Guest guest Posted February 8, 2001 Report Share Posted February 8, 2001 HI Lynn: This is a tough one because it seems to us parents that how will our kids get well if they react this way. That is a normal emotional reaction and is OCD bossing us around. Our kids want to get well in the worst way, just they are very frightened. I would compliment Steve on his determination to get well and his patience with being schlepped around from doc to doc in search of the one who would be able to help. He often refused or would not engage. ly this was the result more of the inexperience of the therapist than Steve's desire to block therapy. I was so desperate and worried, looking back I would try to do this again by being more patient and knowing that OCD was tricking Steve and me. CBT is hard work and our kids do it successfully when the therapist develops a therapeutic alliance and builds on our kid's strengths to encourage them to engage in therapy. Another suggestion is to interview the therapist by yourself first to determine the extent of their knowledge about CBT. That way you do not take Kim to a therapist who will not be treating her. Also you might find that her resistance is much less once she reaches a Prozac dosage which is suitable for OCD treatment. The CBT that she has already done with bedtime shows her ability to succeed at E & RP. She can do it. Take care, aloha, Kathy (h) kathyh@... At 09:32 PM 02/08/2001 EST, you wrote: >Hi everyone > >Just wanted to know some opinions on how to handle it when your child has had >enough and doesn't want to meet or try anymore doctors. Kim likes her >therapist (not an OCD specialist, just a very nice, caring man) but we have >pursued others in our search for someone experienced in ERP and CBT. The >latest is a woman about 30 minutes from here who seems nice (we have met her >twice now) and she has experience with ERP and CBT (dont know yet to what >extent). We told Kim last night we are going to bring her to the next >meeting and she strongly refused, slammed the door and didnt come out all >night...not even to ask me her " will i throw up " question (thats erp by >default for her) My feeling is that it is a waste of time to bring her >somewhere when she is starting off with a terrible attitude and knowing her a >very stubborn streak, where she will refuse to speak or cooperate in any way. > When do we or should we force our children? On a side note, we had the >school social worker come over today for 2 hours (super nice lady) and Kim >agreed to have her come back next week to speak with her...so she isn't >totally unreasonable about things...just more doctors and people asking her >the same questions over and over. She told me, I have a psychiatrist (she >goes to willingly), I have a therapist (also willingly) and we have tried a >bunch of others...i have enough! > >Oh, also for an update...she is sleeping!!!! Well not exactly what some >parents would consider sleeping normally, but she does fall asleep around >12:30 now..NOT 4AM...I think this is a BIG improvement and she did this on >her own. She made up a plan ( so as not to have to go by my plan, which she >hated) and was able to cut back 30 minutes each night until we go to this 12- >12:30 time. We are now 10 weeks in to prozac, still on a low dose. > >Thanks for any feedback, >Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2001 Report Share Posted February 9, 2001 In a message dated 02/09/2001 9:36:12 AM Eastern Standard Time, wb4@... writes: << It does sound like Kim has enough people in her life right now!! How about compromising with her? Since she is working so hard at changing her sleep patterns and is willing to work with her present professionals, that things stay the same for now. BUT, if things return to where they were before, she will agree go to the OCD specialist. You might want to put this in a written contract - memories can be very selective!! >> What a great idea Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2001 Report Share Posted February 9, 2001 Lynn, dlsak@... It does sound like Kim has enough people in her life right now!! How about compromising with her? Since she is working so hard at changing her sleep patterns and is willing to work with her present professionals, that things stay the same for now. BUT, if things return to where they were before, she will agree go to the OCD specialist. You might want to put this in a written contract - memories can be very selective!!! In the mean time, if the therapist is willing, perhaps you could attend some sessions where you deal with OCD in your family, and have the therapist instruct you in some basic ERP exercises?? take care, wendy in canadaGet Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2001 Report Share Posted February 9, 2001 Hi Lynn, you wrote: > Oh, also for an update...she is sleeping!!!! Well not exactly what some > parents would consider sleeping normally, but she does fall asleep around > 12:30 now..NOT 4AM...I think this is a BIG improvement and she did this on > her own. She made up a plan ( so as not to have to go by my plan, which she > hated) and was able to cut back 30 minutes each night until we go to this 12- > 12:30 time. We are now 10 weeks in to prozac, still