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Update on Cole

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Glad the surgery went well.sorry about the puke, though. I can do

everything except puke. I manage, but I am gagging the entire time.

Peace Be With You,

Pattie

Don't let your past dictate who you are now, but let it be a part of who you

will become.

_____

_____

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In a message dated 3/21/2006 8:02:05 AM Pacific Standard Time,

mrlbrinks@... writes:

He's downed 2 pieces of toast, 3 small bowls of potato chips (hey,

anything to get some calories in him!), a cup of watered down juice

and 2 cups of milk!!!!

Hi Rogena,

I'm glad it went well and that it's over with. For the record, I would

like to say that I am so thankful for Versed!!! Bri has had so many surgeries,

he would never go back to the hospital if he could remember everything.

I just wanted to tell you of my experience--Bri has had four sets of ear

tubes. With two or three of those, Bri has had infections a week after surgery.

I'm not saying it will happen, but just keep an eye on the possibility.

Sandi, Mom to --age 13--CVID

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Sandi: We had a problem with that the last time Cole had tubes also.

I am a keeping an especially close eye on the right ear since that one

has the paper patch and I can't put the antibiotic drops in it. The

ENT did increase his daily dose of Amoxicillin by quite a bit to help

counteract any potential problems.

-Rogena (Mom to 4 boys, including Cole -IgA & IgG Subclass Def, GERD,

possible Celiac)

" I just wanted to tell you of my experience--Bri has had four sets of

ear tubes. With two or three of those, Bri has had infections a week

after surgery. I'm not saying it will happen, but just keep an eye on

the possibility. "

Sandi, Mom to --age 13--CVID

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Sandi: We had a problem with that the last time Cole had tubes also.

I am a keeping an especially close eye on the right ear since that one

has the paper patch and I can't put the antibiotic drops in it. The

ENT did increase his daily dose of Amoxicillin by quite a bit to help

counteract any potential problems.

-Rogena (Mom to 4 boys, including Cole -IgA & IgG Subclass Def, GERD,

possible Celiac)

" I just wanted to tell you of my experience--Bri has had four sets of

ear tubes. With two or three of those, Bri has had infections a week

after surgery. I'm not saying it will happen, but just keep an eye on

the possibility. "

Sandi, Mom to --age 13--CVID

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  • 5 months later...

Hello Everyone,

Just wanted to update you on Cole's progress. If you remeber. Cole's

cast broke 6 weeks ago. The docs decided to leave his cast ofinstead

of putting a new one on since we were scheduled for a beach vacation

and he was going to have in removed for that anyways. I was so

nervous as to what setback that may have for Cole, but we went along

with the plan. As the weeks went on I found myself obsessing at

looking at Cole's back. I thought it looked great, but had just

convinced myself that the x-rays would tell otherwise.

Well, we had a pleasant surprise in Erie yesterday. His back held,

unassisted at 12 degrees out of cast for 5 1/2 weeks! I was shocked!

They applied a new cast. In cast he is at 5 degrees, RVAD is

irrelavant at this point. While he was under anesthesia, he was

molded for a brace. He is going to be in this cast for only 4 weeks,

and then into the brace for the next phase of this process. I let

Dr. Kishan know that I wanted to be on the VERY conservative side in

regards to Cole treatment, and that I had no problem keeping the

cast on longer and even applying another cast, but he insisted it

was not necessary, and that Cole was ready for a brace.

So, we are so happy for Cole and are ready for the next step. I'll

continue to keep you all posted.

Your families and kids are always in our thoughts.

/Cole

PS, Dr. Mehta said last fall that Cole would be in a cast for about

11 months, and by the time the cast comes off, it will be 11 months.

She is amazing and knows her stuff!

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Wow! What wonderful news!! I am so happy for your little man.

Noelle (12-2-01)

Ian (8-15-04)

Update on Cole

Hello Everyone,

Just wanted to update you on Cole's progress. If you remeber. Cole's

cast broke 6 weeks ago. The docs decided to leave his cast ofinstead

of putting a new one on since we were scheduled for a beach vacation

and he was going to have in removed for that anyways. I was so

nervous as to what setback that may have for Cole, but we went along

with the plan. As the weeks went on I found myself obsessing at

looking at Cole's back. I thought it looked great, but had just

convinced myself that the x-rays would tell otherwise.

Well, we had a pleasant surprise in Erie yesterday. His back held,

unassisted at 12 degrees out of cast for 5 1/2 weeks! I was shocked!

They applied a new cast. In cast he is at 5 degrees, RVAD is

irrelavant at this point. While he was under anesthesia, he was

molded for a brace. He is going to be in this cast for only 4 weeks,

and then into the brace for the next phase of this process. I let

Dr. Kishan know that I wanted to be on the VERY conservative side in

regards to Cole treatment, and that I had no problem keeping the

cast on longer and even applying another cast, but he insisted it

was not necessary, and that Cole was ready for a brace.

So, we are so happy for Cole and are ready for the next step. I'll

continue to keep you all posted.

Your families and kids are always in our thoughts.

/Cole

PS, Dr. Mehta said last fall that Cole would be in a cast for about

11 months, and by the time the cast comes off, it will be 11 months.

She is amazing and knows her stuff!

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Wow Michell, that's so amazing!! Especially about Mehta's quote on

time! Well I remember you guys were approaching this point when we

met if I'm not mistaken? SO wonderful! And the amount of time it

held is so encouraging I know.. I'm so happy for you guys & Cole,

he's such a cutie pie! Congratulations on this milestone for him, I

look forward see his this play out now in a brace! I'm hoping Sol's

back doesn't measure any higher once we go for her brace on Tues.,

and I hope they can get her down like that too, cross your fingers

for us! Take care & best wishes from us here..

-Joy,(my husband & Solana too :)

>

> Hello Everyone,

> Just wanted to update you on Cole's progress. If you remeber.

Cole's

> cast broke 6 weeks ago. The docs decided to leave his cast

ofinstead

> of putting a new one on since we were scheduled for a beach

vacation

> and he was going to have in removed for that anyways. I was so

> nervous as to what setback that may have for Cole, but we went

along

> with the plan. As the weeks went on I found myself obsessing at

> looking at Cole's back. I thought it looked great, but had just

> convinced myself that the x-rays would tell otherwise.

> Well, we had a pleasant surprise in Erie yesterday. His back held,

> unassisted at 12 degrees out of cast for 5 1/2 weeks! I was

shocked!

> They applied a new cast. In cast he is at 5 degrees, RVAD is

> irrelavant at this point. While he was under anesthesia, he was

> molded for a brace. He is going to be in this cast for only 4

weeks,

> and then into the brace for the next phase of this process. I let

> Dr. Kishan know that I wanted to be on the VERY conservative side

in

> regards to Cole treatment, and that I had no problem keeping the

> cast on longer and even applying another cast, but he insisted it

> was not necessary, and that Cole was ready for a brace.

> So, we are so happy for Cole and are ready for the next step. I'll

> continue to keep you all posted.

> Your families and kids are always in our thoughts.

> /Cole

> PS, Dr. Mehta said last fall that Cole would be in a cast for

about

> 11 months, and by the time the cast comes off, it will be 11

months.

> She is amazing and knows her stuff!

>

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