Guest guest Posted February 14, 2001 Report Share Posted February 14, 2001 At 09:44 AM 2/14/01 +0000, you wrote: The difficulty of living with her is >pushing me over the edge. I'll probablyl have to start meds soon. Her >therapist has suggested that we leave OCD management strictly up to > unless she asks for help. It's hard for me to sit by and watch >rituals and tics multiply, but I guess we've come to the point where > either needs to learn to cooperate with us, or we need to learn to >accept her oddness if it doesn't interfere with life outside the home. > >Can anyone else relate? >Betsy in Wisconsin Betsy -- I cried buckets when a dr first prescribed meds for one of my kids. It seemed so extreme & such a last resort kind of thing. But I'm glad we tried them. It arrested some behaviors that were over the top and gave us a chance to get things under control. Now my son - who was on Anafranil for a year and then Luvox for another year - is med-free and doing well right now. My daughter is currently on Luvox and Risperdal, and the Risperdal especially has done wonders for her life, I think. I do worry about her being on meds though. For instance, she had 4 wisdom teeth removed at one time a couple months ago. We went into that knowing that sedation would not be an option, because of the Risperdal. This time it wasn't necessary -- but what if she ever needs surgery? What will happen if she wants to have a baby someday? She is 18 now, so I hope that decision will be a few years away. But we have to take things one day at a time, and for today, the meds are a good thing. I'm gonna let God take care of Later. -- Vicki in Montana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2001 Report Share Posted February 14, 2001 Hi Vicki, >>We went into that knowing that sedation would notbe an option, because of the Risperdal.<< I didn't know this. Why would sedation not be possible?? What about the Risperdal makes this so?? My son in not on Risperdal but I always like to try to learn all I can now so I will be aware if I need to be later. Are there any other meds that sedation can not be used with? Thanks and take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2001 Report Share Posted February 14, 2001 Tell me more about this..My son is on Resperdal, ritalin & prozac...Joy Vince & wrote: > Hi Vicki, >>We went into that knowing that sedation would not > be an option, because of the Risperdal.<< I didn't know this. Why > would sedation not be possible?? What about the Risperdal makes this > so?? My son in not on Risperdal but I always like to try to learn all > I can now so I will be aware if I need to be later. Are there any > other meds that sedation can not be used with? Thanks and take > care, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2001 Report Share Posted February 14, 2001 Betty, I thoroughly relate to what you are saying. We don't push to share. When she is doing well, she sometimes shares on her own. I guess we are fortunate in that seems to be willing to talk openly with her therapist and psychiatrist. I think we, too, have come to the conclusion that has to make the decisions on how hard she will fight this. We continue to try to provide a calm, supportive and non-judgmental home where she is free to be herself, within normal guidelines of respect. Often that means ignoring her when she is in one of her " owly " moods and not pressuring her to talk unless she chooses. As for " parent meds " , I'm in the group is on them (10 mg. Paxil daily). And I sure don't know how I would be coping without. I need that little bit of help to stay calm when I have so little control of what goes on around me. Greta in Oregon > We're very proud of her. We're at a crossroads where she appears to > function pretty well away from home, but miserably in our house. How > hard should we push a child whose grades are excellent, makes > friends easily, and participates successfully in afterschool > events? Even for a normal child, this is pretty good. The > difficulty of living with her is pushing me over the edge. I'll > probably have to start meds soon. Her therapist has suggested that > we leave OCD management strictly up to unless she asks for > help. It's hard for me to sit by and watch rituals and tics > multiply, but I guess we've come to the point where either > needs to learn to cooperate with us, or we need to learn to accept > her oddness if it doesn't interfere with life outside the home. > > Can anyone else relate? > > Betsy in Wisconsin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2001 Report Share Posted February 14, 2001 -- I'm really not up to speed on these things, as I should be. All I know is that I told the oral surgeon what meds Chrystal was taking, and he looked it up. He said sedation shouldn't be used with the Risperdal -- but I don't know how serious the risk is, or what the reaction might be. Maybe there are other types of anesthesia that could be used that weren't available in his office... I haven't studied it yet. I am thinking I need to get her a MedicAlert bracelet. Do others of you have them for your kids? -- Vicki in MT At 01:02 PM 2/14/01 -0600, you wrote: >Hi Vicki, > >>>We went into that knowing that sedation would not >be an option, because of the Risperdal.