on a low dose. This is so great! Kel turned a corner once we could tame some of the sleep-robbing problems. Everything is so overwhelming when you are chronically exhausted. Congrats to Kim for coming up with a workable plan to address this problem, and congrats to you for being flexible enough to allow your plan to go by the wayside gracefully! :-) I forget how old Kim is, but midnight is a huge improvement over 4 a.m. Kathy R in Indiana Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2001 Report Share Posted February 10, 2001 In a message dated 02/09/2001 9:07:11 PM Eastern Standard Time, klr@... writes: << This is so great! Kel turned a corner once we could tame some of the sleep-robbing problems. Everything is so overwhelming when you are chronically exhausted. Congrats to Kim for coming up with a workable plan to address this problem, and congrats to you for being flexible enough to allow your plan to go by the wayside gracefully! :-) I forget how old Kim is, but midnight is a huge improvement over 4 a.m. >> Thanks Kathy...I already see improvements in other areas just from getting some much needed sleep, as you did with Kel. Certainly my own attitude is improving! Kim is 10 and was never a really early to bed kid, even before the OCD. 12 is not great but she functions pretty well on less sleep than most kids. Now that sleep is getting better, we have to tackle going back to school......oh how i wish this was easy! Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 > When we saw the therapist together > (for half the appt, and then alone with her for the 2nd half) > gave totally non-committal or one word answers. She says she > simply will not miss school anymore and therefore will not need > therapy. However, she spent the beginning of our Christmas vacation > hiding in her room Hi Grace, I don't have any solutions, but thought I'd share that I'm dealing with the same reluctance to see a therapist with my 16-yo . 's issues are different, but the limitations on her life are similar. Because her OCD is triggered by certain people's movements and sounds, she will retreat to her room when she can't " stand it " . This is ok sometimes, but not always possible in school, church, etc. And, I want her to get better! Though I remain calm with her, I am getting SO frustrated! Why can't anyone help her?! I look to her future, and see this bright, talented, sensitive girl becoming a total recluse, not being able to function in society, have a job, or be around people. Anyway, it appears that the psychiatrist was correct when she told me that she didn't know of a therapist (nearby) who dealt with OCD. ( also refuses to miss school, and I have limited time off work for doctor/sick days). I called around and found one who SAID she treated it, convinced she had to go (try it for 5 appointments), and this week is her 4th appointment. (I had met with this therapist initially and had a good feeling about her, though I was desperate too, and agreed to give her a try, even though her diagnosis is " anxiety " and she has done NOTHING with the OCD, and won't tell me anything because of patient confidientiality.) won't say much, but admitted that they haven't talked about the OCD, and are talking about " other things " . I don't think it's a bad thing necessarily, to develop a rapport, or to discuss " other things " . (I know she has teen-age issues, no-dad issues, etc.) I just can't afford to waste my money, time, and my daughter's limited tolerance for counselors, if it isn't going to help this rotten OCD. So, I guess I will put in a call to the therapist, and ask for an update, and relate how badly OCD waxed before Christmas, spoiling much of a little vacation we took. If anyone has any suggestions, I am open... am also accepting prayers. Thanks, Marlys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 Oh Marlys, I hope the therapist is really treating the OCD. We had a therapist who told us the same thing, but she was convinced that conventional talk therapy would work (and that I was too close to my son--made my blood boil). After several sessions, I handed her all my books on ocd. She read them and was more than ready to " try them out " on my son--we opted to say no way. I need someone who has treated ocd, not just wants to " practice " on my son. Good luck to you. (who is tired of wasting time scheduling, driving, and waiting for therapists who say they know OCD and don't have a clue) in Nebraska Re: refusal to see therapist > When we saw the therapist together > (for half the appt, and then alone with her for the 2nd half) > gave totally non-committal or one word answers. She says she > simply will not miss school anymore and therefore will not need > therapy. However, she spent the beginning of our Christmas vacation > hiding in her room Hi Grace, I don't have any solutions, but thought I'd share that I'm dealing with the same reluctance to see a therapist with my 16-yo . 