transition into braces from casts???

[Guest guest]

Hi all!!!!!!!!!!!!!

That is great news about Solana and all the other kids in braces now

or going into them

it seems like the trend is starting to go into braces and I am

thinking that is what we may be up against soon.

I am trying to get every ones info that was casted and now in a

brace especially the out of cast cobb numbers and if the curve is

standing or lying down

and any other info that might help us make a decision if this is the

best way to go just yet...

Thanks

we have been off the group for a while and hoope to get into all of

the stories now

I think is is Jenn and Jake Own and Deshea and Lucas Joy and

solana

And anyone else who may believe they are going into a brace at the

next appt

Thanks I really appreciate it

[Guest guest]

>

> Hi all!!!!!!!!!!!!!

>

> That is great news about Solana and all the other kids in braces

now

> or going into them

>

> it seems like the trend is starting to go into braces and I am

> thinking that is what we may be up against soon.

>

> I am trying to get every ones info that was casted and now in a

> brace especially the out of cast cobb numbers and if the curve is

> standing or lying down

> and any other info that might help us make a decision if this is

the

> best way to go just yet...

> Thanks

>

>

> we have been off the group for a while and hoope to get into all

of

> the stories now

>

> I think is is Jenn and Jake Own and Deshea and Lucas Joy

and

> solana

> And anyone else who may believe they are going into a brace at the

> next appt

>

> Thanks I really appreciate it

>

[Guest guest]

Hi ,

I can't give you her out of 3rd cast measurements right now b/c I do

not know what they were, they didn't discuss that with me over the

phone, only that they look great & this last cast did what he

expected & we can move forward w/the brace next visit. I'm assuming

he'll give me the actual #'s once we are there & if not I'll most

definitely be asking.

I can tell you her measurements last time out of cast were in the

teens, & her measurements in 3rd cast were 8o Cobb & 2o RVAD with

little rotation. I'm assuming the x-rays are done laying down since

the kids are under sedation when being casted. RE: her back out of

cast right now, I can also tell you that visually it looks great,

you can't tell there's anything wrong w/it & can barely notice any

kind of curve when running your fingers along her spine. In

addition, she's been out of cast for 3 weeks plus with no

progression on angles & she currently is again going on 2 wks & it

still looks great to me. I'm assuming all of the above is why the

Dr. feels confident in moving into a brace but I of course would

want to do whatever he reccommends.. even if it meant several more

casts. Are you going to Shriner's too?? If so I would trust your

Dr.'s opinion on the subject.. obviously your intuition on the

matter counts too, if there were more of a visual aspect to my

daughters current state of scoli. then I don't know I'd feel as

comfortable w/no cast, but these Shriner's Dr.'s are of course the

experts on early correction thus far! Take care & good luck,

-Joy (M.O. Sol)

>

> Hi all!!!!!!!!!!!!!

>

> That is great news about Solana and all the other kids in braces

now

> or going into them

>

> it seems like the trend is starting to go into braces and I am

> thinking that is what we may be up against soon.

>

> I am trying to get every ones info that was casted and now in a

> brace especially the out of cast cobb numbers and if the curve is

> standing or lying down

> and any other info that might help us make a decision if this is

the

> best way to go just yet...

> Thanks

>

>

> we have been off the group for a while and hoope to get into all

of

> the stories now

>

> I think is is Jenn and Jake Own and Deshea and Lucas Joy

and

> solana

> And anyone else who may believe they are going into a brace at the

> next appt

>

> Thanks I really appreciate it

>

[Guest guest]

,

ISOP doesnt have your new address. Please send me a private e-mail with your

new info, so we can keep you on our mailing list.

Thanks,

HRH

transition into braces from casts???

Hi all!!!!!!!!!!!!!

That is great news about Solana and all the other kids in braces now

or going into them

it seems like the trend is starting to go into braces and I am

thinking that is what we may be up against soon.

I am trying to get every ones info that was casted and now in a

brace especially the out of cast cobb numbers and if the curve is

standing or lying down

and any other info that might help us make a decision if this is the

best way to go just yet...