<< > >I didn't know this. Why would sedation not be possible?? What about the Risperdal makes this so?? > >My son in not on Risperdal but I always like to try to learn all I can now so I will be aware if I need to be later. > >Are there any other meds that sedation can not be used with? > >Thanks and take care, > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2001 Report Share Posted February 15, 2001 Hi My son is on Luvox and Risperdal and is scheduled to have oral surgery next week under sedation in a surgical center affiliated with Lutheran General Hospital (a very BIG hospital and very well respected in our area). When I saw your post about the inadvisability of sedation I called the pediatric dentist and asked about the risk of risperdol and sedation. He had to call the medical director of the surgical center and ask, but said that the medical director says sedation of someone taking risperdol is OK in a hospital setting with an anesthesiologist but is not O.K. in an oral surgeon's office or non hospital setting with just a dental anesthesiologist present. If anyone knows or learns anything to the contrary please let me know because my son needs A LOT of baby teeth removed and the dentist would like to remove 4 impacted secondary teeth and we don't know how our 10 year old would get through this without sedation. Thanks (NanF22@...) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2001 Report Share Posted February 18, 2001 Hi Betsy: OCD that is causing this level of disruption in the home is still at the level of a disorder. When has done enough E & RP to be able to function better at home, she will have reduced her OCD to a level where she can function in all realms. Until then I disagree with the idea of just letting her be. OCD is greedy and will not be satisfied by taking over just at home but will encroach on school, social life, etc. Your child is asking for help, just not in a way that is obvious to all. I hope that Prozac will free up to get pants on more easily and boss back at home. Home is where our beloved kids feel most at home, and the more comfortable they feel, the more the OCD bosses them around. As hard as it is learning how to function as a contributing family member in spite of their OCD is a very important life lesson for our kids. is doing very well functioning well in several arenas and cheering her on for this will help her be encouraged to boss back at home too. Good luck, take care, aloha, Kathy (h) kathyh@... At 09:44 AM 02/14/2001 +0000, you wrote: >Greta, >I can relate closely with what you're going through. My 12-year old > shares almost nothing about her suffering. She won't open up to >me, her dad, her therapist or her psychiatrist. We're encouraging her to >keep a journal because she occasionally will write about her OCD. > " Encouraging " however, is a euphemism for pressuring her under duress. >We're at a difficult time right now where the rituals are multiplying >rapidly and we don't know what obsessions are driving them. It takes her >ten minutes to put on her underpants each morning. New tics have >appeared. she's belligerent when we try to discuss this with her. We're >in the process of switching meds from Paxil, which gave her diarrhea, to >Prozac. But her dose isn't high enough yet to do much good. Like , > loves drama and she has a small part in her school's musical. >We're very proud of her. We're at a crossroads where she appears to >function pretty well away from home, but miserably in our house. How >hard should we push a child whose grades are excellent, makes friends >easily, and participates successfully in afterschool events? Even for a >normal child, this is pretty good. The difficulty of living with her is >pushing me over the edge. I'll probablyl have to start meds soon. Her >therapist has suggested that we leave OCD management strictly up to > unless she asks for help. It's hard for me to sit by and watch >rituals and tics multiply, but I guess we've come to the point where > either needs to learn to cooperate with us, or we need to learn to >accept her oddness if it doesn't interfere with life outside the home. > >Can anyone else relate? >Betsy in Wisconsin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2001 Report Share Posted February 21, 2001 Kathy H , Lesli and Carolynn, Thanks for your insight into 's problems at home. We've started doing E & RP with her dressing and bedtime rituals. Next, we hope to tackle her eating rituals. The threshhold rituals baffle me, though. She's doing well, and she's earned a trip to the mall. We hope to increase her dose of Prozac next week. Betsy Quote Link to comment Share on other sites More sharing options...
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