Re: Onapristone - and my amazing day!

[Guest guest]

Gretchen,

Congratulations!!!!!!!!!!!!

Wow!!! What a great, beautiful news!!!!!!

Imagine, I was here thinking of it...I can imagine how wonderful

feeling it was for you to received such lovely couple in your home!

I am imagining here, like the way we love to talk...I think it

was a bit mad afternoon, so much to share and so much to learn from

each other...show your body parts, feet and hands, and legs, hahaha...so

excitant this meeting...why they did not stay the whole

week..hahahaha!

So much to know, just one day is not enough Gretchen!

It is funny when you said that regarding how many people with CMT.

I remember almost 25 years ago here in London, my doctor told me

that it was only one CMT family up in Scotland...and me here from

Brazil...Can you believe it?

God, so many people included myself did not want to come out of the

shell, because of the fear of knowing more. You do remember my

introduction...I love nutrition, health topics and lot of others

things, but CMT was not for me thank you...That always been my

reaction!

I never want to know anything regarding CMT, always trying to avoid

it, even to talk about it would make me cry. So, I can imagine how

many CMT people out there must be around the word ... hide inside

themselves!

I have to say to you, I am so pleased to be part of the , you

can not imagine how...So happy, because in a way, we are a

family, I feel like literary, we are a family genetically speaking.

And now, I do not feel alone here, I feel I have more members in my

family , and that is wonderful Gretchen.

Do you know, because of my funny email the other day ...talking

about music and coconut ... remember? I did received an email from a

lovely friend called Nicolle, so sweet, she also love music like

me...and we have been talking about the Live 8 and music. As you can see, we

always meet beautiful people in our group. So glad for this!

Well, you can also come here and meet me, than it would be another

one in your list. Hahahaha...I am not joking, I am serious, you would

be so very welcome!

I am so pleased that you had this great time, gosh, I would be so

happy to meet this people too...so kind and sweet from them to visit

you really!

Now, you must to tell me more, I want more ...regarding supplements,

anything new for us to try it?

Well, maybe they could find something almost similar to Onapristone , without

unpleasant side effects...Please, God help those guys to find a way to stop the

nerve deterioration. What a victory could be!!!!!!!

Dear, I must to go to bed now...wow!!! If I tell you that it is 5.06 in the

morning, and the birds are singing , would you believe me?

Well, the birds are saying, time to go to bed now Joana!!!! I will talk to you

soon! Have a Great Day! Stay Beautiful.

Joana

[Guest guest]

Glad for your awesome experience. I too have CMTX and would like sometime to

correspond with him and tell him that I am the luckiest man alive.

Although the field is unlevel, I have been blessed in many ways. In spite of all

our genetic anomalies, what wonderfully constructed we human beings are! We can

thank our Creator for that.

in the land of the Illini