tremors p.s.

[Guest guest]

Deb,

I forgot to put this in my post yesterday about my tremors.

After back surgery in 2002, and all the chemicals I had in my body

(anesthesia, opiates, antibiotics,plus the Elavil, which I should have

quit taking 2 weeks prior to surgery but that truly slipped my mind) I

experienced about a 6 month tremor surge. Now, I was off all opiates

and had pretty well cleaned out my body with drinking tons of my

Fijiwater, but even still, I was still having tremor surges.

So, since I had detoxed from the pain meds, I figured coffee was next

to go. And it was. Now that helped a lot. I continued to drink my

water, and nothing with ANY caffeine in it and within 6 months my

tremors were back in total suppression.

I haven't had a cup of coffee for 3 years - until this morning. I had

to up very early and had a very long day (exciting too). I figured one

of those little Starbucks Frapuccino coffee and mocha bottles I bought

as a spec on sale wouldn't do much harm. LOL. I drank 1/2 the bottle,

waited 10 minutes, no tremors, decided why not just drink the rest LOL,

and Oh My Gosh! From our early breakfast meeting to the long drive, to

several meetings today, I was " ON " all day - non stop talking with

ideas (a good thing) but until about 2 pm I had wicked bad finger

tremors. So, no more coffee for me!

You asked how tremors " feel " . Interesting question, something I had

never thought of before. Well, mostly they don't " feel " , it is just

that as I hold out my arms my hands/fingers are involuntarily dancing

and I have no control to stop them. Emotionally, I suppose

the " feeling " behind that is just frustration. But my little Starbucks

experiment this morning was just plain stupid.

When I was on a date in college, and had tremors, the guys used to

think I was cold, and offer me their jackets. Very gentlemanly, except

I felt like I was sweating with all the jackets on me! LOL

I tried Inderal once, my doc was sure it would work better than Elavil.

I was hesitant. But, I gave it a try. Definitely NOT for me, as I have

said in the past, that stuff made my heart beat so fast and it felt

like it would jump out of my chest at any moment.

When I was on the Neurontin for a year, about 6 months into that year,

I had tremor surges taking 900 mg of N a day. I cut back to 600 mg and

the tremor surges stopped.

I suppose if I had to state my main CMT complaint on a survey or

something, I'd say it is the tremors.

~ Gretchen