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 jennifer, just in case, i would e-mail holly at her personal e-mail address. i wonder if she reads the posts from the site? deshea ---- Original message ---- >Date: Tue, 5 Sep 2006 14:23:17 -0400 >From: " Claflin " <noellesmommy@...> >Subject: Re: URGENT - Call for Qualified Patients to be Examined and Cast by Dr. Mehta ><infantile scoliosis treatment > > > Are you looking for kids who have not yet been > casted? We might be able to go to Philly, but Ian is > already in his 6th cast. He's due for his next one > up in Erie on the 26th of this month. > > > Noelle (12-2-01) > Ian (8-15-04) > URGENT - Call for > Qualified Patients to be Examined and Cast by Dr. > Mehta > > Hello, CAST Parents! > > My name is Holly LeMaster, and I'm a member of the > ISOP Advisory > Board. I'm writing to you on 's behalf - > Olivia had her first > VEPTR-hybrid expansion at Shriner's in Salt Lake > City this morning, > and she's recovering nicely. , of course, is > at her side and > I'm standing in here for her today. > > We just got word early this morning that Dr. Mehta > will be doing an > Early Treatment Trial Project at the Philadelphia > Shriners hospital > on September 20 - 21. We've been trying to make this > happen for > several weeks, and didn't want to announce it until > we were > absolutely sure it would go forward. We know this is > short notice, > and we certainly apologize for that. > > We still have room on the schedule for several > children to be > examined and cast by Dr. Mehta. We need the very > best candidates for > early treatment in this program and would like to > treat children who: > . Are younger than 4 years > . Have recently been diagnosed with progressive > infantile > scoliosis > . Have had an MRI to rule out congenital scoliosis > > If your child meets these criteria and you can be in > Philadelphia on > the 20th (examinations) and 21st (casting) of this > month, please > send me a personal email at Holly@... . Space > and time are > limited since this will be a 2-day ETTP. Please know > it is possible > that we may have more applicants than space. If that > occurs, Dr. > Mehta will make the final determination about which > patients are > most likely to benefit from participating. > > There is paperwork that will have to be filled in > and returned > quickly, and of course you'll have travel > arrangements to make. > Please let me know as soon as possible if you'd like > your child to > be considered for this program. > > Thank you! > > Holly LeMaster > Holly@... > 303-601-0463 > > [Non-text portions of this message have been > removed] > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 Thanks! I just emailed her . Noelle (12-2-01) Ian (8-15-04) URGENT - Call for > Qualified Patients to be Examined and Cast by Dr. > Mehta > > Hello, CAST Parents! > > My name is Holly LeMaster, and I'm a member of the > ISOP Advisory > Board. I'm writing to you on 's behalf - > Olivia had her first > VEPTR-hybrid expansion at Shriner's in Salt Lake > City this morning, > and she's recovering nicely. , of course, is > at her side and > I'm standing in here for her today. > > We just got word early this morning that Dr. Mehta > will be doing an > Early Treatment Trial Project at the Philadelphia > Shriners hospital > on September 20 - 21. We've been trying to make this > happen for > several weeks, and didn't want to announce it until > we were > absolutely sure it would go forward. We know this is > short notice, > and we certainly apologize for that. > > We still have room on the schedule for several > children to be > examined and cast by Dr. Mehta. We need the very > best candidates for > early treatment in this program and would like to > treat children who: > . Are younger than 4 years > . Have recently been diagnosed with progressive > infantile > scoliosis > . Have had an MRI to rule out congenital scoliosis > > If your child meets these criteria and you can be in > Philadelphia on > the 20th (examinations) and 21st (casting) of this > month, please > send me a personal email at Holly@... . Space > and time are > limited since this will be a 2-day ETTP. Please know > it is possible > that we may have more applicants than space. If that > occurs, Dr. > Mehta will make the final determination about which > patients are > most likely to benefit from participating. > > There is paperwork that will have to be filled in > and returned > quickly, and of course you'll have travel > arrangements to make. > Please let me know as soon as possible if you'd like > your child to > be considered for this program. > > Thank you! > > Holly LeMaster > Holly@... > 303-601-0463 > > [Non-text portions of this message have been > removed] > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 , is with Olivia in Salt Lake City. Olivia had her first expansions today. I will let know that people are responding to this post. She hopes to start contacting people Thursday. If she calls me tonight I will let her know that you are interested. Holly may be talking with her as well, I don't know. I'm just watching the posts for a few days while she concentrates on being a Mom. Shellie Grant (Moriah's Mom) " D. Esser " <cesser@...