Thanks

we have been off the group for a while and hoope to get into all of

the stories now

I think is is Jenn and Jake Own and Deshea and Lucas Joy and

solana

And anyone else who may believe they are going into a brace at the

next appt

Thanks I really appreciate it

[Guest guest]

Hi

Owen's story is a little different from most. His scoliosis is (likely)

secondary to a tethered

spinal cord. After he had surgery we went back to Shriners to get casted (there

was 6

months in between appts with the Shriners docs due to the surgery and other

necessary

testing). We were prepared to get a cast, but his spine was so flexible they

were able to

get him from 25 deg to 0 just under light traction. So, they thought a brace

would be

appropriate since he was basically at the point where kids would stop getting

casted and

start using a brace. While it might seem fortunate that he didn't need a cast,

he had to

have surgery on his spinal cord to get where he is today- no small feat. His

worst

measurement was 45deg (this was before surgery) We go back next week, hopefully

to

get a new brace, although they told us he may end up needing a cast if the brace

wasn't

working. I just found out yesterday that he has a smallish spinal fluid leak

from the

surgery (8 months ago) so hopefully they won't need to apply a cast so we can

keep an eye

on that. It never ends, does it!

> >

> > Hi all!!!!!!!!!!!!!

> >

> > That is great news about Solana and all the other kids in braces

> now

> > or going into them

> >

> > it seems like the trend is starting to go into braces and I am

> > thinking that is what we may be up against soon.

> >

> > I am trying to get every ones info that was casted and now in a

> > brace especially the out of cast cobb numbers and if the curve is

> > standing or lying down

> > and any other info that might help us make a decision if this is

> the

> > best way to go just yet...

> > Thanks

> >

> >

> > we have been off the group for a while and hoope to get into all

> of

> > the stories now

> >

> > I think is is Jenn and Jake Own and Deshea and Lucas Joy

> and

> > solana

> > And anyone else who may believe they are going into a brace at the

> > next appt

> >

> > Thanks I really appreciate it

> >

>

[Guest guest]

-

Thanks Joy and for the responses

I want to make sure that we are going into a brace that will hold

the progress we made and not allow any rotation so we shall see..I

usually have a hard time trusting anyone at this point but I must

break free of that.

if you are out there I would love to chat with you about the

brace Lexi is in, if I can remember she was doing GREAT

If anyone else can give me some feedback about braces I would love it

Thanks again for you responses

-- In infantile scoliosis treatment , " mosunshinebaby "

<mosunshinebaby@...> wrote:

>

> Hi ,

>

> I can't give you her out of 3rd cast measurements right now b/c I

do

> not know what they were, they didn't discuss that with me over the

> phone, only that they look great & this last cast did what he

> expected & we can move forward w/the brace next visit. I'm

assuming

> he'll give me the actual #'s once we are there & if not I'll most

> definitely be asking.

>

> I can tell you her measurements last time out of cast were in the

> teens, & her measurements in 3rd cast were 8o Cobb & 2o RVAD with

> little rotation. I'm assuming the x-rays are done laying down

since

> the kids are under sedation when being casted. RE: her back out

of

> cast right now, I can also tell you that visually it looks great,

> you can't tell there's anything wrong w/it & can barely notice any

> kind of curve when running your fingers along her spine. In

> addition, she's been out of cast for 3 weeks plus with no

> progression on angles & she currently is again going on 2 wks & it

> still looks great to me. I'm assuming all of the above is why the

> Dr. feels confident in moving into a brace but I of course would

> want to do whatever he reccommends.. even if it meant several more

> casts. Are you going to Shriner's too?? If so I would trust your

> Dr.'s opinion on the subject.. obviously your intuition on the

> matter counts too, if there were more of a visual aspect to my

> daughters current state of scoli. then I don't know I'd feel as

> comfortable w/no cast, but these Shriner's Dr.'s are of course the

> experts on early correction thus far! Take care & good luck,

> -Joy (M.O. Sol)

>

>

> >

> > Hi all!!!!!!!!!!!!!

> >

> > That is great news about Solana and all the other kids in braces

> now

> > or going into them

> >

> > it seems like the trend is starting to go into braces and I am

> > thinking that is what we may be up against soon.

> >

> > I am trying to get every ones info that was casted and now in a

> > brace especially the out of cast cobb numbers and if the curve

is

> > standing or lying down

> > and any other info that might help us make a decision if this is

> the

> > best way to go just yet...

> > Thanks

> >

> >

> > we have been off the group for a while and hoope to get into all

> of

> > the stories now

> >

> > I think is is Jenn and Jake Own and Deshea and Lucas Joy

> and

> > solana

> > And anyone else who may believe they are going into a brace at

the

> > next appt

> >

> > Thanks I really appreciate it

> >

>

[Guest guest]

hey christine....anytime you want to chat, please feel free. if you want to

email me privately with your number or i can email you mine, let me know. lexi

has had great correction and reduction in her rotation as well in her braces.

anything you would like to know, i am more than happy to talk to you about.

tracey

pthahn@...

Re: transition into braces from casts???

