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Welcome Branz

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Welcome Branz. Thanks for your introduction too. I only went to an

MDA clinic (not for me) but, at that clinic, there were docs who knew

CMT, also orthopedists/and I think one fledgling neurologist, and

orthotists who wanted to measure me for AFOs, which I did not need.

BUT, since you have already been to an MDA clinic, I would suggest

you get another appointment to go back and see if you can get what

you need through them. Maybe there is more than one MDA clinic near

you. To search, go to http://mdausa.org and put your zip code in the

search box - maybe there will be another clinic near that can help

you with the right neurologists, orthopedists, orthotists, physical

therapists.

I have had lots of physical therapy in my life. When I was a teen I

absolutely hated it. More recently, in 2002, after surgery I had some

more and it started me on a new life in exercise Aquatics which I

love and look forward to :)

So glad to meet you and I hope our group here is a positive

experience for you.

~ Gretchen

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