's issues are different, but the limitations on her life are similar. Because her OCD is triggered by certain people's movements and sounds, she will retreat to her room when she can't " stand it " . This is ok sometimes, but not always possible in school, church, etc. And, I want her to get better! Though I remain calm with her, I am getting SO frustrated! Why can't anyone help her?! I look to her future, and see this bright, talented, sensitive girl becoming a total recluse, not being able to function in society, have a job, or be around people. Anyway, it appears that the psychiatrist was correct when she told me that she didn't know of a therapist (nearby) who dealt with OCD. ( also refuses to miss school, and I have limited time off work for doctor/sick days). I called around and found one who SAID she treated it, convinced she had to go (try it for 5 appointments), and this week is her 4th appointment. (I had met with this therapist initially and had a good feeling about her, though I was desperate too, and agreed to give her a try, even though her diagnosis is " anxiety " and she has done NOTHING with the OCD, and won't tell me anything because of patient confidientiality.) won't say much, but admitted that they haven't talked about the OCD, and are talking about " other things " . I don't think it's a bad thing necessarily, to develop a rapport, or to discuss " other things " . (I know she has teen-age issues, no-dad issues, etc.) I just can't afford to waste my money, time, and my daughter's limited tolerance for counselors, if it isn't going to help this rotten OCD. So, I guess I will put in a call to the therapist, and ask for an update, and relate how badly OCD waxed before Christmas, spoiling much of a little vacation we took. If anyone has any suggestions, I am open... am also accepting prayers. Thanks, Marlys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2002 Report Share Posted January 2, 2002 HI Grace: Therapy refusal is so common that it appears to be just a symptom of many mental disorders. When it comes to OCD there can be so many reasons, therapist contaminated, scrupulosity re: not deserving to be helped, limited insight into how OCD is interfering with their functioning leading to almost delusional refusal to get help, etc. etc. BDD often travels along with depression so you may want to get a psychiatric update going if will not participate in psychotherapy or behavior therapy right now. Steve would go through periods of this but nothing quite as tricky as you describe. The worse he got the more willing he became to get therapy so often we just had to wait out the denial periods until worsening symptoms forced him to face the obvious. This can be very upsetting and extremely worrying when you are dealing with comorbid depression. Good luck, take care, aloha, kathy (h) kathyh@... > we've had this problem with our previous therapist, but since she was > too far away to continue seeing during the school year, I let it go. > Since the summer I have been looking for the right therapist, and > finally found her. My daughter (-13) agreed to see her once, but > refuses to see her anymore, or I believe if I do convince her to go > she simply will not communicate. When we saw the therapist together > (for half the appt, and then alone with her for the 2nd half) > gave totally non-committal or one word answers. She says she > simply will not miss school anymore and therefore will not need > therapy. However, she spent the beginning of our Christmas vacation > hiding in her room (my parents are visiting) because she looks like > a " lizard " and her skin needs to get better. This is her version of > BDD in my opinion (which includes rituals like peeling her skin, and > applying make-up for a long time) because her skin really looks fine- > not flawless, but fine, better than many teens with mild breakouts, > in fact. She was also off her medication (minocyclin) for " acne " > prior to the Christmas break b/c the prescription had run out. She > had not had any anxiety related absences for the time she was on it > (since before Thanksgiving). She is back on it now and better again. > I don't know if the minocyclin has some possible therapeutic effect > on her OCD (which may be pandas OCD) beyond treating acne, or if she > imagines (magical thinking) that while she is on it her skin looks > much better, and if she goes off it her skin will look awful, while > to anyone else there is no discernible difference. Anyway, these > questions indicate to me that she still needs therapy, and I need for > her to get therapy, to get some pressure off of me, plus the problem > of me acting as intermediary between her and her dad- their > relationship has totally broken down, and he blames me, and she > blames him. She thinks she does not need therapy, because she does > not have a " disorder " just the problems that anyone would have if no > one liked them, and their skin looked " awful " and they had too much > exhaustion to keep up from day to day. So has anyone else had a teen > who refused therapy? (Needless to say also refuses to see a > psychiatrist, I thought the therapist might be a less threatening > start for her). > P.s just wondering, has Melinda been back here at all? It was her > teen son who refused meds or therapy, I think, and who seemed to have > a possible eating disorder, and/or excercize obsession. > Grace Quote Link to comment Share on other sites More sharing options...
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