-

Thanks Joy and for the responses

I want to make sure that we are going into a brace that will hold

the progress we made and not allow any rotation so we shall see..I

usually have a hard time trusting anyone at this point but I must

break free of that.

if you are out there I would love to chat with you about the

brace Lexi is in, if I can remember she was doing GREAT

If anyone else can give me some feedback about braces I would love it

Thanks again for you responses

-- In infantile scoliosis treatment , " mosunshinebaby "

<mosunshinebaby@...> wrote:

>

> Hi ,

>

> I can't give you her out of 3rd cast measurements right now b/c I

do

> not know what they were, they didn't discuss that with me over the

> phone, only that they look great & this last cast did what he

> expected & we can move forward w/the brace next visit. I'm

assuming

> he'll give me the actual #'s once we are there & if not I'll most

> definitely be asking.

>

> I can tell you her measurements last time out of cast were in the

> teens, & her measurements in 3rd cast were 8o Cobb & 2o RVAD with

> little rotation. I'm assuming the x-rays are done laying down

since

> the kids are under sedation when being casted. RE: her back out

of

> cast right now, I can also tell you that visually it looks great,

> you can't tell there's anything wrong w/it & can barely notice any

> kind of curve when running your fingers along her spine. In

> addition, she's been out of cast for 3 weeks plus with no

> progression on angles & she currently is again going on 2 wks & it

> still looks great to me. I'm assuming all of the above is why the

> Dr. feels confident in moving into a brace but I of course would

> want to do whatever he reccommends.. even if it meant several more

> casts. Are you going to Shriner's too?? If so I would trust your

> Dr.'s opinion on the subject.. obviously your intuition on the

> matter counts too, if there were more of a visual aspect to my

> daughters current state of scoli. then I don't know I'd feel as

> comfortable w/no cast, but these Shriner's Dr.'s are of course the

> experts on early correction thus far! Take care & good luck,

> -Joy (M.O. Sol)

>

>

> >

> > Hi all!!!!!!!!!!!!!

> >

> > That is great news about Solana and all the other kids in braces

> now

> > or going into them

> >

> > it seems like the trend is starting to go into braces and I am

> > thinking that is what we may be up against soon.

> >

> > I am trying to get every ones info that was casted and now in a

> > brace especially the out of cast cobb numbers and if the curve

is

> > standing or lying down

> > and any other info that might help us make a decision if this is

> the

> > best way to go just yet...

> > Thanks

> >

> >

> > we have been off the group for a while and hoope to get into all

> of

> > the stories now

> >

> > I think is is Jenn and Jake Own and Deshea and Lucas Joy

> and

> > solana

> > And anyone else who may believe they are going into a brace at

the

> > next appt

> >

> > Thanks I really appreciate it

> >

>

[Guest guest]

hey

Are you ?

> > >

> > > Hi all!!!!!!!!!!!!!

> > >

> > > That is great news about Solana and all the other kids in

braces

> > now

> > > or going into them

> > >

> > > it seems like the trend is starting to go into braces and I

am

> > > thinking that is what we may be up against soon.

> > >

> > > I am trying to get every ones info that was casted and now

in a

> > > brace especially the out of cast cobb numbers and if the

curve

> is

> > > standing or lying down

> > > and any other info that might help us make a decision if

this is

> > the

> > > best way to go just yet...

> > > Thanks

> > >

> > >

> > > we have been off the group for a while and hoope to get into

all

> > of

> > > the stories now

> > >

> > > I think is is Jenn and Jake Own and Deshea and Lucas

Joy

> > and

> > > solana

> > > And anyone else who may believe they are going into a brace

at

> the

> > > next appt

> > >

> > > Thanks I really appreciate it

> > >

> >

>

>

>

>

>

>

[Guest guest]

,

I've been off-board for a while. Sorry to have not replied sooner. After

Jake's 3rd cast he was 10o and 6o with no rotation - lying down. In brace (made

in Erie) he is 2o and 6o. We go back this week for his 3 month

follow-up/check-up.

Hope all is going well. Does this mean you and Adan are nearing the brace

phase in the not so distant future?

Good luck,

& Jake

<christinehrph@...> wrote:

-

Thanks Joy and for the responses

I want to make sure that we are going into a brace that will hold

the progress we made and not allow any rotation so we shall see..I

usually have a hard time trusting anyone at this point but I must

break free of that.

if you are out there I would love to chat with you about the

brace Lexi is in, if I can remember she was doing GREAT

If anyone else can give me some feedback about braces I would love it

Thanks again for you responses

-- In infantile scoliosis treatment , " mosunshinebaby "

<mosunshinebaby@...> wrote:

>

> Hi ,

>

> I can't give you her out of 3rd cast measurements right now b/c I

do

> not know what they were, they didn't discuss that with me over the

> phone, only that they look great & this last cast did what he

> expected & we can move forward w/the brace next visit. I'm

assuming

> he'll give me the actual #'s once we are there & if not I'll most

> definitely be asking.