> wrote: Hi Holly: My name is and I am the mother of who was diagnosed with scoliosis at 12 months. She was at 20 degrees then and held at 20 until she was 2 1/2, when she went to 35 and our Milwaukee doctor casted her. An MRI was done and was negative. Our doctor's casting is a bit different from Dr. Mehta's, but nonetheless she was back down to 20 degrees after 4 months of casting. He then braced her which brought her down to 12 degrees. At that point he decreased her brace time to 16 hours and she regressed to 28 degrees (this was in June 2006). We just got home from his office today and she is back at 35 degrees and I am waiting for his nurse to call and set the casting date. Although I am happy with our doctor I would love the opportunity to get Dr. Mehta's opinion. Sammy's fourth birthday will be Dec. 9 of this year. Please let me know if you have any additional questions. Sincerely, Esser ________________________________ From: infantile scoliosis treatment on behalf of hollylemaster Sent: Tue 9/5/2006 1:10 PM infantile scoliosis treatment Subject: URGENT - Call for Qualified Patients to be Examined and Cast by Dr. Mehta Hello, CAST Parents! My name is Holly LeMaster, and I'm a member of the ISOP Advisory Board. I'm writing to you on 's behalf - Olivia had her first VEPTR-hybrid expansion at Shriner's in Salt Lake City this morning, and she's recovering nicely. , of course, is at her side and I'm standing in here for her today. We just got word early this morning that Dr. Mehta will be doing an Early Treatment Trial Project at the Philadelphia Shriners hospital on September 20 - 21. We've been trying to make this happen for several weeks, and didn't want to announce it until we were absolutely sure that would go forward. We know this is short notice, and we certainly apologize for that. We still have room on the schedule for several children to be examined and cast by Dr. Mehta. We need the very best candidates for early treatment in this program and would like to treat children who: * Are younger than 4 years * Have recently been diagnosed with progressive infantile scoliosis * Have had an MRI to rule out congenital scoliosis If your child meets these criteria and you can be in Philadelphia on the 20th (examinations) and 21st (casting) of this month, please send me a personal email at Holly@... <mailto:Holly%40Gen-En.com> . Space and time are limited since this will be a 2-day ETTP. Please know it is possible that we may have more applicants than space. If that occurs, Dr. Mehta will make the final determination about which patients are most likely to benefit from participating. There is paperwork that will have to be filled in and returned quickly, and of course you'll have travel arrangements to make. Please let me know as soon as possible if you'd like your child to be considered for this program. Thanks! Holly LeMaster Holly@... <mailto:Holly%40Gen-En.com> 303-601-0463 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2006 Report Share Posted September 8, 2006 WOW! This is great news that another ETTP is being held. What a great opportunity for these children to be casted and examined by Miss Mehta and to have their children be vital in helping other doctors learn this procedure so hopefully they will take it back to their own practices and hospitals. I felt fortunate to be a part of the last ETTP in Erie and really a once in a lifetime chance to be seen by Miss Mehta. If Lexi weren't in a brace right now, I would jump at this chance again. I hope that the parents of this group will take part in this. ...congrats on getting another one scheduled. Tracey URGENT - Call for Qualified Patients to be Examined and Cast by Dr. Mehta Hello, CAST Parents! My name is Holly LeMaster, and I'm a member of the ISOP Advisory Board. I'm writing to you on 's behalf - Olivia had her first VEPTR-hybrid expansion at Shriner's in Salt Lake City this morning, and she's recovering nicely. , of course, is at her side and I'm standing in here for her today. We just got word early this morning that Dr. Mehta will be doing an Early Treatment Trial Project at the Philadelphia Shriners hospital on September 20 - 21. We've been trying to make this happen for several weeks, and didn't want to announce it until we were absolutely sure that would go forward. We know this is short notice, and we certainly apologize for that. We still have room on the schedule for several children to be examined and cast by Dr. Mehta. We need the very best candidates for early treatment in this program and would like to treat children who: . Are younger than 4 years . Have recently been diagnosed with progressive infantile scoliosis . Have had an MRI to rule out congenital scoliosis If your child meets these criteria and you can be in Philadelphia on the 20th (examinations) and 21st (casting) of this month, please send me a personal email at Holly@... . Space and time are limited since this will be a 2-day ETTP. Please know it is possible that we may have more applicants than space. If that occurs, Dr. Mehta will make the final determination about which patients are most likely to benefit from participating. There is paperwork that will have to be filled in and returned quickly, and of course you'll have travel arrangements to make. Please let me know as soon as possible if you'd like your child to be considered for this program. Thanks! Holly LeMaster Holly@... 303-601-0463 Quote Link to comment Share on other sites More sharing options...
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