Re: Body fat factor in CMT

August 25, 2005

I'm not thin at all I'm bulky and very short but my son who also has CMT is

very thin and very low muscle tone he's 16 but wears size 12's he is short as

well ,

do other 's out there have really overly muscled caves ? and tiny ankles ?

D.

August 25, 2005

Hi ,

My son 14 years old has CMT and he is very thin, no matter how

much he eats, he doesn't gain weight.

Betty

August 25, 2005

Greg wrote, " I would suggest light weight lifting in the morning (after a

healthy

breakfast and a cup of coffee, caffine will help boost his melabolism). "

I disagree with the recommendation of drinking a cup of coffee every morning

for the caffeine to boost metabolism. Many with CMT suffer from tremors - I

know I do. Caffeine exacerbates the condition. I'd also recommend working

with a dietician and a physical therapist in any effort to gain weight that

involves eating more and strength training. There is a fine line between

eating enough and eating too much. The same goes for lifting weights.

August 25, 2005

Betty,

That sounds like my son. People can't believe how much he eats and still doesn't

gain weight. Wish I had that problem. ha

Rosemary

August 26, 2005

Thanks to everyone who has given me the information. I do eat well also and

like I said, sometimes you just want to tell people to leave " me alone " ....or

tell them what's going on, but they don't want to hear it and in a way, I can't

blame them. It just amazes me that they always want to blame it on something

" Bad " ...Instead of asking is something wrong, they'll say you're skinny and

leave it at that. Oh well, that's life...lol

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