>

> I can tell you her measurements last time out of cast were in the

> teens, & her measurements in 3rd cast were 8o Cobb & 2o RVAD with

> little rotation. I'm assuming the x-rays are done laying down

since

> the kids are under sedation when being casted. RE: her back out

of

> cast right now, I can also tell you that visually it looks great,

> you can't tell there's anything wrong w/it & can barely notice any

> kind of curve when running your fingers along her spine. In

> addition, she's been out of cast for 3 weeks plus with no

> progression on angles & she currently is again going on 2 wks & it

> still looks great to me. I'm assuming all of the above is why the

> Dr. feels confident in moving into a brace but I of course would

> want to do whatever he reccommends.. even if it meant several more

> casts. Are you going to Shriner's too?? If so I would trust your

> Dr.'s opinion on the subject.. obviously your intuition on the

> matter counts too, if there were more of a visual aspect to my

> daughters current state of scoli. then I don't know I'd feel as

> comfortable w/no cast, but these Shriner's Dr.'s are of course the

> experts on early correction thus far! Take care & good luck,

> -Joy (M.O. Sol)

>

>

> >

> > Hi all!!!!!!!!!!!!!

> >

> > That is great news about Solana and all the other kids in braces

> now

> > or going into them

> >

> > it seems like the trend is starting to go into braces and I am

> > thinking that is what we may be up against soon.

> >

> > I am trying to get every ones info that was casted and now in a

> > brace especially the out of cast cobb numbers and if the curve

is

> > standing or lying down

> > and any other info that might help us make a decision if this is

> the

> > best way to go just yet...

> > Thanks

> >

> >

> > we have been off the group for a while and hoope to get into all

> of

> > the stories now

> >

> > I think is is Jenn and Jake Own and Deshea and Lucas Joy

> and

> > solana

> > And anyone else who may believe they are going into a brace at

the

> > next appt

> >

> > Thanks I really appreciate it

> >

>

---------------------------------

How low will we go? Check out Messenger’s low PC-to-Phone call rates.

[Guest guest]

nope, i'm pthahn@... i never check my mail so send it to

sbcglobal

tracey

Re: transition into braces from casts???

hey

Are you ?

> > >

> > > Hi all!!!!!!!!!!!!!

> > >

> > > That is great news about Solana and all the other kids in

braces

> > now

> > > or going into them

> > >

> > > it seems like the trend is starting to go into braces and I

am

> > > thinking that is what we may be up against soon.

> > >

> > > I am trying to get every ones info that was casted and now

in a

> > > brace especially the out of cast cobb numbers and if the

curve

> is

> > > standing or lying down

> > > and any other info that might help us make a decision if

this is

> > the

> > > best way to go just yet...

> > > Thanks

> > >

> > >

> > > we have been off the group for a while and hoope to get into

all

> > of

> > > the stories now

> > >

> > > I think is is Jenn and Jake Own and Deshea and Lucas

Joy

> > and

> > > solana

> > > And anyone else who may believe they are going into a brace

at

> the

> > > next appt

> > >

> > > Thanks I really appreciate it

> > >

> >

>

>

>

>

>

>

[Guest guest]

I understand your concern Chrinstine, after all we can't get this

growth that attained the correction back ever!! I've said I want to

be conservative too w/bracing & stick to casting as long as we have

too but they're in fact going ahead w/the brace.. so we'll see!

Hopefully going through one for 2-3 mos. will give a good idea on

whether it's working well. My husband is there w/her now in rcovery

& I'm waiting to hear from him on how it all went & measurements,

very anxious! Good luck, take care! ~Joy

> > >

> > > Hi all!!!!!!!!!!!!!

> > >

> > > That is great news about Solana and all the other kids in

braces

> > now

> > > or going into them

> > >

> > > it seems like the trend is starting to go into braces and I am

> > > thinking that is what we may be up against soon.

> > >

> > > I am trying to get every ones info that was casted and now in

a

> > > brace especially the out of cast cobb numbers and if the curve

> is

> > > standing or lying down

> > > and any other info that might help us make a decision if this

is

> > the

> > > best way to go just yet...

> > > Thanks

> > >

> > >

> > > we have been off the group for a while and hoope to get into

all

> > of

> > > the stories now

> > >

> > > I think is is Jenn and Jake Own and Deshea and Lucas

Joy

> > and

> > > solana

> > > And anyone else who may believe they are going into a brace at

> the

> > > next appt

> > >

> > > Thanks I really appreciate it

> > >

> >

>